Doctor-in i fain natna hmuh tur awm lo tak Mucopolysaccharidosis type VII, a tawi zawngin MPS VII (Sly Syndrome) a nei tih a hrilh che chuan nang, nu emaw pa emaw angin i mangang hle a, i lungngai hle a ni ngei ang. Chutih rual chuan Vestronidase alfa (brand name: MEPSEVII) an tih vaccine hi hemi enkawlna atana i hriat khan i rilruah zawhna tam tak i nei ngei ang. "He damdawi hi eng nge ni? Naupang a pui dawn em? Side effect a awm em?" Hlau suh. Vawiin hian he damdawi chungchang hi i hriatthiam theih tur tawng awlsam tak hmangin kan sawi dawn a, friendly takin kan sawi dawn a ni.
A awlsam zawngin, Vestronidase alfa chu eng nge ni?
Kan taksa hi factory lian tak angin han ngaihtuah teh. He factory hian hna hrang hrang thawk tur specialized ‘worker’ a nei a. Heng hnathawkte hi ‘enzyme’ kan ti thin. MPS VII ang natna nei naupangah chuan taksain enzyme pawimawh tak a siam lo va, a nih loh leh a siam chhuah tlem hle.
Vestronidase alfa hi chu a tlakchhamna chu a titawp thei a ni . A dik tak chuan enzyme replacement therapy (ERT) a ni. He vaccine hian a tih chu naupang chu taksaa pianphung anga siam ni lo enzyme pek hi a ni. He enzyme hi taksaa a luh chuan taksaa thil tha lo awmkhawmte chu a tichhia a, a natna lanchhuahna control turin a pui bawk.
A pawimawh ber chu hei hi natna damdawi a ni lo tih hi a ni. Mahse, he enkawlna hian natna lan chhuah dan a thunun thei a, naupang nunphung a titha thei a, naupang chu nuam zawkin a nunpui thei bawk.
He damdawi hi engtin nge naupang hnenah pek theih ang?
He damdawi hi in lama ei leh inject theih pill a ni lo. Vestronidase alfa hi infusion angin, saline ang bawkin, vein-ah pek a ni .
Hetiang tih dan hi damdawi in emaw clinic emaw-ah a thleng fo thin , doctor leh nurse-te enkawlna hnuaiah. Darkar engemaw zat a daih thei. Naupangin he enkawlna a dawn lai hian medical team te hian naupang dinhmun (heart rate, blood pressure, etc.) an enfiah fo thin. Chuvangin i fate himna tur ngaihtuah a ngai lo.
Hetiang enkawlna hi nausen piang tharte tan pawh pek theih ni mah se, naupang kum leh dinhmun azira fimkhurna bik zawm ngai a awm. Hemi chungchang hi i fa doctor-in a hriattir ang che.
Enkawlna i tan hmaa i doctor hnena i hrilh tur thilte
He enkawlna hi i tan hmain i fa hriselna chungchang eng emaw zat doctor hnenah hrilh hmasak a pawimawh hle . He information hian naupang enkawl dan tur leh fimkhur dan tur a hril ang.
| Matter hriattir tur a ni | Engvângin nge chu chu a pawimawh? |
|---|---|
| Allergy chi hrang hrang | Vestronidase alfa, damdawi dang, ei tur, dye, emaw, preservatives emaw allergy i neih chuan doctor hnenah hrilh ngei ang che. Hei hian allergy na tak a awm loh nan a pui dawn a ni. |
| Naupai emaw, nau pai tum emaw | Enkawlna dawngtu chu tleirawl a nih chuan naupai emaw, nau pai tum emaw an nih leh nih loh hriattir a pawimawh hle. |
| Nau hnute pek | Nuin enkawlna a dawng a nih chuan nausen hnute a pek leh pek loh doctor hnenah a hriattir tur a ni. |
Damdawi kan pek dawnin eng thilte nge kan fimkhur ang?
Allergy na tak tak a awm chuan fimkhur rawh.
He damdawi hian naupang thenkhatah allergy na tak a thlen thei a ni. Hetiang hlauhawmna tihziaawm nan hian i doctor chuan Vestronidase alfa vaccine i pek hma darkar khat vel khan damdawi dang (entir nan, antihistamines piritan, khawsik tihziaawmna) pek che a rel thei ang. Chuvangin i doctor thupek ang chiah kha zawm rawh.
Missed Dose a ni
He vaccine hi a hun taka lak a pawimawh hle. Eng emaw chhan vanga damdawi ina i kal theih loh chuan i doctor chu phone nghal la, hriattir nghal la, chutiang chuan ni lo awm turah thurawn an pe thei ang che.
Overdose a ni
He damdawi hi damdawi inah pek a nih avangin overdose chance a tlem hle. Amaherawhchu hetiang thil hi a lo thlen emaw, i rinhlelh emaw chuan medical team hnenah hriattir nghal rawh. In lama harsatna i neih chuan Colombo National Hospital-a National Poisons Information Center ah call rawh . A nih loh leh naupang chu damdawi in hnai ber Emergency Treatment Unit (ETU)-ah hruai rawh.
Damdawi dang chungchanga harsatna awm
He damdawi hian damdawi dang nena a inzawm dan hi uluk taka zirchian a la ni lo. Chuvangin, i fain damdawi dang, vitamin, herbal remedies, supplement dang a ei tur awm apiang chu doctor hnenah hriattir a pawimawh hle. Tin, i fa doctor hnenah zawh hmasa lovin damdawi thar engmah ei tan suh.
He damdawi hian eng side effect nge a neih theih?
Damdawi dang ang bawkin Vestronidase alfa vaccine hian side effect engemaw zat a nei thei a ni. Chûng zînga a tam zâwk chu tê tê ni mah se, a bîk taka kan hriat tûr thil ṭhenkhat a awm.
| Side effect na tak tak, i doctor emaw nurse emaw hnenah i report nghal tur a ni | |
|---|---|
| Allergy symptom na tak tak a awm | Vun natna, eczema, vun rawng, hnim hring, hmui, lei emaw hmai emaw a hring. |
| Thâwk lak harsat | Thâwk harsa, rilru thawm, thawk laiin thawm pangngai lo. |
| Thisen sang hniam | Luak chhuak, mit sen, hriatna hloh hnaih. |
| Side effects hlauhawm lo tlangpui, mahse a awm reng chuan doctor hnenah hriattir tur a ni | |
| Kawthalo | Flatulence a awm. |
| Injection na hmuna harsatna awm | Injection na hmun vel a na, a sen emaw, a hring emaw. |
He list-ah hian side effect awm thei zawng zawng a tel lo. Chu bâkah, thil danglam tak i hriat chuan, chu mi chungchâng chu i doctor hnêna sawi hreh ngai suh.
Take-Home Thuchah a ni
- Vestronidase alfa hi enzyme replacement therapy a ni a, MPS VII (Sly Syndrome) tih hming pu natna langsar tak takte chu a control thei a ni. Natna damdawi a ni lo .
- He enkawlna hi damdawi inah thisen zam chhunga infusion angin pek thin a ni a, damdawi lam enkawlna hnuaiah pek thin a ni.
- Enkawlna i tan hmain i fate allergy zawng zawng leh hriselna lama harsatna dangte chu doctor hnenah hriattir hmasak a pawimawh hle .
- Enkawl laiin allergic symptom na tak tak, hmai hring, thawk harsa, vun vun rawng i neih chuan medical team te hriattir nghal rawh.
- Eng thil vang pawhin i enkawl hun tur ruahman chu pelh suh. I miss a nih chuan doctor ko nghal rawh.
- He damdawi chungchanga zawhna emaw, ngaihtuahna emaw i neih chuan i doctor nen sawiho rawh.
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