Yala i kɔdimi bɛ kɛ tuma bɛɛ dɔrɔn wa? An ka kuma Ankylosing Spondylitis (AS) kan!

An bɛɛ ye kɔdimi sɔrɔ waati dɔ la an ka ɲɛnamaya kɔnɔ, tiɲɛ tɛ? Ni aw ye aw biri dɔɔni ka jugu walima ka fɛn girinman dɔ kɔrɔta, dimi bɛ ban tile fila-fila kɔnɔ. Nka... tuma dɔw la, nin kɔdimi in man nɔgɔn o cogo la. A bɛ se ka kɛ gɛlɛyaba dɔ daminɛ ye min bɛ ka aw tɔɔrɔ kabini san caman, wa a tɛ se ka sɛgɛsɛgɛ ka ɲɛ. Bi an bɛ kuma o cogoya sugu dɔ kan. O ye Ankylosing Spondylitis ye, walima AS ni a surunyalen don.

Ankylosing Spondylitis (AS) ye mun ye?

N’an y’a fɔ cogo nɔgɔman na, Ankylosing Spondylitis (AS) ye jolidɛsɛ suguya ye min bɛ mɛn sen na, a bɛ funu, a bɛ i kɔkolo de minɛ fɔlɔ . Min bɛ kɛ, o ye ko farikolo tangalanw bɛ fili ka bin i kɔkolo kolotugudaw kan. Waati tɛmɛnen kɔfɛ, o funu bɛ se ka kɛ sababu ye ka i kɔkolo kolotugudaw fara ɲɔgɔn kan, o bɛ dɔ bɔ i ka ladamuni na ani ka kɛ sababu ye ka i biri.

Dɔgɔtɔrɔ dɔw b’a fɔ ko ka nin bana in sɛgɛsɛgɛ, o bɛ i n’a fɔ ka pikirijikɛlan ɲini binkɛnɛ na. Kun damadɔ bɛ o la.

Mun na AS sɛgɛsɛgɛli ka gɛlɛn kosɛbɛ?

Kɔlɔsiliw y’a jira ko a ka ca a la a bɛ san 7-10 ta ka bɔ AS taamasiɲɛw daminɛ waati la ka se a sɛgɛsɛgɛli ɲuman ma. Miiri k’a filɛ o ye waati jan ye cogo min na! O sababuba minnu bɛ yen olu ye:

• Kɔdimi ka teli: I n’a fɔ an y’a fɔ cogo min na ka tɛmɛ, kɔdimi ka teli kosɛbɛ. O la sa, mɔgɔ caman b’a miiri ko o tɛ kojugu ye, wa u tɛ u janto o la.
• X-ray (Sɛgɛsɛgɛli) kunnafoniw latɛmɛni : AS la, kɔkolo ni kɔkolo kolotugudaw tiɲɛni bɛ ye dɔrɔn X-ray (X-ray) la bana in taara ɲɛ dɔɔni kɔfɛ.
• A taamasiɲɛw tɛ kelen ye: AS bɛ mɔgɔ kelen-kelen bɛɛ minɛ cogo wɛrɛ la. Mɔgɔ dɔw bɛ kɔdimi dɔrɔn de sɔrɔ, ka sɔrɔ dɔw fana bɛ se ka gɛlɛyaw sɔrɔ u ɲɛw, u senkɔniw ani u kolotugudaw la.
• Sɛgɛsɛgɛli kelen tɛ kɛ: Hali bi, joli sɛgɛsɛgɛli walima sɛgɛsɛgɛli kelen tɛ yen min bɛ se ka a jira 100% ko nin ye AS ye.

Nin tabali in bɛna aw dɛmɛ ka danfara faamu kɔdimi nɔgɔman ni dimi min bɛ sɔrɔ AS fɛ.

Ɲɛnamaya minnu kɛra sɛgɛsɛgɛli juguw cɛma...

Ni an ye bana in bɛ mɔgɔ minnu na, olu ka ko kɛlenw mɛn, an bɛ nin ko in juguya faamu ka ɲɛ.

Don ka maana: "A bɛ i n'a fɔ ɲɛw fiyentɔ don, nka ɲɛw bɛ ye".

Don ye san 7 kɛ walasa ka bana sɛgɛsɛgɛli sɔrɔ. Nka n’a y’a kɔsegin, a b’a miiri ko o ye san 30 kɛ a la. Tuma min na a y’a daminɛ ka gɛnɛgɛnɛ dimi a si san 10 la, bɛɛ y’a wele ko “dimi minnu bɛ bonya.”

Nka a si tun bɛ san 40 ɲɔgɔn na, a ka ɲɛnamaya kɛra siranfɛn ye. O waati de la a ye uveite , ɲɛkisɛ bana dɔ sɔrɔ min bɛ funu, min bɛ se ka kɛ AS gɛlɛya jugumanba ye. Don ko: "Ne ye ne ɲɛ bɔ tiɲɛ na. Ne tun bɛ se ka cogoyaw dɔrɔn de ye, wa ne tun bɛ yeelen dɔn kosɛbɛ. A tun bɛ i n'a fɔ ne ye fiyentɔ ye, nka ne tun tɛ fiyentɔ ye tiɲɛ na."

Hali ni ɲɛdɔgɔtɔrɔw ma se ka a sababu sɔrɔ, u y’a jateminɛ ko a bɛ se ka kɛ “bana sugu dɔ ye min bɛ sɔrɔ farikolo tangacogo fɛ.” K’a sɔrɔ jaabi jɛlen ma sɔrɔ, Don y’o bila kɛrɛfɛ. San caman kɛlen kɔ ka taa dɔgɔtɔrɔ 30 ni kɔ fɛ ani ka furakɛli kɛ fɛn bɛɛ la k’a ta kansɛri la ka taa a bila hakiliɲagami banaw la, a laban na, a y’a ye ko AS bɛ a la, a kɛlen kɔ ka taa sɔgɔsɔgɔninjɛ dɔgɔtɔrɔ dɔ fɛ.

Charis ka maana: "A tɛ bana ye min bɛ cɛw dɔrɔn de minɛ".

Charis lamɔna a ba fɛ. AS tun b’a facɛ la. "Ne tun tɛ bana in tɔgɔ yɛrɛ dɔn. Nka ne tun b'a dɔn ko ne tɛna a sɔrɔ, bawo 'cɛ ka bana' don," Charis ko ten.

Charis tun bɛ gɛnɛgɛnɛ ni kolotugudaw dimi wɛrɛw la kabini a denmisɛnman, nka a tun b’a miiri ko gɛlɛya wɛrɛ don n’a tun bɛ farikoloɲɛnajɛ kɛ. Dɔgɔtɔrɔ dɔ y’a fɔ a ye ko jɔrɔnanko don. Nka Charis ma da a la. A tun b’a miiri ko bana taamasiɲɛw ni a fa ta bɔlen don. A laban na, a kɛlen kɔ k’a fa ɲininka, ani ka tugu a ka laadilikanw kɔ, a taara dɔgɔtɔrɔso la, a sɔrɔla ko AS bɛ a la.

AS banabagatɔ 80%-95% ɲɔgɔn bɛ ni jamu ye min bɛ wele ko HLA-B27 . O bɛ se ka ciyɛn sɔrɔ bangebagaw fɛ ka se denw ma. Nka, nin jamu in bɛ mɔgɔ o mɔgɔ la, o bɛɛ tɛna AS sɔrɔ, wa a bɛ se ka kɛ fana ka AS sɔrɔ ni o jamu tɛ. O la, o tɛ se ka dɔn ni jamu sɛgɛsɛgɛli dɔrɔn ye.

Charis b’a dusukunnataw ɲɛfɔ nin cogo la:

Taama jan min bɛ kɛ ka taa bana sɛgɛsɛgɛli la, o bɛ se ka dusukunnataw sɛgɛn. O la ni aw bɛ ka nin ɲɔgɔn sɔrɔ, aw kana siga ka kuma o kan ani ka hakili kɛnɛya baarakɛla dɔ ka dɛmɛ ɲini ni aw mago bɛ a la.

Mun na dɔgɔtɔrɔw bɛ AS to yen?

O kun dɔ ye waati danma ye min bɛ se ka banabagatɔw ye. Dɔgɔtɔrɔ kɛrɛnkɛrɛnnen dɔ ko: “Miniti 15 dɔrɔn ni banabagatɔ ye, o tɛ bɔli kɛ.” Walasa ka bana gɛlɛn dɔ sɛgɛsɛgɛ i n’a fɔ AS, aw ka kan ka banabagatɔ ka kuma lamɛn ka ɲɛ ani ka ɲininkali ɲumanw kɛ.

Ani fana, AS taamasiɲɛw bɛ i n’a fɔ bana wɛrɛw ta tuma dɔw la. I n'a fo:

• Dimi bɛ kɛ kɔkiliw ni senkɔniw na
• Psoriasis, o ye faritanabana ye
• Dumunikɛcogo banaw i n’a fɔ Crohn ka bana walima kɔnɔboli

Ni dɔgɔtɔrɔba (GP) ma AS banabagatɔ caman ye a ka dɔgɔtɔrɔso la, a bɛ se ka kɛ a tɛ sigasiga AS la ni a ye nin taamasiɲɛ ninnu ye.O de kama a nafa ka bon kosɛbɛ ka taa sɔgɔsɔgɔninjɛ dɔgɔtɔrɔ fɛ ni kɔdimi kuntaalajan bɛ aw la, kɛrɛnkɛrɛnnenya la ni a juguyara sɔgɔma.

Kibaru duman ye ko sisan dɔgɔtɔrɔw bɛ AS taamasiɲɛw dɔn ka tɛmɛ fɔlɔ kan. Ani fana, fura kura dɔw bɛ yen (i n’a fɔ biologiki furakɛli) minnu bɛ se ka bana in kunbɛn kosɛbɛ. O la sa, i man kan ka tɔɔrɔ i n’a fɔ i tun bɛ tɔɔrɔ cogo min na fɔlɔ. Min nafa ka bon kosɛbɛ, o ye ka bana in sɛgɛsɛgɛ waati kɔnɔ, ka furakɛli ɲuman daminɛ.