Lɛ wi lan bɔt di swet tɛst fɔ si if yu gɛt sistik fibrosis.

Sɔntɛnde, yu smɔl pikin kin gɛt prɔblɛm fɔ blo, ɔ i kin gɛt prɔblɛm we i nɔ de gɛt wet? Ɔ yu notis sɔntin lɛk we yu de kɔf ɔltɛm ɔ we yu de swɛt na yu chɛst? Sɔmtɛm, biɛn dɛn tin ya, wan sik kin de we wi nɔ yɛri bɔku bɔt, bɔt i rili impɔtant fɔ mek wi no bɔt am. Na dat wi go tɔk bɔt tide. Dɛn kɔl dis Sistik Faybrosis , sɔm tɛm dɛn kin shɔt am as (CF) . Lɛ wi si wetin i bi, aw dɛn kin no am, ɛn mɔ sɔm tin dɛn bɔt di ‘Swet Tɛst’ we dɛn kin du fɔ dis.

Wetin rili na Sistik Faybrosis?

Fɔ tɔk am simpul wan, sistik fibrosis na sik we pɔsin kin gɛt frɔm in mama ɛn papa . Dat min se na sɔntin we mama ɛn papa kin pas to pikin dɛn. wetin kin apin pan dis na dat sכm pan di wata we de insay wi bכdi, spεshal mכkus, kin tik bכku εn stika. Tink bɔt am, yu nɔ tink se di mכkus we de na di lכng εn sayn dεm fכ pכsin we gεt hεlth kin slipul lεk wata? Na wetin de mek wi aywe klin ɛn pul di jem dɛn.

Bɔt pan pipul dɛm wae gɛt sistik fibrosis, dis mכkus kin tik pasmak, lεk glu. So dis tik mכkus kin de na imכtant כgan dεm lεk di lכng εn pankrias , we de ambɔg dεn nכmal fכnshכn. εspεshali we dis tik mכkus de kכmכt na di lכng dεm, di aywe dεm kin bigin fכ blכk. Dɔn i kin rili at fɔ blo, ɛn infɛkshɔn kin apin bɔku tɛm. If di pankrias afɛkt, prɔblɛm wit di dijestiv ɛn nɔ it fayn kin apin. Nɔto dis nɔmɔ, i kin afɛkt bak ples dɛn lɛk di liva, insay di bɔdi, ɛn di say dɛn we pɔsin kin bɔn.

Sistik fibrosis na wan sik we nɔ de mɛn . Dis min se i kin las fɔ lɔng tɛm ɛn i nɔ kin ebul fɔ wɛl ɔl. Dɛn kin tek am bak as sik we de go bifo . Dis min se di sayn dɛm kin wɔs smɔl smɔl as tɛm de go ɛn prɔblɛm kin apin. Na dat mek i rili impɔtant fɔ no am kwik ɛn manej am fayn fayn wan.

Wetin na di sayn dɛm fɔ dis pan pikin dɛm?

If yɔŋ pikin, mɔ di bebi, gɛt sistik fibrosis, dɛn kin gɛt wan ɔ mɔ pan dɛn sayn ya. Nɔto ɔl pikin go gɛt ɔl dɛn sik ya wan tɛm, ɛn aw di sik kin tranga kin difrɛn frɔm wan pikin to ɔda pikin. I impɔtant fɔ mɛmba dat.

Na sɔm pan dɛn tin dɛn de:

• I nɔ kin ebul fɔ gro fayn: Pan ɔl we di pikin de gi in bɛlɛ fayn fayn wan ɛn it fayn leta, i nɔ kin gɛt wet ɛn i kin tan lɛk se i nɔ gɛt bɛtɛ wet we yu kɔmpia am wit ɔda pikin dɛn we gɛt di sem ej.
• Stɔl we lɔs ɔ we gɛt ɔyl: Sɔntɛnde, yu pikin in stɔl kin rili lɔs, wata kin gɛt ɔyl. Sɔntɛnde, di stɔl kin gɛt bad smel.
• I nɔ kin izi fɔ yu fɔ blo:Ɔltɛm yu kin fil lɛk se i at fɔ blo, lɛk se yu de swɛla.
• We yu de swɛt ɔltɛm: Na sawnd we yu de swɛt ɔltɛm we de kɔmɔt na yu chɛst. Dis kin apin bak pan kɔndishɔn lɛk asma, bɔt na wan sik we kin apin mɔ pan CF.
• Bɔrku tɛm infεkshɔn na in lכng: Fɔ ɛgzampul, nyumonia ɛn brɔnkayt kin kɔmɔn. If yu gɛt lɔng infɛkshɔn wan ɔ tu tɛm insay di mɔnt, na sɔntin we yu fɔ wɔri bɔt.
• Ripit sayn infεkshכn: Infεkshכn we de fכm na di kכva dεm we de rawnd di nos (saynus). Tin dɛn lɛk we yu nos de rɔn ɛn we yu nɔs de rɔn.
• Kɔf we kin kɔntinyu fɔ kɔf, we kin mek yu gɛt blɔd: Na kɔf we nɔ kin bɛtɛ. I kin ivin bi kɔf we de mek tik tik mכkus.
• Slow growth: I tan lɛk se pikin in ayt ɛn wet de gro slo smɔl pas ɔda pikin dɛn we gɛt di sem ej.
• Sɔntɛnde di pikin in skin kin te sɔl: Sɔm mama ɛn papa dɛn kin ripɔt bak se we dɛn rɔb dɛn pikin in skin we swet, i kin fil lɛk se i gɛt sɔl.

If yu tink se yu smɔl pikin gɛt wan ɔ mɔ pan dɛn sik ya, di bɛst tin fɔ du na fɔ go to dɔktɔ we de mɛn pikin dɛn fɔ advays.

Wetin na swet tɛst ɛn wetin i de du?

Dɔktɔ dɛn kin no if i gɛt sistik fibrosis bay we dɛn tek tɛm luk di pɔsin, lisin to di sayn dɛn we i gɛt, ɛn du difrɛn tɛst dɛn. dis inklud jεnεtik tεst - we na bכdi tεst we de luk fכ chenj dεm na di jin - chεst εn sayn εks-ray, εn lכng fכnshכn tεst.

Bɔt di impɔtant ɛn difinitiv tɛst fɔ kɔnfirm if yu gɛt sistik fibrosis ɔ nɔ gɛt na di swet tɛst. Dis na tɛst we rili simpul ɛn we nɔ de mek pɔsin fil pen. I de mɛzhɔ di kayn klorayd we de na yu swet. Yu no se di sɔl we wi de it na tu kemikal dɛn we dɛn kɔl klorayd ɛn sɔdiɔm. So, di klorayd we de na di swet fɔ pipul dɛn we gɛt sistik fibrosis kin bɔku pas di wan we nɔmal pɔsin gɛt.

di rizin fכ dis na biכs, bikoz fכ di jεnεtik dεfεkt we de mek sistik fכybrosis, di wok we wan protin we de εp klorayd fכ muv tru wi sεl dεm de pwεl. Dis kin mek klorayd nɔ kin ebul fɔ go insay ɔ kɔmɔt na di sɛl dɛn fayn fayn wan. Dis na we klorayd kin gɛda abnɔmal wan na di swet. Pan ɔl we i kin tan lɛk se i rili simpul, dis na di men tin we sayɛnsman dɛn kin yuz fɔ no bɔt dis sik.

Bɔku tɛm, dɔktɔ dɛn kin se dɛn fɔ du dis swet tɛst if pikin de pan denja fɔ gɛt sistik fibrosis (fɔ ɛgzampul, if pɔsin na di famili gɛt dis sik), ɔ if dɛn de sho di sayn dɛn we wi bin dɔn tɔk bɔt. Sɔntɛnde, dɛn kin aks di pikin in brɔda ɛn sista dɛnsɛf fɔ du dis tɛst. Dis na fɔ si if dɛnsɛf dɔn gɛt dis jin ɛn if dɛn pikin dɛn de pan denja fɔ gɛt dis jin tumara bambay.

Aw dɛn kin du dis swet tɛst? Na sɔntin we wi fɔ fred?

Dɛn kin du dis swet tɛst pan ɛnibɔdi we ol ɛni ej. Bɔt di pikin dɛn we dɛn jɔs bɔn nɔ go ebul fɔ mek dɛn swet fɔ dis tɛst insay di fɔs de dɛn na dɛn layf. So, dɛn kin du dis tɛst pan pikin dɛn we ol bitwin tu ɛn 4 wik , we dɛn kin mek dɛn swet inof.

Dis tɛst rili simpul fɔ du, ɛn i nɔ kin at atɔl. So no fred am, okay? Na dis na wetin kin apin:

1. Fɔs, pɔsin we de wok fɔ wɛlbɔdi biznɛs, ilɛksɛf na nɔs ɔ dɔktɔ, kin put jel ɔ wata we gɛt wan kemikal we dɛn kɔl pilocarpine pan di pikin in an (bɔku tɛm na di fɔs an) ɔ in leg in skin. Pilocarpine na wan drɔg we de mek di swet gland dɛn wok.

2. afta dat, dεn de put tu εlektrod dεm na di εria εn dεn gi wan rili sכm ilektrikal stimulashכ n we nכ de du bad fכ mek di swet gland dεm mכr εn prodyuz swet. Dɛn kin du dis fɔ lɛk 5 minit so. No stinging ɔ pen nɔ de atɔl. Di smɔl pikin kin fil smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl. Bɔku pikin dɛn nɔ kin ivin fil dis.

3. Dɔn, dɛn kin pul di ilɛktrɔd dɛn, klin di say we di skin de, ɛn dɛn kin put spɛshal tin fɔ gɛda di swet (we na plastic kɔyl, filta pepa, ɔ goz) na di say. Dɛn kin lɛf dis na in ples fɔ lɛk 30 minit so fɔ gɛda di swet.

4. Fכ finish, dεn kin sεnd dis swet sεmpl we dεn kכlekt to wan lab fכ mεzj di klorayd we de de kכrekt wan.

Di wan ol tɛst kin tek lɛk wan awa so. I izi fɔ mek yu pikin gɛt kol at if yu gɛt tɔys ɔ bɔtul milk nia yu.

Wetin di rizɔlt fɔ dis tɛst se?

Okay, naw lɛ wi si wetin di rizɔlt fɔ dis swet tɛst se. If di pikin gɛt sistik fibrosis, di swet tɛst go sho se di klorayd we pas di nɔmal tin de na dɛn swet.

We i kam pan di valyu dɛn we dɛn mɛzhɔ, dɛn wan ya na dɛn wan ya (dɛn valyu ya kin difrɛn smɔl frɔm wan lab to di ɔda lab, bɔt jɔs lɛk dis):

• If yu pikin in klorayd lɛvɛl pas 60 mmol/L (millimol/lita) : I go mɔs bi se dɛn gɛt sistik fibrosis.Bɔku tɛm, if rizɔlt lɛk dis kam, dɛn kin du di tɛst bak fɔ kɔnfɔm.
• di pikin in klorayd lɛvɛl nɔ rich 30 mmol/L (millimol/lita) (sɔm gaydlain dɛn se i nɔ rich 40 mmol/L): Dɛn kin se i nɔ gɛt sistik fibrosis.
• If yu pikin in klorayd lɛvɛl de bitwin 30 ɛn 59 mmol/L ( na sɔm ples dɛn 40-59 mmol/L): Dɛn kin tek dis as intamɛdiet ɔ bɔdalayn rizɔlt . If na so i bi, dɛn kin nid fɔ ripit di tɛst . Atikul tεst, lεk jεnεtik tεst, kin nid bak fכ rכl כut sכm atypical fכm dεm fכ CF.

Di tin we impɔtant pas ɔl na dat, dɔktɔ fɔ ɛksplen dɛn rizɔlt ya. So, we di rizɔlt kam, di bɛst tin fɔ du na fɔ tɔk to di dɔktɔ bɔt am ɛn fala wetin i tɛl yu fɔ du. Nɔ panik.

Aw yu kin pripia yu pikin fɔ swet tɛst? Yu nid fɔ du ɛni big tin?

Dis na tin we rili izi fɔ mama ɛn papa. Yu nɔ nid fɔ du ɛni spɛshal tin fɔ rɛdi yu pikin fɔ swet tɛst.

• Nɔ nid fɔ chenj ɔ stɔp ɛni wan pan di pikin in it (we i de it, sɔlid it if dɛn gi am), di tin dɛn we di pikin de du, ɔ di mɛrɛsin dɛn we di pikin de tek bifo dis tɛst. Kip am lɛk aw i nɔmal.
• Di wangren tin na dat, nɔ put ɛni krim ɔ loshan pan yu pikin in skin fɔ 24 awa bifo di tɛst. Ɛspɛshali nɔ put ɛnitin pan di an ɔ leg we dɛn de tɛst. Dis kin afɛkt di tɛst rizɔlt.

Si, i rili simpul. Dres yu pikin wit layt, kɔmfyut klos di de we dɛn de du di tɛst.

Di impɔtant tin dɛn we wi nid fɔ mɛmba frɔm dis stori (Take-Home Message) .

Okay, so a op se yu naw gɛt gud ɔndastandin bɔt wetin wi tɔk bɔt tide, Sistik Faybrosis ɛn di Swet Tɛst. Pan ɔl we dis kin tan lɛk se na kɔmplikɛt tɔpik, i nɔ kin tranga so wans yu ɔndastand di bɛsis tin dɛn. Frɔm wetin wi dɔn tɔk bɔt, na sɔm tin dɛn we wi fɔ mɛmba:

• Sistik faybrosis (CF) na wan sik we de kam wit jεnεtiks we de mek di bכdi in mכkus tik, spεshal wan we de afekt di lכng dεm εn di dijestiv sistεm.
• Yu fɔ no bɔt di sayn dɛm: If yu gɛt wan ɔr mɔ pan dɛn sik ya, lɛk we yu de lɔs yu wet, yu nɔ de blo fayn ɔltɛm, yu de kɔf ɔltɛm, ɔ yu de gɛt ɔyl stɔl, go to dɔktɔ ɛn tɔk bɔt dɛn.
• di swet tεst na di men, mכst rilibul tεst fכ kכnfכm sistik faybrosis: i de mכsu di klorayd lεvεl na di swet.
• di tεst nכ de pen εn i sef: so nכ fred fכ tek yu pikin fכ dis.
• I rili impɔtant fɔ no di sik kwik kwik wan:Bikɔs da tɛm de, dɛn kin bigin di tritmɛnt ɛn manejmɛnt we dɛn nid kwik kwik wan, we go mek di pikin nɔ gɛt bɔku prɔblɛm dɛn ɛn ɛp am fɔ liv bɛtɛ layf ɛn gɛt wɛlbɔdi.

If yu ɔ pɔsin we yu sabi gɛt dis prɔblɛm, di bɛst tin fɔ du na fɔ nɔ panik ɔ biliv ɔl wetin yu fɛn na di intanɛt, bɔt fɔ tɔk to dɔktɔ we sabi du di wok. Dɛn go gayd yu fayn ɛn gi yu di sɔpɔt we yu nid.

` Sistik Faybrosis, swet tεst, klorayd, pikin dεm, jεnεtik sik dεm, lכng sik dεm