He uaua pakari, he wiriwiri rānei ō waewae, ō waewae rānei, e mōhio ana koe? I ētahi wā, ahakoa te tango rongoā hei whakamama i tēnei uaua, kāore e āwhina. Nō reira, i tēnei rā ka kōrero tātou mō tētahi maimoatanga matatau mō tēnei momo uaua nui (spasticity). Ko te ingoa o tēnei ko te Baclofen Pump. Tērā pea he ingoa hou tēnei ki a koe, engari he maha ngā painga. Me titiro tātou ki te aha.
He aha te papu Baclofen?
He kupu ngāwari noa iho, he taputapu iti tēnei e whakatōkia ana ki roto i tō tinana mā te pokanga. E rua ngā wāhanga o tēnei taputapu:
- Papu: He kōpae whakarewa porowhita, papatahi tēnei, he matotoru te nuinga o te wā, ā, e toru inihi te whānui. Koinei te wāhi e rongoa ai te rongoā, e tukuna ana ki roto i te tinana ina hiahiatia.
- Kātene: He ngongo angiangi, ngāwari tēnei e kawe ana i te rongoā mai i te papu ki te wāhi e hiahiatia ana, arā, kei roto i tō taurakira.
I te wā e pokanga ana, ka whakatakotoria e te tākuta tēnei papu ki raro i te kiri o tō puku. Kātahi ka honoa tetahi pito o te catheter ki te papu, ā, ko tetahi pito ki te wai e karapoti ana i tō taurakira. Ka karangatia tēnei e ngā tākuta ko te Intrathecal Baclofen Therapy (ITB) .
He pākahiko, he puna wai, me tētahi tukatuka iti kei roto i tēnei papu. Ka whakamahia e te tākuta tētahi rorohiko iti me tētahi taputapu motuhake (te tokotoko) kua whakanohoia ki tō kiri hei hōtaka i te papu. Ko te tikanga o tēnei, ka tohutohuhia te papu kia hoatu te nui o te rongoā tika ki a koe, i te wā tika, me te huarahi tika puta noa i te rā.
Nā, he aha te ingoa o tēnei rongoā ko Baclofen?
He rongoā whakangāwari uaua angaiwi a Baclofen. He rongoā matua tēnei mō ngā āhuatanga pēnei i te pakari o te uaua (spasticity). Ina werohia tika tēnei rongoā ki roto i te wai e karapoti ana i te taurakira, ka mahia e ia ēnei e whai ake nei:
- Ka āwhina i te nekehanga o ngā uaua.
- Ka whakahaere i ngā kikiki pinepine kāore e hiahiatia me ngā urupare hohe rawa.
- Ka whakaiti i te nui rawa o te oro uaua.
- Ka whakaiti i ngā uaua e pupuhi ana.
Tērā te take matua he nui ake te whai huatanga o tēnei tikanga i ngā pire ā-waha. Ina horomia te rongoā, ka horapa puta noa i te tinana, ka tae atu ki te taurakira. Nō reira, he maha atu ngā pānga taha pēnei i te hiamoe me te ngoikore. Engari nā te mea ka tukuna tika te rongoā e te papu ki te wāhi e hiahiatia ana, ka taea e koe te whiwhi hua nui me te iti noa o te rongoā . Nō reira, he iti noa iho hoki ngā pānga taha.
He aha ngā āhuatanga e whakamahia ai tēnei papu?
Ka whakamahia tēnei tikanga hei rongoā i te pakari o te uaua (te tino uaua o te uaua) i puta mai i ētahi mate e pā ana ki te roro, ki te taurakira rānei. Ko ētahi tauira:
- Te Mate Pukupuku Maha
- Te whara nui o te taurakira
- Te pararutiki roro
- Te whara o te roro
- Whiu
Mō wai te papu baclofen e tino pai ana?
Mena he tino pakari ō uaua, ā, kāore e āwhina ngā rongoā ā-waha, ka whakaarohia pea tēnei papu e tō tākuta. Engari kāore e taea e te katoa te whakauru tonu. Tuatahi, ka whakamatautauria koe kia kite ai mēnā he pai mōu.
Ko tēnei whakamātautau he werohanga iti ki roto i tō tuaiwi (spinal tap) ā, he iti noa te baclofen ka werohangahia ki roto i te wai e karapoti ana i tō tuaiwi. Kātahi ka aroturukihia koe e te tīma hauora mō ētahi haora. Ka tirohia e rātou te nui o te horopeta o te rongoā e whakaiti ana i tō pakari uaua me ō kare ā-roto. He rangitahi noa te pānga o tēnei rongoā, engari he mea tino nui ngā mōhiotanga e homai ana e ia kia whakatau ai te tākuta mēnā ka whakauruhia he papu, kāore rānei.
Me pēhea te mahi i te pokanga?
Kia whakatauhia he pai koe mō te papu, ka whakaritea he rā mō te pokanga. Ko te tikanga ka mahia tēnei e te taote pokanga roro, e te tākuta rānei e tohunga ana ki te whakahaere mamae.
I te rā o te pokanga, ka whakamoea katoatia tō manawa. Ko te tikanga, kāore koe e rongo i tetahi mea, ka moe koe. Kātahi ka whai te taote pokanga i ēnei mahi:
1. Ka tapahia he wahi iti ki te kiri o tō puku, ā, mā roto ka whakatakotoria te papu ki raro i te kiri.
2. Kātahi ka tapahia anō tō tuara o raro, ā, ka whakaurua te pito o te catheter (ngongo) ki roto i tō taurakira.
3. Muri iho, ka honoa te katitere ki te papu i roto i te puku i raro i te kiri.
4. Kua whakakīia te papu ki te rongoā Baclofen e hiahiatia ana.
5. Mā te whakamahi i te rorohiko, ka whakarite koe i te papu kia tukuna te rongoā kia rite ki tāu e hiahia ana.
E rua hāora te roa o te pokanga katoa. Me noho koe ki te hōhipera mō ētahi rā i muri i te pokanga. I ētahi wā, ka tukuna pea koe ki ngā maimoatanga whakaora hei āwhina i a koe kia taunga ki te papu me te whakahoki mai i te kaha o te uaua i mua i tō hokinga ki te kāinga.
Me pēhea te whakahaere me te tiaki i te papu?
He mea tino nui kia tiakina tika te papu i muri i te whakaurunga.
- Whakakī anō: Ka pau te rongoā i roto i te papu i roto i te wā. Ko te tikanga kotahi i te marama ki te kotahi i ia ono marama.I ia wā, me whakakī anō tō papu. Ko te tikanga o tēnei ko te werohanga a tō tākuta i te rongoā ki tētahi wāhi motuhake o tō kiri (te putanga whakakī) mā te whakamahi i te ngira. He mea morearea te karo i tēnei rā whakakī , nā te mea ka pā mai ngā tohumate whakaroa kino ki te kore koe e tango i tāu rongoā.
- Pūhiko: E ono ki te whitu tau te roa o te pākahiko o te papu. Ka tangi te papu ina tata pau te pākahiko. Kātahi ka hiahiatia he pokanga anō hei tango i te papu tawhito, hei whakauru i tētahi mea hou. Heoi, kāore te catheter (ngongo) e whakawhitia. He māmā ake tēnei pokanga tuarua i te pokanga tuatahi.
- Ngā raruraru: Mena he rahunga ā-mīhini, he aukati rānei kei roto i te papu, i te katitere rānei, me whakatika, me whakakapi rānei mā te pokanga.
Ki te whakaaro koe kāore te papu e mahi tika ana, waea atu ki tō tākuta tonu atu .
Ngā painga, ngā mōrearea, me ngā raruraru o tēnei maimoatanga
Pērā i ngā maimoatanga hauora katoa, he painga, he mōrearea anō hoki. Kia tirohia ngā mea e rua.
| Painga | Whakaahuatanga |
|---|---|
| Angitu nui | He huarahi tino whai hua hei whakahaere i ngā mamae uaua kino. |
| Te tuku tonu i te rongoā | Nā te mea e hoatuhia ana te rongoā i te wā kotahi puta noa i te rā, ka pai te whakahaere i te pakari o te uaua. |
| He iti ake ngā pānga taha | He iti ake ngā pānga taha (te hiamoe, te ngoikore) i ngā rongoā ā-waha. |
| Horomanga whakarerekētanga | Ka taea e koe te whakarite i ngā horopeta rerekē o te rongoā i ngā wā rerekē o te rā, i runga i ō hiahia. |
| Ka taea te tango atu mēnā e tika ana. | Mena e tika ana mō tētahi take, ka taea te tango i te papu me te catheter mā te pokanga. |
Ngā raruraru pea
- Ngā mea e pā ana ki te pokanga: te mate urutā, te toto, te marō, te turuturu o te wai cerebrospinal.
- E pā ana ki te papu: Ngā hapa o te papu, te aukati, te tango rānei i te katitere, te kino o te kiri ki runga i te papu.
- E pā ana ki te rongoā: Te tango, te nui rawa rānei o te horomanga. Koinei ngā āhuatanga tino kino hei tūpato māu.
Te rerekētanga i waenga i te tango me te overdose
He kino pea ēnei āhuatanga e rua, nō reira he mea tino nui kia mōhio koe ki ngā tohu o ia āhuatanga e rua.
| Āhuatanga | Te tango i te Baclofen | Te nui rawa o te Baclofen |
|---|---|---|
| Take | ||
| He aha tēnei e tupu nei? | Te mutunga ohorere o te tuku rongoā nā te paunga o te rongoā i te papu, te aukati i te katitere, te pakaru rānei. | Te nui rawa o te rongoā e uru ana ki te tinana nā te hapa i te whakakī anō, i te hōtaka rānei i te rongoā. |
| Ngā Tohu Matua | ||
| Ngā uaua | Tino kaha te whakawhāiti, te pupuhi, te hurihuri. | Ngoikore rawa , kore ora, kore e taea te neke i ngā waewae me ngā waewae. |
| Kiri | Te mākati nui o te kiri, kāore he kino. | Kāore he rerekētanga motuhake. |
| Te pāmahana tinana | He paku pāwera tōku kiri. | Te hekenga o te pāmahana tinana. |
| Ētahi atu āhuatanga | Te werawera nui, te whakapairuaki, te whanoke. | Te hiamoe nui, te toto toto iti, te uaua ki te manawa . |
| Te āhuatanga kino rawa atu | Ngā hopukanga. | Te ngaronga o te māramatanga, ngā hopuhopu. |
Whakatūpato: Ki te puta mai tētahi o ngā tohu kua whakarārangihia i te ripanga i runga ake nei, he āhuatanga ohorere hauora tēnā. Me tere tonu te kawe i te tūroro ki te Tari Ohorere (ETU) o te hōhipera tata.
Āhea ahau me toro atu ki te tākuta?
Mena kua whakauruhia he papu baclofen ki roto i tōu tinana, me whakapiri atu koe ki tō tākuta i ia wā, i ia wā.
Waea atu ki tō tākuta i roto i ēnei āhuatanga:
Ki te kite koe i ngā tohu o te mate i te wāhi i pokaina ai, me whakamōhio tonu atu ki tō tākuta.
- Te kirika.
- Te whero me te pupuhi o te kiri huri noa i te wāhi i tapahia, i te wāhi rānei i werohia ai.
- He wai, he pūhā rānei e maringi ana i ngā motu.
- Te mamae i aua wāhi.
Haere tonu ki te ETU i roto i ēnei āhuatanga:
- Ngā tohumate tango i whakahuatia i te ripanga i runga ake nei.
- Ngā tohu o te nui rawa o te horomanga kua whakahuatia i te ripanga i runga ake nei.
Ka taea e ēnei āhuatanga e rua te whakararu i te ora, nō reira he mea nui te maimoatanga wawe.
Karere Tangohia ki te Kāinga
- He maimoatanga matatau te Baclofen Pump mō ngā uaua mamae kino (te spasticity nui) e kore e taea te whakahaere mā te rongoā ā-waha.
- Nā te mea ka tukuna tika te rongoā ki te taurakira, ka taea te whakatutuki i ngā hua pai ake me te iti o te rongoā me ngā pānga taha iti iho.
- He mea nui kia whakakīia te papu i te wā tika. Ki te kore e whakamahia tēnei, ka pā mai pea ngā tohumate morearea o te whakamutu i te inu waipiro.
- He mea tino nui kia mōhio koe ki ngā tohu o te whakamutu me te nui rawa o te horomanga. He āhuatanga ohorere hauora ēnei.
- Mena he āwangawanga, he pātai rānei āu mō tō papu, mō ētahi atu tohu rānei e pā ana ki a koe, me toro atu ki tō tākuta tonu atu.
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