Ua loaʻa iā kākou a pau ka ʻeha o ke kua i kekahi manawa o ko kākou ola, ʻeā? Inā kūlou iki ʻoe i lalo a hāpai paha i kahi mea kaumaha, e nalo aku ka ʻeha i loko o kekahi mau lā. Akā... i kekahi manawa, ʻaʻole maʻalahi kēia ʻeha o ke kua. Hiki iā ia ke lilo i hoʻomaka o kahi pilikia nui i hoʻopilikia iā ʻoe no nā makahiki a ʻaʻole hiki ke ʻike pono ʻia. I kēia lā, ke kamaʻilio nei mākou e pili ana i kekahi o ia ʻano maʻi. ʻO ia ʻo Ankylosing Spondylitis, a i ʻole AS no ka pōkole.
He aha ka Ankylosing Spondylitis (AS)?
I ka ʻōlelo maʻalahi, ʻo Ankylosing Spondylitis (AS) kahi ʻano mumū lōʻihi o ka arthritis e hoʻopilikia nui i kou iwi kuamoʻo . ʻO ka mea e hana ʻia, ʻo ka ʻōnaehana pale o ke kino e hoʻouka hewa i nā hono i loko o kou iwi kuamoʻo. I ka hala ʻana o ka manawa, hiki i kēia mumū ke hoʻopili i nā vertebrae i loko o kou iwi kuamoʻo, e hōʻemi ana i ka palupalu a alakaʻi i kahi kūlana kūlou.
Wahi a kekahi mau kauka, ʻo ka ʻike ʻana i kēia maʻi ua like ia me ka ʻimi ʻana i kahi nila i loko o ka puʻu mauʻu. Aia kekahi mau kumu no kēlā.
No ke aha i paʻakikī ai ka ʻike ʻana iā AS?
Ua hōʻike ʻia nā haʻawina he 7-10 mau makahiki ka lōʻihi mai ka hoʻomaka ʻana o nā hōʻailona AS a hiki i ka loaʻa ʻana o kahi hōʻoia pololei. E noʻonoʻo i ka lōʻihi o ia mea! ʻO nā kumu nui no kēia:
- He mea maʻamau ka ʻeha o ke kua: E like me kā mākou i ʻōlelo ai ma mua, he mea maʻamau loa ka ʻeha o ke kua. No laila, manaʻo ka poʻe he nui he mea maʻamau ia a hoʻowahāwahā iā ia.
- Ka lohi o nā hōʻike X-ray: Ma AS, ʻike ʻia ka hōʻino ʻana i nā hono sacroiliac o ka iwi kuamoʻo a me ke pelvis ma kahi X-ray ma hope o ka holomua iki ʻana o ka maʻi.
- ʻOkoʻa nā hōʻailona: Hoʻopilikia ʻo AS i kēlā me kēia kanaka i kekahi ʻano like ʻole. ʻEha wale ke kua o kekahi poʻe, aʻo kekahi poʻe e ʻike pū i nā pilikia me ko lākou mau maka, nā kuʻekuʻe wāwae, a me nā hono ʻē aʻe.
- ʻAʻohe hoʻāʻo hoʻokahi: ʻAʻohe hoʻāʻo koko hoʻokahi a i ʻole scan hiki ke hōʻoia 100% he AS kēia.
E kōkua kēia papa iā ʻoe e hoʻomaopopo i ka ʻokoʻa ma waena o ka ʻeha kua maʻamau a me ka ʻeha i hoʻokumu ʻia e AS.
| ʻAno | ʻEha hope mīkini | ʻEha hope ma AS (ʻEha hope mumū) |
|---|---|---|
| ʻO ka ʻeha ka mea nui loa. | Ma hope o ka hana, i ka hopena o ka lā | I ke kakahiaka a me ka pō, ʻoi aku hoʻi ma hope o ka hoʻomaha ʻana |
| Ke hoʻomaha ʻoe | Ke emi nei ka ʻeha. | Hoʻonui ʻia ka ʻeha a me ka ʻoʻoleʻa. |
| Hoʻoikaika kino/Neʻe ʻana | Hiki ke hoʻonui ʻia ka ʻeha. | E emi ana ka ʻeha a me ka ʻoʻoleʻa |
| ʻOʻoleʻa o ke kakahiaka | ʻAʻole i emi iho ma mua o 30 mau minuke | ʻOi aku ma mua o 30 mau minuke (ʻoi aku ka nui ma mua o hoʻokahi hola) |
ʻO ke ola i hoʻolilo ʻia ma waena o nā kuhihewa ...
Ke lohe mākou i nā ʻike o ka poʻe e noho nei me kēia maʻi, maopopo maikaʻi iā mākou ke koʻikoʻi o kēia pilikia.
Ka moʻolelo a Don: "Me he mea lā ua makapō nā maka, akā ua ʻike ʻia nā maka"
Ua hala ʻehiku mau makahiki iā Don e loaʻa ai ka maʻi. Akā i ka nānā ʻana i hope, manaʻo ʻo ia he 30 mau makahiki. I kona hoʻomaka ʻana e ʻeha ke kuli i ka 10 o kona mau makahiki, ua kapa ʻia ʻo ia he "mau ʻeha ulu."
Akā ma kahi o 40 mau makahiki, ua lilo kona ola i mea weliweli. ʻO ia ka manawa i loaʻa ai iā ia ka uveitis , kahi maʻi maka mumū e hiki ke lilo i pilikia koʻikoʻi o AS. "Ua nalowale maoli koʻu ʻike. ʻIke wale au i nā kinona, a ua maʻalahi loa wau i ka mālamalama. Me he mea lā ua makapō wau, akā ʻaʻole makapō maoli," wahi a Don.
ʻOiai ʻaʻole hiki i nā kauka maka ke loaʻa ke kumu, ua kuhi lākou he "ʻano maʻi autoimmune paha." Me ka ʻole o ka pane maopopo, ua waiho ʻo Don i kēlā ma ka ʻaoʻao. Ma hope o nā makahiki o ka ʻike ʻana i nā kauka he 30 a ʻoi a me ka mālama ʻia ʻana no nā mea āpau mai ke kanesa a hiki i nā maʻi neurological, ua ʻike hope ʻia ua loaʻa iā ia ka AS ma hope o ka ʻike ʻana i kahi kauka rheumatologist.
ʻO ka moʻolelo a Charis: "ʻAʻole ia he maʻi e hoʻopilikia wale ana i nā kāne"
Ua hānai ʻia ʻo Charis e kona makuahine. Loaʻa i kona makuakāne ka maʻi AS. "ʻAʻole au i ʻike i ka inoa o ka maʻi. Akā ua ʻike wau ʻaʻole au e loaʻa ia mea, no ka mea, he 'maʻi kāne' ia," wahi a Charis.
He kuhihewa kēia i waena o nā kānaka he nui. ʻOiai ua manaʻo mua ʻia ua hoʻopilikia wale ʻo AS i nā kāne, hōʻike ka ʻikepili hou loa ua hoʻopilikia nui ʻia nā wāhine e ka maʻi.
Ua ʻeha ʻo Charis i nā ʻeha kuli a me nā ʻeha hui ʻē aʻe mai kona wā ʻōpiopio, akā ua manaʻo ʻo ia he pilikia ʻē aʻe ia i kona wā e pāʻani ai i nā haʻuki. Ua haʻi aku ke kauka iā ia he hopohopo ia. Akā, ʻaʻole i manaʻoʻiʻo ʻo Charis iā ia. Ua manaʻo ʻo ia ua like nā hōʻailona me ko kona makuakāne. ʻO ka hope loa, ma hope o ka nīnau ʻana i kona makuakāne, a me ka hahai ʻana i kāna ʻōlelo aʻo, ua hele ʻo ia i ke kauka a ua ʻike ʻia he AS.
Ma kahi o 80%-95% o nā maʻi AS he gene i kapa ʻia ʻo HLA-B27 . Hiki ke hoʻoili ʻia kēia mai nā mākua a i nā keiki. Eia nō naʻe, ʻaʻole nā kānaka a pau i loaʻa kēia gene e loaʻa iā AS, a hiki nō hoʻi ke loaʻa iā AS me ka ʻole o kēia gene. No laila, ʻaʻole hiki ke hoʻoholo ʻia kēia ma o ka hoʻāʻo genetic wale nō.
Penei ka wehewehe ʻana a Charis i kona mau manaʻo:
"Ua like ke kaumaha a me ka maʻi mau me nā hoahānau, e noho pū mau ana lāua."
Hiki i ka huakaʻi lōʻihi i kahi hōʻailona ke hoʻoluhi i ka naʻau. No laila, inā ʻoe e hele ana i kahi mea e like me kēia, mai kānalua e kamaʻilio e pili ana i ia mea a e ʻimi i ke kōkua o kahi loea olakino noʻonoʻo inā pono.
No ke aha i poina ai nā kauka iā AS?
ʻO kekahi kumu no kēia, ʻo ia ka manawa palena e ʻike ai i nā maʻi. "ʻAʻole lawa ka 15 mau minuke me kahi maʻi," wahi a kekahi loea. No ka ʻike ʻana i kahi maʻi paʻakikī e like me AS, pono ʻoe e hoʻolohe pono i ka mea a ka mea maʻi e ʻōlelo nei a nīnau i nā nīnau kūpono.
Eia kekahi, ʻo nā hōʻailona o AS i kekahi manawa ua like ia me nā maʻi ʻē aʻe. Eia kekahi laʻana:
- ʻEha ma nā puʻupuʻu a me nā kuʻekuʻe wāwae
- ʻO Psoriasis, kahi maʻi ʻili
- Nā maʻi o ka ʻōnaehana hoʻoheheʻe e like me ka maʻi a Crohn a i ʻole ka colitis ulcerative
Inā ʻaʻole i ʻike kekahi kauka lapaʻau (GP) i nā maʻi AS he nui i kāna hana, ʻaʻole paha ʻo ia e kānalua iā AS ke ʻike ʻo ia i kēia mau hōʻailona.ʻO ia ke kumu he mea nui e ʻike i kahi rheumatologist inā loaʻa iā ʻoe ka ʻeha kua no ka manawa lōʻihi, ʻoiai inā ʻoi aku ka ʻino i ke kakahiaka.
ʻO ka nūhou maikaʻi, ʻoi aku ka ʻike o nā kauka i nā hōʻailona o AS ma mua o ka wā ma mua. Eia kekahi, aia nā lāʻau lapaʻau hou (e like me nā lāʻau lapaʻau biologic) i kūpono loa i ka kaohi ʻana i ka maʻi. No laila, ʻaʻole pono ʻoe e ʻeha e like me ka wā ma mua. ʻO ka mea nui loa, ʻo ia ka ʻike ʻana i ka maʻi i ka manawa kūpono a hoʻomaka i ka lāʻau kūpono.
Leka Lawe-Home
- Inā ua ʻeha kou kua no nā mahina ʻekolu a ʻoi, mai hoʻowahāwahā iā ia.
- Inā ʻoi aku ka koʻikoʻi o kou ʻeha hope i ke kakahiaka, ʻoi aku ka ʻino i kou hoʻomaha ʻana, a emi iho i kou hele wāwae a hoʻomaʻamaʻa paha, he hōʻailona paha ia o AS.
- E makaʻala i ka ʻoʻoleʻa o ke kakahiaka i kou kua a me nā hono e mau ana ma mua o ka hapalua hola .
- Ma waho aʻe o ka ʻeha hope, inā loaʻa iā ʻoe nā hōʻailona e like me ka ʻulaʻula a i ʻole ka ʻeha i nā maka (uveitis), ka ʻeha kuʻekuʻe wāwae, a i ʻole ka pehu ʻana i nā hono ʻē aʻe, e haʻi i kāu kauka e pili ana i ia mea.
- E kamaʻilio me kāu kauka lapaʻau e pili ana i kāu mau hōʻailona. Inā pono, e noi no kahi kuhikuhi i kahi kauka rheumatologist .
- Mai hoʻokuʻu i ka hakakā a hiki i ka loaʻa ʻana o kahi hōʻailona kūpono. ʻO ka mea nui loa, ʻo ia ka hoʻolohe ʻana i kou kino.
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