I chhungkuaa mi tu emaw, nangmah ngei pawhin i fa pawh ni se, Duchenne muscular dystrophy (DMD) tih natna a vei a nih chuan, chu natna enkawlna tur i zawng reng a ni mai thei. Hei hi genetic condition a ni a, zawi zawiin taksa ruhte a tichak lo. Chuvangin, hei hi enkawlna thar chu Golodirsen tih a ni. He thuziak ah hian he damdawi chungchang hi i hriatthiam theih tur awlsam takin kan sawi dawn a ni.
He damdawi hi eng nge Golodirsen an tih?
A awlsam zawngin sawi ila, hei hi Duchenne Muscular Dystrophy (DMD) enkawlna atana pek a ni. Tunah chuan a hnathawh dan i en ang u.
Kan taksa ruh (muscles) te hi bang ang maiin han ngaihtuah teh. He bang chhunga brick awmte hi ‘dystrophin’ an tih protein, mortar ang maia inzawmkhawm a ni. DMD veiah chuan he mortar, chu chu dystrophin protein hi a lo chhuak lo. Chuvangin muscle an tih wall hi a chak lo va, zawi zawiin a chak lo zawk thin.
Golodirsen damdawi hian taksain he dystrophin protein hi a siam theih nan a pui a ni. Hei hian taksa ruh chakna a tipung a, natna kal zel dan tur a thunun bawk.
Damdawi ei hmaa doctor hnena i hrilh tur thilte
He enkawlna i tan hma hian doctor hnenah i emaw i fa emaw hriselna dinhmun kimchang taka sawi hmasak a pawimawh hle. Heng thilte hi a bik takin sawi tel ngei ang che.
- Kidney disease: Kidney nena inzawm natna i neih chuan min hrilh ngei ngei tur a ni.
- Allergy: Golodirsan emaw damdawi dang emaw, ei tur emaw, dye dang emaw allergy i neih chuan doctor hnenah hrilh rawh.
- Naupai emaw, nau pai tum emaw i nih chuan: Nau i pai emaw, nau neih i tum emaw a nih chuan i doctor hnenah hrilh rawh.
- Nu hnute petu i nih chuan: Nu hnute petu i nih chuan chu chu sawi tel tur a ni bawk.
Heng thute a\ang hian doctor chuan he damdawi hi i tan a tha em tih a rel ang.
He damdawi hi engtin nge i hman?
Hei hi damdawi in lama hruai leh hman theih a ni lo.
He damdawi hi vein pakhatah injection angin pek thin a ni . Doctor emaw, nurse trained emaw chauhvin, damdawi in emaw, clinic emaw-ah chauh pek a ni .
Chuvangin a dose leh pek dan tur ngaihtuah a ngai lo. Chutiang thil chu medical team-in an buaipui ang.
He damdawi hi naupangte hnenah pek theih a ni em?
Ni e, he damdawi hi DMD vei naupangte tan pawh pek a ni. Mahse, i doctor chuan fimkhur dan tur leh a bik taka ngaihtuah turte a hrilhfiah ang che.
Damdawi ka ei tam lutuk chuan engtin nge ni ang?
Hei hi damdawi in hmuna pek a nih avangin hetiang thil thleng theihna chance hi a tlem hle. Mahse, damdawi i ei tam lutuk mai thei nia i ngaih chuan Colombo National Hospital-a National Poisons Information Center -ah call nghal la, a nih loh leh damdawi in hnai ber Emergency Treatment Unit (ETU)-ah kal nghal rawh.
Pawimawh: He damdawi hi damlo tan chauh a ni. He damdawi hi midang hnenah pe ngai suh.
Damdawi dose i ei loh chuan engtin nge i tih?
Hei hi damdawi ei chhunzawm zel ngai, schedule ruat sa a ni. Chuvang chuan doctor-in a pek ni leh hun dik tak zawm a pawimawh hle. Eng emaw chhan vanga ni ruat saah i kal thei lo a nih chuan i doctor emaw clinic emaw call nghal la, hriattir rawh. I tih leh tur chu an hrilh ang che. Eng thil vang pawhin i damdawi ei kha skip suh.
Side effect awm thei te chu engte nge ni?
Damdawi dang ang bawkin Golodirsan vaccine hian side effect engemaw zat a nei thei a ni. Mahse, mi zawng zawngin an hmu vek lo. Hengte hi hmun hnih ah then ila.
| Golodirsen hian side effect a neih theih dan | |
|---|---|
| Side effect na tak tak, damdawi lam pan vat ngai | |
| Allergy natna a awm thei | A natna lan chhuah dan chu vun vun rawng, hnim hring, sen, hmai, hmui, lei emaw, kawr emaw a hring. |
| Kidney hliam a awm | Zun chhuah tlem, ke ruh, kut leh ke ruh hring. |
| Side effects nasat loh tlangpui, mahse a awm reng chuan doctor hnenah hriattir tur a ni | |
| Lu na | Lu na fo thin. |
| Khawsik | Feverish tih hriatna. |
| Khuh leh khawsik | Khuh, hnar luang, emaw hnar khar emaw. |
| Digestive system lama harsatna awm thei | Pum na, luak chhuak, luak chhuak. |
He list-ah hian side effect awm thei zawng zawng a tel lo. Thil danglam tak i tawn chuan i doctor nen sawiho rawh.
Take-Home Thuchah a ni
- Golodirsen hi Duchenne muscular dystrophy (DMD) enkawlna atana hman tur vaccine bik a ni.
- Hei hian taksain protein dystrophin an tih chu a siam thei a, chu chu taksa ruh tan a pawimawh hle.
- He damdawi hi damdawi in emaw clinic emaw-ah thisenah pek thin a ni. Chuvang chuan in lamah hruai phal a ni lovang.
- Enkawl i tan hmain i damdawi lam dinhmun zawng zawng, a bik takin kal natna leh allergy te chu doctor hnenah hrilh hmasa phawt ang che.
- Allergy symptoms i neih chuan rash, swelling, emaw kidney chhiatna tilang thei symptoms, zun chhuah tlem ang chi i neih chuan i doctor hnenah hriattir nghal rawh
- Doctor appointment-ah kal la, enkawlna dawng ngei ang che. I damdawi ei kha skip suh.
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