Pompe Disease tan Alglucosidase alfa vaccine hi i zir dawn em ni?

Kan taksa hi, a dik tak chuan, machine buaithlak tak, mak tak a ni. He machine chhunga thil awm zawng zawng hi a thawk tha tur chuan protein chi khat bik ‘enzymes’ an tih hi a pawimawh hle. Ngaihtuah teh, a chang chuan genetic reasons vangin enzyme engemaw tak chu mi taksaah a lo piang lo thei a, a tlem berah pawh a lo piang thei bawk. Pompe Disease hi natna hmuh tur awm lo mahse natna khirh tak, hetianga lo awm thin a ni. Vawiin hian he natna dona atana enkawl dan bik kan sawi dawn a, chu chu vaccine Alglucosidase alfa an tih hi a ni.

Alglucosidase alfa chu eng nge ni?

A awlsam zawngin sawi ila, Alglucosidase alfa hi Pompe natna vei taksaa enzyme tlakchhamna pawn lam injection a ni. Hei hi hnathawk pakhat a awm loh laiin hna engemaw thawk tura pawn lam mi hruai luh ang a ni. Hetiang enkawl dan hi medical science-ah chuan Enzyme Replacement Therapy (ERT) an ti a.

Hetah hian hriat reng tur pawimawh tak chu hei hi natna damdawi a ni lo tih hi a ni. Mahse, he enkawlna hian natna lan chhuah dan a thunun thei a, taksa ruh chak lohna a tiziaawm thei a, damlo nunphung pawh nasa takin a tichangtlung thei bawk. He damdawi hi brand hming `Lumizyme` emaw `Myozyme` emaw hmangin market-ah hmuh theih a ni.

He damdawi hi i ei hmaa i doctor hnena i hrilh tur thilte

Enkawlna bik i tan hmain i hriselna chanchin kimchang i doctor hriattir hmasak phawt a pawimawh hle. I doctor-in i hriselna a tih famkim poh leh enkawlna chu a him zawk ang a, a hlawhtling zawk bawk ang. Chuvangin, a hnuaia mi hi i tan a hman theih chuan sawi tel ngei ang che.

• Lung natna: Lung natna emaw, lung lam kaihhnawih harsatna emaw i neih chuan.
• Respiratory distress: Lung natna emaw, thawk harsatna emaw i neih chuan.
• Allergy: Eng thil pawh allergy i neih chuan min hrilh ngei tur a ni. Bik takin:
• He damdawi emaw a thil tel, mannitol ang chi emaw allergy i neih tawh chuan.
• Hamster emaw rat protein emaw allergy i neih chuan (hei hi a pawimawh a, a chhan chu hengte hi damdawi thenkhat siamna atana hman a nih vang a ni).
• Damdawi dang, ei tur, preservative emaw dye dang emaw allergy i neih chuan.
• Naupai: Tuna naupai i nih chuan, a nih loh leh nakin lawka naupai tum i nih chuan.
• Nu hnute petu i nih chuan: Nu nau hnute pe mek i nih chuan.

Engtin nge he enkawlna hi pek a nih?

He damdawi hi ei tur pill a ni lo va, in lama pek theih injection pawh a ni lo.

He enkawlna hi damdawi in emaw, specialized clinic emaw-ah chauh pek a ni a, doctor leh nursing staff-te enkawlna hnuaiah pek a ni . Enkawl lai hian i heart rate, thisen sang leh thawk dan te an enfiah reng ang.

Hei hi naupang tê tête hnenah i pe em?

Ni e, he damdawi hi naute thla khat lek tan pawh pek theih a ni. Mahse, naupang enkawltu doctor chauhvin thutlukna a siam thei a ni. Naupang hnena he enkawlna hi pek dawnin fimkhur tur bik a awm.

I overdose a nih chuan engtin nge i tih ang?

Hei hi damdawi in hmuna pek a nih avangin hetiang thil thleng theihna chance hi a tlem hle. Amaherawhchu, he damdawi hi i ei tam lutuk nia i hriat chuan damdawi lam thawktute hnenah hriattir nghal rawh. Emergency-ah chuan Colombo National Hospital-a National Poisons Information Center-ah i call thei ang . A nih loh leh Emergency Treatment Unit (ETU) hnai ber ah i kal tur a ni .

Enkawlna ka miss a nih chuan engtin nge ni ang?

I scheduled appointment-a tel a pawimawh hle. Eng emaw chhan vanga i kal thei lo a nih chuan skip suh la, i doctor emaw damdawi in emaw phone nghal la, ni leh hun dang ruahman rawh.

Side effects beisei tur chu engte nge ni?

Damdawi dang ang bawkin he enkawlna hian side effect engemaw zat a nei thei a ni. Chûng zînga a tam zâwk chu tê tê a nih laiin, a bîk taka fimkhur ngai thil ṭhenkhat a awm. Hei hi hriatthiam awlsam zawk nan table-ah han thlir ila.

Damdawi dangah harsatna a awm em?

He damdawi hian a tlangpuiin damdawi dang nen hian inzawmna a nei tlem hle. Amaherawhchu, i damdawi ei zawng zawng (vitamin leh herbal products te pawh tel), leh zu i in emaw, zu i in emaw i doctor hnenah i hrilh a pawimawh.