Yala aw den kɔnɔbara fari bɛ kurukuru wa? An ka kuma Prune Belly Syndrome kan

Yala aw delila ka aw den bangenen kura kɔnɔbara lajɛ k’a kɔlɔsi ko a fari bɛ kurukuru kosɛbɛ, i n’a fɔ jiriden jalen wa? Walima a bɛ kɛ i n’a fɔ a barika ka dɔgɔ kosɛbɛ ani farisogo si tɛ a la wa? A bɛnnen don i ka siran i n’a fɔ ba ni i ye nin ɲɔgɔnna fɛnw ye. Nka o bɛ se ka kɛ bangekɔlɔsi fɛɛrɛ dɔ taamasiɲɛ ye min man ca kosɛbɛ nka a ka jugu kosɛbɛ, n’o bɛ wele ko Prune Belly Syndrome. Bi, an bɛna kuma o kan cogo nɔgɔman na, aw bɛ se ka min faamu.

Prune kɔnɔbara basigilen ye mun ye?

N’an y’a fɔ cogo nɔgɔman na, Prune Belly Syndrome ye bana ye min man ca kosɛbɛ, a bɛ sɔrɔ bange waati. A bɛ fɔ a ma fana ko Eagle-Barrett syndrome. "Prune" ye jiriden ye min bɛ i n'a fɔ rɛzɛn jalen walima prune. O tɔgɔ in Bɔra a la k'a sababu Kɛ o denmisɛnnin ninnu ye kurukuru ye u kɔnɔbara la.

Nin bana in taamasiɲɛba saba bɛ a la, o de y’a to a bɛ wele tuma dɔw la ko “syndrome triad”.

1. Kɔnɔbara fasaw tɛ yen walima u barika ka dɔgɔ kosɛbɛ: O de ye kɛnɛma taamasiɲɛba ye. Kɔnɔbara fasaw tɛ yiriwa ka ɲɛ, o bɛ kɛ sababu ye fari min bɛ kɔnɔbara kan, o bɛ kɛ i n’a fɔ a bɛ sɔgɔsɔgɔ ani ka kurukuru.

2. Ɲɛgɛnɛsiraw minnu tɛ jigin : Nin bana in bɛ cɛdenw de minɛ kosɛbɛ. U ka cɛya bɛ to kɔnɔbara kɔnɔ, sanni u ka jigin ka don cɛya la.

3. Sugunɛbilenni ni sugunɛbaralabana gɛlɛyaw: Nin ye bana in gɛlɛya jugumanba ye. Sugunɛ bɛ bonya kosɛbɛ, o bɛ gɛlɛyabaw lase sugunɛbaralabana ma.

Nin sugunɛbaralabana gɛlɛyaw bɛ den bali ka sugunɛbaralabana, sugunɛbaralabana, ani tubabufura minnu bɛ sugunɛ ta ka bɔ sugunɛ na ka taa sugunɛbara la (sunɔgɔla) la pewu.

Prune Belly Syndrome fana bɛ se ka bangekɔlɔsi fɛɛrɛ wɛrɛw lase mɔgɔ ma. Olu dɔw ye fiɲɛw ye fogonfogon, dusukun, banakɔtaa ani kolotugudaw la. Hali ni bana in man teli ka npogotigininw minɛ, 95% bɛ sɔrɔ cɛdenw na.

Mun na o bɛ ka kɛ? O kunw ye mun ye?

Tiɲɛ na, dɔgɔtɔrɔw ma se ka Prune Belly Syndrome sababu jɛlen sɔrɔ fɔlɔ, nka hakilina caman bɛ yen minnu b’a jira ko a bɛ se ka kɛ a sababu ye.

• Hakilina fɔlɔ:Ni den bɛ ka bonya kɔnɔbara la, a bɛ miiri ko da tugulen don sugunɛ walima sugunɛbara la. O bɛ sugunɛ bali ka bɔ fari la, o bɛ kɛ sababu ye ka sugunɛbaralabana, sugunɛbaralabana ani sugunɛbara bonya. Ni sugunɛba bonyana kojugu, a bɛ degun min lase kɔnɔbara fasaw ma, o bɛ kɔnɔbara fasaw bali ka bonya ani ka cɛyajiw bali ka jigin.
• Hakilila filanan : Ikomi kɔnɔbara fasaw tɛ yiriwa ka ɲɛ, a ka gɛlɛn den ma ka koli kɛ. O bɛ kɛ sababu ye ka sugunɛbara funu, ka banakisɛw ni gɛlɛyaw lase mɔgɔ ma.
• Hakilina sabanan : Laala nin farikolo fanga dɔgɔyali ni sugunɛ gɛlɛyaw bɛ ɲɔgɔn na, wa a bɛ se ka kɛ sababu dɔ bɛ yen an tɛ min dɔn hali bi (misali la, farikolojidɛsɛ dɔ).

Ikomi kunnafoni caman bɔra nin bana in kan min bɛ kɛ balimakɛw la denbaya kelen kɔnɔ, ɲininiw fana bɛ ka kɛ walasa k’a dɔn ni jamu bɛ tali kɛ o la.

Nin bana in taamasiɲɛw ye jumɛnw ye?

A taamasiɲɛw cogoya ni u juguya bɛ se ka ɲɔgɔn ta den ni den cɛ, Prune Belly Syndrome bɛ u la. Nka, taamasiɲɛ dɔw bɛ yen minnu ka teli ka ye. Aw ye tabali lajɛ min bɛ duguma.

Ka fara o kan, den dɔw fana bɛ se ka kɛ ni senkɔni ye, o ye bana ye min na sen bɛ bange ni sen bɛ wuli ka taa kɔnɔna na, ani kɔkolo bifida , bangekɔlɔsi fɛɛrɛ min na kɔkolo nɛrɛmuguma tɛ yiriwa ka ɲɛ.

O bana in bɛ se ka dɔn cogo di?

A ka ca a la, dɔgɔtɔrɔw bɛ se ka nin bana in dɔn ultrasound scan kɛtuma na i kɔnɔmaya waati. Ni o tɛ, o taamasiɲɛw bɛna ye ka jɛya dɔgɔtɔrɔso lajɛ fɔlɔ senfɛ den bangenen kɔfɛ.

Aw ka dɔgɔtɔrɔ bɛ se ka sɛgɛsɛgɛli caman kɛ walasa ka bana in sɛgɛsɛgɛ ani ka bana juguya tigitigi dɔn.

• Ultrasound Scan : O bɛ dɛmɛ ka sugunɛ ni sugunɛbaralabana yɔrɔ wɛrɛw cogoya ye.
• X-ray sɛgɛsɛgɛliw: X-ray suguya fila bɛ yen minnu bɛ kɛ ni kala kɛrɛnkɛrɛnnen ye walasa ka pikiri kɛ farikolo la. Kelen ye jolisira fɛ piyelogramme (IVP) ye, tɔ kelen ye voiding cystourethrogramme (VCUG) ye. Olu bɛ se ka sugunɛ datugucogo ni gɛlɛyaw jira ka jɛya.
• Joli sɛgɛsɛgɛliw: Nin sɛgɛsɛgɛliw bɛ dɛmɛ k’a dɔn den sugunɛ bɛ baara kɛ cogo min na.

Furakɛliw ye jumɛnw ye?

Ikomi Prune Belly Syndrome taamasiɲɛw ni a juguya tɛ kelen ye, furakɛli suguya caman bɛ yen. Dɔgɔtɔrɔ bɛna furakɛli min bɛnnen don kosɛbɛ, o latigɛ ka kɛɲɛ ni den ka bana ye. Tuma caman na, opereli caman ka kan ka kɛ.

Den ka siniɲɛsigi bɛna kɛ cogo di? (Pronostic) (Kɔrɔfɔcogo) .

A ka gɛlɛn ka jaabi kelen di nin ɲininkali in ma, barisa den ka siniɲɛsigi bɛ bɔ bana juguya, den si hakɛ, ani u ka kɛnɛya bɛɛ lajɛlen na.

Nka hali ni furakɛli kɛra, denmisɛn dɔw bɛ se ka sugunɛbaralabana sɔrɔ . Sugunɛ dɛsɛ ye ni sugunɛw bɛ bɔnɛ u ka baara la 85-90% ɲɔgɔn, fo ka se a dan na, u tɛ se ka baara kɛ ka ɲɛ tuguni. O kɔ, fɛnɲɛnamafagalanw ni ji wɛrɛ bɛ dalajɛ farikolo la, o bɛ den bana kosɛbɛ. A taamasiɲɛw ye sɛgɛn, dumunikɛbaliya, nɛ, ani senw fununi.

Ni sugunɛw ma ɲɛ, furakɛli ye diyalizi walima sugunɛ cili ye .

A laban na, ni aw bɛ sigasiga hali dɔɔnin ko aw den bɛ nin taamasiɲɛ ninnu dɔ jira, aw bɛ taa dɔgɔtɔrɔso la joona . Ni aw ye bana sɛgɛsɛgɛ joona ani ka furakɛli bɛnnen daminɛ, o bɛ se ka kɛ sababu ye ka den ka ɲɛtaa ɲuman sɔrɔ.