Yu dɔn ɛva si pɔsin na yu famili ɔ pɔsin we yu sabi kin fɔdɔm wantɛm wantɛm ɛn fɔdɔm we i de du ɛksɛsayz ɔ we dɛn de fred bad bad wan? Sɔntɛnde, biɛn dɛn kayn tin ya, wan at sik kin de we wi nɔ yɛri bɔku bɔt, bɔt we kin rili siriɔs. Wan pan dɛn kayn tin ya na Long QT Syndrome (LQTS). Pan ɔl we di nem kin tan lɛk se i kɔmplikt smɔl, lɛ wi ɔndastand am simpul wan.
Wetin na Lɔng QT Sindrom (LQTS)?
Fɔ tɔk am simpul wan, Long QT Syndrome (LQTS) na prɔblɛm wit yu at in ilɛktrik sistɛm.
Tink bɔt yu at lɛk flash na kamɛra. Afta i bit wan tɛm, i nid fɔ chaj am smɔl bifo i ebul fɔ bit bak. na so di at in ilektrikal sistεm nid fכ richaj bitwin di bit dεm. di tεm we i tek fכ dis apin na wetin wi de mכsu pan ECG (Electrocardiogram) as di QT intaval .
Dis richaj tɛm kin lɔng fɔ pɔsin we gɛt LQTS pas fɔ pɔsin we nɔmal. Dis min se di at in ilɛktrik sistɛm kin tek lɔng tɛm fɔ rɛdi fɔ di nɛks bit.
Aw dis kin apin?
di ilɛktrik wok we wi at de du na smɔl smɔl tin dɛn we gɛt ilɛktrik chaj we dɛn kɔl ayɔn (fɔ ɛgzampul, sɔdiɔm, potashɔm, kalsiɔm) de kɔntrol am. dis ayכn dεm de muv insay εn kכmכt na di at mכsul sεl dεm tru sכm sכm sכm get dεm we dεn kכl ayכ n chεnal dεm .
insay Long QT Syndrome, dεn ayכn chεnal dεm ya nכ de wok fayn כ dεn de mis inof. Dis kin mek di at richaj tumɔs let.
we di QT intaval de lכng dis we, wan rili denja, we de mek yu layf de pan denja, we de bit kwik kwik wan, we nכ de bit rεgulεr (arithmia) kin apin. We wi de tɔk bɔt mɛrɛsin, wi kin kɔl dis Torsades de Pointes . Dis na wan kayn denja sik we dɛn kɔl Ventricular Tachycardia .
Wetin na di men kayn LQTS?
LQTS kin sheb to tu men kayn: inherited ɛn acquired.
1. LQTS we dɛn kin gɛt frɔm dɛn mama ɛn papa
Dis kin apin bikɔs ɔf wan prɔblɛm we de na in jɛnɛtiks. Dat min se na frɔm mama ɛn papa dɛn kin gɛt am to pikin dɛn. Na ya bak, sɔm men kayn dɛn de.
| Di kayn LQTS we dɛn bɔn wit | Wan simpul ɛksplen |
|---|---|
| Romano-Ward Sindrom we gɛt di sik | Dis na di kayn we we pipul dɛn kin gɛt mɔ. If na so i bi, wan pan di mama ɛn papa dɛn kin gɛt LQTS. 50% chans de fɔ mek pikin gɛt di sik. Fɔ yɛri (yɛri) pan dɛn pipul ya na nɔmal tin. |
| Jervell ɛn Lange-Nielsen Sindrom | Dis nɔ kin apin so ɔltɛm. insay dis kes, dεn tu mama εn papa na di wan dεm we de kכri di LQTS jin (dεn kin nכ gεt di simptom dεm). 25% chans de fɔ mek pikin gɛt di sik. Bɔku tɛm, dɛn kin bɔn pikin dɛn we gɛt dis sik dɛf. |
| Wan sik we dɛn kɔl Timothy Syndrome | Dis na wan kayn we bak we nɔ kin apin so ɔltɛm. I nɔ kin afɛkt di at nɔmɔ, bɔt i kin afɛkt ɔda pat dɛn na di bɔdi bak. |
2. LQTS we dɛn dɔn gɛt
Dis nɔto bikɔs ɔf di tin dɛn we de apin na di bɔdi. Sɔm pipul dɛn kin bɔn wit smɔl wikɛd na dɛn ayɔn chanɛl. Bɔt dat nɔto prɔblɛm. Bɔt dis kɔndishɔn kin kam bikɔs ɔf sɔm tin we de na do.
Di men rizin dɛn na:
- Sɔm mɛrɛsin dɛn: Sɔm antibayɔtik, antidipreshɔn, antiaritmik, ɛn diuretik.
- Di sɔl we de na di bɔdi we de go dɔŋ: Di potashɔm, magnɛsiɔm, ɔ kalsiɔm we de na di blɔd de go dɔŋ.
- Ɔda tin dɛn we kin mek yu gɛt dis sik: I kin gɛt prɔblɛm wit yu it lɛk anorexia nervosa, i kin pwɛl yu nervos sistɛm, ɛn sɔm pɔyzin dɛn.
Wetin dɛn sayn ya kin bi?
Di tin we denja pas ɔl bɔt LQTS na dat lɛk 50% pan pipul dɛn nɔ kin gɛt ɛni sayn . Bɔt we di sayn dɛn kin apin, bɔku tɛm dɛn kin siriɔs. Dɛn sayn ya kin apin we di denja at ritm patɛn we wi bin dɔn tɔk bɔt we dɛn kɔl Torsades de Pointes kin apin.
| Di men simptom | Wetin kin apin to am? |
|---|---|
| Sinkɔp we dɛn kɔl Syncope | Bikɔs di at nɔ de bit ɔltɛm, di bren nɔ de gɛt inof blɔd. Dis kin mek yu nɔ no natin wantɛm wantɛm ɛn fɔdɔm. |
| Di sik dɛn we kin mek pɔsin sik | Sɔntɛnde, wan sik we dɛn kɔl seizure kin apin bikɔs di blɔd nɔ de flɔ na di bren. |
| Di Kadiak Arest | If da denja at bit de kɔntinyu, di at kin stɔp fɔ bit kpatakpata. |
| Day Wantɛm wantɛm | Di at kin kil pɔsin if dɛn nɔ trit am wantɛm wantɛm. Sɔntɛnde, dis na di fɔs sayn fɔ pɔrsin wae gɛt LQTS. |
Situeshɔn dɛm wae de sayn dɛm kin apia mɔr:
- We yu de du ɛksɛsayz ɔ afta yu dɔn.
- pan tεm we dεn de sכdεn, tranga mεntal stimulashכn (e.g., we yu rili fred, sכt).
- We yu de slip ɔ we yu wek wantɛm wantɛm frɔm slip.
Udat de pan big risk fɔ gɛt dis sik?
Dɛn pipul ya de pan ay risk fɔ gɛt LQTS:
- Klos blɔd fambul (mama ɛn papa, brɔda ɛn sista, pikin) fɔ pɔsin we gɛt LQTS.
- Pipul wae gɛt famili histri wae nɔr kin ebul fɔ mɛmba, wae dɛn kin gɛt sik, ɔr kin day wantɛm wantɛm wae dɛn yɔŋ.
- Pikin dɛm we dɛn bɔn dɛf (bikɔs ɔf di risk fɔ gɛt Jervell ɛn Lange-Nielsen Syndrome).
- Pipul wae gɛt ɔda hat sik lɛk cardiomyopathy.
- Pipul dɛm wae de yuse mɛrɛsin wae de prolɔng di QT intaval.
If dɛn dɔn no se pɔsin na yu famili gɛt LQTS, i fayn fɔ mek dɛn du tɛst fɔ am. Fɔs, tɛl yu dɔktɔ bɔt am. I go rifer yu fɔ mek dɛn du ECG tɛst.
Aw yu go no if yu gɛt LQTS?
di men we fכ no dis na bay we dεn de du ECG (Electrocardiogram).Tɛst. Di dɔktɔ de mɛzhɔ di QT intaval pan di ECG. Bɔku tɛm, if dis tɛm pas 450 milisekɔnd, dɛn kin sɔprayz se LQTS de.
Apat frɔm dat, di dɔktɔ kin tɛl yu fɔ du sɔm ɔda tɛst dɛn:
- Blɔd tɛst: Chɛk di lɛvɛl we di sɔl dɛn de na di bɔdi, lɛk potashɔm ɛn magnɛsiɔm.
- Ɛksesaiz Strɛs Tɛst: Si aw yu at de chenj we yu de du ɛksɛsayz.
- Ambulatory Monitor (Holter Monitor): Dɛn kin put smɔl tin na yu chɛst fɔ kɔntinyu fɔ rikodɔ yu at ritm fɔ 24 awa ɔ mɔ.
- Jεnεtik tεst: Chεk fכ jεnεtik mכtεshכn dεm we de asai wit LQTS.
Wetin na di tritmɛnt dɛm fɔ dis?
Pan ɔl we dɛn nɔ go ebul fɔ mɛn LQTS ɔltogɛda, tritmɛnt dɛn de we kin ɛp fɔ kɔntrol di sik dɛn, fɔ mek pɔsin nɔ day wantɛm wantɛm, ɛn fɔ liv nɔmal layf.
| Di we aw dɛn kin trit am | Tɔk bɔt |
|---|---|
| Di mɛrɛsin dɛn we dɛn kin yuz | Dɛn kin gi bɔrku pipul dɛm (ivin di wan dɛm wae nɔr gɛt di sik) beta-blɔka mɛrɛsin. dis dεm de εp fכ kכntrכl di at rεt sכmtεm εn rεdכks di hat in rεspכns to sכdεn stimuli. |
| Divays dɛn we dɛn kin yuz |
|
| Ɔpreshɔn | Left Cardiac Sympathetic Denervation (LCSD) fɔ di wan dɛn we gɛt ay risk we at fɔ kɔntrol wit mɛrɛsin ɛn divaysDis ɔpreshɔn kin min fɔ pul sɔm pan di nɛv dɛn we de go na di at, ɛn dis kin mek di at nɔ ebul fɔ du sɔntin wantɛm wantɛm. |
Tin dɛn fɔ tink bɔt we yu de liv wit LQTS
I pɔsibul fɔ liv nɔmal, ful layf wit LQTS. Bɔt, sɔm tin dɛn de we yu fɔ no bɔt ɛvride.
1. Nɔys ɛn strɛs wantɛm wantɛm
Fɔ pipul dɛm wae gɛt sɔm kayn LQTS, sɔdɛn, lawd nɔys (e.g., alam, fon ring) ɔr sɔdɛn shɔk ɔ frayd kin bi denja.
- Tɛl yu fambul ɛn padi dɛn se i nɔ sef fɔ provok yu.
- Bifo yu yuz alam klok dɛn we de mek lawd lawd wan, yuz wan dɛn we de ple myuzik saful saful.
2. Ɛksesaiz ɛn spɔt
Fɔ pipul dɛm wae gɛt sɔm kayn LQTS, kɔmpitishɔn spɔt ɛn strɛs ɛksɛsayz kin bi patikyula risky.
- Mek shɔ se yu aks yu dɔktɔ us ɛgzampul dɛn we fayn ɛn we nɔ fayn fɔ yu.
- Fɔ swim kin denja mɔ fɔ sɔm pipul dɛn. Risk de fɔ drawn if yu lɔs kɔnshɛns na di wata. Nɔ go swim yu wan.
3. Tek tɛm mɔ wit mɛrɛsin!
Dis na di tin we impɔtant pas ɔl. Ivin bɔku kɔmɔn mɛrɛsin dɛn kin mek LQTS wɔs.
- Tɛl ɔl dɔktɔ we de trit yu se yu gɛt LQTS.
- Bifo yu gi yu mɛrɛsin fɔ ɛni ɔda sik, tɔk to yu dɔktɔ we de mɛn yu at.
- Nɔ bay ɛni mɛrɛsin we yu kin bay na famasi ɔ ɛni ɔda say we yu nɔ go to dɔktɔ (eksept fɔ tin dɛn lɛk plain paracetamol ɛn aspirin).
Ustɛm a fɔ go to dɔktɔ?
We dɛn dɔn no se yu gɛt LQTS, yu fɔ go to yu dɔktɔ wan tɛm insay di ia fɔ mek dɛn chɛk yu. I bɛtɛ fɔ go to ilɛktrɔfisiɔlɔjis, dɔktɔ we spɛshal pan at ritm dizayd.
If yu pikin gɛt dis sik, yu go nid fɔ go to dɔktɔ ɔltɛm bikɔs dɛn nid fɔ ajɔst di doz fɔ di mɛrɛsin akɔdin to dɛn wet.
Ustɛm a fɔ go na di ETU (Imejɛnsi Tritmɛnt Yunit)?
If pɔsin nɔ no natin ɛn i fɔdɔm, kɔl ambulans wantɛm wantɛm. Insay da tɛm de, if pɔsin de we dɛn tren fɔ du CPR (cardiopulmonary resuscitation), gi am. Insay dis kayn tin, ɛvri sɛkɔn impɔtant.
Mɛsej we dɛn kin kɛr go na os
- Long QT Syndrome (LQTS) na wan jεnεtik כ akwyayz kכndyushכn we di at in ilektrikal sistεm de tek tu lכng fכ richaj.
- I nɔ kin no natin wantɛm wantɛm, i kin gɛt sik we i de fil, ɛn at kin pwɛl we i nɔ ebul fɔ ɛksplen na di men sayn dɛm. Bɔt bɔku pipul dɛn nɔ kin gɛt ɛni sayn atɔl.
- If ɛnibɔdi na yu famili gɛt dis sik ɔr gɛt histri fɔ day wantɛm wantɛm we i yɔŋ, i rili impɔtant fɔ mek yu du ECG tɛst bak.
- Bifo yu tek ɛni mɛrɛsin (ivin fɔ ɔda tin dɛn), tɔk to yu dɔktɔ fɔ mek shɔ se i nɔ bad fɔ yu.
- If yu gɛt di rayt tritmɛnt (mɛdikeshɔn, ICD divays) ɛn chenj in layf, pɔsin we gɛt LQTS kin liv ful, wɛlbɔdi layf. Wi nɔ nid fɔ fred, bɔt i rili impɔtant fɔ tek tɛm.
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