Sɛ nhwɛso no, nyarewa bi wɔ hɔ, te sɛ Thalassemia, a ɛsɛ sɛ nnipa a wɔwɔ saa nyarewa no ma mogya daa. Sɛ yɛkɔ so nya mogya wɔ saa kwan yi so a, dade dodow a ɛwɔ yɛn nipadua mu no betumi akɔ soro koraa asen dodow a wɔhwehwɛ. Dade a ɛboro so a ɛboaboa ano wɔ nipadua no mu wɔ saa kwan yi so no betumi asɛe akwaa a ɛho hia te sɛ yɛn koma ne yɛn mmerɛbo. Enti, wɔfrɛ aduru titiriw bi a wɔde yi dade a ɛboro so yi fi nipadua no mu no Deferoxamine. Ɛnnɛ, yɛbɛka aduru yi ho asɛm wɔ nsɛm a ɛnyɛ den mu.
Aduru bɛn na Deferoxamine yɛ?
Sɛ yɛbɛka no tiawa a, Deferoxamine yɛ aduru a ɛyɛ adwuma te sɛ magnet de twetwe dade a ɛboro so wɔ yɛn nipadua mu. Sɛ saa aduru yi hyɛn nipadua no mu a, ɛkyekyere dade nketenkete a ɛboro so no. Afei, yɛn asaabo no fa nsu mu yi dade a wɔakyekyere no yi fi mu. Eyi ma dade a ɛwɔ nipadua no mu no so tew kodu baabi a ahobammɔ wɔ na ɛma akwaa ahorow a ɛsɛe no gyae. Wɔfrɛ eyi sɛ ‘chelation therapy’.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na wode aduru yi adi dwuma
Ansa na wubefi ase anom Deferoxamine no, ɛsɛ sɛ woka nsɛm a edidi so yi kyerɛ wo duruyɛfo, efisɛ ɛsɛ sɛ wohwɛ yiye kɛse bere a wode saa aduru yi redi dwuma wɔ tebea horow yi mu no.
| Wo tebea no | Dɛn nti na ɛsɛ sɛ wobɔ oduruyɛfo no amanneɛ? |
|---|---|
| Asaabo mu yare anaasɛ ɛyɛ den sɛ wobɛtow nsu | Esiane sɛ wɔnam asaabo so yi saa aduru yi fi nipadua no mu nti, ɛho hia sɛ wuhu sɛnea asaabo no yɛ adwuma. |
| Koma mu yare (Koma a entumi nyɛ adwuma yiye) . | Ɛsɛ sɛ oduruyɛfo no hu nea aduru no de ba, efisɛ dade a ɛboro so betumi aka koma no. |
| Mmɛn mu yare | Berɛbo dwumadi ho nimdeɛ ho hia na ama wɔayɛ ayaresa ho nhyehyɛe. |
| Ɔyare mmoawa biara | Ebia aduru yi bɛma nyarewa bi asɛe kɛse. |
| Sɛ woanyinsɛn anaasɛ worebɔ mmɔden sɛ wubenyinsɛn a | Eyi yɛ aduru a ebetumi apira akokoaa no bere a wanyinsɛn, enti ɛho hia yiye sɛ yɛka ho asɛm. |
| Sɛ ɛna bi rema ne ba nufu a | Ɛsɛ sɛ wo ne wo duruyɛfo susuw ho sɛ ebia aduru no nam nufusu so kɔ wo ba no nkyɛn anaasɛ ɛnte saa. |
| Nnuru, nnuan anaa nneɛma afoforo ho akisikuru | Sɛ wo ho nyɛ wo hyew wɔ deferoxamine anaa ade foforo biara ho a, ɛho hia sɛ wuhu eyi ansa na woasa wo yare. |
Ɔkwan bɛn so na wɔde aduru no di dwuma?
Wɔde saa aduru yi ma sɛ aduru a wɔde twitwiw nipadua no mu. Wobetumi de ama wɔ akwan abien so:
1. Kɔ ntini mu: Sɛ́ aduru a wɔde hyɛ ntini mu.
2. Wɔ were ase: Sɛ́ aduru a wɔde twitwiw nipadua no ase.
Wɔtaa de saa vaccine yi ma wɔ ayaresabea anaa ayaresabea. Nanso, ɛtɔ da bi a, wɔkyerɛ ɔyarefo no sɛnea ɔbɛnom aduru no wɔ fie. Wɔ eyi mu no, wɔde pɔmpɛ titiriw bi (infusion pump) na edi dwuma. Wɔnam saa pɔmpɛ yi so de aduru no kɔ nipadua no mu nkakrankakra wɔ nnɔnhwerew pii mu.
Sɛ wode saa aduru yi redi dwuma wɔ fie a, di akwankyerɛ a wo duruyɛfo anaa ɔyarehwɛfo de ama wo no akyi pɛpɛɛpɛ . Nsakra dodow a wɔde ma, bere a wɔde ma, anaa ɔkwan a wɔfa so de ma no.
Nea ɛho hia: Mfa nnade ne syringe a wɔde adi dwuma ngu nwura mu da. Ɛsɛ sɛ wɔde gu ade titiriw bi (akorade a ano yɛ nnam) a wɔde ama mu. Sɛ wunni bi a, bisa wo duruyɛfo anaa ɔyarehwɛfo bi ma ɔmma wo.
Mmere titiriw
- Mmofra nkumaa: Sɛ wɔde ma mmofra nkumaa, titiriw wɔ dodow a ɛdɔɔso na ɛkyɛ a, ebetumi anya abofra no nyin so nkɛntɛnso ketewaa bi. Enti, oduruyɛfo no bɛhwɛ abofra no tenten ne ne mu duru daa.
- Nnipa a wɔadi boro mfe 65: Ebia wɔn a wɔn mfe akɔ anim bɛte aduru yi nkɛntɛnso nka kɛse, enti wɔtaa kyerɛw wɔn dodow a ɛba fam.
Sɛ wonom nnuru pii a, dɛn na ɛba?
Sɛ wususuw sɛ woanom nnuru pii a, mma wo ho nnpopo na yɛ ho biribi ntɛm ara. Ntɛm ara sɛnea ɛbɛyɛ yiye biara.Frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea no. Anaasɛ kɔ ayaresabea a ɛbɛn wo no Emergency Treatment Unit (ETU) .
So ɔhaw ahorow betumi aba wɔ nnuru afoforo ho? (Nkitahodi ahorow) .
Yiw, nnuru bi betumi ne Deferoxamine adi nkitaho. Enti, ɛsɛ sɛ woka nnuru a wonom nyinaa ho asɛm kyerɛ wo duruyɛfo, a vitamin, nhabannuru, ne nnuru a wɔde ka ho ka ho.
- Mfa da: Sɛ worenom aduru yi a, nnom nnuru a wɔde dade ma wɔ biribiara mu . Efisɛ yɛnom saa aduru yi de yi dade a ɛboro so fi nipadua no mu.
- Hwɛ yiye wɔ eyinom ho:
- Vitamin C (Ascorbic acid) a ɛwɔ nipadua no mu no .
- Prochlorperazine (aduru a wɔde ko tia ɔfe) .
- Gallium-67 (ade bi a wɔde di dwuma wɔ scan ahorow bi mu) .
Titiriw sɛ ɛfa vitamin C ho a, mma w’ankasa nnom vitamin C gye sɛ wo duruyɛfo ka kyerɛ wo. Ɛtɔ mmere bi a, wɔkamfo kyerɛ sɛ wɔmfa vitamin C kakraa bi ka deferoxamine ho na ama dade a woyi fi mu no ayɛ adwuma yiye. Nanso ɛsɛ sɛ wɔyɛ eyi wɔ nnuruyɛfo afotu ase nkutoo.
Nneɛma a ɛsɛ sɛ wususuw ho bere a worenom nnuru no
- Nhwehwɛmu a wɔyɛ no daa: W’aduruyɛfo kuw no bɛhwɛ wo yiye wɔ w’ayaresa no nyinaa mu. Ɛho behia sɛ woyɛ wo mogya mu nhwehwɛmu daa.
- Anisoadehu ne aso: Wobetumi ahwɛ w’anisoadehu ne w’aso ansa na wɔayɛ ayaresa ne bere a wɔresa yare no. Sɛ wuhu nsakrae bi wɔ w’ani anaa w’aso mu, anaasɛ wuhu sɛ w’aso rebɔ a, ka kyerɛ wo duruyɛfo ntɛm ara.
- Adwene a ɛyɛ wo yaw: Ebia saa aduru yi bɛma wo ho ayɛ wo yaw anaasɛ wobɛda. Enti, kwati nneɛma a asiane wom te sɛ karka anaa mfiri a wode bedi dwuma kosi sɛ wubehu sɛnea aduru yi ka wo. Sɛnea ɛbɛyɛ a worenhaw wo ho no, sɔre gyina hɔ brɛoo bere a woresɔre afi baabi a wote anaa worefi mpa so no.
- Nsu kɔla: Ebia wo nsu bɛdan kɔla kɔkɔɔ-biribiri bere a worenom aduru yi no. Eyi yɛ ade a ɛfata na ɛnsɛ sɛ ɛyɛ hu.
- Nyinsɛn ne awo ano aduru: Eyi ho hia yiye . Saa aduru yi betumi ama awo mu dɛmdi a emu yɛ den aba akokoaa no mu sɛ wɔnom bere a ɔyem a. Enti, ɛho hia sɛ wɔde awo ano aduru a wotumi de ho to so di dwuma bere a wɔreyɛ ayaresa no ne ɔsram biako bere a wɔagyae ayaresa no akyi. Wo ne wo duruyɛfo nka eyi ho asɛm na paw ɔkwan a ɛfata.
Nsunsuanso bɔne a aduru no de ba
Te sɛ aduru biara no, Deferoxamine betumi anya nkɛntɛnso bɔne. Ebinom yɛ aniberesɛm, bere a afoforo nso abu so.
| Nsunsuanso bɔne | Nkyerɛmu |
|---|---|
| Nsunsuanso bɔne a ɛsɛ sɛ wobɔ wo duruyɛfo amanneɛ ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no hyew | Honam ani akisikuru, ɛyaw, anim, anofafa, tɛkrɛma anaa menewa a ɛho ahonhon. |
| Anisoadehu sesa | Anisoadehu a ɛyɛ kusuu, nsakrae a ɛba kɔla a wohu mu. |
| Aso mu haw ahorow | Aso a ɛyɛ mmerɛw, aso a ɛyɛ dede. |
| Nsɛnkyerɛnne a ɛkyerɛ sɛ obi anya ɔyare mmoawa | Atiridiinini, atiridiinini, ɔfe, menewam yaw. |
| Nsɛnkyerɛnne a ɛkyerɛ sɛ asaabo asɛe | Nsu a ɛba no so tew, nansoaa, nsa, anaa anan a ɛho ahonhon. |
| Mogya mmoroso a ɛba fam | Adwene a ɛyɛ basaa, akisikuru, aniwa a ɛyɛ kusuu. |
| Ɔhome a ɛyɛ den | Ɔhome a ɛyɛ tiaa, ahome a ɛyɛ den. |
| Nsunsuanso bɔne a mpɛn pii no ɛnyɛ aniberesɛm, nanso sɛ ɛkɔ so a, ɛsɛ sɛ wɔbɔ ho amanneɛ kyerɛ oduruyɛfo | |
| Ɛyaw/kɔkɔɔ a ɛyɛ kɔkɔɔ wɔ baabi a wɔde aduru no guu no | Kɔkɔɔ, ɔfe, anaa ɛyaw wɔ baabi a wɔde injection no maa no. |
| Yafunu mu yaw, akisikuru | Yafunu mu yaw, yafunu a ɛyɛ hyew. |
| Adwene a ɛyɛ basaa | Te a wɔte nka sɛ obi adwenem yɛ no naa kakra. |
Nkrasɛm a Wɔde Kɔ Fie
- Deferoxamine yɛ aduru a ɛboa ma woyi dade a ɛboro so fi nipadua no mu denam nsu a wɔde gu mu so.
- Bere nyinaa ka nyarewa foforo biara a wowɔ, nnuru a wonom, ne nneɛma a ɛma wo ho yɛ wo hyew ho asɛm kyerɛ wo duruyɛfo.
- Nnom dade aduru bere a worenom aduru yi. Mfa vitamin C a wunni aduruyɛfo afotu.
- Sɛ wuhu nsakrae biara wɔ w’ani so, w’aso mu, wo ho yɛ wo hyew, anaasɛ ɛyɛ den sɛ wobɛhome a, bɔ wo duruyɛfo amanneɛ ntɛm ara .
- Hwɛ hu sɛ wode awo ano aduru a ɛfata bedi dwuma bere a worenom saa aduru yi ne ɔsram biako bere a woagyae no.
- Sɛ wowɔ nsɛmmisa anaa nsɛm bi a ɛhaw wo a, nsuro da sɛ wo ne wo duruyɛfo besusuw ho.
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