Imajin se yu nɔ go ivin ebul fɔ go na do na di san. Wetin yu go du if yu fil pen we yu nɔ go ebul fɔ bia we yu go na do, lɛk se yu skin de bɔn ɛn sting? Fɔ sɔm pipul dɛn, dis rili difrɛn. Dɛn kɔl dis Ɛrythropoietic Protoporphyria (EPP). So tide wi de tɔk bɔt wan spɛshal tritmɛnt we go ɛp pipul dɛn lɛk dis. Dat na wan mɛrɛsin we dɛn kɔl Afamelanotide.
Wetin na Afamelanotide?
Fɔ tɔk am simpul wan, Afamelanotide na mɛrɛsin we dɛn kin yuz fɔ mɛn wan sik we dɛn kɔl Erythropoietic Protoporphyria (EPP) . I nɔto sɔntin we yu tek lɛk pil ɔ gɛt lɛk injɛkshɔn . Na wan rili smɔl tin, we di sayz tan lɛk wan gren rays. Wi kin kɔl am implant . Na yu dɔktɔ de put am ɔnda di skin.
Naw lɛ wi si wetin go apin. Wi skin gɛt wan tin we dɛn kɔl melanin we de gi am kɔlɔ. Yu go dɔn notis se sɔm pipul dɛn kin rili fayn, sɔm kin brayt, ɛn sɔm kin dak. Dɛn kɔl di rizin fɔ dɛn kɔlɔ ya melanin. Na in natura l melanin de protɛkt wi skin frɔm di san. I tan lɛk natura l sanskrin .
So, pipul dɛm wae gɛt dis EPP kɔndishɔn kin gɛt pen na dɛn skin riakshɔn wae dɛn de pan san layt. Afamelanotaide de mek di melanin we de na wi bɔdi go ɔp. Dɔn dis kin mek di skin gɛt natura l protɛkshɔn, we kin mek i nɔ fil fayn to di san ɛn i kin mek i nɔ gɛt pen. Dis mɛrɛsin kin kam ɔnda di brand nem SCENESSE.
Tin dɛm fɔ tɛl yu dɔktɔ bifo yu du dis tritmɛnt
Bifo yu gi yu dis tritmɛnt, yu dɔktɔ go aks yu sɔm kwɛstyɔn dɛn. Yu fɔ tɔk klia wan bɔt dɛn tin ya.
- If yu gɛt alɛji fɔ dis Afamelanotide mɛrɛsin ɔ ɛni ɔda mɛrɛsin, it, ɔ day, duya tɛl wi bɔt am.
- Mek shɔ se yu tɛl wi if yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ .
- If yu na mama we de gi pikin in bɛlɛ, yu fɔ tɔk bɔt dat bak.
Dis infɔmeshɔn rili impɔtant fɔ mek di dɔktɔ gi yu di tritmɛnt we fit ɛn we sef.
Aw yu kin yuz dis mɛrɛsin?
Dis nɔto sɔntin we yu go ebul fɔ du na os. Yu dɔktɔ ɔ wan tim we tren fɔ kia fɔ wɛlbɔdi biznɛs fɔ du am na ɔspitul ɔ klinik.
Dɛn kin put dis implant ɔnda di skin na yu bɛlɛ . Afta i dɔn, kip di say klin ɛn dray fɔ 24 awa.Yu nid fɔ kip am. Di dɔktɔ go gi yu di instrɔkshɔn dɛn we yu nid.
Dis implant na di dɔktɔ insɛf kin pul am afta tu mɔnt. Afta dat, dɛn kin put nyu wan insay if nid de.
Di tin we impɔtant pas ɔl na dat dis na mɛrɛsin we dɛn kin gi yu nɔmɔ. Nɔ ɛva sheb am wit ɛni ɔda pɔsin.
Yu tink se dis fayn fɔ yɔŋ pikin dɛn?
Dɛn fɔ tek tɛm spɛshal we dɛn de gi pikin dɛn dis tritmɛnt. So, if yu de tink bɔt dis tritmɛnt fɔ yu pikin, i go fayn fɔ mek yu tɔk to dɔktɔ we de mɛn pikin dɛn bɔt am.
Wetin fɔ du if yu tek bɔku mɛrɛsin?
Na wan mɛdikal tim de gi dis, so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se sɔntin lɛk dis dɔn apin, go na di Imejɛnsi Tritmɛnt Yunit (ETU) wantɛm wantɛm. Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
Tin dɛn we yu fɔ tink bɔt we yu de du tritmɛnt
Bɔku tin dɛn de we yu nid fɔ tek tɛm wit afta dɛn dɔn put dis implant.
- Si yu dɔktɔ di rayt tɛm: Kɔntakt wit yu dɔktɔ ɔltɛm fɔ si aw yu de du. Tɛl dɛm if yu sik de wɔs ɔr nɔr de wɔs.
- Chek yu skin: I impɔtant fɔ chɛk yu skin tu tɛm insay di ia. Dis mɛrɛsin kin mek yu skin, yu frek, ɛn yu bɔn mak dak smɔl. Pan ɔl we dis na nɔmal tin, i fayn fɔ go to dɔktɔ fɔ chɛk fɔ ɛni ɔda chenj we nɔ kɔmɔn.
- If di implant kɔmɔt: Na smɔl tɛm nɔmɔ, implant we dɛn put ɔnda di skin kin kɔmɔt na di bɔdi fɔ insɛf. If yu tink se dis dɔn apin, kɔl yu dɔktɔ wantɛm wantɛm.
Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?
Lɛk ɛni mɛrɛsin, dis wan kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt . Bɔt nɔto ɔlman kin du dat. Lɛ wi si wetin dɛn bi.
| Tayp fɔ di sayd ɛfɛkt | Tɔk bɔt |
|---|---|
| Tin dɛn fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Tin dɛm lɛk skin rash, it, swel na yu fes, lip, tɔng, ɔ trot. |
| Tin dɛm wae nɔr kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Difrɛn tin dɛn we de apin |
|
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu notis ɛnitin we nɔ kɔmɔn, duya kɔntak yu dɔktɔ fɔ advays.
Prɔblɛm kin de wit ɔda mɛrɛsin dɛn?
Frɔm di tɛst dɛn we dɛn dɔn du te naw, dɛn nɔ dɔn si se Afamelanotide kin mek prɔblɛm wit ɔda mɛrɛsin dɛn.
Bɔt i rili impɔtant fɔ tɛl yu dɔktɔ bɔt ɛni ɔda mɛrɛsin, vaytamɛn, ɛbul mɛrɛsin, ɔ sɔpɔtmɛnt we yu de tek. Dɔn bak, tɛl yu dɔktɔ if yu de smok ɔ drink rɔm, bikɔs sɔm pan dɛn tin ya kin afɛkt yu tritmɛnt.
Mɛsej we dɛn kin kɛr go na os
- Afamelanotide na wan patikyula tritmɛnt fɔ wan sik we dɛn kɔl Erythropoietic Protoporphyria (EPP), we de mek di skin sɛnsitiv to di san.
- Dis na smɔl tin we dɛn kin put ɔnda di skin. I de wok bay we i de mek di melanin, di pigmɛnt we de protɛkt di skin mɔ.
- Na wan mɛdikal tim we de na ɔspitul ɔ klinik kin gi ɛn pul dis tritmɛnt.
- Bifo yu go gɛt tritmɛnt, tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin, alɛji, ɛn mɛrɛsin dɛn we yu de tek.
- If yu gɛt alɛji lɛk aw yu skin de rɔsh ɛn swel, go to dɔktɔ wantɛm wantɛm.
- I impɔtant fɔ go to yu dɔktɔ ɔltɛm ɛn mek dɛn chɛk yu sik.
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