Yu dɔktɔ dɔn tɛl yu se yu fɔsfɔr lɛvɛl nɔ bɔku? Sɔntɛnde dis kin bi bikɔs ɔf wan jenɛtik kɔndishɔn, ɔ i kin bi bikɔs ɔf wan tumbu na di bɔdi . Ilɛk wetin na di rizin, we di fɔsfɔr lɛvɛl nɔ bɔku, wi bon dɛn kin wik ɛn brok izi wan. So, wan spɛshal mɛrɛsin de we dɛn kɔl Burosumab we dɛn kin gi fɔ trit dis sik. Lɛ wi tɔk bɔt ɔltin insay simpul wɔd dɛn tide.
Us kayn mɛrɛsin na Burosumab?
Fɔ tɔk am simpul wan, Burosumab na mɛrɛsin we de ɛp fɔ mek di fɔs fɔs we nɔ de na yu bɔdi kam bak. Dis kin mek yu bon dɛn strɔng ɛn i kin mek dɛn nɔ brok izi wan (fractures).
dis de pan wan spεshal klas fכ dכg dεm we dεn kכl ``monoclonal antibody''. Dat min se, dɛn mek dis drɔg fɔ wok bay we i de tay pan wan patikyula tin we wi want fɔ du na wi bɔdi. So, di tin dɛn we dɛn nɔ want nɔ kin bɔku. Dis drɔg de mɔs de na Sri Lanka ɛn di wɔl ɔnda di brand nem ``CRYSViTA''.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu tek mɛrɛsin
Bifo yu bigin dis tritmɛnt, i rili impɔtant fɔ gi yu dɔktɔ kɔmplit diskripshɔn bɔt yu wɛlbɔdi kɔndishɔn. Mek shɔ se yu tɔk mɔ bɔt dɛn pɔynt dɛn ya:
- Kidni sik: If yu gɛt ɛni sik we gɛt fɔ du wit di kidni.
- Alɛji: If yu gɛt alɛji to dis Burosumab mɛrɛsin, ɛni ɔda mɛrɛsin, it, ɔ tin dɛn we de mek yu nɔ pwɛl.
- Bɛlɛ: If yu gɛt bɛlɛ ɔ yu de op fɔ bɔn pikin jisnɔ.
- If yu na mama we de gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ.
Bay dis infɔmeshɔn, di dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ rayt fɔ yu ɛn aw fɔ gi am.
Aw yu kin yuz dis mɛrɛsin?
Dis nɔto mɛrɛsin we yu kin kɛr go na os. Burosumab na injɛkshɔn we dɛn kin gi ɔnda di skin . Na dɔktɔ ɔ nɔs we gɛt trenin kin gi yu na ɔspitul ɔ klinik.
Sɔm tɛm dɛn de we dɛn kin gi dis mɛrɛsin fɔ sɔm kayn mɛrɛsin, ivin fɔ pikin dɛn we ol lɛk 6 mɔnt. Bɔt na dɔktɔ we de mɛn pikin dɛn kin disayd fɔ du dis.
Di tin we impɔtant pas ɔl na dat dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ sheb am wit ɛni ɔda pɔsin fɔ ɛni rizin.
Wetin fɔ du if yu tek di mɛrɛsin pasmak?
Bikɔs dɛn kin gi dis na ɔspitul, di chans fɔ mek dɛn tek am pasmak kin rili smɔl. Bɔt if yu tink wantɛm wantɛm se yu dɔn tek dis mɛrɛsin tumɔs, .Go na ɔspitul in Imejɛnsi Tritmɛnt Yunit (ETU) wantɛm wantɛm. Ɔ yu kin kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ gɛt advays.
Wetin a go du if a mis di de we a fɔ tek di mɛrɛsin?
Fɔ tek dis mɛrɛsin ɔltɛm na impɔtant tin fɔ mek di tritmɛnt go bifo. If fɔ sɔm rizin yu nɔ ebul fɔ go na ɔspitul di de we dɛn dɔn sɛtul, duya kɔntak yu dɔktɔ ɔ di mɛdikal tim wantɛm wantɛm. Dɛn go gi yu de fɔ kam bak di nɛks tɛm.
Wetin na di tin dɛm wae nɔr fɔ tek wit dis mɛrɛsin?
We yu de tek Burosumab, i impɔtant fɔ avɔyd fɔ tek sɔm ɔda mɛrɛsin dɛn togɛda, bikɔs dɛn kin miks wit dɛnsɛf ɛn mek bad bad tin apin.
Ɛspɛshali nɔ tek Burosumab wit dɛn tin ya:
- Fɔsfɛt mɛrɛsin dɛn we dɛn kin tek bay mɔt
- Vitamin D sɔpɔtmɛnt dɛn. εgzampl dεm na mεdikeshכn dεm lεk `(kalsitriol)`, `(kalsifediol)`, `(dכksεrkalsifεrol)`, `(parikalsitol)`.
- Ɔda spɛshal mɛrɛsin dɛn lɛk `Ibritumomab tiuxetan`.
Dis list nɔ kɔmplit. So, mek shɔ se yu tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn, vaytamɛn dɛn, ɛbul prɔdak dɛn, ɛn tradishɔnal mɛrɛsin dɛn we yu de tek. Dɔn bak, tɛl yu dɔktɔ if yu de smok ɔ drink rɔm.
Tin dɛn we yu fɔ tek tɛm wit we yu de tek mɛrɛsin
If yu sik nɔr de bɛtɛ ɔr tan lɛk se yu de wɔs, tɛl yu dɔktɔ. Yu dɔktɔ go de wach yu we yu de tek dis mɛrɛsin. Yu go nid bak fɔ du blɔd tɛst ɔltɛm. Dis go ɛp fɔ no if di mɛrɛsin de wok fayn ɛn aw yu fɔsfɔr lɛvɛl de.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Burosumab kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Wi kin sheb dɛn tin ya to tu men grup dɛn.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Siriɔs sayd ɛfɛkt dɛn we nid fɔ go to dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Kidni ston dɛn | Blɔd na di urine, pen ɔ i at fɔ pis, bak ɔ pelvik pen. |
| Di ay fosfɔr lɛvɛl | Mɔsul ɔ jɔyn pen, di mɔsul dɛn de twitch, di mɔsul dɛn de swɛla rawnd di mɔt. |
| Ristlɛs leg sindrom | Strenj numbness, bɔn, pull sensation na di leg, ɛn wan rɛstlɛs want fɔ muv di leg. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Kɔf | Vɔmit, dayarɛa (bɛlɛ we de at) . |
| Fiva | Ed de at |
| Pen na yu an, yu fut, ɛn yu fut | Pen, rɛd, ɔ swel usay dɛn gi di injɛkshɔn. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu gɛt ɛni ɔda sayn we nɔ kɔmɔn, duya tɛl yu dɔktɔ bɔt dɛn.
Mɛsej we dɛn kin kɛr go na os
- Burosumab na spɛshal injɛkshɔn we dɛn kin gi fɔ trit di bon wik we kin kam bikɔs di fɔsfɔr lɛvɛl smɔl na di bɔdi.
- Dɛn nɔ go ebul fɔ yuz dis na os. Na di mɛdikal wokman dɛn we de na ɔspitul ɔ klinik fɔ gi am.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin ɛn di mɛrɛsin dɛn we yu de tek.
- If yu gɛt ɛni bad bad sayd ɛfɛkt, lɛk alɛji ɔ simptom fɔ kidni ston, go to dɔktɔ wantɛm wantɛm.
- I rili impɔtant fɔ gɛt tritmɛnt ɛn tɛst blɔd di rayt tɛm. Ɔltɛm fala wetin yu dɔktɔ tɛl yu fɔ du.
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