We yu luk yu pikin we yu jɔs bɔn, yu kin notis sɔntɛnde se in lip ɛn in finga dɛn kin blu smɔl? Ɔ i nɔ kin izi fɔ am ivin afta i dɔn drink milk? Sɔntɛnde, dɛn tin ya kin bi sayn fɔ se pɔsin gɛt at sik we dɛn bɔn wit. Na nɔmal tin fɔ lɛ ɛni mama ɔ papa fred we i si sɔntin lɛk dis. Tide wi de tɔk bɔt dis kayn at sik we nɔ kin apin so ɔltɛm, bɔt we rili impɔtant. Dat na Truncus Arteriosus we dɛn kɔl Truncus Arteriosus.
Fɔ tɔk am simpul wan, wetin na dis Truncus Arteriosus?
Okay, mek wi ɔndastand dis rili simpul wan. di pikin we hεlth gεt tu men bכdi vεsul dεm (atεri dεm) we de kכmכt na in at.
1. Pulmonary Artery: Dis kin kɛr blɔd we nɔ gɛt ɔksijɛn ɛn we nɔ klin frɔm di at to di lכng. Insay di lɔng dɛn, dɛn kin klin dis blɔd bay we dɛn ad ɔksijɛn.
2. Aorta: Dis de sheb bכdi we gεt כksijεn, we dεn klin na di lכng dεm, frכm di at to di כl bכdi.
Bɔt pan pikin we gɛt Truncus Arteriosus , insted ɔf dɛn tu blɔd vesel ya, na wan big blɔd vesel nɔmɔ de . Imajin, na wan rod nɔmɔ de usay tu rod fɔ de.
Wetin kin apin na dat blɔd we gɛt ɔksijɛn ɛn blɔd we nɔ gɛt ɔksijɛn kin miks togɛda. Dis miks blɔd de go ɔlsay na di pikin in bɔdi. Dis kin mek di pikin in at ɛn in lɔng dɛn nɔ ebul fɔ bia. I de mek bak di ɔda pat dɛn na di bɔdi nɔ gɛt di ɔksijɛn we dɛn nid. Dɔktɔ dɛn kin si dis as impɔtant tin we pɔsin kin bɔn wit in at . So, i nid fɔ trit am wantɛm wantɛm.
Wetin na di sayn dɛm wae kin mek a sɔprayz se mi pikin gɛt dis sik?
Dɛn sayn ya kin bigin fɔ sho insay di fɔs dez afta dɛn bɔn am. Chek fɔ si if yu pikin gɛt ɛni wan pan dɛn sik ya.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen bɔt am |
|---|---|
| Blu ɔ grey skin (Cyanosis) . | blu כ grey kכla de sho, spεshal wan arawnd di pikin in mכt εn in finga dεm, biכs di bכdi nכ de gεt inof כksijεn. |
| Fɔ slip pasmak | Di pikin de slip ɔltɛm. I tan lɛk se i nɔ izi fɔ wek am. I luk lɛk se i nɔ gɛt layf atɔl. |
| I nɔ kin izi fɔ yu fɔ blo | I kin tan lɛk se di pikin de blo kwik kwik wan. I kin ivin fil lɛk se i de go insay yu chɛst. |
| I nɔ izi fɔ drink milk | Ivin afta we di pikin dɔn drink smɔl milk, i kin taya bad bad wan. I kin swet, i kin slip we i de drink, ɛn i kin stɔp fɔ drink afta sɔm tɛm. |
| Lak fɔ gɛt mɔ wet | di pikin nɔ de gɛt wet lɛk aw i fɔ gɛt fɔ in ej bikɔs i nɔ ebul fɔ drink milk fayn ɛn di bɔdi de yuz tumɔs ɛnaji. |
| Hat bit kwik kwik wan ɛn wik puls | Ivin if di pikin in at kin fil lɛk se i de bit fast we yu put yu an pan in chɛst, di puls kin wik. |
Di tin we impɔtant pas ɔl na, nɔ panik we yu si wan ɔ tu pan dɛn sayn ya, bɔt go to dɔktɔ wantɛm wantɛm. Di kwik we dɛn no di sik, na di mɔ i izi fɔ trit.
Wetin mek dis kin apin to bebi dɛn?
Sayɛnsman dɛn stil nɔ no di rayt rizin fɔ dis. bכku tεm, na biכs di at nכ de divεlכp fayn we di pikin de gro na di bεlε. nכmal wan, dis wan chanεl we dεn kכl di 'truncus' we de insay di εmbrayo fכ leta split insay tu pat dεm εn fכm tu atεri dεm. Bɔt pan sɔm bebi dɛn, da divɛlɔpmɛnt de nɔ kin apin.
Dis kin gɛt fɔ du wit sɔm tin dɛn we kin apin to pɔsin we gɛt jɛnɛtiks. Wan ɛgzampul na di sik we dɛn kɔl DiGeorge syndrome . pan tap dat, dis risk kin bכku bay sכm tin dεm we de afekt di mama we i bεlε.
- Di mama gɛt dayabitis.
- Vayral infεkshכn dεm lεk rubεla.
- Yuz rɔm ɔ ɔda drɔgs.
- If yu gɛt kemikal dɛn we de ambɔg yu lɛk lid.
Ɔda at prɔblɛm wae kin kam wit dis sik
Bɔku pikin dɛn we gɛt Truncus Arteriosus kin gɛt ɔda tin bak. dat na wan ol na di wכl bitwin di tu lכw chεmba dεm (atrium) na di at. Dɔktɔ dɛn kɔl dis Ventricular Septal Defect (VSD) . Dis ol de mek bak di blɔd we klin ɛn dɔti miks mɔ.
Aw dɔktɔ dɛn kin fɛn dis?
Bɔku tɛm, dɔktɔ dɛn kin sɔprayz dis we di pikin sho di sayn dɛn we wi dɔn tɔk bɔt sɔm dez afta dɛn bɔn am. Dɔn, fɔ kɔnfirm di sik, di men tin na fɔ du ɛkokardiogram (ɛko) tɛst. Dis tan lɛk we dɛn de du ɔltra saund skan fɔ di at. Dis kin si klia wan aw di at shep, di blɔd vesel dɛn, ɛn di we aw blɔd de flɔ.
sכmtεm, bifo di simptom dεm sho, dεn kin sכspεkt dis if di puls כksimetri tεst (we de mכsu di כksijεn lεvεl na di bכdi bay we dεn tay wan sכmכl klip na di finga) we dεn du pan כl di pikin dεm na di כspitul sho se di כksijεn lεvεl dεm dכn lכw.
na sכm tεm we dεn kin no dis kכndyushכn we dεn de du כltra saund skan bifo dεn bכn di pikin.
Wetin na di tritmɛnt dɛm fɔ dis?
Dis kin tan lɛk se i de mek pɔsin fred, bɔt di tru tin na dat di pikin dɛn we gɛt dis sik nid fɔ gɛt ɔpreshɔn pan dɛn at insay di fɔs wik dɛn we dɛn bɔn dɛn. Dis na di wangren tritmɛnt. Dis ɔpreshɔn de wok bay we i de kɔrɛkt di we aw di at tan lɛk aw i pɔsibul.
Insay wan tin we dɛn kɔl Rastelli repair , we dɔktɔ dɛn kin du, di dɔktɔ we de du di ɔpreshɔn kin du mɔ dɛn tin ya:
- di ol na di at (VSD) dεn kin kכl am wit sכmtin lεk pat.
- di onli big bכdi we de naw (truncus) dεn de mek am as nyu aorta.
- We dɛn yuz atifishal kɔndukt ɛn valv , dɛn kin mek wan nyu pulmonari at we kin kɛr blɔd go na di lɔng dɛn.
Yu tink se dɛn go nid fɔ du ɔpreshɔn tumara bambay?
Yɛs. Dis rili impɔtant fɔ no. di atifishal kכndukt we dεn put we dεn de du di fכs כpεrayshכn nכ de gro wit di pikin. So, as di pikin de gro, dɛn go nid fɔ du wan ɔ mɔ ɔpreshɔn tumara bambay fɔ chenj di kɔnduit. Yu dɔktɔ go ɛksplen dis to yu wan wan tɛm.
Aw a fɔ kia fɔ mi pikin afta di ɔpreshɔn?
Afta di ɔpreshɔn, yu pikin go nid fɔ go na klinik dɔktɔ we de mɛn yu at fɔ di res ɔf in layf.
- We yu smɔl, yu fɔ gɛt tritmɛnt ɔnda dɔktɔ we de mɛn pikin dɛn we de mɛn dɛn at .
- We yu rich 18 ia, dɛn go sɛn yu to big pɔsin we de mɛn yu at.
I fɔ go na dɛn klinik ya bikɔs na dɛn kin chɛk di pikin in at ɔltɛm, du di tɛst dɛn we dɛn nid, ɛn disayd ustɛm fɔ du di nɛks ɔpreshɔn.
Bebi kin liv wit dis sik? Dɛn go ebul fɔ liv nɔmal layf?
Dis na di big kwɛstyɔn we de na ɔl mama ɛn papa dɛn maynd.
Yɛs, na fɔ tru. Bɔt na if dɛn du di ɔpreshɔn di rayt tɛm nɔmɔ. di rεt fכ sכvayv afta di כpεrayshכn naw i rili hכy (bitwin 80% - 97%). Bɔt i kin dipen bak pan ɔda tin dɛn lɛk aw di pikin in at kin kɔmpleks.
‘Nɔmal layf’ difrɛn fɔ ɔlman. Sɔm pikin dɛn go ebul fɔ rɔn ɛn ple lɛk ɔda pikin dɛn. Ɔda pipul dɛn kin fil taya smɔl we dɛn de du ɛksɛsayz. Bɔt if dɔktɔ de kia fɔ dɛn fayn fayn wan, bɔku pipul dɛn kin go skul, stɔdi, wok, ɛn gɛt famili layf.
Dis waka tranga, bɔt nɔto yu wangren de. Yu dɔktɔ dɛn, nɔs dɛn, ɛn yu famili go rili gi yu trɛnk.
Di statystik ɔ di rizɔlt dɛn we yu rid na di Intanɛt nɔ de sho aw yu pikin go gɛt tumara bambay. Dɛn na jɔs sɔm tin dɛn we wi no rayt naw. Trɔst yu tim fɔ dɔktɔ dɛn fɔ gayd yu pikin.
Mɛsej we dɛn kin kɛr go na os
- Truncus Arteriosus na siriɔs at sik we dɛn bɔn wit we na wan at nɔmɔ de na di at instead ɔf tu men at.
- di sayn dεm lεk di pikin in skin we de tכn blu (cyanosis), i at fכ brith, εn i at fכ gi in bεlε kin apin insay di fכs de dεm afta i bכn.
- I rili impɔtant fɔ go to dɔktɔ wantɛm wantɛm if yu notis ɛni wan pan dɛn sayn ya.
- I impɔtant fɔ du ɔpreshɔn pan di at insay di fɔs wik afta dɛn bɔn am fɔ sev di pikin in layf.
- As di pikin de gro, dɛn go nid fɔ du sɔm ɔpreshɔn dɛn mɔ.
- I rili impɔtant fɔ de ɔnda di sɔpɔtishɔn fɔ dɔktɔ we de mɛn yu at ɔl yu layf.
- If dɛn trit dɛn pikin ya fayn ɛn kia fɔ dɛn, dɛn kin liv lɔng, gud layf bak.
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