Sɔntɛnde yu kin wek na mɔnin ɛn fil lɛk se yu nɔ gɛt trɛnk? Ivin if yu slip fayn fɔ lɔng tɛm na nɛt, yu kin stil fil taya lɛk se yu dɔn du bɔku wok ɔl di de? If yu fil se yu ɔl bɔdi de at ɛn yu nɔ ebul fɔ pe atɛnshɔn ivin afta yu dɔn du smɔl wok, lɛk fɔ klin di os ɔ fɔ go na di stoa, dat min se yu fɔ rid dis atikul. Sɔntɛm yu nɔ jɔs taya. Tide wi de tɔk bɔt wan kɔndishɔn we bɔku pipul dɛn nɔ no bɔt, bɔt we gɛt big impak pan dɛn layf.
Fɔ tɔk am simpul wan, wetin na di sik we dɛn kɔl Chronic Fatigue Syndrome (ME/CFS)?
Pan ɔl we di lɔng nem `(Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)` kɔmplikt smɔl, wi kin kɔl am Kronik Fatigue Syndrome `(Kronik Fatigue Syndrome)` ɔ `(ME/CFS)` fɔ shɔt. Fɔ tɔk am simpul wan, na sik we nɔ de mɛn, we min fɔ lɔng tɛm. Di men ɛn bad bad sayn na we yu nɔ kin taya, we yu taya bad bad wan.
Tink bɔt am, dis nɔto jɔs di taya we wi kin fil na ivintɛm afta wi dɔn wok ɔl di de. Dis na tin we dip pas dat fa fawe. Dis taya nɔ de go ilɛksɛf wi rɛst ɔ wi slip. I tan lɛk se yu fon de chaj 100%, bɔt i de drɔp to 10% insay tɛn minit. Ilɛksɛf wi rɛst, da taya de nɔ de go.
Wan ɔda tin wae nɔr kin no bɔt dis sik na dat e kin wɔs afta yu dɔn tray smɔl na yu bɔdi ɔr yu maynd. Wi kin kɔl dis `pɔst-ɛksayz malaise`. Dis min se ilɛksɛf yu du smɔl wok, i nɔ kin izi fɔ yu fɔ grap na bed fɔ sɔm dez afta dat. Dis kin mek i nɔ izi fɔ sɔm pipul dɛn fɔ du wetin dɛn de du ɛvride, fɔ go wok, ɔ ivin fɔ go skul.
Wetin na di men sayn dɛm fɔ dis sik?
Di sayn dɛm fɔ ME/CFS kin difrɛn bad bad wan frɔm wan pɔrsin to ɔda pɔrsin. De kayn sik kin difrɛn bak frɔm wan de to ɔda de. Sɔm dez yu kin fil fayn smɔl, bɔt di nɛks de yu nɔ go ebul fɔ grap na bed. Lɛ wi tek wan luk pan di men sayn dɛm.
| Di sayn we de sho se di sik de | Aw dis kin fil? |
|---|---|
| Men tin dɛn we de insay de | |
| Ekstrim taya/taya | Dis na di men sayn we de sho se yu gɛt dis sik. Dis taya nɔ kin go ivin afta yu dɔn rɛst ɔ slip fayn. Dis sik kin te fɔ pas 6 mɔnt. |
| Prɔblɛm dɛn we pɔsin kin gɛt we i de slip | Yu nɔ go ebul fɔ slip na nɛt, ɔ yu kin wek ɔltɛm. Ivin we yu wek na mɔnin, yu nɔ kin fil fayn lɛk se yu dɔn slip. |
| Malaise we dɛn dɔn du afta dɛn dɔn ɛksɛsayz | Ivin wae yu du smɔl wok na yu bɔdi ɔr yu maynd (e.g. fɔ rid buk, waka fɔ shɔt tɛm) kin mek de sik wɔs pasmak. |
| Prɔblɛm fɔ tink ɛn mɛmba | Dɛn kin kɔl dis bak "bren fɔg." I tan lɛk se yu gɛt fɔg na yu ed. Yu nɔ ebul fɔ pe atɛnshɔn, yu nɔ ebul fɔ mɛmba wetin yu dɔn rid, ɛn yu kin fil lɛk se yu wɔd dɛn nɔ de kɔmɔt. |
| Ɔda sayn dɛn we kin apin | |
| Pen | Ɛd we de at, mɔsul dɛn we de at, ɛn joyn pen (we nɔ de swel) na tin dɛn we kin apin. |
| Diziz ɛn fɔdɔm | We yu tinap ɔ grap frɔm usay yu sidɔm, yu kin fil lɛk se yu ed de tɔn ɛn yu yay kin fil blu. |
| Ɔda tin dɛn we pɔsin kin du na in bɔdi | Di sayn dɛm fɔ IBS, lɛk di gland dɛm we swel, fil kol, swet na nɛt, yu an ɛn fut nɔ de fil fayn, bɛlɛ de pen, yu blo, ɛn yu nɔ de si fayn, kin apin bak. |
| Di tin dɛn we kin apin to pɔsin in maynd ɛn in filin | We pɔsin sik ɔltɛm, i kin mek i gɛt tin dɛn lɛk fɔ wɔri, fɔ vɛks, ɛn fɔ fil bad. |
Wetin mek sɔntin lɛk dis kin apin? Wetin na di rizin dɛn?
Infakt, dɔktɔ dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt ME/CFS. Naw dɛn biliv se nɔto wan tin we kin mek i apin, bɔt na tin dɛn we dɛn jɔyn togɛda. Na sɔm pan di tin dɛn we risach dɔn sho:
- di chenj dεm we de apin na di imyun sistεm: di imyun sistεm we de protεkt wi bכdi frכm sik kin go sכmtεm sכmtεm. lεk sכm כtoimyun kכndishכn dεm, di imyun sistεm kin mistek atak wi כwn gud sεl dεm.
- Prɔblɛm dɛn we de wit di we aw dɛn de mek ɛnaji: di sɛl dɛn na di smɔl smɔl tin dɛn we de na wi bɔdi. Dɛn sɛl ya nɔ kin ebul fɔ chenj di it we wi de it fayn fayn wan to ɛnaji. Dis kin mek wi bren ɛn wi mɔsul dɛn nɔ gɛt bɛtɛ trɛnk fɔ wok.
- Jɛnɛtik Factors: Dis sik kin te fɔ rɔn na famili. Dɛn tink se i gɛt wan jɛnɛtik kɔmpɔnɛnt, bɔt dɛn nɔ no ɛni patikyula jin.
Sɔmtɛm dis sik kin kam afta sɔntin we dɔn apin. Wi kin kɔl dɛn tin ya ‘trig’.
Fɔ ɛgzampul:
- Vayral infεkshכn: Dis kin stat afta vayral infεkshכn lεk Epstein-Barr vayrus (wan vayrus we de mek yu gεt chikinpoks) εn Ross Riva vayrus. Dis biɛn tɛm, dɛn dɔn si se sɔm pipul dɛn we gɛt COVID-19 kin gɛt dis kayn taya fɔ lɔng tɛm bak.
- Bɔrku strɛs na yu maynd ɔr bɔdi: Dɛn sayn ya kin apin bak afta sɔm kayn tin lɛk big ɔpreshɔn, aksidɛnt, ɔr pɔrsin wae yu lɛk day.
Aw dɔktɔ kin no bɔt dis?
If yu gɛt dɛn sik ya, di fɔs tin we yu fɔ du na fɔ go to yu dɔktɔ. Bɔt mɛmba se, no wan blɔd tɛst ɔ skan nɔ de we go ebul fɔ no if yu gɛt ME/CFS.
So, di dɔktɔ go mek shɔ se ɔda sik nɔ de. Ɔda tin dɛn de we kin mek pɔsin gɛt dis sik. Fɔ ɛgzampul, tayroyd prɔblɛm, dayabitis, anemia, ɛn ɔda tin dɛn So, di dɔktɔ go aks yu fɔ du blɔd tɛst, urine tɛst, ɛn ɔda tin dɛn.
Afta ɔl dat dɔn, ɛn dɛn dɔn kɔnfyus se nɔr ɔda sik nɔr de, ɛn yu simptom dɛn mach di wan dɛm fɔ `ME/CFS`, den dɛn kin mek dis diagnosis. Dɛn men wan ya wi kin luk pan dɛn pɔynt dɛn ya:
- Yu kin taya bad bad wan we kin te fɔ pas 6 mɔnt ɛn we yu rɛst nɔ kin mek yu fil fayn?
- Yu bɔdi kin fil se yu nɔ gɛt layf ivin afta yu dɔn slip?
- Yu tink se di sik kin wɔs afta yu dɔn tray tranga wan?
- Yu gɛt sayn dɛm fɔ ``ɔrthostatic intolerance'' lɛk fɔg na yu bren ɔ yu gɛt diziz we yu tinap?
I kin tek sɔm tɛm fɔ gɛt diagnosis. Yu gɛt fɔ du bɔku tɛst dɛn. I kin mek yu at pwɛl, bikɔs yu dɔn ɔlrɛdi de pan prɔblɛm we nɔ izi fɔ yu. Bɔt fɔ gɛt diagnosis na di fɔs ɛn impɔtant tin fɔ gɛt di rayt tritmɛnt fɔ yu.
Aw fɔ trit am? Aw fɔ mek layf izi?
Na tru se no mɛrɛsin nɔ de fɔ dis yet. Bɔt dat nɔ min se no ɛp nɔ de fɔ yu. Bɔrku we de fɔ kɔntrol yu sik ɛn mek layf izi pasmak. Di tritmɛnt plan difrɛn fɔ ɛnibɔdi. Yu dɔktɔ go pik di wan dɛn we go fayn fɔ yu.
Di men tin dɛn we wi fɔ pe atɛnshɔn pan na:
- Pacing Activities: Dis na di tin we impɔtant pas ɔl. Fɔ tɔk am simpul wan, fɔ ɔndastand yu "ɛnaji limit" ɛn wok insay da limit de. Tek brek bifo yu "get komplitli drein." Fɔ ɛgzampul, bifo yu klin di os ɔl di de, klin jɔs wan rum ɛn rɛst bɔku. Yu dɔktɔ go ɛp yu fɔ manej dis fayn fayn wan.
- Fɔ chenj di we aw yu de slip: If yu gɛt di abit fɔ go slip di sem tɛm ɛvride, fɔ grap di sem tɛm, nɔ fɔ slip fɔ lɔng tɛm insay di de, ɛn fɔ stɔp fɔ wach TV ɛn fon bifo yu go slip, dat kin mek yu slip fayn.
- Mɛrɛsin: Pan ɔl we no patikyula mɛrɛsin nɔ de fɔ ME/CFS, dɛn kin trit di sayn dɛn we gɛt fɔ du wit am. Fɔ ɛgzampul, yu dɔktɔ kin gi yu mɛrɛsin fɔ mek yu fil pen, yu kin gi yu mɛrɛsin fɔ mek yu gɛt prɔblɛm wit yu slip, ɛn yu kin gi yu mɛrɛsin fɔ mek yu gɛt pwɛl hat.
- Mental hεlth sכpכt: Fɔ liv wit krεse sik lεk dis kin tranga yu maynd. So, fɔ ɛp yu fɔ ajɔst to dis nyu layf, yu dɔktɔ kin rifer yu to saykotɛrapi, spɛshal wan fɔ Kɔgnitiv Biɛvhɔral Tɛrapi (CBT). Dis kin ɛp yu fɔ kɔntrol di strɛs we di sik kin gɛt.
Di tin we impɔtant pas ɔl na dat yu nɔ nid fɔ fɛt dɛn tin ya yu wan. Gɛt sɔpɔt frɔm yu dɔktɔ, fambul, ɛn padi dɛn.
Aw layf go go bifo wit dis sityueshɔn?
ME/CFS nɔto di sem fɔ ɔlman. Fɔ sɔm pipul dɛn, de sik kin bɛtɛ smɔl smɔl as tɛm de go. Bɔt fɔ ɔda pipul dɛn, di sayn dɛn kin de fɔ lɔng tɛm. I nɔ kin izi fɔ mek pipul dɛn wɛl ɔl di sik.
Difrɛn opinion de fɔ no if dis sik kin mek pɔrsin in layf shɔt. Sɔm pipul dɛn kin liv nɔmal layf. Bɔt, risach dɔn sho se sɔm pipul dɛn kin de pan denja fɔ kil dɛnsɛf bikɔs ɔf di strɛs ɛn chenj na layf we kin kam wit am. So, fɔ kia fɔ yu maynd wɛlbɔdi rili impɔtant. If yu de fil se yu de fil bad, yu de fil yu wan, ɔ yu de bost wit layf, duya tɔk to yu dɔktɔ ɔ pɔsin we yu trɔst bɔt dat.
Mɛsej we dɛn kin kɛr go na os
- ME/CFS na rial, siriɔs mɛdikal kɔndishɔn. I nɔto "boring" ɔ "made-up illness."
- De taya pasmak wae yu kin fil na dis kayn sik nɔr kin go wit nɔrmal rɛst ɔr slip.
- If yu gɛt sɔm kayn sik lɛk dis wae de te pas 6 mɔnt, di fɔs tin fɔ du na fɔ go to dɔktɔ ɛn gɛt di rayt diagnosis.
- Pan ɔl we dɛn nɔr gɛt mɛrɛsin fɔ dis yet, bɔrku we de fɔ kɔntrol de sik ɛn liv fayn layf. Pacing na wan impɔtant pat pan dis.
- Yu maynd wɛlbɔdi impɔtant jɔs lɛk aw yu bɔdi impɔtant. Nɔ ɛva shem fɔ aks fɔ ɛp fɔ bia wit di strɛs we kin kam wit dis sik.
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