If yu ɔ pɔsin we yu lɛk gɛt sistik fibrosis (CF), sɔntɛm yu no gud gud wan di prɔblɛm dɛn we kin apin we pɔsin liv wit am. Bɔt we di mɛrɛsin de go bifo, dɛn de ad nyu tritmɛnt dɛn ɛn nyu op dɛn ɔltɛm. Tide, wi go tɔk bɔt wan spɛshal drɔg we dɔn briŋ dis kayn nyu op. Di nem fɔ dis drɔg na Trikafta. Lɛ wi si wetin na dis mɛrɛsin, aw i de wok, ɛn wetin yu fɔ tek tɛm wit we yu de yuz am, insay wan simpul we we yu go ɔndastand.
Wetin kin rili apin wit dis mɛrɛsin?
Fɔ tɔk am simpul wan, Trikafta na mɛrɛsin we dɛn kin yuz fɔ mɛn sistik fibrosis (CF). Na tri mɛrɛsin dɛn we dɛn jɔyn togɛda: Elexacaftor, Tezacaftor, ɛn Ivacaftor.
Imajin, di mכkus insay di lכng dεm fכ pכsin we gεt CF kin tik pasmak εn i kin stika. Lɛk tik tik glu. Dis kin mek i nɔ izi fɔ blo, ɛn infɛkshɔn kin apin bɔku tɛm. Dis na bikɔs prɔblɛm de wit di we aw sɔl ɛn wata de muv tru di sɛl dɛn na di bɔdi.
Dis na di say we Trikafta de kam in. I de wok bay we i de kɔrɛkt di prɔblɛm wit sɔl ɛn wata muvmɛnt, we de ɛp di bɔdi fɔ mek i balans. Dis kin ɛp di tik tik mכkus we de na di lכng dεm fכ lik, tכn, εn i izi fכ pul am na di bכdi . Dis kin ɛp fɔ kɔntrol di CF simptom dɛm to big pat.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
Dis na pat we rili impɔtant. Bifo yu dɔktɔ gi yu dis mɛrɛsin, i go nid fɔ gɛt kɔmplit pikchɔ bɔt yu wɛlbɔdi. So, if ɛni wan pan dɛn tin ya apin to yu, mek shɔ se yu tɔk to yu dɔktɔ bɔt am.
- Kidni sik: If yu gɛt ɛni sik we gɛt fɔ du wit di kidni.
- Liva sik: If yu gɛt ɛni liva prɔblɛm.
- Alɛji: Tɛl wi if yu gɛt ɛni alɛji, nɔto jɔs fɔ di tin dɛn we de insay dis mɛrɛsin, bɔt to ɛni ɔda mɛrɛsin, it, ɔ day.
- Bɛlɛ: If yu gɛt bɛlɛ ɔ yu plan fɔ bɔn pikin jisnɔ.
- If yu na mama we de gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ.
I rili impɔtant fɔ yu sef fɔ tɛl di dɔktɔ dis infɔmeshɔn we yu nɔ ayd am.
Aw ɛksaktɔli a kin yuz dis mɛrɛsin?
Fɔ mek yu gɛt di bɛst pan di mɛrɛsin, yu nid fɔ yuz am di rayt we. Yu fɔ mɛmba dɛn tin ya.
1. Tek wit it: Dis na di tin we impɔtant pas ɔl. Dɛn fɔ tek dis mɛrɛsin wit it we gɛt fat.. Nɔ tek ɛmti bɛlɛ. Fɔ ɛgzampul, tek di mɛrɛsin wit sɔntin we gɛt fat, lɛk eg, sɔm pinat bɔta, sɔm chiz, ɔ yogɔt. Di mɛrɛsin kin bɛtɛ we di bɔdi tek am we dɛn tek am wit it.
2. Swɛla di tablɛt: Nɔ brok, krɔs, ɔ chew di tablɛt. Swɛla di tablɛt ɔl wit smɔl wata.
3. Tek am di rayt tɛm: Tray fɔ tek yu mɛrɛsin di sem tɛm ɛvride as yu ebul. Dis go ɛp fɔ mek di mɛrɛsin kɔntinyu fɔ de na yu bɔdi.
4. Dis na impɔtant tin: Nɔ tek dis mɛrɛsin wit grep jus fɔ ɛni rizin. Grep jus kin riak wit dis mɛrɛsin ɛn mek denja sayd ɛfɛkt na di bɔdi.
5. Nɔ stɔp: Kɔntinyu fɔ tek di mɛrɛsin te yu dɔktɔ tɛl yu fɔ stɔp.
If yu de gi pikin dɛn dis mɛrɛsin, yu fɔ tɔk bɔt am wit yu dɔktɔ. Pan ɔl we sɔntɛnde dɛn kin gi dis mɛrɛsin to pikin dɛn we dɔn pas 6 ia, spɛshal tin dɛn de fɔ tek tɛm wit.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin ɛn drink tumɔs?
If yu mis wan doz fɔ mɛrɛsin
Nɔ wɔri fɔ mis wan doz. Di bɛst tin fɔ du jɔs afta yu mɛmba na fɔ tɔk to yu dɔktɔ. I go tɛl yu wetin fɔ du nɛks. Nɔ ɛva tek dɛbul doz fɔ mek di doz we yu mis .
Ovados fɔ yuz am
Imajin se yu aksidɛntli tek bɔku mɛrɛsin. Dis na imejensi. If dis apin , kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm. Ɔ go na di ɔspitul we de nia yu Imejɛnsi Tritmɛnt Yunit (ETU) we yu nɔ de te.
Ɔda tin dɛm wae kin intarakt wit dis mɛrɛsin (Interactions) .
Sɔm mɛrɛsin, it, ɛn ɔyl kin miks wit Trikafta, we kin mek i nɔ wok fayn ɔ i kin mek i gɛt bad bad sayd ɛfɛkt. So, i impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek.
| Tin dɛn we kin riak wit Trikafta | |
|---|---|
| Nɔ tek mɛrɛsin wit dɛn wan ya. | |
| Prɔblɛm | Ɛgzampul dɛn |
| Sɔm mɛrɛsin dɛn we kin mek pɔsin sik | Kabamazɛpin, Fɛnobarbital, Fɛnitɔyn |
| Sɔm mɛrɛsin dɛn fɔ TB | Rifabutin, Rifampin, ɛn ɔda pipul dɛn |
| Wan mɛrɛsin we dɛn kin yuz fɔ mɛn animal dɛn | Sɛnt Jɔn in Wɔt |
| Frut jus we dɛn kin mek | Grepfruit jus we dɛn kin mek |
| Mek shɔ se yu tɛl yu dɔktɔ if yu de tek dɛn tin ya. | |
| Sɔm antibayɔtik dɛn | Klaritromaysin, Ɛritromaysin |
| Antifungals dɛn we dɛn kin yuz | Flukonazol, Kεtokonazכl, Itrakonazכl |
| Difrɛn ɔda mɛrɛsin dɛn | Mɛrɛsin dɛm lɛk Sayklɔspɔrin, Digɔksin, Wɔfarin, Takrɔlimus, Glimepiride, Glipizide fɔ dayabitis |
Dis list nɔ kɔmplit. Tɛl yu dɔktɔ bɔt ɛni mɛrɛsin, vaytamɛn, ɔ ɛbul mɛrɛsin we yu de tek. Dɔn bak, tɛl yu dɔktɔ if yu de smok ɔ drink rɔm.
Ɔda tin dɛn we yu fɔ mɛmba we yu de tek di mɛrɛsin
- Fɔ chɛk ɔltɛm:Di dɔktɔ go de chɛk yu ɔltɛm. Nɔ mis dɛn apɔntin dɛn de. Tɛl am if yu sik nɔr de go ɔr de wɔs.
- Test fɔ yu yay ɛn blɔd: Yu dɔktɔ kin want fɔ chɛk yu yay ɛn blɔd bifo ɛn we yu bigin fɔ tek dis mɛrɛsin.
- Di chenj we yu de si: If yu notis ɛni chenj na yu yay (we yu de si blɔk, yu de si ring rawnd layt), tɛl yu dɔktɔ wantɛm wantɛm.
- Ɛd we de at ɛn we yu de drayv: Sɔntɛnde, dis mɛrɛsin kin mek yu ed de tɔn ɛn yu ed kin layt. So, nɔ drayv ɔ yuz mashin te yu no aw dis mɛrɛsin de afɛkt yu. If yu drink rɔm, dat kin mek dis sik wɔs.
Lɛ wi lan bɔt di bad tin dɛn we kin apin to wi.
Lɛk ɛni mɛrɛsin, Trikafta kin mek yu gɛt sayd ɛfɛkt. Pan ɔl we nɔto ɔlman kin gɛt dɛn, i impɔtant fɔ no bɔt dɛn.
| Tayp fɔ di sayd ɛfɛkt | Sayn dɛn |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong, i nɔ izi fɔ blo. |
| Liva injuri | Pen na di ɔpa rayt say na di bɛlɛ, yu nɔ kin want fɔ it, yu nɔ kin fil fayn, yu skin ɔ yu yay kin yɔlɔ, yu kin gɛt dak yɔlɔ/brawn urine, yu kin taya we nɔ kɔmɔn. |
| Vishɔn kin chenj | Blɔr vishɔn, si ring rawnd layt, lɔs vishɔn. |
| Simptom dɛm we tan lɛk flu | Fiva, bɔdi pen, kɔf, ed pen, ɛn malaise. |
| Sayd ɛfɛkt dɛm wae nɔr kin bi natin fɔ wɔri bɔt, bɔt yu fɔ ripɔt to yu dɔktɔ if dɛn kɔntinyu | |
| Bɛlɛ pen, dayarɛa | Ed de at |
| Nos we de rɔn ɔ nos we dɔn stɔp | Pen we gɛt fɔ du wit sayn |
Mɛsej we dɛn kin kɛr go na os
- Tek Trikafta ɔltɛm wit it we gɛt fat. Nɔ tek ɛmti bɛlɛ.
- Nɔ tek dis mɛrɛsin wit grep jus fɔ ɛni rizin.
- Tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn, vaytamɛn dɛn, ɛn ivin tradishɔnal ɔyl dɛn we yu de tek.
- If yu gɛt ɛni siriɔs sayd ɛfɛkt lɛk fɔ yɔlɔ na yu yay, yu skin gɛt siriɔs lɛsin, ɔ yu de chenj yu yay, go to dɔktɔ wantɛm wantɛm.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɛni ɔda pɔsin.
- If yu gɛt ɛni kwɛstyɔn ɔ wɔri bɔt di mɛrɛsin, tɔk to yu dɔktɔ bɔt am opin wan.
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