Ese wowe cyangwa umwana wawe mufite ikibazo cyitwa PROS? Abaganga bacyita PIK3CA-Related Overgrowth Spectrum. Muri make, ni indwara aho ingingo zimwe na zimwe z'umubiri zikura mu buryo budasanzwe kandi vuba. Ni indwara idakunze kugaragara, kandi ishobora kugorana kuyifata. Ariko uyu munsi tugiye kuvuga ku muti ushobora gukoreshwa mu kuyivura. Ni ikinini cyitwa Alpelisib. Reka turebere hamwe uwo muti, uko ukora, n'icyo ugomba kwitondera mu gihe uwukoresha.
Uyu muti witwa Alpelisib ni uwuhe?
Alpelisib (izina rya Vijoice) ni umuti ukoreshwa mu kugenzura ibimenyetso bya PROS. Hari poroteyine mu mubiri wacu ifasha uturemangingo gukura no kwigabanyamo ibice. Ku bantu bafite PROS, iyi gahunda iba irenze urugero. Rero icyo uyu muti ukora ni ukubuza imikorere ya poroteyine ituma uturemangingo twiyongera vuba. Hanyuma gukura kw'uturemangingo bitari ngombwa biragenzurwa cyane. Ibi bifasha kugabanya ibimenyetso no koroshya ubuzima.
Ibintu ugomba kubwira muganga wawe mbere yo gutangira imiti
Mbere yo gutangira Alpelisib, ni ngombwa cyane kuvugana na muganga wawe ku buzima bwawe mu buryo bweruye. Menya neza ko umubwiye ibi bintu by'umwihariko:
- Diyabete: Bwira muganga wawe niba wowe cyangwa umuntu wo mu muryango wawe arwaye diyabete.
- Indwara z'ibihaha: Niba ufite ikibazo cy'ibihaha.
- Allergie: Tubwire niba ufite allergie kuri Alpelisib cyangwa undi muti, ibiryo, cyangwa irangi.
- Gutwita: Ni ngombwa kubwira muganga wawe niba utwite, ugerageza gutwita, cyangwa niba umukunzi wawe ashobora gutwita.
- Konsa: Niba wonsa, menya neza ko wabivuzeho.
Ashingiye kuri aya makuru, muganga ni we uzagena niba uyu muti ukubereye cyangwa utakubereye.
Ni gute neza neza ukoresha uyu muti?
Ni ingenzi cyane gukurikiza amabwiriza ya muganga wawe neza ku buryo bwo gukoresha uyu muti.
- Ibi binini bigomba gufatwa mu kanwa. Bifate hamwe n'ifunguro .
- Igire akamenyero ko gufata imiti yawe ku gihe kimwe buri munsi. Muri ubwo buryo, ntuzibagirwa.
- Ntukamenagure ikinini cyangwa ngo ugiheke . Uramire cyose.
- Komeza gukoresha ubu buryo bwo kuvura kugeza igihe muganga wawe azakubwiriye kubihagarika.
Wakora iki iyo umuntu afite ikibazo cyo kumira ibinini?
Hari abantu bagira ikibazo cyo kumira ibinini. Ku muntu nk'uwo, ushobora gufata umuti muri ubu buryo:
1. Shyira ibiyiko 4-8 (ounces 2-4) by'amazi mu gikombe gisukuye.
2. Shyiramo ibinini by'imiti yawe hanyuma ubirekere iminota 5.
3. Hanyuma, sya uduce neza ukoresheje ikiyiko gisukuye.
4. Kangura neza hanyuma unywe uruvange nyuma yuko rushonge.
5. Hanyuma, ongeramo utundi tuyiko 2-4 (ounces 1-2) tw'amazi mu gikombe kimwe, oza ikiyiko cyakoreshejwe neza, hanyuma unywe ayo mazi. Ibi ni ingenzi kugira ngo umuti ntupfushe ubusa.
6. Bikore kugeza igihe nta bindi bice bisigaye mu gikombe.
Icy'ingenzi: Uyu muti ushobora kwandikirwa na muganga mu bihe bimwe na bimwe, ndetse no ku bana bafite imyaka 2. Ariko, hari ingamba zihariye zo kwirinda. Kubwibyo, kurikiza amabwiriza ya muganga neza.
Bite ho niba ntahawe dose cyangwa ndaruka?
- Niba wabuze dose: Niba wabuze dose, fata ako kanya wibuka. Ariko, niba irenze amasaha 9 ugereranyije n'igihe wagennye, jya usimbuka iyo dose burundu. Fata dose yawe ikurikira ku gihe cyagenwe. Ntukigere ufata dose ebyiri icyarimwe.
- Niba uruka: Niba uruka umaze gufata umuti, ntugafate ikindi kinini. Fata igipimo cyawe gisanzwe ku gihe cyagenwe ku munsi ukurikiyeho.
Indi miti ishobora kugira ingaruka kuri uyu muti
Indi miti ufata ishobora kugira ingaruka ku muti wa Alpelisib. Ibi bishobora kongera cyangwa kugabanya ubushobozi bwa Alpelisib, cyangwa bikongera ibyago byo kugira ingaruka mbi. Bwira muganga wawe kimwe muri ibi bikurikira:
- Imiti imwe n'imwe ikoreshwa mu kuvura indwara zo mu mutwe (urugero: carbamazepine, phenobarbital, phenytoin)
- Rifampine
- Umuti wa St. John (iyi ni inyongeramusaruro y'ibimera)
- Warfarin (umuti ugabanya amaraso)
Uru rutonde ntirwuzuye. Bwira muganga wawe imiti yose, vitamine, ibikomoka ku bimera, n'inyongeramusaruro ufata. Ashobora kugufasha gutegura gahunda yo kuvura yizewe kuri wewe.
Ibintu byihariye ugomba kwitondera mu gihe ufata imiti
Ugomba kwitonda gato ku mpinduka ziba mu mubiri wawe mu gihe ufata uyu muti.
- Jyana na muganga wawe buri gihe: Muganga wawe azakenera kujya akubona buri gihe kugira ngo arebe uburyo ubuvuzi burimo kukugirira ingaruka. Azagutegeka kandi gupima amaraso. Ntukagire icyo ureka.
- Indwara zikomeye z'uruhu:Uyu muti ushobora gutera ingaruka zikomeye ku ruhu ku bantu bamwe na bamwe. Ibi bishobora kubaho ibyumweru cyangwa amezi nyuma yo gutangira umuti. Bibwire muganga wawe ako kanya niba ugize uduheri hamwe n'ibimenyetso nk'umuriro cyangwa ubukonje. Utwo duheri dushobora guhinduka umutuku cyangwa umuhengeri, hanyuma uduheri n'uruhu rushobora gutangira gushonga. Nanone, niba ubonye umutuku ku ruhu hamwe no kubyimba mu maso, ku minwa, cyangwa kubyimba ijosi cyangwa mu kwaha, bibwire muganga wawe ako kanya.
- Kubura amazi mu mubiri: Bwira muganga wawe niba ufite impiswi ikomeye, isesemi, kuruka, cyangwa ibyuya byinshi. Gutakaza amazi menshi mu mubiri bishobora guteza akaga mu gihe ufata uyu muti.
- Isukari nyinshi mu maraso (Hyperglycemia): Uyu muti ushobora gutera isukari nyinshi mu maraso. Ibi byago biri hejuru ku bantu basanzwe barwaye diyabete. Bwira muganga wawe niba ufite ibimenyetso nko kugira inyota idasanzwe, kwihagarika kenshi, umunaniro ukabije, cyangwa kutabona neza .
- Gutwita no konsa:
- Gufata uyu muti mu gihe utwite bishobora gutera ibibazo bikomeye ku mwana utwite. Kubwibyo, ugomba kwipimisha kugira ngo umenye neza ko udatwite mbere yo gutangira kuvurwa.
- Ugomba gukoresha uburyo bwiza cyane bwo kuboneza urubyaro mu gihe cyose ufata ikinini, ndetse no mu cyumweru kimwe nyuma yo gufata ikinini cya nyuma .
- Niba umukunzi wawe ashobora gutwita, ni ngombwa gukoresha agakingirizo mu gihe cy'imibonano mpuzabitsina mu gihe ufata ikinini ndetse no mu cyumweru kimwe nyuma y'umuti wa nyuma.
- Ntukonseshe umwana mu gihe ufata uyu muti kandi mu gihe cy'icyumweru kimwe nyuma y'umuti wa nyuma.
Ni izihe ngaruka mbi zishobora kubaho?
Kimwe n'indi miti yose, Alpelisib ishobora gutera ingaruka mbi. Zimwe muri zo zishobora kuba zikomeye, bityo ni ngombwa kuzimenya.
| Ingaruka mbi ugomba guhita umenyesha muganga wawe | |
|---|---|
| Ubushobozi bwo kugira ubwivumbure | Uruhu rushyushye, kuribwa, kubyimba mu maso, mu maso, mu minwa, mu rurimi, mu maboko cyangwa mu birenge, kugorwa no kumira cyangwa guhumeka. |
| Guhumeka bigoranye | Inkorora yumye, guhumeka nabi, cyangwa guhumeka bigoranye. |
| Isukari nyinshi mu maraso (Hyperglycemia) | Inyota idasanzwe, kwihagarika cyane, umunaniro ukabije, kutabona neza. |
| Pancreatite | Kubabara mu gifu cyane (cyane cyane mu mugongo), ububabare burushaho kwiyongera nyuma yo kurya cyangwa iyo ukoze ku gifu, umuriro, isesemi, kuruka. |
| Indwara zikomeye z'uruhu | Uruhu rutukura, uduheri, gushinyagurika k'uruhu (ndetse no mu kanwa), umuriro no kubyimba ishinya. |
| Ububabare bukomeye mu gifu | Kubabara mu gifu bitunguranye, kwituma amaraso, umuriro, isesemi, kuruka. |
| Ingaruka mbi ubusanzwe zitari zikomeye, ariko zigomba kumenyeshwa muganga mu gihe zikomeje | |
|---|---|
| Impiswi | Uruhu rwumye |
| Gutakaza umusatsi | Umutwe |
| Ibisebe byo mu kanwa cyangwa mu muhogo | Ububabare, gutukura, cyangwa kubyimba mu kanwa cyangwa mu muhogo. |
Icy'ingenzi: Uru rutonde ntirukubiyemo ingaruka mbi zose zishobora kubaho. Niba ubonye ibimenyetso bidasanzwe, shaka inama kwa muganga.
Wakora iki iyo ufashe imiti myinshi?
Niba ubona ko wafashe imiti myinshi cyane, jya mu bitaro byita ku barwayi ba ETU ako kanya. Cyangwa hamagara ikigo cy’igihugu gishinzwe amakuru ku burozi mu bitaro by’igihugu bya Colombo .
Uyu muti wanditswe kuri wewe gusa. Ntuwusangire n'undi muntu uwo ari we wese ku mpamvu iyo ari yo yose.
Ni gute wabika kandi ukajugunya imiti mu buryo bwizewe?
- Kubika: Buri gihe shyira imiti kure y'abana n'amatungo . Ubushyuhe bw'icyumba (hagati ya dogere selisiyusi 20-25) ni bwo bwiza. Ntugakoreshe imiti yarengeje igihe.
- Guta imiti: Baza muganga wawe uburyo bwiza bwo kujugunya imiti idakoreshejwe cyangwa ishaje. Imiti imwe ntigomba kujugunywa mu musarani. Niba bidashoboka, ushobora gukura ibinini mu icupa, ukavanga n'ikawa yakoreshejwe, itaka, cyangwa umwanda w'injangwe, hanyuma ukabishyira mu gikapu gifunze neza hanyuma ukabishyira mu myanda.
Ubutumwa bwo kujyana mu rugo
- Alpelisib ni umuti ugenzura ikura ry'uturemangingo tudakenewe duterwa n'indwara yitwa PROS.
- Buri gihe fata uyu muti nk'uko muganga wawe yabigutegetse, ku gihe cyagenwe, hamwe n'ibiryo.
- Bwira muganga wawe indi miti yose n'inyongeramusaruro ufata.
- Niba ubonye ibimenyetso bikomeye by'uruhu, ibimenyetso by'isukari iri hejuru mu maraso, cyangwa kugorwa no guhumeka, menyesha muganga wawe ako kanya.
- Witondere cyane wirinde gutwita mu gihe cy'ubuvuzi n'icyumweru kimwe nyuma yo kuvurwa. Nanone wirinde konsa muri iki gihe.
- Uyu muti ni uwawe gusa. Ntukigere uwusangira n'abandi.
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Ishyirireho intego ya calorie hanyuma ubare itariki yo kugabanya ibiro.