Adu! Tide wi go tɔk bɔt wan mɛrɛsin we kɔmplikt smɔl, bɔt we rili impɔtant. If yu ɔ sɔmbɔdi na yu famili gɛt wan sik we dɛn kɔl Sistik Faybrosis, yu dɔktɔ go dɔn gi yu wan mɛrɛsin we dɛn kɔl Trikafta. I gɛt wan kɔmbayn tri mɛrɛsin dɛn we dɛn kɔl Elexacaftor, Tezacaftor, ɛn Ivacaftor. Dis nɔr tan lɛk rɛgyula mɛrɛsin, bɔt na spɛshal mɛrɛsin wae de go to di rut kɔz fɔ di sik ɛn afɛkt am. So lɛ wi si aw ɛksaktɔli de yuz dis mɛrɛsin, us tin dɛn fɔ tek tɛm wit, ɛn us sayd ɛfɛkt i kin kam wit.
Wetin kin rili apin wit dis mɛrɛsin?
Fɔ tɔk am simpul wan, Sistik Faybrosis na wan jenɛtik disɔda we de mek difrɛn bɔdi wata, mɔ di mכkus na di כgan dεm lεk di lכng εn pankrias, tik pasmak εn stika. Dis kin mek i nɔ izi fɔ blo, i kin gɛt infɛkshɔn na in lɔng, ɛn i kin mek i nɔ ebul fɔ digest.
Dis drɔg, Trikafta, de wok bay we i de kɔrɛkt sɔm pat pan wan prɔtin we nɔ de wok fayn pan pipul dɛn we gɛt wan patikyula jɛnɛtik muteshɔn we dɛn kɔl F508del . Dis min se pas fɔ kɔntrol di sayn dɛm, i de ɛp fɔ ridyus di impak we di ɔndalayn jenɛtik dɛfɛkt we de mek di sik gɛt. Dis na rili big rilif fɔ dɛn sik pipul ya.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
I rili impɔtant fɔ mek yu dɔktɔ no yu kɔmplit wɛlbɔdi istri bifo yu gi yu dis mɛrɛsin. Dis mɛrɛsin nɔ fayn fɔ ɔlman. Mek shɔ se yu tɛl yu dɔktɔ, mɔ if yu gɛt ɛni wan pan dɛn sik ya:
- If yu gɛt ɛni sik na yu kidni .
- If yu gɛt ɛni liva sik (dis rili impɔtant).
- If yu gɛt alɛji to Elexacaftor, Tezacaftor, Ivacaftor, ɔ ɛni ɔda mɛrɛsin, it, ɔ day we de insay dis mɛrɛsin.
- If yu gɛt bɛlɛ ɔ yu de plan fɔ bɔn pikin insay di nɛks tɛm.
- If yu na mama we de gi pikin in bɛlɛ.
Bay dis infɔmeshɔn, yu dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ if dɛn nid fɔ chenj di doz.
Aw ɛksaktɔli a kin yuz dis mɛrɛsin?
Fɔ mek yu gɛt di bɛst pan dis mɛrɛsin, i impɔtant fɔ tek am lɛk aw dɛn tɛl yu fɔ tek am.
Di tin we impɔtant pas ɔl na fɔ tek dis mɛrɛsin ɔltɛm wit it we gɛt ɔyl ɔ fat , bikɔs di mɛrɛsin dɛn we de insay dis mɛrɛsin kin bɛtɛ we di bɔdi tek am we dɛn miks am wit fat.
Fɔ ɛgzampul, yu kin tek dis mɛrɛsin:
- Wit eg dɛn
- Wit pinat bɔta
- Wit wan dish wit chiz (e.g. chiz pizza)
- Wit avokado wit avokado
- Wit yogɔt (yogɔt we ful-ɔp wit fat) .
Ɔda tin dɛn we yu fɔ mɛmba:
- Swɛla di pils dɛn ɔl . Nɔ brok ɔ krɔs dɛn, ɔ chew dɛn lɛk chɛwing gam.
- Tray fɔ tek yu mɛrɛsin di sem tɛm ɛvride. Wans yu mek dis bi abit, yu nɔ go fɔgɛt.
- Nɔ ɛva tek dis mɛrɛsin wit greps ɔ grep jus. Di tin dɛn we de insay grep jus kin rili afɛkt di we aw dis mɛrɛsin de wok.
- Nɔ stɔp fɔ tek yu mɛrɛsin te yu dɔktɔ tɛl yu fɔ tek am.
- Sɔntɛnde, dɛn kin gi dis mɛrɛsin to pikin dɛn we dɔn pas 6 ia, bɔt na ɔnda spɛshal dɔktɔ in sɔpɔtishɔn nɔmɔ.
Wetin a go du if a tek bɔku mɛrɛsin wantɛm wantɛm?
If yu tink se yu dɔn tek dis mɛrɛsin tumɔs, nɔ panik. Wantɛm wantɛm kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu. I bɛtɛ if yu kin tek di mɛrɛsin paket wit yu we yu de go.
Tin dɛn we yu nɔ fɔ yuz wit dis mɛrɛsin
Trikafta na pawaful mɛrɛsin wae kin intarakt wit ɔda mɛrɛsin dɛm. So, yu fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek, nɔto jɔs di wan dɛn we yu dɔktɔ tɛl yu fɔ tek, bɔt yu fɔ tɛl yu dɔktɔ bak di mɛrɛsin dɛn we yu nɔ de bay, vaytamɛn dɛn, ɛn ɛbul prɔdak dɛn.
| Drug ɛn it dɛm wae kin intarakt wit Trikafta | |
|---|---|
| Nɔ tek Trikafta wit dɛn tin ya | |
| Sɔm mɛrɛsin dɛn fɔ mek pɔsin gɛt ɛpilepshi | Kabamazɛpin, Fɛnobarbital, Fɛnitɔyn |
| Antibayɔtiks | Rifampin, Rifabutin, ɛn ɔda pipul dɛn |
| Di tin dɛn we dɛn mek wit ɛbul | Sɛnt Jɔn in Wɔt |
| It | Grepfruit ɛn grepfruit jus |
| Aks yu dɔktɔ if yu de tek Trikafta wit dɛn tin ya. | |
| Ɔda antibayɔtik dɛn | Klaritromaysin, Ɛritromaysin |
| Antifungals dɛn we dɛn kin yuz | Flukonazɔl, Itrakonazɔl, Kɛtokonazɔl |
| Drug dɛn we de mek di bɔdi nɔ ebul fɔ fɛt di sik | Sayklɔspɔrin, Sirolimus, Takrɔlimus |
| Ɔda | Digoxin, Warfarin, sɔm mɛrɛsin fɔ dayabitis (e.g. Glimepiride, Glipizide) |
Wetin na di sayd ɛfɛkt dɛn we pɔsin kin gɛt we i tek di mɛrɛsin?
Lɛk ɛni mɛrɛsin, Trikafta kin mek sɔm sayd ɛfɛkt dɛn. Sɔm pan dɛn tin ya kin rili siriɔs. So i rili impɔtant fɔ no bɔt dis.
| Sayd ɛfɛkt we pɔsin kin gɛt | Diskripshɔn ɛn wetin fɔ du |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Di sayn dɛm we de sho se di liva dɔn pwɛl | Dak yɔlɔ ɔ brawn urine, yu yay ɔ skin de yɔlɔ, pen na di ɔp rayt pat na di bɛlɛ, yu nɔ de want fɔ it, yu nɔ de fil fayn, yu taya we yu nɔ kɔmɔn. If yu notis dɛn tin ya, tɛl yu dɔktɔ wantɛm wantɛm. |
| Siriɔs alɛji riakshɔn dɛn | Skin rash, it, swel na yu fes, lip ɔ tong, i nɔ izi fɔ blo. Dis na imejensi. |
| Di chenj dɛn we de apin na di we aw pɔsin de si | Ripɔt ɛni chenj to yu dɔktɔ , lɛk we yu yay wayt (katarakt) ɔ yu nɔ de si fayn. |
| Lɔw blɔd shuga (Hypoglycemia) . | Nɔ rɛst, kɔnfyushɔn, diziz, angri pasmak, swet pasmak, shek shek, ɛn at bit kwik kwik wan. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Bɛlɛ de at, dayarɛa, gas. |
| Di kɔmɔn sayn dɛm | Ed pen, diziz, fiva, sayn we de rɔtin. |
| Ɛspɛshali fɔ uman dɛn | Pen we yu de gɛt we yu de gɛt mɔnt. |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we nɔ de na dis list, tɛl yu dɔktɔ bɔt dɛn bak.
Mɛsej we dɛn kin kɛr go na os
- Trikafta na wan impɔtant mɛrɛsin fɔ Sistik Faybrosis we de afɛkt di rut kɔz fɔ di sik.
- Dis mɛrɛsin fɔ tek wit it we gɛt ɔyl ɔ fat . Nɔ tek am wit ɛmti bɛlɛ.
- Nɔ ɛva tek dis mɛrɛsin wit grep jus. Dɔn bak, tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek.
- Go to dɔktɔ kwik kwik wan if yu gɛt sayn dɛn we de sho se yu liva dɔn pwɛl (yu yay de yɔlɔ, yu urine dak) ɔ yu gɛt siriɔs alɛji.
- Mit di dɔktɔ di de we yu dɔn plan fɔ du ɛn nɔ mis di blɔd ɛn yay tɛst we i tɛl yu fɔ du.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɔda pipul dɛn.
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