Sɛ nhwɛso no, nyarewa bi, nnipa a wɔwɔ nyarewa te sɛ Thalassemia, ɛsɛ sɛ wɔtaa de mogya ma nipadua no. Sɛ yenya mogya bere tenten te sɛ eyi a, dade dodow a ɛwɔ yɛn nipadua mu no betumi akɔ soro a ɛho nhia. Yɛfrɛ eyi dade a ɛboro so. Saa dade a ɛkɔ soro yi betumi akɔto akwaa a ɛho hia te sɛ yɛn koma ne yɛn mmerɛbo mu na asɛe wɔn. Enti, aduru titiriw bi a nnuruyɛfo de yi dade a ɛboro so yi fi nipadua no mu no, wɔfrɛ no Deferasirox. Momma yɛnka eyi ho asɛm nnɛ.
Dɛn ne Deferasirox? Dɛn na ɛyɛ ankasa?
Sɛ yɛbɛka no tiawa a, aduru a wɔfrɛ no Deferasirox yi yɛ adwuma te sɛ magnet. Ɛbata dade nketenkete a ɛboro so a ɛwɔ yɛn mogya mu a yɛmpɛ no ho, kyere, na ɛboa ma woyi fi nipadua no mu. Wɔfrɛ saa adeyɛ yi Chelation wɔ aduruyɛ ho nyansahu mu. Eyi siw ɔsɛe a dade a ɛboro so betumi de aba yɛn akwaa a ɛho hia no ano. Saa aduru yi betumi aba din ahorow te sɛ Jadenu ase.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woanom saa aduru yi
Ɛsɛ sɛ wo duruyɛfo hu w’akwahosan ho abakɔsɛm nyinaa ansa na wakyerɛw saa aduru yi ama wo. Hwɛ hu sɛ wobɛka tebea horow a edidi so yi mu biara akyerɛ wɔn, titiriw sɛ wowɔ bi a:
- Sɛ wowɔ kokoram biara a.
- Sɛ w’ani nhu ade yiye anaasɛ w’aniwa nyarewa a.
- Sɛ wowɔ aso a ɛyɛ den biara a.
- Sɛ wowɔ asaabo mu yare anaa mmerɛbo mu yare a.
- Sɛ wowɔ tebea bi a ɛma mogya mu nkwammoaa fitaa, mogya mu nkwammoaa kɔkɔɔ, anaa mogya mu nkwammoaa kɔkɔɔ a ɛwɔ mogya no mu no so tew (mogya dodow a ɛba fam).
- Sɛ wowɔ allergy wɔ Deferasirox aduru yi anaa aduru foforo biara, aduan, anaa aduru a wɔde yɛ ade ho a.
- Sɛ woanyinsɛn, worebɔ mmɔden sɛ wubenyinsɛn, anaa worema nufu a.
Ɛsɛ sɛ wɔde aduru no di dwuma wɔ ɔkwan a ɛfata so.
Ɛho hia paa sɛ wudi akwankyerɛ pɔtee a wɔde ma wɔ aduru yi a wɔde bedi dwuma ho no akyi.
- Fa yafunu a hwee nni mu: Ɛsɛ sɛ wɔnom saa aduru yi bere a yafunu da mpan . Ɛne sɛ, anyɛ yiye koraa no, simma 30 ansa na wɔadidi, anaasɛ nnɔnhwerew 2 wɔ adidi akyi.
- Fa no bere ano: Fa dodow a wɔakyerɛw ama wo no wɔ bere a wo duruyɛfo akyerɛ wo no mu. Mma nnnom nsen mpɛn dodow a wɔakyerɛ sɛ wɔmfa nni dwuma da biara.
- Nnyae: Nnyae aduru yi nom mpofirim a wo duruyɛfo mfa afotu mma.
Sɛ wɔde ma mmofra nkumaa a
Wobetumi akyerɛw saa aduru yi ama mmofra a wɔadi boro mfe 2 wɔ nsɛm bi a wɔapaw mu. Nanso, wo ba no oduruyɛfo na obesi gyinae yi. Enti, sɛ wode saa aduru yi rema abofra a, di oduruyɛfo no akwankyerɛ akyi pɛpɛɛpɛ.
Na sɛ mepa nnuru dodow bi nso ɛ?
Sɛ wopa dose bi a, fa no bere a woakae ara pɛ. Nanso, sɛ ɛkame ayɛ sɛ bere aso sɛ wobɛma wo dodow a edi hɔ no a, twa dodow a woayera no so na fa wo dodow a edi hɔ no wɔ bere a woahyɛ da ayɛ no mu.Mfa nnuru abien prɛko pɛ da.
Na sɛ menom nnuru pii nso ɛ?
Fa no sɛ woanom nnuru pii wɔ bere a ɛnteɛ mu. Sɛ ɛba saa a, mma wo ho nnpopo na frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea no ntɛm ara . Anaasɛ kɔ ayaresabea a ɛbɛn wo no Emergency Treatment Unit (ETU) .
Nnuru afoforo a ebetumi ne Deferasirox adi nkitaho
Ebia saa aduru yi ne nnuru afoforo bi bedi nkitaho, enti ɛho hia yiye sɛ woka nnuru afoforo a worenom nyinaa (a vitamin ne nhabannuru ka ho) kyerɛ wo duruyɛfo.
| Aduru ko a wɔde yɛ | Nkyerɛkyerɛmu ne nhwɛso ahorow |
|---|---|
| Nneɛma a akyinnye biara nni ho sɛ ɛnsɛ sɛ wode saa aduru yi fa | |
| Iron a wɔde ma | Saa aduru yi a wobɛnom no beyi iron a ɛboro so afi nipadua no mu, enti sɛ wofa dade aduru a ɛwɔ akyi a, ɛremmoa. |
| Hepatitis C nnuru bi | Sɛ nhwɛso no: Dasabuvir, Ombitasvir, Paritaprevir, Ritonavir |
| Nnuru afoforo a ebetumi ama nkitahodi aba (sɛ worenom eyinom a, ka kyerɛ wo duruyɛfo ) . | |
| Nnuru a ɛko tia acid | Nnuru a wɔde sa yafunu mu yare a aluminium wom. |
| Nnuru a wɔde kum ɛyaw (NSAID) . | Sɛ nhwɛso no: Nnuru te sɛ Ibuprofen ne Naproxen. |
| Nnuru a wɔde siw awo ano | Ebia saa aduru yi bɛtew nnuru a wɔde siw awo ano a etu mpɔn no so. |
| Nnuru afoforo | Nnuru afoforo pii, te sɛ nnuru a ɛtew mogya mu srade so (Cholestyramine, Simvastatin), nnuru a ɛma akisikuru (Phenobarbital), nnuru a ɛma mogya yɛ mmerɛw (Warfarin), steroid (Prednisone), Cyclosporine, Rifampin, ne nea ɛkeka ho. |
Hwɛ wo nipadua so bere a worenom nnuru no.
Ɛho hia yiye sɛ wohwɛ nsakrae a ɛba wo nipadua mu bere a worenom saa aduru yi no.
Honam ani Nneyɛe a Ɛyɛ Aniberesɛm: Ɛtɔ mmere bi a, saa aduru yi tumi ma honam ani yare a emu yɛ den. Eyi betumi asi bere a wɔafi aduru no ase akyi adapɛn kakraa bi mpo. Sɛ wunya akisikuru kɔkɔɔ a atiridii wom, wo nipadua mu yɛ wo yaw, sɛ ɛdan kɔkɔɔ na ɛyɛ akisikuru, sɛ wo honam ani tew, anaasɛ wunya akisikuru kɔkɔɔ a akisikuru wɔ wo kɔn anaa wo nsateaa so a , kɔ oduruyɛfo nkyɛn ntɛm ara.
- Aduruyɛ mu nhwehwɛmu: Wo duruyɛfo bɛhwɛ w’ani, w’aso, ne wo mogya (titiriw asaabo ne mmerɛbo dwumadi) ansa na woafi ase anom aduru yi ne bere a worenom no. Mma nntwa sɔhwɛ ahorow yi so.
- Mogya a ɛretu wo yafunu mu: Sɛ wowɔ nsu tuntum a ɛyɛ tar, anaasɛ wofe a ɛte sɛ kɔfe a wɔayam a, ebetumi ayɛ sɛnkyerɛnne a ɛkyerɛ sɛ mogya retu wo esiane akuru bi a ɛwɔ wo yafunu anaa wo dwensɔtwaa mu nti. Sɛ eyi ba a, ka kyerɛ oduruyɛfo ntɛm ara.
- Adwenemhaw: Ebia saa aduru yi bɛma nnipa binom adwenem ayɛ wɔn naa. Mfa kar anaa mfa mfiri nni dwuma kosi sɛ wubehu sɛnea aduru yi ka wo. Hwɛ yiye bere a woresɔre anaa woretra ase mpofirim no.
- Nsu a ɛho ntew wɔ mmofra mu: Sɛ wɔma wo ba no aduru yi na ne yafunu mu yɛ no yaw kɛse, ɔfe, anaasɛ ne ho fifiri boro so a, ka kyerɛ wo duruyɛfo ntɛm ara. Saa aduru yi a wɔde ma no betumi ayɛ asiane sɛ nipadua no hwere nsu pii (nsu a ɛho ntew).
Nsunsuanso bɔne a ebetumi aba wɔ aduru yi ho
Te sɛ aduru biara no, Deferasirox betumi de ɔhaw ahorow aba. Ebinom yɛ aniberesɛm, bere a afoforo nso abu so.
| Nsunsuanso bɔne | Nkyerɛmu |
|---|---|
| Nneɛma bɔne a anibere wom a ɛsɛ sɛ wɔbɔ ho amanneɛ kyerɛ oduruyɛfo no ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no hyew a emu yɛ den | Wora mu akisikuru, ɛyaw, anim, anofafa, tɛkrɛma a ɛho ahonhon, ɛyɛ den sɛ wobɛhome. |
| Nsɛnkyerɛnne a ɛkyerɛ sɛ mmerɛbo asɛe | Wora anaa aniwa a ɛyɛ kɔkɔɔ, nsu a ɛyɛ kɔkɔɔ/biribiri tuntum, ɛyaw wɔ yafunu no atifi nifa so, aduan ho akɔnnɔ a ɛyera, ɔbrɛ a ɛtra so. |
| Nsɛnkyerɛnne a ɛkyerɛ sɛ asaabo asɛe | Nsu a ɛba no so tew, ɛyɛ den sɛ wobɛtow. |
| Nsakrae a ɛba wɔ anisoadehu anaa aso mu | Anisoadehu a ɛyɛ kusuu, aso a ɛso tew. |
| Mogya a ɛtɔ a ɛnyɛ ne kwan so | Honam ani akisikuru ne mogya a ɛtɔ a ɛho nhia. |
| Nsunsuanso bɔne a ɛtaa ba a ɛsɛ sɛ wobɔ wo duruyɛfo amanneɛ sɛ ɛkɔ so anaasɛ ɛhaw adwene a | |
| Nnuan a wɔyam no mu haw ahorow | Yafunu mu yaw, akisikuru, akisikuru, ɔfe. |
| Asoroben | Ɛyɛ den sɛ wobɛda. |
Nkrasɛm a Wɔde Kɔ Fie
- Deferasirox yɛ aduru a wɔde ma de yi dade a ɛboro so fi nipadua no mu. Ɛsɛ sɛ wɔnom sɛnea oduruyɛfo no kyerɛ no pɛpɛɛpɛ, wɔ yafunu a hwee nni mu.
- Ka nnuru afoforo a wonom nyinaa ho asɛm kyerɛ wo duruyɛfo, titiriw nnuru a wɔde kum ɛyaw ne nnuru a ekum asikre, efisɛ ebia saa aduru yi ne nnuru afoforo bedi nkitaho.
- Sɛ wuhu sɛnkyerɛnne ahorow a emu yɛ den te sɛ honam ani akisikuru, nsu tuntum, anaa aniwa a ɛyɛ kɔkɔɔ a, kɔ oduruyɛfo nkyɛn ntɛm ara.
- Bere a worenom saa aduru yi no, hwɛ hu sɛ wobɛyɛ mogya, aniwa, ne aso mu nhwehwɛmu a wo duruyɛfo akyerɛw ama wo.
- Saa aduru yi yɛ wo nkutoo dea. Mfa nkyerɛ afoforo da.
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