Yog tias koj tus menyuam muaj Duchenne Muscular Dystrophy (DMD), cov kws kho mob yuav tau tham txog tshuaj tiv thaiv hu ua Viltolarsen (lub npe lag luam: Viltepso). Nws yog ib txwm muaj ntau txhiab lo lus nug los rau hauv siab thaum lub sijhawm zoo li no. Hom tshuaj no yog dab tsi? Nws ua dab tsi tiag? Peb yuav tsum txhawj txog dab tsi? Hnub no, peb yuav tham txog txhua yam no hauv cov lus yooj yim, nkag siab yooj yim.
Muaj dab tsi tshwm sim tiag tiag nrog cov tshuaj no?
Hais yooj yim xwb, cov menyuam uas muaj Duchenne (DMD) muaj teeb meem caj ces nrog kev tsim cov protein hu ua 'Dystrophin', uas yog qhov tseem ceeb rau kev ua kom cov leeg muaj zog. Cov tshuaj no, hu ua Viltolarsen, pab lub cev hloov qee cov protein uas ploj lawm. Hauv lwm lo lus, cov tshuaj no pab tswj qee cov leeg ua haujlwm.
Txawm li cas los xij, nws yog ib qho tseem ceeb kom nkag siab tias qhov no tsis yog kev kho rau tus kab mob. Tsis tas li ntawd, cov tshuaj no tsis yog muab rau txhua tus menyuam uas muaj DMD. Nws tsuas yog haum rau cov menyuam uas muaj kev hloov pauv tshwj xeeb . Cov kws kho mob yuav txiav txim siab seb qhov kev kho mob no puas haum rau koj tus menyuam tom qab kuaj.
Tej yam yuav tsum qhia rau tus kws kho mob ua ntej muab tshuaj rau koj tus menyuam
Ua ntej koj tus menyuam pib kho qhov no, koj yuav tsum tham txog cov teeb meem no nrog koj tus kws kho mob. Tsis txhob zais dab tsi, vim tias qhov tseem ceeb tshaj plaws yog kev nyab xeeb ntawm tus menyuam.
- Qhia rau koj tus menyuam yog tias nws muaj kab mob raum .
- Yog tias koj tau muaj kev tsis haum tshuaj rau Viltolarsen lossis lwm yam tshuaj, khoom noj, lossis xim zas yav dhau los, thov qhia qhov no kom meej.
- Nws tseem ceeb heev uas yuav tsum qhia rau tus kws kho mob yog tias tus neeg uas tau txais kev kho mob no tseem hluas, tab tom sim cev xeeb tub, cev xeeb tub, lossis pub niam mis .
Raws li cov ntaub ntawv no, tus kws kho mob yuav ceev faj dua thaum kho tus menyuam.
Yuav muab tshuaj rau ib tug menyuam li cas?
Qhov no tsis yog tshuaj uas koj noj los yog tshuaj kho mob hauv tsev. Qhov no yog kev txhaj tshuaj rau hauv cov leeg ntshav, lossis hais kom meej dua , kev txhaj tshuaj rau hauv cov leeg ntshav . Ib yam li kev muab ntsev ntsev, cov pov thawj muab cov tshuaj no rau lub cev.
Kev kho mob no yog ua tiav hauv tsev kho mob lossis chaw kho mob, nyob rau hauv kev saib xyuas ntawm cov neeg ua haujlwm kho mob uas tau kawm tiav, yog li koj tsis muaj dab tsi txhawj txog.
Yog koj tsis tau teem caij noj tshuaj, yuav ua li cas?
Yuav kom txoj kev kho mob no ua tiav, nws yog ib qho tseem ceeb heev uas yuav tsum coj tus menyuam mus thiab muab cov tshuaj raws nraim li hnub thiab sijhawm uas tus kws kho mob muab.Tsis txhob ncua ib koob tshuaj twg. Yog tias koj mus tsis tau raws li koj teem tseg vim muaj xwm txheej ceev, hu rau koj tus kws kho mob tam sim ntawd kom qhia rau lawv paub thiab tau txais cov lus qhia txog yam yuav ua tom ntej.
Yog tias kuv noj tshuaj ntau dhau lawm ne?
Qhov no yog muab rau hauv tsev kho mob, yog li qhov muaj feem yuav tshwm sim tsawg heev. Txawm li cas los xij, yog tias koj xav tias koj tau noj tshuaj ntau dhau, mus rau chav kho mob ceev (ETU) ntawm tsev kho mob tam sim ntawd. Los yog hu rau National Poisons Information Center ntawm Colombo National Hospital kom tau txais lus qhia.
Tej zaum yuav muaj tej yam tshwm sim tsis zoo
Ib yam li lwm yam tshuaj, Viltolarsen tuaj yeem ua rau muaj qee qhov kev mob tshwm sim. Qee qhov ntawm cov no tuaj yeem ua rau mob hnyav, yog li nws tseem ceeb heev uas yuav tsum paub txog lawv.
| Hom kev phiv tshuaj | Kev piav qhia thiab yuav ua li cas |
|---|---|
| Cov tsos mob loj uas xav tau kev kho mob tam sim ntawd | |
| Kev ua xua | Yog tias koj muaj cov tsos mob xws li tawv nqaij tawm pob, khaus heev, o, ua pa nyuaj, lossis o ntawm lub ntsej muag, daim di ncauj, lossis tus nplaig, qhia rau koj tus kws kho mob tam sim ntawd. |
| Cov cim qhia txog kev raug mob raum | Yog koj pom tias koj tso zis ntau zaus lossis ntau npaum li cas, nyuaj rau tso zis, lossis xim ntawm koj cov zis hloov pauv, qhia rau koj tus kws kho mob tam sim ntawd. |
| Cov tsos mob uas feem ntau tsis loj heev, tab sis yuav tsum tau qhia rau kws kho mob yog tias lawv tseem muaj | |
| Cov kev mob tshwm sim me me |
Feem ntau cov no yuav ploj mus li ntawm ob peb hnub, tab sis yog tias lawv tseem muaj lossis yog tias tus menyuam tsis xis nyob, qhia rau kws kho mob. |
Daim ntawv teev npe no tsuas yog muaj ob peb yam kev mob tshwm sim uas tshwm sim ntau tshaj plaws xwb. Yog tias koj pom muaj dab tsi txawv txawv hauv koj tus menyuam, tsis txhob ncua sijhawm tham nrog koj tus kws kho mob txog qhov ntawd.
Puas muaj kev sib cuam tshuam nrog lwm cov tshuaj?
Raws li kev sim tam sim no, tsis muaj lus ceeb toom txog lwm yam tshuaj uas cuam tshuam nrog tshuaj tiv thaiv Viltolarsen.
Txawm li cas los xij, nws yog qhov zoo tshaj plaws los muab rau koj tus kws kho mob daim ntawv teev tag nrho lwm yam tshuaj uas koj tus menyuam noj (tshuaj rau lwm yam mob, cov vitamins, cov tshuaj ib txwm muaj, cov tshuaj noj ntxiv). Qhov no yuav pab tiv thaiv cov teeb meem tsis tsim nyog kom tsis txhob tshwm sim.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Viltolarsen yog ib yam tshuaj uas pab tswj tus mob Duchenne muscular dystrophy (DMD), tab sis nws tsis yog kev kho mob tag nrho .
- Cov tshuaj no tsuas yog muab rau cov neeg mob uas muaj kev hloov pauv caj ces tshwj xeeb xwb .
- Qhov no yog kev txhaj tshuaj rau hauv cov leeg ntshav, thiab tsuas yog cov neeg ua haujlwm kho mob uas tau kawm tiav hauv tsev kho mob lossis chaw kho mob thiaj li muab tau.
- Yog tias koj tus menyuam muaj kab mob raum lossis lwm yam kev ua xua , nco ntsoov qhia rau tus kws kho mob ua ntej pib kho.
- Yog tias koj muaj tej yam kev mob tshwm sim loj xws li lub ntsej muag o, ua pa nyuaj, lossis hloov pauv ntawm cov zis , nrhiav kev pab kho mob tam sim ntawd .
- Nws yog ib qho tseem ceeb heev uas yuav tsum noj koj cov tshuaj raws sijhawm, thiab tsis txhob ntshai nug koj tus kws kho mob txog tej lus nug uas koj muaj.
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