Sɔntɛnde, dɔktɔ dɛn kin gi wi spɛshal mɛrɛsin dɛn we wi nɔ ɛva yɛri bɔt. Triheptanoin na wan pan dɛn spɛshal mɛrɛsin dɛn de we gɛt wata. Nɔto ɔlman kin gi am. Dɛn kin yuz am mɔ fɔ pipul dɛn we gɛt wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl LC-FAOD, ɔ Long-chain fatty acid oxidation disorders. So, if yu dɔktɔ dɔn tɛl yu ɔ yu pikin dis mɛrɛsin, dis atikul go rili ɛp yu fɔ ɔndastand di kwɛstyɔn dɛn, di tin dɛn we yu de wɔri bɔt, ɛn di tin dɛn we yu de fred bɔt am simpul wan.
Wetin kin rili apin wit dis mɛrɛsin?
Lɛ wi tɔk am simpul wan. Wi bɔdi in sɛl dɛn nid ɛnaji fɔ mek dɛn ebul fɔ wok. Fɔ mek wi gɛt dis ɛnaji, wi bɔdi kin yuz mɔ kabɔhaydrɛt ɛn fat we de kɔmɔt na di it we wi de it. כltu, pan pipul dεm we gεt wan jεnεtik kכndyushכn we dεn kכl LC-FAOD, di bכdi nכ kin ebul fכ brok dכn lכng chen fεt asid dεm fכ jεnarεt εnεji. Na wikɛd tin na dɛn jin.
Dis na di say we Triheptanoin de kam in. Na mɔ fat sɔpɔt pas mɛrɛsin. I gɛt wan spɛshal kayn fat we di bɔdi kin tek izi wan ɛn chenj to ɛnaji. In ɔda wɔd, dis mɛrɛsin de gi di ɛnaji ɛn kalori we di bɔdi nɔ ebul fɔ gɛt bikɔs ɔf LC-FAOD tru ɔda rod.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Bifo yu gi yu dis mɛrɛsin, i rili impɔtant fɔ mek yu dɔktɔ no yu kɔmplit wɛlbɔdi istri. Mek shɔ se yu tɛl dɛn bɔt ɛni wan pan dɛn tin ya:
| Di tin we de apin we de afɛkt yu | Wetin mek yu fɔ tɛl di dɔktɔ? |
|---|---|
| Yuz wan tiub we de gi tin fɔ it | Dis mɛrɛsin kin nid fɔ gi tru wan fidin tyub, so di dɔktɔ fɔ no bɔt dis. |
| Di sik we de na di pankrias | Pipul wae gɛt pankrias sik kin du difrɛn we fɔ dis mɛrɛsin, so i impɔtant fɔ tɛl dɛn bɔt dis bifo tɛm. |
| Ɛni kayn alɛji (Allergies) . | If yu gɛt alɛji fɔ ɛni ɔda mɛrɛsin, it, ɔ tin we de mek yu nɔ gɛt dis mɛrɛsin, nɔto jɔs dis mɛrɛsin, i rili impɔtant fɔ tɛl yu dɔktɔ. |
| Fɔ gɛt bɛlɛ ɔ fɔ tray fɔ gɛt bɛlɛ | Ɛni mɛrɛsin we yu gɛt bɛlɛ, yu fɔ tek am nɔmɔ we dɔktɔ advays yu. So tɛl yu dɔktɔ bɔt di sik we yu gɛt. |
| Fɔ gi di pikin in bɛlɛ | Di mɛrɛsin we yu de tek kin pas to yu pikin tru in mama in milk. So if yu na mama we de gi pikin in bɛlɛ, mek shɔ se yu tɛl yu dɔktɔ bɔt am. |
Aw a fɔ yuz dis mɛrɛsin?
I rili impɔtant fɔ no gud gud wan aw fɔ yuz dis mɛrɛsin.
- Fɔ fala yu dɔktɔ in instrɔkshɔn dɛn: Tek di mɛrɛsin jɔs lɛk aw dɛn tɛl yu fɔ tek am, di mɔni we dɛn tɛl yu fɔ tek, ɛn di rayt tɛm. Nɔ ɛva chenj di doz bay yu yon sɛns.
- Tek wit it: Dɛn fɔ tek dis mɛrɛsin ɔltɛm wit ɔ afta yu it.
- Rid di instrɔkshɔn dɛn: Rid di INSTRUKSHƆN FƆ YUZ we de kam wit di mɛrɛsin fayn fayn wan. If ɛnitin nɔ klia, nɔ shem fɔ aks yu dɔktɔ fɔ mek i no klia wan.
- We dɛn gi am pikin dɛn: Dɛn kin ivin gi dis mɛrɛsin to pikin dɛn we dɛn jɔs bɔn pan sɔm spɛshal kes dɛn. Bɔt na yu pikin in dɔktɔ nɔmɔ go disayd bɔt dis. So, du wetin yu dɔktɔ tɛl yu.
Impɔtant: Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ sheb am wit ɔda pɔsin fɔ ɛni rizin, ilɛksɛf dɛn gɛt di sem sayn lɛk yu.
Wetin a go du if a tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek mɔ pas di doz we dɛn tɛl yu fɔ tek, ilɛksɛf na mistek ɔ na aksidɛnt, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm. If nɔto dat, nɔ west tɛm ɛn go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Lɛf 3 to 4 awa bitwin ɛni doz. Bɔt if nɔto inof tɛm fɔ tek di ful doz fɔ di de (fɔ ɛgzampul, if i dɔn lɛf smɔl fɔ lɛ di nɛks de), skip di doz we yu mis ɛn tek di nɛks doz di tɛm we yu de tek am ɔltɛm. Nɔ ɛva tek tu doz wan tɛm fɔ mek di doz we yu mis.
Sɔm sayd ɛfɛkt dɛn we pɔsin kin gɛt we i tek di mɛrɛsin
Lɛk ɛni mɛrɛsin, triheptanoin kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Sɔm pan dɛn tin ya siriɔs, ɛn ɔda wan dɛn nɔ kin at fɔ du.
| Nature of di sayd ɛfɛkt | Sayn dɛn |
|---|---|
| Sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot, i nɔ izi fɔ blo. |
| Sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu ɔ de mɔna am | |
| Bɛlɛ de pen | Bɛlɛ nɔ kin fil fayn ɔ i kin fil pen. |
| Rɔnbɛlɛ | Fɔ mek yu bɔdi wam. |
| Vɔmit ɛn Nɔs | Fɔ fil lɛk fɔ vɔmit ɔ fɔ vɔmit. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu gɛt ɛni difrɛn tin, tɔk to yu dɔktɔ bɔt am.
Di we aw dɛn kin kip ɛn trowe mɛrɛsin
Usay a fɔ put am?
- Kip am sef wan usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich .
- Stɔr am na rum tɛmpracha (bitwin 20 ɛn 25 digri sɛlshiɔs). Nɔ ɛva friz.
- Kip di mɛrɛsin insay di ɔrijinal bɔtul we i kam insay.
- Trowe ɛni mɛrɛsin we lɛf 9 mɔnt afta yu opin di bɔtul ɔ afta di de we i dɔn (wetin kam fɔs).
Aw yu kin pul di mɛrɛsin dɛn we yu nɔ nid?
Nɔ jɔs trowe mɛrɛsin dɛn we dɔn pas ɔ we yu nɔ yuz na di dɔti.
- Di bɛst tin fɔ du na fɔ gi dɛn to wan program fɔ tek mɛrɛsin bak. Yu kin aks yu lokal famasi ɔ ɔspitul bɔt dɛn kayn ples dɛn de.
- If yu nɔ ebul fɔ fɛn dis kayn program, pul di mɛrɛsin na di bɔtul, miks am fayn wit sɔntin lɛk ti lif we yu dɔn yuz, kɔfi grɔn, ɔ dɔti, put am insay plastic bag we dɛn tayt tayt, ɛn trowe am na di dɔti.
- If yu nɔ shɔ aw fɔ pul am, aks yu dɔktɔ.
Mɛsej we dɛn kin kɛr go na os
- Triheptanoin na spɛshal nyutrishɔn suplimɛnt we dɛn kin gi fɔ wan rare kɔndishɔn we dɛn kɔl LC-FAOD.
- Ɔltɛm tek dis mɛrɛsin lɛk aw yu dɔktɔ tɛl yu, wit it.
- Tɛl yu dɔktɔ bɔt ɛni ɔda mɛrɛsin we yu de tek ɛn ɛni ɔda mɛrɛsin we yu gɛt.
- If yu gɛt alɛji lɛk aw yu skin de rɔsh ɛn swel, go to dɔktɔ wantɛm wantɛm.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɔda pipul dɛn.
- If yu gɛt ɛni prɔblɛm, kwɛstyɔn, ɔr dawt bɔt dis mɛrɛsin, di bɛst ɛn fayn pɔsin fɔ tɔk to bɔt am na yu dɔktɔ.
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