Yu dɔn ɛva notis se sɔmbɔdi na yu famili, sɔntɛm yu mama, yu papa, ɔ yu man ɔ yu wɛf, dɔn chenj wantɛm wantɛm? Dɛn kin de du tin tranga wan pas aw dɛn bin de du trade, nɔr de tɔk fayn, ɔr nɔr de intres pan tin... Pan ɔl wae bɔrku pipul kin tink se dis na nɔrmal tin fɔ ol, sɔmtɛm e kin bi sayn fɔ wan sik wae gɛt mɔr siriɔs sik. Tide wi de tɔk bɔt wan pan dɛn kayn tin ya, we na Frontotemporal Dementia.
Wetin na Frɔntotemporal Dimɛnshɔn (FTD)?
Fɔ tɔk am simpul wan, dis na sik we kin afɛkt wi bren. Tink bɔt wi bren as big kɔntrol sɛnta. Na di difrɛn pat dɛn pan am de kɔntrol ɔltin frɔm di we aw wi de biev, aw wi de tɔk, ɛn aw wi de plan.
insay FTD, tu fכnt lכb dεm na di bren de dεm fכs.
1. Frontal lobes: Dɛn wan ya de biɛn di fɔrɛst. Dɛn tan lɛk di CEO fɔ wi kɔntrol rum. Dɛn kin kɔntrol wi abit dɛn, di we aw wi kin disayd fɔ du sɔntin, aw wi kin kɔntrol di we aw wi de fil, ɛn aw wi de biev na di sosayti.
2. Tεmporal lכb dεm: dεn ya de nia di yes dεm. Dɛn tan lɛk wi langwej ɛn mɛmori eria. Dis pat de ɛp wi fɔ ɔndastand wɔd dɛn, tɔk, ɛn mɛmba tin dɛn.
insay FTD, di nεv sεl dεm (nyurכn dεm) na dεn tu εria dεm ya de pwεl εn sכmtεm dεn de day. As di nεv sεl dεm de day, dεn pat dεm na di bren de shrink, lεk bכtכm we de kכmכt na di bכdi. Dis kin mek di wok dɛn we dɛn eria dɛn de kɔntrol kin lɔs smɔl smɔl. Dis na sik we de go bifo ɛn i kin wɔs as tɛm de go.
Wetin na di men kayn FTD?
FTD nɔ de afɛkt ɔlman di sem we. Di sayn dɛm kin difrɛn difrɛn wan bay us pat pan di bren dɔn pwɛl. Fɔ fala dis, sɔm men kayn dɛn de.
| Kayn | Men tin dɛn we pɔsin kin si |
|---|---|
| Di we aw pɔsin de biev (bvFTD) . | Dis na di kayn we we pipul dɛn kin gɛt mɔ. Di pɔsin ɛn di we aw i de biev kin chenj kpatakpata. Dɛn kin du ɛn tɔk tin dɛn we pipul dɛn nɔ kin gri wit. Dɛn nɔ ɔndastand se wetin dɛn de du nɔ rayt. Dɛn nɔ kin gɛt sɔri-at igen. |
| Di prɔblɛm dɛn we pɔsin kin gɛt we i de tɔk (Primary Progressive Aphasia - PPA) . | Di men prɔblɛm we de ya gɛt fɔ du wit langwej. We wi de tɔk, i kin at fɔ fɛn wɔd dɛn, wɔd dɛn kin miks, ɛn i nɔ kin izi fɔ ɔndastand wetin dɛn de tɔk. As tɛm de go, di ebul fɔ rid ɛn rayt bak kin lɔs. |
| Tayp dɛm we kin mek i nɔ izi fɔ muv | dis inklud kכndishכn dεm lεk Kכtikobasal dεjεnεreshכn εn Progrεsiv supranuklyar palsi. Prɔblɛm dɛn we kin apin we pɔsin de muv di bɔdi. Fɔ ɛgzampul, i nɔ kin izi fɔ yuz wan say na di bɔdi, i nɔ kin balans we i de waka, ɛn i nɔ kin izi fɔ muv di yay. |
| FTD ɛn ɔda sik dɛn togɛda (lɛk FTD-ALS) . | Sɔntɛnde, FTD kin apin togɛda wit ɔda nyurolɔjik sik dɛn lɛk ALS, we kin mek di mɔsul dɛn wik. insay dis kes, dεn kin si bak di chenj dεm na di bihayvya εn tכk, wit di mכsul dεm we de wik kwik kwik wan. |
Wetin na di kɔmɔn sayn dɛm fɔ FTD?
Pan ɔl we di sik kin difrɛn frɔm wan pɔsin to ɔda pɔsin, sɔm tin dɛn de we kin apin we pɔsin kin si. Dɛn tin ya kin mek yu no bɔt di sik.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen |
|---|---|
| Lɔs fɔ intres (Apathy) . | Dɛn nɔ kin lɛk fɔ du ɛnitin ɛn dɛn nɔ kin want fɔ du ɛnitin. Dɛn kin pul dɛnsɛf kɔmɔt na di sosayti ɛn dɛn nɔ kin ivin tink bɔt dɛn yon klin. |
| Sɔshial bihayvya we nɔ fayn | We yu de tɔk, ‘filta’ nɔ de. Dɛn kin tɔk ɛnitin we kam na dɛn maynd, ɛn dɛn nɔ kin tink if i go mek ɔda pipul dɛn fil bad. Dɛn kin tɛmpt dɛn fɔ du tin dɛn we de mek dɛn denja. |
| I nɔ go ebul fɔ fil sɔri fɔ ɔda pipul dɛn | Dɛn nɔr kin ebul fɔ ɔndastand aw ɔda pipul dɛn de fil, lɛk fɔ fil bad ɔr gladi at. Dɛn kin du tin lɛk se dɛn nɔ gɛt at. |
| Di chenj dɛn we de apin na di we aw pɔsin de it | Fɔ it bɔku it wan tɛm, mɔ swit. Sɔm pipul dɛn kin tɛmpt fɔ it tin dɛn we dɛn nɔ fɔ it (e.g., dɔti, pepa). Dɛn kɔl dis Pica insay mɛrɛsin. |
| Fɔ ripit di sem tin | Fɔ ripit di sem wɔd ɔ sɛntɛns bak ɛn bak. Ɔ fɔ du di sem akshɔn (e.g., fɔ klap). |
| I nɔ izi fɔ plan fɔ du sɔntin | I kin at fɔ plan fɔ wok, fɔ sɔlv prɔblɛm dɛn, ɛn fɔ disayd fɔ du sɔntin. |
De impɔtant tin na dat, dɛn sayn ya nɔr kin rili klia fɔs, bɔt smɔl smɔl dɛn kin wɔs as tɛm de go.
Wetin mek FTD de divɛlɔp? Udat dɛn de pan denja?
Risach pipul dɛn stil nɔ shɔ wetin rili de mek pɔsin gɛt FTD, bɔt dɛn de tink bɔt tu men tin dɛn.
- di protin dεm we de dכn: dεn biliv se abnכmal protin dεm de kכmכt insay di nεv sεl dεm na di bren, we de pwεl di sεl dεm εn mek dεn day.
- Jɛnɛtik inflɔɛns: Na lɛk wan pat pan tri pipul dɛm wae gɛt FTD gɛt famili histri bɔt dis sik. Dis min se if pɔrsin na yu famili dɔn gɛt dis sik, yusɛf de pan denja fɔ gɛt dis sik. Dis kin bi bikɔs yu jin dɛn chenj.
Apat frɔm dat, sɔm stɔdi dɛn dɔn sho se wan bad bad injuri na in ed bifo (traumatic brain injury) kin bi bak wan risk factor.
Aw dɔktɔ kin no se i gɛt FTD?
Fɔ no FTD kin tranga, bikɔs de sayn dɛm kin tan lɛk ɔda mɛntɛl sik dɛm (lɛk pwɛl hat) ɔr Alzaima.
So, di dɔktɔ go aks yu ɛn di pɔsin we sik wan ditayli kwɛstyɔn bɔt yu sik dɛn. Afta dat, dɛn kin du sɔm tɛst fɔ mek shɔ se no ɔda mɛrɛsin nɔ de.
- Blɔd tɛst: Chɛk fɔ ɔda mɛrɛsin dɛn.
- Bren imej tɛst: Dɛn kin du tɛst lɛk MRI, CT skan , ɔ PET skan fɔ si if di frɔntal lɔb dɛn na di bren dɔn smɔl.
- Kɔgnitiv tɛst: Dɛn kin gi yu sɔm kwɛstyɔn ɛn aktiviti dɛm wae de mɛzhɔ tin dɛm lɛk mɛmori, atɛnshɔn, ɛn ebul fɔ sɔlv prɔblɛm.
- Jɛnɛtik tɛst: Dɛn kin du am if nid de dipen pan di famili istri.
Afta we di dɔktɔ dɔn luk ɔl dis, i kam fɔ no se na FTD.
Wetin na di tritmɛnt dɛm fɔ FTD?
Di sad tin na dat, no mɛrɛsin nɔ de fɔ FTD yet. Bɔt sɔm tritmɛnt dɛn de we kin ɛp fɔ kɔntrol di sik dɛn ɛn mek di pɔsin kɔntinyu fɔ liv in layf fɔ lɔng tɛm.
- Mεdikeshכn: Dɛn kin gi mεdikeshכn lεk Selective Serotonin Reuptake Inhibitors (SSRI) fכ kכntrכl di prכblεm dεm we yu de biev (vεkshכn, impulsivity). Dɛn kin gi ɔda mɛrɛsin dɛn bak fɔ di wan dɛn we gɛt prɔblɛm wit dɛn maynd.
- Di tritmɛnt we dɛn kin gi:
- Spich therapy: If yu gɛt prɔblɛm fɔ tɔk, dis kin ɛp yu fɔ praktis ɔda we dɛn fɔ tɔk to pipul dɛn.
- Fizik tritmɛnt: If prɔblɛm de fɔ muv, dɛn kin se fɔ ɛksesaiz fɔ mek di bɔdi balans ɛn gɛt trɛnk.
- Di tin dɛn we de ɛp yu: If i nɔ izi fɔ yu fɔ waka, yu kin yuz tin dɛn lɛk pɔsin we de waka ɔ wilchia.
Dɛn kin no ɔl dɛn tritmɛnt ya bay di sikman in kɔndishɔn ɛn di sayn dɛm. So, i rili impɔtant fɔ tɔk to yu dɔktɔ ɛn fala in instrɔkshɔn dɛn di rayt we .
Wetin fɔ ɛkspɛkt we yu de liv wit FTD?
Dis na waka we rili tranga fɔ di pɔsin we sik ɛn di famili we de kia fɔ dɛn. As di sik de go bifo, di pɔsin nɔ kin ebul fɔ du tin dɛn we i kin du ɛvride fɔ insɛf. So, dɛn kin nid fɔ kia fɔ dɛn ɔltɛm.
If dɛn no se yu gɛt dis sik we i bigin, wan impɔtant tin de we yu kin du. Dat na fɔ disayd bɔt yu tumara bambay, tɛl di wan dɛn we yu lɛk, ɛn mek dɛn pripia di lɔ dɛn we de na di lɔ.
I at fɔ gɛt dis kayn tɔk. Bɔt i kin mek di famili nɔ wɔri bɔt "wetin i go want?" afta di sik dɔn go bifo te i nɔ ebul fɔ disayd fɔ du sɔntin.
Pan ɔl we di avɛrej layf we pɔsin kin liv afta dɛn dɔn no se i gɛt FTD na lɛk 7-13 ia, dɛn statystik ya nɔ kin apin to ɔlman. Dis kin difrɛn frɔm wan pɔsin to ɔda pɔsin. Di bɛst pɔsin fɔ no gud gud wan wetin yu lɛk in sik na dɛn dɔktɔ.
Dayrɛkt day frɔm FTD nɔ kin bɔku, bɔt kɔmplikeshɔn dɛn lɛk nyumonia we kin kam bikɔs i nɔ kin izi fɔ swɛla kin mek pɔsin in layf de pan denja.
Mɛsej we dɛn kin kɛr go na os
- Frontotemporal Dementia (FTD) na wan sik wae kin mɔs afɛkt aw pɔrsin de biev, aw pɔrsin de fil, ɛn aw pɔrsin de tɔk , pas fɔ mɛmba aw pɔrsin kin mɛmba.
- Dis na sik wae kin wɔs smɔl smɔl as tɛm de go.
- Pan ɔl we dɛn nɔ gɛt kɔmplit mɛrɛsin, tritmɛnt dɛn de we go ebul fɔ kɔntrol di sik dɛn ɛn gi di pɔsin we sik.
- If yu notis se sɔmbɔdi na yu famili de biev ɔ tɔk we i nɔ de ɛksplen, we nɔ de chenj, go to dɔktɔ wantɛm wantɛm fɔ advays.
- I rili impɔtant fɔ no di sik kwik kwik wan, plan fɔ tumara bambay, ɛn gɛt di sɔpɔt we yu nid fɔ di pɔsin ɛn in famili.
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