Wetin na MRKH sindrom (Mayer-Rokitansky-Küster-Hauser Sindrom)? Wi go tɔk bɔt dis?

Yu gyal pikin, ɔ yɔŋ pikin we yu sabi, nɔ dɔn bigin fɔ gɛt bɛlɛ yet pan di rit we fit in ej? Ɔ, sɔntɛnde i kin fil pen ɔ nɔ kin fil fayn we i de tray fɔ du mami ɛn dadi biznɛs? Tide wi go tɔk bɔt wan spɛshal wɛl bɔdi prɔblɛm wae kin kam wit dɛn tin ya, bɔt nɔr kin bɔrku ɛn nɔr bɔrku pipul dɔn yɛri bɔt am. Dɛn kɔl dis Meyer-Rokitansky-Küster-Hauser sindrom , ɔ ``MRKH sindrom'' fɔ shɔt. Pan ɔl we i kin tan lɛk se di nem lɔng smɔl, dis na tin we nɔ kin apin so ɔltɛm we kin afɛkt uman dɛn. Lɛ wi tɔk bɔt am simpul wan, di we we yu go ɔndastand.

Wetin rili na MRKH sindrom?

Fɔ tɔk am simpul wan, MRKH sindrom na wan sik we uman in vagina ɛn uterus nɔ de divɛlɔp fayn ɔ nɔ de fulɔp we dɛn bɔn am. Tink bɔt am lɛk we dɛn de bil os wit sɔm rum dɛn we nɔ fɔm fayn. Bɔt bɔku tɛm, di ovaria ɛn di fallopian tyub dɛn fɔ pipul dɛn we gɛt dis sik kin wok nɔmal wan . כlso, di εksternal jεnitalia, dat na di lכw pat pan di vagina, di vagina opin, di labia, di klitoris, εn di ia we de gro rawnd dεm, na nכmal tin. Di urethra nɔ de afɛkt, so prɔblɛm nɔ de fɔ pis.

Bɔt pan sɔm kayn MRKH sindrom, sɔm prɔblɛm dɛn kin de pan di divɛlɔpmɛnt pan ɔda ɔgan dɛn lɛk di kidni ɛn di spayna.

Bɔrku tɛm, dɛn kin no dis sik we dɛn yɔŋ, dat na we dɛn ol 15-16 ia, we dɛn nɔ kin bigin fɔ gɛt mɔnt. dis na biכs di uterus nכ de divεlכp fulכp, so mεnstral nכ de apin. Sɔntɛnde, we yu de tray fɔ du mami ɛn dadi biznɛs, di vagina kin fil pen ɔ i kin at bikɔs i shɔt ɛn smɔl.

Bikɔs di uterus nɔ dɔn ful-ɔp ɔ i nɔ de, i nɔ pɔsibul fɔ gɛt bɛlɛ ɛn kɛr pikin if dɔktɔ nɔ ɛp am na dis sityueshɔn. כltu, if di ovaria dεm de wok εn di eg dεm de prodyuz , dεn kin tink bכt opshכn dεm lεk ``IVF - in vitro fεtilayzεshכn`` εn ``surrogacy``. If yu de op fɔ bɔn pikin, i rili impɔtant fɔ tɔk to yu dɔktɔ bɔt am. Dɔn dɛn kin advays yu bɔt di tin dɛn we yu go ebul fɔ du we fayn fɔ yu.

Dɛn kin yuz sɔm ɔda nem dɛn fɔ `(MRKH sindrom)`:

• di uterus εn vagina nכ de we dεn bכn am (CAUV) .
• Vagina ajenεsis we de na di vagina
• Müllerian ajɛnɛsis we dɛn kɔl
• Mullerian aplasia (MA) we gɛt di sik.
• Sindrom we de na di jɛnɛral rεnal ia (GRES) .

Sɔm kayn MRKH sindrom de?

Yes, tu men kayn `(MRKH syndrome)` de:

• Tayp 1: .insay dis kayn we, di ovaria dεm εn di fallopian tyub dεm de wok nכmal wan, bכt di כp pat pan di vagina, sεviks, εn uterus de blכk כ nכ de insay in ples. Bɔt dis nɔ kin afɛkt ɛni ɔda pat na di bɔdi.

• Tayp 2: pan dis kayn, apat frכm di כp pat pan di vagina, sεviks, εn uterus we de blכk כ we nכ de insay, sכm prכblεm kin de bak wit di fallopian tyub, ovaria, spayna, kidni, כ כda כgan dεm.

Aw kɔmɔn tin dis kin apin?

MRKH sindrom na wan sik we nɔ kin apin so ɔltɛm . Na lɛk wan pan ɛvri 4,500 gyal pikin dɛn nɔmɔ i kin afɛkt. So i nɔ sɔprayz fɔ no se wi nɔ yɛri bɔku tin bɔt am.

Wetin na di sayn dɛm fɔ MRKH?

Di sayn dɛm fɔ MRKH sindrom kin difrɛn difrɛn wan fɔ di kayn wae yu gɛt.

Bɔku tɛm, di men sayn na we i nɔ de gɛt mɔnt (amenorrhea) we i ol 16. Dis na sayn fɔ se di uterus ɔ di vagina nɔ dɔn divɛlɔp fayn fayn wan. Bɔt bikɔs di ovaria dɛn de wok nɔmal wan, ɔda sayn dɛn we gɛt fɔ du wit di mɔnt, lɛk fɔ blo ɛn fɔ chenj di we aw yu de fil kin apin ivin if yu nɔ gɛt blɔd.

Bikɔs yu gɛt uman kromozom ɛn ɔmon, yu kin gɛt nɔmal sɛkshɔnal divɛlɔpmɛnt, lɛk di bɔdi we de gro ɛn di ia we de gro na di armpit ɛn di say we yu de bɔn. Bɔt yu kin fil pen ɔ nɔ kin fil fayn we yu fɔs tray fɔ du mami ɛn dadi biznɛs wit yu vagina. dis na biכs yu vagina tכn, sכm, εn sכt pas aw i nכmal.

If yu gɛt Tayp 2 MRKH, yu kin gɛt ɔda sayn dɛn bak lɛk:

• Kidni kɔmplikeshɔn, ɔ we wan ɔ ɔl tu di kidni dɛn nɔ wok fayn.
• prכblεm wit di vεrbra dεm na di spayna כ כda skel sistεm difכmiti dεm.
• I nɔ de yɛri fayn.
• Sɔm prɔblɛm dɛn we kin apin to pɔsin in at.

Wetin kin mek pɔsin gɛt MRKH?

Risach pipul dɛm stil nɔr no di rayt kɔz fɔ MRKH sindrom. Bɔt dɛn no se i gɛt fɔ du wit sɔm prɔblɛm dɛn wit di jin ɛn kromozom dɛn. Bɔt dɛn nɔ ebul fɔ pin am dɔŋ to wan patikyula jin. Di impɔtant tin na dat nɔto sɔntin we di mama du ɔ nɔ du we i gɛt bɛlɛ . So nɔ wɔri bɔt am.

di uman in riprodaktiv sistεm de bigin fכ divεlכp insay di fכs wik dεm we i bεlε. di fallopian tubes, uterus, sεviks, εn כp pat pan di vagina de fכm frכm sכmtin we dεn kכl Müllerian ducts . pan pipul dεm wae gεt MRKH sεndrכm, dεn Müllerian dakt dεm ya nכ de divεlכp ful wan. Dɛn nɔ no yet wetin mek dis kin apin to sɔm pipul dɛn. כltu, biכs di ovaria dεm de divεlכp sεparat frכm di rεprכdaktiv sistεm, di ovaria dεm nכ kin afekt.

Aw yu go no fɔ tru if yu gɛt MRKH?

Bɔku tɛm, dɔktɔ dɛn kin no se i gɛt MRKH sindrom we yɔŋ gyal pikin nɔ gɛt in fɔs prɛgnɛshɔn.

Di fɔs tin we yu fɔ du fɔ no dis sik na fɔ chɛk yu bɔdi . Yu dɔktɔ go put finga we gɛt glɔv insay yu vagina ɛn mɛzhɔ in dip ɛn waid. dis tεst kin no MRKH biכs di vagina sכt. Dɔn, dɛn kin aks yu fɔ du imej tɛst, lɛk ɔltra saund skan ɔ MRI (magnetic resonance imaging) skan, fɔ si if yu uterus, fallopian tyub, kidni, ɔ ɔda ɔgan dɛn afɛkt. Sɔntɛnde, dɛn kin du blɔd tɛst fɔ chɛk yu ɔmon lɛvɛl.

Wetin na di tritmɛnt dɛm fɔ MRKH?

Di tritmɛnt fɔ MRKH sindrom kin difrɛn difrɛn wan fɔ yu gol ɛn di sayn dɛm wae yu gɛt. Tritmɛnt dɛn de we dɛn kin du fɔ ɔpreshɔn ɛn we dɛn nɔ kin du ɔpreshɔn. Sɔm pan dɛn tin ya na vaginoplasty, vagina dilation, ɛn uterine transplant.

Dilashɔn we di vagina de mek

Wan we we dɔktɔ dɛn kin yuz fɔ strɛch di vagina na fɔ yuz tin dɛn we dɛn kɔl vagina dilators . Dɛn mek dɛn tin ya wit plastic ɔ silikon ɛn dɛn kin gɛt difrɛn lɔng ɛn wayd. dis tin dεm we lεk tyub de εp fכ mek di vagina big εn strεch frכm insay. Yu dɔktɔ go ɛksplen to yu di bɛst we fɔ yuz vagina dilator fɔ yu sityueshɔn.

Vaginoplasty (ɔspitul fɔ mek di vagina bak) .

Vaginoplasty na ɔpreshɔn fɔ mek vagina . Di dɔktɔ dɛn we de du ɔpreshɔn gɛt bɔku we dɛn fɔ du dis. Bɔku tɛm, dɛn kin mek ol ɛn kɔba am wit tisu we dɛn tek frɔm ɔda pat na yu bɔdi. Dis kin mek yu ebul fɔ du mami ɛn dadi biznɛs di we aw Gɔd nɔ want.

Transplant fɔ di uterus

we dεn transplant di uterin kin gi uman we gεt MRKH sεndrכm di chans fכ kכri pikin. Dis na big ɔpreshɔn. I min fɔ transplant uterus frɔm pɔsin we gi am to uman we nɔ gɛt am. Dis kin gi pipul dɛm wae gɛt MRKH di chans fɔ kɛr ɛn bɔn dɛn yone pikin. Dɛn nɔ dɔn du uterin transplant yet bɔku bɔku wan na ɔl pat na di wɔl, bɔt i kin bi tritmɛnt we go rili wok fayn tumara bambay.

Yu tink se dɛn go ebul fɔ mek dis tin nɔ apin?

Nɔ, no we nɔ de fɔ mek dɛn nɔ gɛt MRKH sindrom . I kin apun pan pipul dɛm wae nɔr dɔn ɛva gɛt am bifo, ɔr kin kɔmɔt frɔm dɛn jɛnɛtiks. As wi bin dɔn tɔk, nɔto wan patikyula jin de mek i apin.

Pipul wae get MRKH kin geht pikin?

Yes, pipul dɛm wae gɛt `(MRKH syndrome)` kin gɛt pikin!if yu ovaria dεm de wok, dεn kin miks yu eg dεm wit sεl dεm εn fεtilayz dεm yuz in vitro fεtilayzεshכn (IVF). afta dat dεn kin tכn di εmbrayo to wan jεstεshכnal kεriכ/sכrogεt mama . Dis min se yu go gɛt pikin we gɛt yu yon jin, we de gro na ɔda uman we gɛt wɛlbɔdi in bɛlɛ.

Us ɔda wɛlbɔdi prɔblɛm dɛn we MRKH kin kam wit?

Wi bin dɔn tɔk bifo tɛm se pipul dɛm we gɛt ``Type 2`` MRKH kin gɛt prɔblɛm bak wit ɔda ɔgan dɛm, lɛk di kidni, spayna, ɔ at. Apat frɔm dat, ɔda wɛlbɔdi prɔblɛm dɛn we kin apin to pipul dɛn we gɛt ``Type 2`` MRKH na:

• Prɔblɛm dɛn we gɛt fɔ du wit di vɛrbra dɛn na di spayna.
• Skɔliosis we de mek pɔsin gɛt sik.
• di kidni malfכmeshכn, inklud di fכs fכ di kidni dεm כ we wan כ tu kidni dεm nכ de (rεnal agenesis).
• Di risk fɔ gɛt ston na di kidni, infekshɔn na di urinary tract, ɛn urinary tract obstruction.
• I nɔ de yɛri fayn.
• At sik.

di komplikashכn dεm we de fכ di rεprכdaktiv sistεm kin kכmכn pan pipul dεm we gεt MRKH. apat frכm we dεn nכ kin ebul fכ bεlε כ fכ bכn dεn pikin, dεn wan dεm we nכ de divεlכp uterus kin gεt kכndyushכn dεm lεk εndometriosis.

Wit ɔl dis, na nɔmal tin fɔ fil sɔm kayn strɛs we yu de fil . Yu dɔktɔ kin tɛl yu fɔ jɔyn sɔpɔt grup ɔ go fɛn saykilɔjik kɔyl savis, lɛk kɔgnitiv-bihayvya tɛrapi (CBT), fɔ ɛp yu fɔ bia wit di tin we de apin. Dɛn tin ya kin rili ɛp wi.

E nɔr wɔnda fɔ no se yu gɛt Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome kin bi big shɔk. If dɛn bɔn yu wit yu uterus ɔ vagina we nɔ de divɛlɔp, yu nɔ go no am te yu yɔŋ ɛn jɔs bigin fɔ gɛt mɔnt. Pan ɔl we i nɔ kin mek pɔsin in layf de pan denja, i kin mek pɔsin strɛs bad bad wan, i kin ambɔg di we aw uman kin ebul fɔ gɛt bɛlɛ ɛn du mami ɛn dadi biznɛs. Sɔntɛnde, i kin afɛkt ɔda ɔgan dɛn ɛn i kin mek pɔsin gɛt sɔm kayn wɛlbɔdi prɔblɛm dɛn.

Di tin dɛn we impɔtant pas ɔl fɔ mɛmba (Take-Home Message) .

Okay, so naw yu dɔn ɔndastand mɔ bɔt wetin wi bin de tɔk bɔt, ``MRKH syndrome.'' Di impɔtant tin fɔ mɛmba na dat yu nɔr de yu wan . Ɔda pipul dɛn de na di wɔl we de liv wit dɛn kayn tin ya.

• If yu gɛt sayn dɛn lɛk dis, i rili impɔtant fɔ go to gud dɔktɔ ɛn gɛt kɔrɛkt diagnosis .
• Tritmɛnt dɛn de we dɛn kin gɛt. Tɔk to yu dɔktɔ ɛn pik di tritmɛnt we go fayn fɔ yu.
• Nɔ giv ɔp op fɔ pikin dɛn. Wit teknɔlɔji dɛm lɛk `(IVF)` ɛn `(surrogacy)`, chans de fɔ mek da drim de kam tru.
• Tek kia ɔf yu maynd wɛlbɔdi bak.If nid de, go to advays ɛn jɔyn sɔpɔt grup wit pipul dɛn we dɔn gɛt di sem kayn ɛkspiriɛns. Dis go gi yu bɔku trɛnk.
• Dis nɔto yu fɔlt. Dis na nɔmal tin we kin apin to ɛnibɔdi.

Yu dɔktɔ, ɛn sɔntɛm wan tim fɔ spɛshal pipul dɛn, go gi yu di sɔpɔt ɛn gayd we yu nid fɔ go bifo wit dis `(MRKH sindrom)`. Trɔst dɛn. If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis, nɔ fred fɔ aks am. Bi wɛlbɔdi!

` MRKH sindrom, Mayer-Rokitansky-Küster-Hauser Sindrom, vagina agenesis, uterin agenesis, uman in hεlth, riprodaktiv hεlth, amenoria