So wo duruyɛfo akyerɛw wo aduru bi a wɔfrɛ no Eliglustat sɛ aduru a wɔde sa Gaucher yare a ɛyɛ type I? Wɔtaa frɛ saa aduru yi din CERDELGA. Sɛ saa a, asɛm yi bɛyɛ nea ɛho hia wo paa. Momma yɛnka saa aduru yi ho asɛm, ne nneɛma a ɛsɛ sɛ yɛhwɛ yiye bere a yɛde redi dwuma no, wɔ ɔkwan a ɛyɛ mmerɛw na ɛyɛ tẽẽ so.
Dɛn ankasa na wɔde saa aduru yi di dwuma?
Sɛ yɛbɛka no tiawa a, Eliglustat yɛ aduru a wɔde sa Gaucher yare a ɛto so I a ɛkyɛ wɔ mpanyimfo mu. Nanso wɔmfa mma obiara. Sɛnea ɛbɛyɛ na woahwɛ ahu sɛ saa aduru yi fata wo nipadua no, wo duruyɛfo bedi kan ayɛ nhwehwɛmu titiriw bi. Saa sɔhwɛ no akyi nkutoo na obesi gyinae sɛ ebia aduru yi fata wo anaasɛ ɛnfata.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woafi ase anom nnuru
Okay, afei nneɛma kakraa bi wɔ hɔ a ɛsɛ sɛ wo ne wo duruyɛfo susuw ho ampa ansa na woafi saa aduru yi ase. Efisɛ ɛho hia yiye ma w’ahobammɔ sɛ wo duruyɛfo no nya w’akwahosan ho mfonini a edi mũ. Sɛ wowɔ nea edidi so yi bi a, hwɛ hu sɛ wobɛka ho asɛm akyerɛ wɔn.
- Sɛ wowɔ komayare , woanya komayare pɛn, anaasɛ wo koma bɔ ntɛmntɛm a .
- Sɛ wowɔ asaabo mu yare a .
- Sɛ wowɔ mmerɛbo mu yare a .
- Sɛ woanyinsɛn anaasɛ worebɔ mmɔden sɛ wubenyinsɛn a.
- Sɛ woyɛ ɛna a ɔma nufu a.
- Sɛ woadi kan anya eliglustat anaa nnuru afoforo, nnuan, anaa nnuru a wɔde yɛ nneɛma a ɛma wo ho yɛ wo hyew a .
Ɔkwan bɛn so na ɛsɛ sɛ mede saa aduru yi di dwuma?
Ɛho hia paa sɛ wudi akwankyerɛ pɔtee a wɔde ma wɔ aduru yi a wɔde bedi dwuma ho no akyi.
- Saa aduru yi ba wɔ ɔkwan a ɛyɛ capsule so. Fa nsu kuruwa bi fa w'ano .
- Fa no sɛnea oduruyɛfo no akyerɛ no pɛpɛɛpɛ, wɔ bere a ɛfata mu.
- Nea ɛho hia yiye: Mbubu, nbubu, anaa nwe saa capsule yi. Mene no nyinaa.
- Ade foforo a ɛho hia yiye ne sɛ woremfa saa aduru yi nka bobe nsu ho da. Nneɛma abien no betumi ama obi ayɛ n’ade denneennen.
- Wubetumi anom saa aduru yi bere a woadi aduan anaasɛ wunhia. Nanso, sɛ wo yafunu mu yɛ wo yaw a, ɛbɛyɛ papa sɛ wode bɛka aduan ho.
- Mma nnnyae saa aduru yi nom mpofirim a wunnya wo duruyɛfo afotu.
Kɔkɔbɔ: Wɔakyerɛw saa aduru yi ama wo nkutoo. Mfa nnkyɛ obi foforo da.
Na sɛ menom nnuru pii nso ɛ?
Sɛ mpofirim ara wususuw sɛ woanom aduru yi dodo a, ntwentwɛn wo nan ase. Ntɛm ara frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea , anaa kɔ ayaresabea a ɛbɛn wo no Ayaresa a Ɛho Hia Ntɛmntɛm (ETU) .
Sɛ wopa nnuru dodow bi a, dɛn na ɛsɛ sɛ woyɛ?
Sɛ wo werɛ fi sɛ wobɛnom dose bi a, mma ɛnhaw wo. Fa dodow a edi hɔ no wɔ bere a wɔahyɛ da ayɛ no mu. Mfa nnuru abien prɛko pɛ mfa nsiesie dodow a wo werɛ afi no.
Nnuru afoforo a ebia ɛne aduru yi bedi nkitaho
Eyi yɛ ɔfã a ɛho hia paa. Nnuru afoforo a worenom betumi ne Eliglustat adi nkitaho. Enti, ma wo duruyɛfo no nkyerɛw nnuru a worenom nyinaa, a nnuru a wɔkyerɛw ma wo ne nea wɔtɔn, nhabannuru, ne nnuru a wɔde ka ho ka ho. Afei nso, sɛ wonom sigaret anaa wonom nsa a, ka kyerɛ wo duruyɛfo.
| Nnuru a ɛnsɛ sɛ wɔde Eliglustat ka ho | |
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| Nnuru afoforo a ebetumi ne Eliglustat adi nkitaho | |
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Saa nsɛm a wɔahyehyɛ yi nwiei, enti ɛbɛyɛ papa sɛ wobɛka nnuru a wonom nyinaa ho asɛm akyerɛ wo duruyɛfo.
Dɛn ne nsunsuanso bɔne a ebetumi aba bere a wɔrenom aduru no?
Te sɛ aduru biara no, eyi betumi de ɔhaw ahorow aba nnipa binom so. Eyinom bi betumi ayɛ aniberesɛm, enti ɛho hia sɛ wohu.
| Nsunsuanso bɔne no su | Esu |
|---|---|
| Nneɛma bɔne a anibere wom a ɛsɛ sɛ wɔbɔ ho amanneɛ kyerɛ oduruyɛfo no ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no hyew | Wora mu akisikuru, ɛyaw, anim, ano anaa tɛkrɛma a ɛho ahonhon. |
| Nsakrae a asiane wom a ɛba koma a ɛbɔ mu | Koko mu yaw, adwenemhaw, koma a ɛbɔ ntɛmntɛm anaasɛ ɛnyɛ daa, te sɛ nea wo moma so rebɔ, wo totɔ piti, ɔhaw wɔ ahomegye mu. |
| Nneɛma bɔne a ɛtaa ba a ɛsɛ sɛ woka kyerɛ wo duruyɛfo sɛ ɛkɔ so anaasɛ ɛhaw adwene a | |
| Nnuan a wɔyam no mu haw ahorow | Yafunu mu yaw, akisikuru, akisikuru. |
| Ɔhaw afoforo | Tiyɛ, ɛyaw wɔ akwaa anaa akyi, ɔbrɛ. |
Ɔkwan bɛn so na ɛsɛ sɛ wode w’aduru sie?
- Twe wo ho fi mmofra ho.
- Fa sie baabi a ɛhɔ hyew yɛ digrii Celsius 20 kosi 25 (68-77 Fahrenheit).
- Tow nnuru a ne bere atwam gu.
Nkrasɛm a Wɔde Kɔ Fie
- Eliglustat yɛ aduru pɔtee a wɔde sa Gaucher yare a ɛyɛ I. Wo duruyɛfo bɛsɔ wo ahwɛ sɛ eyi fata wo yiye anaa.
- Kwati sɛ wobɛnom bobe nsu koraa bere a worenom aduru yi no.
- Ɛho hia sɛ wobɔ wo duruyɛfo amanneɛ wɔ nnuru afoforo, vitamin, ne nhabannuru a wonom nyinaa ho.
- Sɛ wuhu sɛnkyerɛnne ahorow te sɛ wo koko mu yaw, w’adwene tu fra, anaa koma bɔ a ɛnteɛ a, frɛ wo duruyɛfo ntɛm ara.
- Saa aduru yi yɛ wo nkutoo dea. Mfa nkyerɛ afoforo da. Sɛ wowɔ nsɛmmisa bi fa aduru no ho a, wo ne wo duruyɛfo nkasa.
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