Puas yog koj tus menyuam lub hlwb ploj lawm? Peb puas yuav tham txog hydranencephaly?

Auj, qee zaum nws ua rau kuv xav txog tej yam mob uas peb cov menyuam yaus yuav raug, puas yog? Tshwj xeeb, qee yam mob uas peb kawm txog thaum tus menyuam tseem nyob hauv plab yog qhov nyuaj heev thiab nyuaj rau nkag siab. Hnub no peb yuav tham txog ib qho mob hlwb loj heev uas tsis tshua muaj, tab sis tseem ceeb heev uas yuav tsum paub txog. Qhov no hu ua hydranencephaly.

Hydranencephaly yog dab tsi tiag?

Hais yooj yim xwb, hydranencephaly yog ib qho mob tsis tshua muaj uas tshwm sim thaum yug los. Hauv qhov mob no, ob feem tseem ceeb ntawm lub hlwb ntawm tus menyuam, hu ua cerebral hemispheres , tsis tsim. Xav txog nws, qhov loj tshaj plaws ntawm peb lub hlwb yog cerebrum. Qhov ntawd yog qhov chaw uas ob lub hemispheres no nyob. Kev xav, kev nco qab, thiab kev xav yog txhua yam tswj hwm los ntawm cov cerebral hemispheres no.

Yog li ntawd, nyob rau hauv lub taub hau ntawm tus menyuam uas muaj hydranencephaly, qhov twg lub hlwb hemispheres yuav tsum nyob, muaj cov hnab puv nrog cerebrospinal fluid (CSF) . Cov cerebrospinal fluid (CSF) no yog cov kua uas nyob ib puag ncig thiab tiv thaiv peb lub hlwb thiab tus txha caj qaum. Tab sis hauv qhov no, qee yam txawv tshwm sim.

Raws li lub sijhawm dhau mus, cov menyuam mos lub taub hau pib loj hlob tuaj. Tsis tas li ntawd, lwm yam tsos mob loj kuj yuav tshwm sim. Tu siab kawg li, qhov mob no feem ntau ua rau tus menyuam tuag tom qab yug los, txawm tias nws tsis nyob hauv niam lub tsev menyuam los xij.

Qhov txawv ntawm Hydranencephaly thiab Hydrocephalus yog dab tsi?

Tej zaum koj twb tau hnov ​​txog ib yam mob hu ua hydrocephalus. Ob yam mob no muaj xws li lub taub hau loj thiab cov kua dej hauv lub hlwb (CSF) sib sau ua ke. Tiam sis ob yam mob no txawv heev.

Hydrocephalus yog ib qho mob uas cov kua dej hauv lub hlwb, hu ua cerebrospinal fluid (CSF), sib sau ua ke, ua rau muaj kev nyuaj siab ntxiv hauv lub taub hau. Qhov no tuaj yeem ua rau lub hlwb puas tsuaj. Nws tuaj yeem tshwm sim thaum yug los, lossis nws tuaj yeem tshwm sim tom qab muaj xwm txheej lossis muaj mob. Qee zaum, hydrocephalus kuj tseem tuaj yeem tshwm sim ua ib qho tsos mob ntawm tus mob hu ua hydranencephaly.

Tiam sis thaum muaj tus kab mob hydranencephaly, lub hlwb tsis loj hlob zoo thaum tus menyuam tseem nyob hauv plab. Qhov ntawd txhais tau tias muaj tsawg feem ntawm lub hlwb loj hlob.

Nws yog ib qho tseem ceeb kom paub qhov txawv ntawm ob yam mob no, vim tias kev kho mob thiab kev kwv yees yog txawv heev. Ntau tus menyuam mos uas muaj hydrocephalus tuaj yeem rov zoo yog tias kuaj pom thiab kho kom zoo. Txawm li cas los xij, cov menyuam mos uas muaj hydranencephaly feem ntau tsis ua li ntawd.

Yog li qhov txawv ntawm qhov no thiab holoprosencephaly yog dab tsi?

Qhov no yog lwm qhov txawv txav uas cuam tshuam nrog kev loj hlob ntawm lub hlwb.Hauv holoprosencephaly, lub hlwb pem hauv ntej ntawm tus menyuam lub hlwb (forebrain), cov hlwb cerebral hemispheres uas tau hais ua ntej, tsis faib. Qhov ntawd yog, es tsis txhob yog ob feem, nws tseem yog ib qho. Txawm li cas los xij, hauv hydranencephaly, cov hlwb ntawd tsis muaj kiag li.

Nyob ntawm seb qhov mob hnyav npaum li cas, qee tus menyuam mos uas muaj holoprosencephaly yuav muaj sia nyob tom qab yug los.

Tus mob Hydranencephaly no feem ntau tshwm sim li cas?

Qhov no yog ib qho mob tsis tshua muaj. Cov kws tshawb fawb kwv yees tias qhov mob no cuam tshuam txog li ib ntawm 10,000 tus cev xeeb tub, lossis ib ntawm 5,000. Qhov ntawd tsawg heev.

Vim li cas thiaj muaj tus kab mob hydranencephaly? Dab tsi yog cov ua rau muaj?

Qhov tseeb, cov kws tshawb fawb tseem tsis tau paub meej tias yog dab tsi ua rau muaj tus kab mob hydranencephaly. Tej zaum nws yog los ntawm noob caj noob ces, tab sis tsis muaj kev nkag siab meej txog nws tshwm sim li cas.

Txawm li cas los xij, qee zaum, qhov mob no tau pom tias muaj feem cuam tshuam nrog niam raug cov tshuaj lom thaum cev xeeb tub . Yog li ntawd, yuav tsum ceev faj heev thaum cev xeeb tub.

Cov tsos mob ntawm tus mob no yog dab tsi?

Thaum ib tug me nyuam uas muaj hydranencephaly yug los, nws yuav zoo li ib tug me nyuam ib txwm rau thawj ob peb hnub. Yog li ntawd, nws yuav nyuaj rau paub nws tam sim ntawd. Cov tsos mob pib tshwm sim hauv thawj ob peb lub lis piam lossis lub hlis ntawm lub neej. Nov yog qee cov tsos mob uas yuav tshwm sim:

• Yog tias tus me nyuam tsis loj hlob zoo txhais tau tias nws tsis hnyav nce lossis tsis loj hlob zoo .
• Cov leeg nqaij tawv yuav nce lossis txo qis, nrog rau cov leeg nqaij co .
• Lub taub hau loj dua li qub.
• Pom kev nyuaj thiab hnov ​​​​​​lus tsis zoo .
• Kev mob ntawm cov ceg.
• Ua pa nyuaj .

Yog tias koj muaj ib lossis ntau yam ntawm cov tsos mob no, nws yog ib qho tseem ceeb heev uas yuav tsum nrhiav kev pab kho mob tam sim ntawd.

Yuav kuaj mob Hydranencephaly li cas?

Qhov mob no qee zaum tuaj yeem kuaj pom ua ntej tus menyuam yug los, uas yog, thaum lub sijhawm kuaj ultrasound . Raws li koj paub, kev kuaj ultrasound tsim ib daim duab ntawm tus menyuam hauv plab ntawm leej niam. Tom qab ntawd, nws tuaj yeem pom tias tus menyuam lub hlwb hemispheres ploj lawm.

Yog tias kev kuaj ultrasound ua ntej yug me nyuam qhia tias muaj hydranencephaly, tus kws kho mob yuav hais kom kuaj MRI kom tau cov duab meej dua.

Txawm li cas los xij, qee zaum nws tsis paub thaum cev xeeb tub thiab qhov mob tuaj yeem nyob ntev tom qab tus menyuam yug los. Yog li ntawd, nws yuav siv sijhawm ntau lub lis piam lossis txawm tias ntau lub hlis los kuaj pom qhov mob. Vim tias, raws li tau hais ua ntej, tus menyuam yuav zoo li qub thaum xub thawj.

Tus kws kho mob tuaj yeem lees paub qhov mob raws li cov tsos mob ntawm tus menyuam thiab MRI ntawm lub hlwb. MRI tuaj yeem pab cais qhov txawv ntawm hydranencephaly thiab lwm yam mob, xws li hydrocephalus thiab holoprosencephaly, uas tau tham ua ntej lawm.

Tsis tas li ntawd xwb, lwm yam kev ntsuam xyuas tuaj yeem ua tau, xws li:

• Angiography: Qhov no suav nrog kev thaij duab X-ray ntawm cov hlab ntsha siv cov xim tshwj xeeb.
• CT scan: Qhov no yog lwm txoj hauv kev los thaij duab ntawm lub hlwb.
• Hydranencephaly ultrasound: Kev kuaj ultrasound tshwj xeeb ua los nrhiav qhov mob no.
• Transillumination: Qhov no suav nrog kev ci lub teeb los ntawm cov ntaub so ntswg hauv qab lub taub hau kom pom seb puas muaj qhov txawv txav.
• Kev kuaj noob caj noob ces: Saib seb nws puas yog los ntawm noob caj noob ces.

Cov kev kho mob rau cov menyuam mos uas muaj tus kab mob hydranencephaly yog dab tsi?

Qhov no yog ib qho teeb meem rhiab heev. Yog tias pom tseeb tias muaj tus kab mob hydranencephaly thaum lub sijhawm kuaj ua ntej yug menyuam, qee tsev neeg txiav txim siab rho menyuam kom kho mob , uas yog kom xaus kev xeeb tub vim yog kev kho mob. Qhov no yog ib qho kev txiav txim siab nyuaj heev, tab sis cov kws kho mob thiab cov kws pab tswv yim muab kev txhawb nqa tsim nyog rau lub sijhawm zoo li no.

Yog ib tug me nyuam yug los muaj tus kab mob hydranencephaly, tsis muaj kev kho. Kev kho mob feem ntau yog tsom rau kev txo cov tsos mob thiab ua kom tus me nyuam xis nyob li sai tau.

• Yuav phais kom tshem cov kua dej ntau dhau ntawm lub hlwb thiab muab ib lub raj me me (shunt ) los txo qhov siab hauv lub hlwb. Txawm hais tias qhov no yog kev kho mob zoo rau hydrocephalus, nws siv tau tsawg rau hydranencephaly.
• Ib qho kev kho mob hu ua Endoscopic Choroid Plexus Coagulation (ECPC) qee zaum siv tau los kho lub hlwb kom loj sai.

Ntxiv rau qhov ntawd, tus kws kho mob kuj tseem yuav pom zoo cov yam xws li:

• Cov tshuaj tiv thaiv qaug dab peg .
• Kev txhawb nqa kev noj haus.
• Kev kho lub cev kom txo cov tsos mob ntawm cov leeg.
• Yog tias ua tsis taus pa, tej zaum yuav tsum tau phais qhov tracheostomy (kev phais me me hauv caj pas) lossis siv tshuab ua pa.

Puas tiv thaiv tau qhov mob hydranencephaly no?

Cov kws tshawb fawb tseem tsis tau nkag siab tag nrho tias vim li cas qhov no thiaj tshwm sim, yog li lawv tsis tuaj yeem hais meej tias yuav tiv thaiv nws li cas. Txawm li cas los xij, raws li tau hais ua ntej, qee kis tau txuas nrog kev raug tshuaj lom thaum cev xeeb tub. Piv txwv li, cov tshuaj xws li cocaine, kev haus luam yeeb, thiab qee cov tshuaj qaug dab peg xws li sodium valproate.

Yog li ntawd, nws yog ib qho tseem ceeb heev rau cov niam cev xeeb tub kom tsis txhob raug cov tshuaj lom. Nws tseem ceeb heev rau kev tham nrog lawv tus kws kho mob txog cov tshuaj uas lawv noj.

Tus menyuam uas muaj tus kab mob hydranencephaly yuav muaj sia nyob ntev npaum li cas?

Qhov no tu siab kawg li. Cov menyuam uas muaj tus kab mob hydranencephaly feem ntau yuav tsis zoo li qub. Muaj ntau tus menyuam tuag ua ntej yug los yog ua ntej hnub nyoog ib xyoos. Tsis tshua muaj, yog tias muaj kev saib xyuas zoo, tus menyuam uas muaj tus kab mob hydranencephaly yuav muaj sia nyob tau ntau xyoo.

Koj ua li cas nrog qhov teeb meem zoo li no?

Kev nrhiav pom tias koj tus menyuam muaj mob zoo li hydranencephaly yog ib qho nyuaj heev rau kev daws. Qhov ntawd nkag siab tau.

• Nws yog ib qho tseem ceeb heev uas yuav tsum muab kev kawm tsim nyog rau tsev neeg kom nkag siab txog qhov hnyav ntawm tus kab mob no.
• Tsis tas li ntawd xwb, kev nrhiav kev pab tswv yim thiab koom nrog cov pab pawg txhawb nqa uas koj tuaj yeem sib txuas lus nrog lwm tsev neeg uas ntsib cov xwm txheej zoo sib xws tuaj yeem yog qhov chaw zoo ntawm lub zog.

Hydranencephaly yog ib qho teeb meem tsis tshua muaj uas cuam tshuam rau kev loj hlob ntawm lub hlwb. Feem ntau yuav kuaj pom ua ntej lossis tom qab yug me nyuam. Yog tias koj tus menyuam muaj tus mob no, koj pab neeg kho mob yuav muab kev txhawb nqa, kev kawm, thiab kev qhia tswv yim rau koj thiab koj tsev neeg. Nco ntsoov tias, koj tsis yog tib leeg xwb.

Cov Lus Xaus Kawg coj mus tsev

Niam thiab Txiv, Hydranencephaly yog ib qho mob uas mob siab thiab nyuaj heev. Txawm li cas los xij, nws yog ib qho tseem ceeb uas yuav tsum paub txog nws.

• Qhov no yog ib qho mob tsis tshua muaj uas tshwm sim thaum qee qhov ntawm lub hlwb tsis loj hlob zoo.
• Qhov no feem ntau tuaj yeem pom los ntawm kev kuaj mob ua ntej yug menyuam .
• Txawm hais tias tsis muaj kev kho rau qhov no los xij, muaj kev kho mob los tswj cov tsos mob thiab ua rau tus menyuam xis nyob .
• Vim tias qhov ua rau muaj qhov teeb meem tseeb tseem tsis tau paub meej, nws yog ib qho tseem ceeb uas yuav tsum ua tib zoo saib xyuas, xws li zam kev haus tshuaj lom thaum cev xeeb tub.
• Cov tsev neeg uas ntsib qhov teeb meem no tuaj yeem tau txais lub zog loj los ntawm cov kws kho mob, cov kws pab tswv yim, thiab cov pab pawg txhawb nqa .

Yog koj muaj lus nug ntxiv txog qhov no, thov nrog koj tus kws kho mob tham. Lawv yuav muab tag nrho cov ntaub ntawv thiab kev taw qhia uas koj xav tau rau koj.

` Hydranencephaly, lub hlwb tsis zoo, cov teeb meem thaum yug los, kev noj qab haus huv ntawm cov menyuam mos, cov kua dej hauv lub hlwb, hydrocephalus, kev kuaj mob ua ntej yug