Ðe nèfɔna ɣeaɖewoɣi le ŋdi me eye nèsena le ɖokuiwò me be ŋusẽ aɖeke megale ye ŋu oa? Ne èdɔ alɔ̃ nyuie gaƒoƒo geɖe le zã me hã la, ɖe ɖeɖi tea ŋuwò kokoko abe ɖe nèwɔ dɔ geɖe ŋkeke bliboa enea? Ne èse le ɖokuiwò me be yeƒe ŋutilã bliboa le veve sem eye màte ŋu atsɔ susu aɖo dɔ sue aɖe, abe aƒea me dzadzraɖo alo fiase me yiyi ene, gɔ̃ hã wɔwɔ vɔ megbe o la, ekema ele be nàxlẽ nyati sia. Ðewohĩ menye ɖeko ɖeɖi te ŋuwò o. Egbea míele nu ƒom tso nɔnɔme aɖe si ame geɖe menya o, gake ekpɔa ŋusẽ gã aɖe ɖe woƒe agbenɔnɔ dzi ŋu.
Kpuie ko la, nukae nye Ðeɖiteameŋu ƒe Dɔléle (ME/CFS)?
Togbɔ be ŋkɔ didi si nye `(Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)` sesẽ vie hã la, míeyɔnɛ be Chronic Fatigue Syndrome `(Chronic Fatigue Syndrome)` alo `(ME/CFS)` kpuie. Kpuie ko la, enye nɔnɔme si nɔa anyi didi, si fia be enɔa anyi didi. Dzesi vevitɔ kple esi nu sẽ wue nye ɖeɖiteameŋu si mebɔ o, si nu sẽ ŋutɔ.
Bu eŋu kpɔ, menye ɖeɖiteameŋu si míesena le mía ɖokui me le fiẽ me le ŋkeke bliboa ƒe dɔwɔwɔ vɔ megbe koe nye esia o. Esia goglo wu ema sãsãsã. Ðeɖiteameŋu sia nu yina eɖanye aleke kee míegbɔ ɖe eme alo alɔ̃ alɔ̃ o. Ele abe wò fon la xɔ charge 100% ene, gake eɖiɖi va ɖo 10% le miniti ewo me. Aleke kee míeɖagbɔ ɖe emee o, ɖeɖiteameŋu ma nu yina o.
Nu tɔxɛ bubu si ɖe dzesi le nɔnɔme sia ŋue nye be egblẽna ɖe edzi le ŋutilã alo susu me kutrikuku vi aɖe megbe. Míeyɔa esia be `post-exertional malaise`. Esia fia be ne èwɔ dɔ vi aɖe gɔ̃ hã la, ate ŋu asesẽ na wò be nàfɔ tso aba dzi ŋkeke geɖe le esia megbe. Esia wɔnɛ be esesẽna na ame aɖewo be woawɔ woƒe gbesiagbedɔwo, ayi dɔme, alo ayi suku gɔ̃ hã.
Nukawoe nye nɔnɔme sia ƒe dzesi veviwo?
ME/CFS ƒe dzesiwo ate ŋu ato vovo ŋutɔ tso ame ɖeka gbɔ yi bubu gbɔ. Dzesiawo ƒe sesẽ hã ate ŋu ato vovo tso ŋkeke yi ŋkeke. Ŋkeke aɖewo la, àte ŋu ase le ɖokuiwò me be yeƒe lãme sẽ vie, gake le ŋufɔke la, ɖewohĩ màte ŋu afɔ tso aba dzi o. Mina míalé ŋku ɖe dzesi veviawo ŋu.
| Dzesi si dzena | Aleke esia se le eɖokui me? |
|---|---|
| Nu vevi siwo le eme | |
| Ðeɖiteameŋu/ɖeɖiteameŋu si gbɔ eme | Esiae nye dzesi vevitɔ. Ðeɖiteameŋu sia nu yina ne wogbɔ ɖe eme alo dɔ alɔ̃ nyuie gɔ̃ hã. Nɔnɔme sia nɔa anyi wu ɣleti 6. |
| Alɔ̃dɔdɔ ƒe kuxiwo | Ðewohĩ màte ŋu adɔ alɔ̃ le zã me o, alo àte ŋu anyɔ enuenu. Ne èfɔ le ŋdi me gɔ̃ hã la, mèsena le ɖokuiwò me be yeƒe dzi dze eme abe ɖe nèdɔ alɔ̃ ene o. |
| Dɔmawɔmawɔ Le Kamedede Megbe | Ŋutilã alo susu me dɔ suewo wɔwɔ gɔ̃ hã (e.g. agbalẽ xexlẽ, azɔlizɔzɔ kpuie) ate ŋu ana dzesiawo nagblẽ ɖe edzi ŋutɔ. |
| Tamebubu kple ŋkuɖoɖonudzi ƒe kuxiwo | Wogayɔa esia be "ahɔhɔ̃ ƒe afu." Ðeko wòle abe afu aɖe le ta me ene. Màte ŋu atsɔ susu aɖo nu ŋu o, màte ŋu aɖo ŋku nusi nèxlẽ dzi o, eye nèsena le ɖokuiwò me be yeƒe nyawo mele dodom o. |
| Dzesi bubu siwo bɔ | |
| Vevesese | Taɖuame, lãmekawo ƒe vevesese, kple ƒunukpeƒeveame (si me vuvu mele o) bɔ. |
| Taɖuame kple alɔ̃madɔmadɔ | Ne ètsi tre alo fɔ tso anyinɔƒe la, wò ta ate ŋu atɔ eye wò ŋkuwo ate ŋu azu blɔ. |
| Ŋutilã ƒe nɔnɔme bubuwo | IBS ƒe dzesiwo abe lãkusiwo ƒe vuvu, vuvɔ, fifia le zã me, asiwo kple afɔwo ƒe ʋuʋu, dɔgbo ƒe veve, ʋuʋudedi, kple ŋku ƒe kuxiwo hã ate ŋu ado mo ɖa. |
| Susu kple seselelãme ƒe ŋusẽkpɔɖeamedziwo | Dɔléle ɣesiaɣi ate ŋu ahe nɔnɔmewo abe dzimaɖitsitsi, dzikudodo, kple blanuiléle ene vɛ. |
Nukatae nane si le abe esia ene dzɔna? Nukawoe nye susu siwo tae?
Le nyateƒe me la, ɖɔktawo menya nusi tututu hea ME/CFS vɛ haɖe o. Woxɔe se fifia be menye nu ɖeka aɖe gbɔe wòtso o, ke boŋ nu vovovowo ƒo ƒu gbɔe wòtso. Nusiwo ŋu numekukuwo ke ɖo dometɔ aɖewoe nye esi:
- Tɔtrɔ siwo vaa dɔlélenutsiŋutete me: Dɔlélenutsiŋutete, si kpɔa míaƒe ŋutilã ta tso dɔléle me, ate ŋu adzo vie ɣeaɖewoɣi. Abe alesi wòle le dɔlélenutsiŋutete ƒe nɔnɔme aɖewo me ene la, dɔlélenutsiŋutete ate ŋu adze mía ŋutɔwo ƒe lãmenugbagbevi nyuiwo dzi vodadatɔe.
- Kuxi Siwo Le Ŋusẽwɔwɔ Ŋu: Lãmenugbagbeviwoe nye nu suetɔ kekeake siwo le míaƒe ŋutilã me. Lãmenugbagbevi siawo mete ŋu trɔa nuɖuɖu si míeɖuna wòzua ŋusẽ nyuie o. Esia wɔe be ŋusẽ mesɔ gbɔ na míaƒe ahɔhɔ̃ kple lãmekawo be woawɔ dɔ o.
- Domenyiŋusẽfianu: Nɔnɔme sia te ŋu dzɔna le ƒomewo me. Wosusu be domenyiŋusẽfianu aɖe le eme, gake womede dzesi domenyiŋusẽfianu aɖeke koŋ o.
Ɣeaɖewoɣi la, nɔnɔme sia ate ŋu ado mo ɖa le nudzɔdzɔ aɖe megbe. Míeyɔa esiawo be ‘nu siwo ʋãa ame’.
Le kpɔɖeŋu me:
- Dɔlékui ƒe dɔléle: Esia ate ŋu adze egɔme le dɔlékui ƒe dɔléle abe Epstein-Barr dɔlékui (dɔlékui si hea koklozi) kple Ross River dɔlékui megbe. Nyitsɔ laa la, wokpɔe be ame aɖewo siwo ŋu COVID-19 le hã toa ɖeɖiteameŋu sia ƒomevi si nɔa anyi didi.
- Susu alo ŋutilã me nuteɖeamedzi sesẽ: Dzesi siawo ate ŋu adze le nudzɔdzɔ aɖe abe amekoko gã, afɔku, alo ame vevi aɖe ƒe ku megbe hã.
Aleke ɖɔkta awɔ anya esia?
Ne dzesi siawo le ŋuwò la, nu gbãtɔ si wòle be nàwɔe nye be nàkpɔ wò ɖɔkta. Gake ɖo ŋku edzi be ʋudodokpɔ alo ʋudodokpɔ ɖeka aɖeke meli si ate ŋu anya ME/CFS o.
Eyata, ɖɔktaa akpɔ egbɔ be dɔléle bubu aɖeke megali o. Nɔnɔme bubuwo li siwo ate ŋu ahe dzesiwo abe esia ene vɛ. Le kpɔɖeŋu me, thyroid kuxiwo, suklidɔ, ʋusɔgbɔdɔ, kple bubuawo Eyata, ɖɔkta la abia tso asiwò be nàwɔ ʋudodokpɔ, aɖuɖɔtoetetedɔ, kple bubuawo.
Le nusiwo katã wowɔ vɔ megbe, eye woɖo kpe edzi be dɔléle bubu aɖeke meli o, eye wò dzesiwo sɔ kple `ME/CFS` tɔ la, ekema wowɔa dɔléle sia didi. Nya siwo gbɔna koŋue woléa ŋku ɖo:
- Ðe ɖeɖiteameŋu sesẽ aɖe le ŋuwò si nɔa anyi wu ɣleti 6 eye ɖiɖiɖeme meɖea fu na wò oa?
- Ðe wò ŋutilã sena le eɖokui me be agbe mele ye si le alɔ̃dɔdɔ megbe gɔ̃ hã?
- Ðe dzesiawo nu sẽna ɖe edzi le agbagbadzedze vɔ megbea?
- Ðe ``orthostatic intolerance'' ƒe dzesiwo abe ahɔhɔ̃ me fuɖename alo taɖuame ne èle tsitrenu ene le ŋuwòa?
Ate ŋu axɔ ɣeyiɣi aɖe hafi woakpɔ dɔlélea. Ele be nàwɔ dodokpɔ geɖe. Ate ŋu agbɔ eme, elabena èle nɔnɔme sesẽ aɖe me xoxo. Gake dɔlélea didi nye afɔɖeɖe gbãtɔ kple vevitɔ kekeake si ana nàkpɔ atike nyuitɔ na wò.
Aleke woawɔ adae? Aleke míawɔ ana agbea nanɔ bɔbɔe wu?
Enye nyateƒe be atike aɖeke meli na esia haɖe o. Gake ema mefia be kpekpeɖeŋu aɖeke meli na wò o. Mɔ geɖe li siwo dzi nàto akpɔ wò dzesiwo gbɔ eye nàna agbea nanɔ bɔbɔe wu. Atikewɔwɔ ƒe ɖoɖoa to vovo na ame ɖesiaɖe. Wò ɖɔkta atia esiwo anyo na wò.
Nu vevi siwo ŋu wòle be míalé fɔ ɖoe nye:
- Dɔwɔna Siwo Wowɔna le Afɔdzidede Me: Esiae nye nu vevitɔ kekeake. Kpuie ko la, wò "ŋusẽ ƒe seɖoƒe" gɔmesese kple dɔwɔwɔ le seɖoƒe ma me. Gbɔɖeme hafi "wòaɖe tsi keŋkeŋ." Le kpɔɖeŋu me, le esi teƒe be nàdzra aƒea me ɖo ŋkeke bliboa katã la, kɔ xɔ ɖeka ko ŋu eye nàɖi ɖe eme geɖe. Wò ɖɔkta akpe ɖe ŋuwò nàkpɔ esia gbɔ nyuie.
- Alɔ̃dɔdɔ ƒe nɔnɔmewo tɔtrɔ: Ne èzu numame na wò be nàmlɔ anyi le ɣeyiɣi ɖeka me gbesiagbe, afɔ le ɣeyiɣi ɖeka me, nàƒo asa na alɔ̃dɔdɔ didi le ŋkekea me, eye nàdzudzɔ television kple telefon kpɔkpɔ hafi amlɔ anyi ate ŋu ana wò alɔ̃dɔdɔ nanyo ɖe edzi.
- Atikewɔwɔ: Togbɔ be atike aɖeke meli koŋ na ME/CFS o hã la, woate ŋu ada dzesi siwo do ƒome kplii. Le kpɔɖeŋu me, wò ɖɔkta ate ŋu aŋlɔ vevesesenutsitikewo na wò le vevesese ta, alɔ̃dɔtikewo na alɔ̃dɔdɔ ƒe kuxiwo, kple blanuilélenutsitikewo na wò.
- Susu ƒe lãmesẽ ƒe kpekpeɖeŋu: Agbenɔnɔ kple dɔléle si nɔa anyi didi abe esia ene ate ŋu anye susu me kuxi. Eyata be wòakpe ɖe ŋuwò nàtrɔ ɖe agbenɔnɔ yeye sia ŋu la, wò ɖɔkta ate ŋu aɖo wò ɖe susumedɔdamɔnu, vevietɔ Sidzedze ƒe Nuwɔna Ŋuti Dɔdamɔnu (CBT). Esia kpena ɖe ŋuwò nèɖua dɔlélea ƒe nuteɖeamedzi dzi.
Nu vevitɔ kekeakee nye be mehiã be wò ɖeka nàwɔ avu kple nusiawo o. Di kpekpeɖeŋu tso wò ɖɔkta, ƒometɔwo, kple xɔlɔ̃wo gbɔ.
Aleke agbea ayi ŋgɔe le nɔnɔme sia me?
ME/CFS menye ɖeka na amesiame o. Le ame aɖewo gome la, dzesiawo ate ŋu anyo ɖe edzi vivivi le ɣeyiɣi aɖe megbe. Gake le ame bubuwo gome la, dzesiawo ate ŋu anɔ anyi eteƒe nadidi. Ƒã hafi amewo haya tso dɔlélea me keŋkeŋ.
Nukpɔsusu vovovowo li ku ɖe nenye be nɔnɔme sia nana ame ƒe agbenɔƒe nɔa kpuie ŋu. Ame aɖewo nɔa agbe si sɔ. Ke hã, numekukuwo ɖee fia be ame aɖewo le afɔku me be woawu wo ɖokui le nuteɖeamedzi kple agbenɔnɔ ƒe tɔtrɔ siwo dona tso eme ta. Eyata beléle na wò susu ƒe lãmesẽ le vevie ŋutɔ. Ne èle sesem le ɖokuiwò me be nu te ɖe ye dzi, yetsi akogo, alo agbea te ɖeɖi ye ŋu la, taflatse ƒo nu tso eŋu na wò ɖɔkta alo ame aɖe si dzi nèka ɖo.
Gbedasi si Wotsɔ Yi Aƒeme
- ME/CFS nye atikewɔwɔ me dɔléle ŋutɔŋutɔ si nu sẽ ŋutɔ. Menye "nu tea ɖeɖi ame ŋu" alo "dɔléle si wowɔ"e o.
- Ðeɖiteameŋu si gbɔ eme si wosena le nɔnɔme sia me nu yina ne wogbɔ ɖe eme alo dɔ alɔ̃ nyuie o.
- Ne dzesi siawo tɔgbe le ŋuwò si nɔa anyi wu ɣleti 6 la, ele be afɔɖeɖe gbãtɔ nanye be nàkpɔ ɖɔkta eye woakpɔ dɔlélea nyuie.
- Togbɔ be womekpɔ atike na esia haɖe o hã la, mɔ geɖe li siwo dzi woato akpɔ dzesiawo gbɔ ahanɔ agbe nyui. Afɔɖeɖe nye esia ƒe akpa vevi aɖe.
- Wò susu ƒe lãmesẽ le vevie abe wò ŋutilã ƒe lãmesẽ ene. Mègahe ɖe megbe gbeɖe le kpekpeɖeŋu didi be yeate ŋu anɔ te ɖe nuteɖeamedzi si nɔnɔme sia hena vɛ nu o.
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