I fa hian Duchenne Muscular Dystrophy (DMD) a vei a nih chuan doctor-te chuan Viltolarsen (brand name: Viltepso) tih vaccine chungchang an sawi tawh mai thei. Hetiang hunah hian zawhna sangkhat zet rilruah a lo lang hi thil pangngai tak a ni. Hei hi eng damdawi nge ni? Eng nge a tih tak tak? Eng thil nge kan ngaihtuah tur? Vawiin hian heng zawng zawng hi tawng awlsam leh hriatthiam awlsam tak hmangin kan sawi dawn a ni.
He damdawi hi eng nge thleng tak tak?
A awlsam zawngin sawi ila, Duchenne (DMD) vei naupangte hian genetic problem an nei a, protein pakhat ‘Dystrophin’ an tih chu an siam chhuak a, hei hi taksa ruh chakna atana pawimawh tak a ni. He damdawi, Viltolarsen tia koh hian taksain protein bo thenkhat chu a thlak danglam thei a ni. Phên dangin sawi ila, he damdawi hian taksa ruh hnathawh engemaw zat a vawng reng thei a ni.
Amaherawhchu, hei hi natna damdawi a ni lo tih hriat chian a pawimawh. Tin, he damdawi hi DMD nei naupang zawng zawng tan pek vek a ni lo. Naupang gene mutation bik nei tan chauh a tha . He enkawlna hi i fa tan a tha em tih chu Doctor ten test an neih hnuah an rel ang.
I fate damdawi i pek hmaa doctor hnena hrilh tur thilte
I fain he enkawlna hi a tan hmain heng thilte hi i doctor nen in sawiho ngei tur a ni. Engmah thup suh, a chhan chu naupang himna hi a pawimawh ber a ni.
- I fain kal natna a neih chuan hrilh rawh .
- Tun hmaa Viltolarsen emaw damdawi dang emaw, ei tur emaw, dye dang emaw allergy i neih tawh chuan hei hi chiang takin sawi rawh.
- He enkawlna dawngtu hi naupang, naupai tum, naupai, emaw, hnute pe lai emaw a nih chuan doctor hriattir a pawimawh hle bawk .
He thu hriat a\ang hian doctor-in naupang a enkawl hunah a fimkhur lehzual ang.
Engtin nge naupang hnenah damdawi pek ang?
Hei hi i ei tur pill emaw, in lama damdawi emaw a ni lo. Hei hi vein chhunga injection a ni a, a dik zawk chuan vein chhunga infusion a ni . Saline pek ang bawkin puithiamte hian he damdawi hi taksaah an pe thin.
He enkawlna hi damdawi in emaw clinic emaw-ah tih vek a ni a, trained medical staff-te enkawlna hnuaiah tih a ni. Chuvangin lungkham tur i nei lo.
Damdawi ei tur appointment i neih loh chuan eng nge i tih ang?
He enkawlna hlawhtlinna atan hian naupang ei a, doctor-in a pek ni leh a pek hun dik takah a dose pek a pawimawh hle .. Dose engmah lo hmang lo la. Emergency avanga i ni ruat saah i kal thei lo a nih chuan i doctor call nghal la, hriattir la , i tih leh tur thurawn la rawh.
Damdawi ka ei tam lutuk chuan engtin nge ni ang?
Hei hi damdawi in hmuna pek a nih avangin hetiang thil thleng theihna chance hi a tlem hle. Mahse, overdose i ei tawh nia i hriat chuan damdawi in Emergency Treatment Unit (ETU) -ah kal nghal rawh. A nih loh leh Colombo National Hospital-a National Poisons Information Center-ah thurawn dil turin phone la.
Side effect awm thei te
Damdawi dang ang bawkin Viltolarsen hian side effect engemaw zat a nei thei a ni. Chung zinga ṭhenkhat chu thil pawi tak a ni thei a, chuvangin fimkhur a pawimawh hle.
| Side effect chi hrang hrang | Description leh tih tur |
|---|---|
| Damdawi lam pan vat ngai symptom na tak tak a awm | |
| Allergy natna a awm thei | Vun vun rawng, na tak, taksa na, thawk harsa, emaw hmai, hmui, lei hring emaw ang chi symptoms i neih chuan doctor hnenah hriattir nghal rawh. |
| Kidney hliam chhinchhiahna | I zun tam dan emaw, i zun tam dan emaw, zun harsat emaw, i zun rawng danglam emaw i hriat chuan doctor hnenah hriattir nghal rawh. |
| Symptoms nasat loh tlangpui, mahse a awm reng chuan doctor hnenah hriattir tur a ni | |
| Side effect tenau te |
Hengte hi ni engemaw zat chhungin a reh tlangpui a, mahse a awm reng chuan emaw, naupang a rilru a hahdam loh chuan doctor hnenah hrilh tur a ni. |
He list-ah hian side effects awm tlangpui tlemte chauh a tel. I fateah thil danglam bik i hmuh chuan, chu chu i doctor nena sawi dun chu tikhawtlai suh.
Damdawi dang nena inzawmna a awm em?
Tuna test neih mek aṭanga chhut chuan Viltolarsen vaccine nena inzawm damdawi dang report a la awm lo.
Mahse, i fain a ei tur damdawi dang zawng zawng (condition dang damdawi, vitamin, traditional medicine, dietary supplement) list kimchang tak doctor hnenah pek a tha ber. Hei hian a tul lova harsatna a thlen loh nan a pui dawn a ni.
Take-Home Thuchah a ni
- Viltolarsen hi Duchenne muscular dystrophy (DMD) dinhmun control thei damdawi a ni a, mahse a dam kim lo .
- He damdawi hi genetic mutation bik nei damlote tan chauh pek thin a ni .
- Hei hi vein-a injection pek a ni a, damdawi in emaw, clinic emaw-a medical staff trained-te chauh pek a ni .
- If your child has kidney disease or other allergy , enkawl tan hmain doctor hnenah hrilh hmasa phawt ang che .
- I hmai hring, thawk harsa, emaw , zun tam dan inthlak danglam ang chi side effect lian tham i neih chuan doctor lam pan nghal rawh .
- I dose te hi a hun taka ei a pawimawh hle a , zawhna i neih apiang i doctor zawh pawh hlau ngai suh.
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