Sɛ wo ba kumaa no wɔ mmerɛbo mu yare bi a wɔfrɛ no PFIC (Progressive Familial Intrahepatic Cholestasis) a, ɛbɛyɛ sɛ woahyɛ no nsow sɛ ɔrebɔ ne nipadua mu bere nyinaa. Ɛtɔ da bi a, ontumi nna mpo, na ɔde ne ho twitwiw ne nipadua kosi sɛ ne honam ani bɛpae. Eyi yɛ osuahu a ɛyɛ yaw na ɛhaw adwene kɛse ma abofra no ne wo nso sɛ ɔwofo. Enti, aduru titiriw bi a nnuruyɛfo kamfo kyerɛ sɛ wɔmfa nni honam ani akisikuru a wontumi nnyina ano yi so ne Odevixibat (aduru din Bylway). Ɛnnɛ, yɛbɛka saa aduru yi ho asɛm, sɛnea wode bɛma wo ba, ne nneɛma a ɛsɛ sɛ wohwɛ yiye wɔ ho.
Aduru bɛn na Odevixibat yɛ?
Sɛ yɛbɛka no tiawa a, Odevixibat yɛ aduru bi a ɛka nnuru bi a wɔfrɛ no Ileal Bile Acid Transporter (IBAT) Inhibitors ho . Susuw ho saa kwan yi so: bile acid, nsu bi a yɛn mmerɛbo yɛ a ɛboa ma yɛyam aduan no san kɔ yɛn dwensɔtwaa mu. Wɔ tebea horow te sɛ PFIC mu no, saa bile yi boaboa ano wɔ nipadua no mu, na ɛma ɛyɛ yaw a wontumi nnyina ano.
Enti nea Odevixibat aduru yi yɛ ne sɛ esiw bile no kwan sɛ ɛnsan nkɔ nipadua no mu mfi dwensɔtwaa mu. Afei mogya a ɛboro so a ɛwɔ nipadua no mu no ne nsu no fi nipadua no mu. Esiane saa adeyɛ yi nti, honam ani yare (pruritus) a wontumi nnyina ano a ɛba bere a PFIC yare no ba no so tew kɛse, na ɛma abofra no ho tɔ no kɛse.
Nneɛma a ɛho hia sen biara a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woafi ase anom nnuru
Ansa na wode Odevixibat bɛma wo ba no, ɛho hia sɛ woka saa nsɛm yi kyerɛ wo duruyɛfo. Eyi ho hia paa ma wo ba no ahobammɔ.
| Nsɛm a ɛsɛ sɛ wode ma | Dɛn nti na ɛho hia? |
|---|---|
| Sɛ wɔabɔ amanneɛ sɛ vitamin A, D, E, anaa K dodow sua a. | Ebia saa aduru yi bɛtew vitamin ahorow a srade wom a wɔtwe no so akodu baabi. Enti, sɛ wo ho nni vitamin dedaw a, ɛsɛ sɛ wo duruyɛfo hu eyi. |
| Sɛ wowɔ Odevixibat anaa aduru anaa aduan foforo biara ho akisikuru a. | Eyi ho hia na ama wɔahu asiane a ɛwɔ hɔ sɛ obi ho bɛtɔ no wɔ aduru no ho na wɔasa no yiye. |
| Sɛ woanyinsɛn, worebɔ mmɔden sɛ wubenyinsɛn, anaa worema nufu a. | Wɔ nsɛm yi mu no, ɛho hia sɛ wo ne oduruyɛfo no susuw ahobammɔ a ɛwɔ aduru no ho na wogyina n’afotu so si gyinae. |
Wobɛyɛ dɛn de saa aduru yi ama abofra?
Eyi yɛ ɔfã a ɛho hia paa. Te sɛnea wɔde aduru no ma no ase pɛpɛɛpɛ.
- Saa aduru yi ba sɛ aduru a wɔde hyɛ nipadua mu, nanso wɔanhyɛ da sɛ wɔbɛmene no nyinaa .
- Kae sɛ wobɛnom w’aduru no bere koro mu da biara , sɛnea wo duruyɛfo akyerɛ wo no. Mpɛn pii no, wɔkamfo kyerɛ sɛ fa anɔpa ka aduan ho.
- Anamɔn 1: Fa ahwɛyiye bue capsule no. Fa pellets no gu mu wɔ aduan a ɛyɛ mmerɛw tablespoon biako anaa abien mu. Sɛ nhwɛso no, wubetumi de yogurt, banana a wɔayam, anaa apɔw-mu-teɛteɛ adi dwuma.
- Anamɔn 2: Sɛ wɔde aduru no ne aduan no fra wie a, ma abofra no mene. Mma abofra no nwe aduru no anaa aduan a wɔde afra no da.
- Anamɔn 3: Mfa aduru yi nfra nsu te sɛ nsu, nufusu, anaa anonne mu esiane biribiara nti.
- Nea ɛho hia: Sɛ wo ba no renom nnuru afoforo (bile acid binding resins) te sɛ Cholestyramine anaa Colesevelam a, ɛsɛ sɛ wɔma Odevixibat nnɔnhwerew 4 ansa na wɔayɛ anaa nnɔnhwerew 4 wɔ ɛno akyi . Bisa wo duruyɛfo ma ɔmma wo akwankyerɛ pɔtee.
- Nnyae aduru no nom kosi sɛ wo duruyɛfo bɛka akyerɛ wo. Wɔakyerɛw saa aduru yi ama wo nkutoo, mma nkyɛ afoforo.
Sɛ wopa dose bi a, mma ɛnhaw wo. Fa dodow a woayera no bere a woakae ara pɛ. Nanso, sɛ ɛkame ayɛ sɛ bere aso sɛ wobɛma wo dodow a edi hɔ no a, twa dodow a woayera no so na fa dodow a edi hɔ no wɔ bere a woahyɛ da ayɛ no mu. Mfa nnuru mmɔho abien da.
Nneɛma a ɛsɛ sɛ wohwɛ yiye wɔ ho bere a worenom nnuru no
- Hwɛ oduruyɛfo no daa: Ɛsɛ sɛ wokɔ oduruyɛfo nkyɛn wɔ nna a wɔahyɛ ato hɔ mu kɔhwɛ sɛnea wo ba no te ne sɛ ebia aduru no reyɛ adwuma anaa.
- Mogya mu Nhwehwɛmu: Bere a wo ba nom aduru yi no, ɛho behia sɛ wɔyɛ mogya mu nhwehwɛmu de hwɛ sɛnea ne mmerɛbo yɛ adwuma ne vitamin dodow a ɔwɔ.
- Vitamin ne Aduandi: Ɛho hia sɛ wohwɛ hu sɛ wo ba no renya vitamin a ohia (titiriw A, D, E, ne K). Wo ne wo ba no duruyɛfo nkasa mfa wo ba no aduan ne vitamin foforo biara ho.
Sɛ wonom nnuru pii a, dɛn na ɛsɛ sɛ woyɛ? (Nnuru a wɔde ma boro so) .
Sɛ wowɔ adwenem naayɛ ketewaa bi sɛ wɔama wo ba no nnuru pii sen sɛnea wususuw a, nsɛe bere na frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea no ntɛm ara. Sɛnea ɛbɛyɛ a, fa wo ba no kɔ ayaresabea a ɛbɛn wo no Emergency Treatment Unit (ETU) .
Dɛn ne nsunsuanso bɔne a ebetumi afi mu aba?
Te sɛ nnuru nyinaa no, eyi betumi anya ɔhaw ahorow. Ɛnyɛ obiara na onya bi, nanso ɛho hia sɛ wohu wɔn.
| Nsunsuanso bɔne | Nkyerɛmu |
|---|---|
| Nsunsuanso bɔne a ɛsɛ sɛ wobɔ wo duruyɛfo amanneɛ ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no yaw | Wora mu akisikuru, ɛyaw, anofafa, anim anaa tɛkrɛma a ɛho ahonhon, ɛyɛ den sɛ wobɛhome. |
| Nsɛnkyerɛnne a Ɛkyerɛ sɛ Mmenewa Apira | Aniwa anaa honam ani yɛ kɔkɔɔ, nsu a ɛyɛ kɔkɔɔ/biribiri tuntum, ɛyaw wɔ yafunu no atifi nifa so, aduan ho akɔnnɔ a ɛyera, ɔbrɛ kɛse. |
| Atiridiinini a emu yɛ den | Nsu a ɛtaa yɛ mmerɛw. |
| Sɛ ɛkɔ so anaasɛ ɛhaw adwene a, ka kyerɛ wo duruyɛfo. | |
| Yafunu mu yaw | Yafunu mu yaw a ɛfata. |
| Ɔfe a wɔfe | Ɔfe a wɔfe. |
Nkrasɛm a Wɔde Kɔ Fie
- Odevixibat yɛ aduru titiriw bi a wɔde siw honam ani yare a emu yɛ den a PFIC yare de ba no ano.
- Mmene, nwe, anaa nsɛe aduru yi. Bue capsule no, fa tablets no fra mu ne aduan a ɛyɛ mmerɛw, na mene a wonwe.
- Hwɛ hu sɛ wobɛka akyerɛ oduruyɛfo no sɛ wo ba no wɔ nyarewa foforo bi, ne ho yɛ no hyew, anaasɛ ɔrenom nnuru foforo biara a.
- Sɛ wuhu sɛnkyerɛnne ahorow a ɛkyerɛ sɛ mmerɛbo asɛe (aniwa/worama a ɛyɛ kɔkɔɔ, nsu a ɛyɛ tuntum), akisikuru a emu yɛ den, anaasɛ wo ho yɛ wo hyew a, kɔ wo duruyɛfo nkyɛn ntɛm ara.
- Sɛ wowɔ nsɛmmisa bi fa aduru no ho a, nsuro sɛ wo ne wo duruyɛfo bɛkasa. Mma wunnyina nsusuwii hunu so nyɛ aduru.
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