Ne Beta Thalassemia le wò alo viwò ŋu la, míenya alesi gbegbe agbea ate ŋu asesẽe. Ele be woado ʋu na ame edziedzi kple agbenɔnɔ kple kuxi siwo dona tso eme mele bɔbɔe o. Gake egbea, esi atikeŋutinunya le ŋgɔ yim ta la, míele nu ƒom tso atikewɔwɔmɔnu aɖe si ate ŋu ada dɔléle sia keŋkeŋ ŋu. Emae nye lãmenugbagbeviwo dodo na ame, alo abe alesi ame geɖe nyae ene la, ``Stem Cell Transplant''.
Kpuie ko la, nukae nye lãmenugbagbeviwo dodo na ame?
Mina míase esia gɔme bɔbɔe ŋutɔ. Tsɔe be ʋuwɔƒe aɖe le míaƒe ŋutilã si. Míeyɔa esia be ƒumeŋuɖui . Esiae nye akpa si le abe ƒumeŋuɖui ene le míaƒe ƒu gãwo me. Le thalassemia me la, nusi dzɔna enye be mɔ̃ (lãmenugbagbevi) aɖewo siwo le dɔwɔƒe sia, si nye ƒumeŋuɖui me, mewɔa dɔ nyuie o. Eyata womewɔa ʋumenugbagbevi dzĩ nyui siwo le lãmesẽ me wòsɔ gbɔ o.
Le lãmenugbagbeviwo dodo na ame me la, woɖea wò ŋutilã ƒe ƒumeŋuɖui siwo mewɔa dɔ nyuie o la ɖa eye wotsɔa ʋumenugbagbevi dzĩwo (Hematopoietic Stem Cells) siwo tso ame si le lãmesẽ me gbɔ ɖoa wo teƒe. Lãmenugbagbevi yeye siawo le abe dɔwɔƒe yeye ene. Woyia wò ƒumeŋuɖui gbɔ eye wodzea ʋumenugbagbevi dzĩ siwo le lãmesẽ me wɔwɔ gɔme.
Eyae nye be ele abe mɔ̃ xoxo siwo mewɔa dɔ o ɖeɖeɖa, mɔ̃ yeye aɖewo dede eme, eye wogadze dɔwɔƒea gɔme ake ene.
Aleke amedodo ƒe ɖoɖo sia dzɔnae?
Esia dzɔna le afɔɖeɖe geɖe me.
Hafi woadoe ɖe teƒe bubu
Gbã la, ele be nàtsrɔ̃ ƒumeŋuɖui xoxo siwo mewɔa dɔ nyuie o le wò ŋutilã me. Ema tae atikewɔmɔnuwo nye. Nya "chemo" ateŋu ado vɔvɔ̃ na ame aɖewo, gake le afisia la, wozãnɛ tsɔ naa teƒe le ƒumeŋuɖui me be lãmenugbagbevi yeye siwo le lãmesẽ me nage ɖe eme eye woanɔ anyi. Ele abe gbe xoxoawo katã ɖeɖeɖa kple anyigba la dzadzraɖo hafi do wo ene.
Le ame ƒe ŋutilã dodo na ame me
Esia menye amekoko gã aɖeke abe alesi nàsusui ene o. Ðeko wòle abe ʋu nana ene. Wodoa lãmenugbagbevi siwo tso nunala aɖe gbɔ ɖe wò ŋutilã me to aŋetu (catheter) si wotsɔ dea wò akɔta me. Lãmenugbagbevi siawo zɔa mɔ to wò ʋukawo me, dia woƒe nɔƒe le ƒumeŋuɖui me, eye wova nɔa afima. Ema ko hafi wodzea ʋumenugbagbevi siwo le lãmesẽ me wɔwɔ gɔme.
Afikae míekpɔa lãmenugbagbevi siawo tsoe?
Esiae nye atikewɔwɔ sia ƒe akpa vevitɔ kple esi sesẽ wu. Míate ŋu axɔ lãmenugbagbeviwo le ame aɖeke ɖeɖeko si o. Ele be domenyiŋusẽfianu ƒe sɔsɔ si le nunala kple amesi xɔe dome nasɔ gbɔ ŋutɔ.
- Hoʋiʋli nyuitɔ kekeake:Ame si ana esia nyuie wue nye dɔnɔa nɔviŋutsu alo nɔvianyɔnu . Anɔ eme be domenyiŋusẽfianu si sɔ nyuie wu le wo si.
- Tiatia bubuwo: Gake mègana mɔkpɔkpɔ be mèkpɔ nɔvi si sɔ kple tɔwò o. Mɔnukpɔkpɔwo li be nàke ɖe domenyiŋusẽfianu si sɔ kplii ŋu to dukɔwo dome nunala ƒe ŋkɔwo ŋɔŋlɔ ƒe dɔwɔƒewo dzi, ne mènye ƒometɔ o gɔ̃ hã. Esia ate ŋu axɔ ɣeyiɣi geɖe.
Afɔku kawoe le atikewɔwɔ sia me?
Abe alesi wòle le atikewɔwɔ gã ɖesiaɖe gome ene la, afɔku aɖewo li. Ele vevie be nàdzro nusiawo me kple wò ɖɔkta gaglãa.
| Ŋɔdzi | Numeɖeɖe bɔbɔe |
|---|---|
| Ŋutinuwo ƒe gbegblẽ | Ne iron ƒe agbɔsɔsɔ si le ŋutilãa me dzi ɖe edzi le ʋudodo enuenu ta eye ŋutinuwo abe dzi kple aklã ene gblẽ la, afɔkua ate ŋu adzi ɖe edzi wu le ʋudodo vɔ megbe. Esia tae wòle vevie be woawɔ chelation dɔdamɔnua nyuie hafi woado ame bubu na ame ɖo. |
| Dɔléle si nye Graft versus Host (GVHD) . | Nusi dzɔna le nɔnɔme sia mee nye be nunala ƒe lãmenugbagbevi siwo wotsɔ va ŋutilãa me yeyee la dea dzesi dɔnɔa ƒe ŋutilã be enye ‘futɔ’ eye wodzea edzi. Atikewo li woatsɔ aɖu esia dzi. |
| Dɔlékuiwo | Atike siwo wozãna tsɔ léa GVHD nu kple atike siwo wozãna hafi wodoa lãme na ame la ɖea ŋutilãa ƒe dɔlélenutsiŋutete dzi kpɔtɔna. Esia wɔnɛ be anɔ eme be dɔlékuiwo ƒe dɔlélewo adze dziwò. Gake ɖɔktawo aŋlɔ atikewo abe dɔlékuiwutikewo ene be woatsɔ axe mɔ ɖe esia nu le ɣeyiɣi sia me. |
Vevietɔ la, dɔdamɔnu sia ate ŋu akpɔ dzidzedze le sɔhɛwo gome, vevietɔ ɖevi siwo mexɔ ƒe 14 haɖe o. Azɔ hã, zi alesi ŋutilãa ƒe ŋutinuwo megblẽna boo hafi wodoa wo o la, zi nenemae emetsonuwo nyona ɖe edzii.
Nusiwo ate ŋu ado tso eme le atikewɔwɔ vɔ megbe
Ɣeyiɣi kpui aɖe kple ɣeyiɣi didi ƒe nugbegblẽ le ame ŋu geɖe li siwo ate ŋu ado mo ɖa le ame ƒe ŋutilã dodo vɔ megbe.
Nu vevitɔ kekeakee nye ŋusẽ si wòkpɔna ɖe vidzidzi ƒe ŋutete dzi (Vidzidzi) . Atikewɔmɔnu gbogbo siwo wodona hafi wodoa azigolo na ame ate ŋu agblẽ nu le nyɔnuwo ƒe azigolowo ŋu eye wòagblẽ nu le ŋutsuwo ƒe tsinyenye ƒe wɔwɔme ŋu. Gake esia hã gbɔ kpɔnuwo li fifia. Ŋutsuwo ateŋu akpɔ woƒe tsinyenye ta eye nyɔnuwo ateŋu akpɔ woƒe aziwo ta (tsinyenye/azi ƒe tsikpe me nɔnɔ) hafi woawɔ atike na wo. Ele vevie be nàƒo nu tso esia ŋu kple wò ɖɔkta do ŋgɔ eye nàxɔ aɖaŋuɖoɖo.
Tsɔ kpe ɖe eŋu la, nusiwo gbɔna ate ŋu adzɔ le amedodo vɔ megbe kpuie:
- Nu alo ŋɔti me vevesese
- Aɖuɖɔtoe kple ʋuʋudedi
- Ʋu ƒe dodo alo abi ƒe ƒoƒo
- Aɖuɖɔtoewo ƒe vuvu
Exɔa abe kwasiɖa 2 va ɖo 6 ene hafi lãmenugbagbevi siawo te ŋu zɔa mɔ yia ƒumeŋuɖui me, dzea dɔwɔwɔ gɔme, eye wogbugbɔa lãmenugbagbevi siwo le wò ʋu me ƒe xexlẽme ɖoa nɔnɔme nyuitɔ me. Atikewɔlawo ƒe ƒuƒoƒoa alé ŋku ɖe ŋuwò nyuie ŋutɔ le ɣeyiɣi sia me. Eyata naneke meli si ŋu woatsi dzi ɖo o.
Gbedasi si Wotsɔ Yi Aƒeme
- Lãmenugbagbeviwo dodo na ame nye atike si ate ŋu ada beta thalassemia keŋkeŋ, gake mesɔ na amesiame o.
- Esia bia be woatsɔ lãmenugbagbevi siwo wokpɔ tso nunala si le lãmesẽ me gbɔ aɖɔli ƒumeŋuɖui me lãmenugbagbevi siwo ŋu dɔléle le.
- Nunala si sɔ wue nye dɔnɔa nɔviŋutsu alo nɔvianyɔnu, gake woate ŋu ake ɖe nunala bubuwo hã ŋu.
- Esi wònye be afɔku kple nugbegblẽ le ame ŋu li ta la, ele vevie be nàdzro akpaawo katã me nyuie kple wò ɖɔkta hafi atso nya me le atikewɔwɔ sia ŋu.
- Dɔdamɔnu siawo le nyonyom ɖe edzi ɣesiaɣi, eyata nɔ mɔkpɔkpɔ me na etsɔme.
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