SDR opereli (Selective Dorsal Rhizotomy) ye mun ye? Yala a bɛ denmisɛnniw dɛmɛ minnu bɛ ni Cerebral Palsy ye wa?

Yala aw denmisɛnnin bɛ ni Cerebral Palsy ye wa? N’a sɔrɔ aw y’a kɔlɔsi ko o denmisɛn suguw farikolo yɔrɔw, kɛrɛnkɛrɛnnenya la senw, bɛ gɛlɛya ani ka gɛlɛya kun tɛ. Furakɛcogo siratigɛ la, an b’o Weele ko ‘spasticité’. O gɛlɛya in kosɔn, a ka gɛlɛn kosɛbɛ den ma ka taama, boli, ka pan dɔrɔn, nka a bɛ don o don baaraw fana kɛ. O la bi an bɛna kuma opereli kɛrɛnkɛrɛnnen dɔ kan min bɛ kɛ ka kɛ fura banbali ye nin gɛlɛya in na. O ye Selective Dorsal Rhizotomy ye, walima SDR opereli surun na.

N’an y’a fɔ cogo nɔgɔman na, SDR opereli ye mun ye?

Selective Dorsal Rhizotomy (SDR) ye opereli ye min bɛ farikolo gɛlɛyali (spasticité) dɔgɔya kudayi denmisɛnniw na minnu bɛ ni kunsɛmɛnasumaya ye. Hali n’a y’a sɔrɔ a ka gɛlɛn kosɛbɛ, n’an b’a fɔ cogo nɔgɔman na, a bɛ kɛ ka den kɔkolo duguma yɔrɔ dɔw tigɛ ka u bɔ u la, minnu bɛ kɛ sababu ye ka farikolo yɔrɔw gɛlɛya senw na.

Min nafa ka bon kosɛbɛ, o ye ko nin opereli in tɛ kɛ sababu ye ka den senw sɔgɔsɔgɔ. A fana tɛ nɔ bila senw lamagacogo la k’a ɲɛsin u yɛrɛ ma. A bɛ farikolo yɔrɔw dɔrɔn de labɔ minnu sirilen don kun tɛ.

Jɔn ka kan ka o opereli kɛ? Yala a bɛnnen don denmisɛnw bɛɛ ma wa?

SDR opereli bɛ kɛ kɛrɛnkɛrɛnnenya la farikolo gɛlɛya furakɛli ye (spasticité) min bɛ sɔrɔ kunsɛmɛnasumaya fɛ.

I n’a fɔ aw b’a dɔn cogo min na, kunsɛmɛnasumaya (CP) ye bana ye min bɛ nɔ bila den ka se ka a farikolo lamagacogo kɔlɔsi. A bɛ sɔrɔ hakili yɔrɔw tiɲɛni fɛ minnu bɛ lamaga ni ɲɔgɔndɛmɛ kɔlɔsi. CP bɛ denmisɛn caman na, bana dɔ bɛ u la min bɛ wele ko ‘spasticité’. O kɔrɔ ye ko farikolo yɔrɔ dɔw bɛ barika sɔrɔ ka wuli kosɛbɛ ni den b’a ɲini ka lamaga walima ni a jɔlen don dɔrɔn. O bɛ se ka kɛ sababu ye ka taama gɛlɛya den ma, ka don o don baaraw kɛ, wa tuma dɔw la yɛrɛ ka dimi bila a la.

SDR opereli bɛ kɛrɛnkɛrɛnnenya la:

• Spastic diplegic cerebral palsy : O bɛ tali kɛ denmisɛnw na minnu farikolo gɛlɛyara, o bɛ senw de minɛ kosɛbɛ.
• Kunsɛmɛnasumaya jugumanba min bɛ wele ko spastique quadriplegic cerebral palsy : O bɛ tali kɛ denmisɛnw na minnu farikolo gɛlɛyara kosɛbɛ min bɛ u sen naani bɛɛ minɛ.

O bɛ ɲɛ, nin opereli in bɛ farikolo gɛlɛyali dɔgɔya cogo di?

Walasa k’o faamu, an ka miiri an ka hakilijagabɔ la dɔɔnin. An farikolo farikolo yɔrɔw farikolo cogoya bɛnnen bɛ kunbɛn ni farikoloɲɛnajɛ dɔ ka baara ye min bɛ kɔkolo la.

Miiri k’a filɛ, hakilijagabɔ dɔ bɛ an farikolo la i n’a fɔ telefɔni.

1. Dusukunnataw : Olu bɛ kunnafoniw ta ka bɔ farikolo yɔrɔw la ka taa kɔkolo la.

2. Motɛri nɛrɛw : Olu bɛ cikanw ci ka bɔ kɔkolo la ka segin farikolo yɔrɔw la walasa u ka "kɛrɛnkɛrɛnnenya la nin cogo in na."

A ka c’a la, an hakili bɛ o cikan bolicogo kɔlɔsi ka ɲɛ. O kɔrɔ ye ko an bɛ se k’an farikolo yɔrɔw mara i n’a fɔ an b’a fɛ cogo min na. Nka Cerebral Palsy la, hakili ka se ka o nɛrɛmuguma ninnu kunbɛn, o bɛ dɔgɔya. Min bɛ Kɛ o tuma na, o ye ko dusukunnata dɔw bɛ Kɛ ka Tɛmɛ, wa u bɛ To ka taamaʃyɛn juguw Ci farikolo la, k'a Fɔ u ye ko u ka "gɛlɛya, ka gɛlɛya."

Fɛn min bɛ kɛ SDR opereli senfɛ, o filɛ nin ye:

Operelikɛla bɛ dusukunnataw jirisunw dɔrɔn de sugandi ka u tigɛ minnu bɛ farikolo gɛlɛyali bila mɔgɔ la ani minnu bɛ baara kɛ kun tɛ. Sɛgɛsɛgɛli kɛrɛnkɛrɛnnen (EMG) bɛ kɛ walasa ka a dɔn nɛrɛmuguma minnu bɛ baara kɛ ka ɲɛ ani nɛrɛmuguma minnu bɛ taamasiɲɛ juguw ci. O bɛ a to farikolo gɛlɛya dɔrɔn de bɛ se ka dɔgɔya ka sɔrɔ a ma nɔ bila baara wɛrɛw la.

O cogo la, ni farikolo gɛlɛya bɛ lajɔ, farikolo yɔrɔ minnu bɛ a jukɔrɔ, olu bɛ se ka baara daminɛ ka ɲɛ. O bɛ den ka taamacogo ni a ka baara kɛcogo ɲɛ. A bɛ dɛmɛ fana ka kolotugudaw ni kolotugudaw ka fiɲɛw bali minnu bɛ se ka kɛ farikolo yɔrɔw gɛlɛyali kuntaalajan fɛ.

Aw bɛ aw labɛn cogo di sani opereli ka kɛ?

Ikomi SDR opereli ma bɛn denmisɛn bɛɛ ma, aw den bɛna jateminɛ kɛ dɔgɔtɔrɔ kɛrɛnkɛrɛnnenw ka kulu fɛ walasa k’a dɔn ni o bɛna nafa don u la. A ka c’a la, nin dɔgɔtɔrɔ kɛrɛnkɛrɛnnen ninnu de sen bɛ o baara in na:

Nin mɔgɔw bɛɛ bɛ den sɛgɛsɛgɛ ka fara ɲɔgɔn kan i n’a fɔ jɛkulu walasa ka latigɛ laban kɛ ni SDR opereli bɛna den nafa.

Ka fara o kan, aw bɛ se ka sɛgɛsɛgɛli caman wɛrɛw kɛ sani aw ka opereli kɛ:

• Farikoloɲɛnajɛ ni baarakɛcogo furakɛlikɛlaw bɛ jateminɛ kuncɛlen kɛ walasa ka den farikolo sekow jateminɛ ka ɲɛ. U bɛ den ka lamaga-lamagaliw ta wideyo la ani ka furakɛli wajibiyalen fɛn o fɛn boloda opereli kɔfɛ.
• MRI scan kɛli kunsɛmɛ na walasa ka a dɔn ni hakiliɲagami wɛrɛw tɛ yen.
• Ni hakiliɲagami gɛlɛya wɛrɛw bɛ aw la, aw bɛ taa denmisɛnw ka hakiliɲagami dɔgɔtɔrɔ dɔ fɛ .
• Aw bɛ ɲɔgɔn sɔrɔ ni farikoloɲɛnajɛla ye tuguni walasa ka kuma opereli faratiw kan ani kɛnɛya waati.
• Aw bɛ taa anestezikɛla dɔ fɛ walasa ka a dɔn ko farati tɛ aw den na ni anestezi ye.

Opereli bɛ kɛ cogo min na senfɛ-senfɛ

SDR opereli bɛ kɛ cogo min na a ka c’a la, o filɛ nin ye:

1. Anestezi : Fɔlɔ, anestezikɛla bɛ anestezi bɛɛ di den ma. O la, den bɛ sunɔgɔ ka ɲɛ opereli waati la, a tɛ dimi foyi sɔrɔ.

2. Tigɛli : Senfagabana baarakɛla bɛ tigɛ fitini dɔ kɛ den kɔ duguma cɛmancɛ la.

3. Nɛrɛmuguma : Nin tigɛ in sababu fɛ, kɔkolo datugulan dura bɛ da wuli, ka tɛmɛ farikolo ni kolotugudaw fɛ, ka sɔrɔ nɛrɛmuguma minnu bɛ a jukɔrɔ, olu bɛ bɔ kɛnɛ kan.

4. Nɛrɛw farali : O kɔfɛ, operelikɛla bɛ farikoloɲɛnajɛ ni dusukunnataw fara ɲɔgɔn kan. Motɛri nɛrɛmuguma bɛ lakana ka bɔ tiɲɛni fɛn o fɛn na.

5. Nɛrɛ juguw dɔnni: Sisan, ɛlektrodew bɛ nɔrɔ senfagabana ju la, ani elektrɔmiografi (EMG) bɛ kɛ.Kuranko bɛ Kɛ ni masin ye min bɛ Weele ko "stimulateur". O b’a to an bɛ se k’a dɔn tigitigi farikoloɲɛnajɛ minnu bɛ farikolo gɛlɛya, minnu bɛ taamasiɲɛ juguw ci, ani farikolojidɛsɛ minnu bɛ baara kɛ ka ɲɛ.

6. Nɛrɛmugu tigɛcogo: Ni aw ye aw janto kosɛbɛ, dusukunnataw la minnu tɛ cogoya la, olu kɛmɛsarada la, u bɛ tigɛ. Nɛrɛ minnu bɛ tigɛ ani u bɛ tigɛ hakɛ min na, o tɛ kelen ye den ni den cɛ.

7. Tigɛda datuguli : Ni nɛrɛmugu tigɛ ka ban, tigɛda bɛ segin ka siri ɲɔgɔn na layini ni layini.

8. A kɛnɛyali : Opereli kɔfɛ, den bɛ taa ni a ye dɔgɔtɔrɔso la (ICU) walima kɛnɛyaso kɛrɛnkɛrɛnnen dɔ la, wa dɔgɔtɔrɔso jɛkulu bɛ a kɔlɔsi kosɛbɛ.

A ka ca a la, o opereli bɛ sanga naani walima lɛri duuru ɲɔgɔn kɛ.

Mun bɛ kɛ opereli kɔfɛ?

Denmisɛnniw ka kan ka to dɔgɔtɔrɔso la tile duuru ɲɔgɔn opereli kɔfɛ. Lɛrɛ 24-48 fɔlɔw la, den bɛna to a ka dilan kan. Farikoloɲɛnajɛ bɛna daminɛ tile damadɔ kɔnɔ opereli kɔfɛ.

O opereli in nafa ye jumɛnw ye?

SDR opereli nɔ bɛ se ka ɲɔgɔn ta ka kɛɲɛ ni den ka cogoya ye. Ani fana, opereli ɲɛtaa bɛ bɔ farikoloɲɛnajɛ furakɛli gɛlɛn na min bɛ kɛ opereli kɔfɛ.

I n’a fɔ opereli bɛɛ, yala farati dɔw bɛ o la wa?

Ɔwɔ, i n’a fɔ opereli tɔw bɛɛ, SDR opereli bɛ farati dɔw lase mɔgɔ ma, nka gɛlɛya banbaliw man ca kosɛbɛ.

Aw den ka dɔgɔtɔrɔso jɛkulu bɛna baro kɛ o faratiw bɛɛ kan ni aw ye ka ɲɛ sani opereli ka kɛ.

Kɛnɛya waati ani farikoloɲɛnajɛ nafa

O de ye SDR opereli ɲɛtaa yɔrɔ nafamaba ye ani min nafa ka bon kosɛbɛ. Opereli ye taama in senfɛta fɔlɔ dɔrɔn de ye. Labɛnni nafa ka bon walasa ka ɲɛtaa lakikaw sɔrɔ.

Farikoloɲɛnajɛ ni baarakɛcogo furakɛli bɛ daminɛ tile damadɔ opereli kɔfɛ. Den ka kan ka taa o furakɛli ninnu na tile damadɔ dɔgɔkun kɔnɔ fo kalo saba fo kalo wɔɔrɔ opereli kɔfɛ.

• Farikoloɲɛnajɛla : Farikoloɲɛnajɛ minnu bɛ kɛ walasa ka den farikolo lamagacogo barika bonya, k’a senw kɔrɔta ani ka a lamagacogo ɲɛ. A daminɛ na, furakɛlikɛla bɛna farikoloɲɛnajɛw kɛ, wa ni den bɛ kɛnɛya, den yɛrɛ bɛna a sen don farikoloɲɛnajɛw la ni timinandiya ye.
• Baarakɛla : A bɛ den dɛmɛ ka don o don baara kɛ (misali la, finidoncogo, tulonkɛ) nɔgɔya la ani a yɛrɛma.

Nin wale ninnu kuntilenna jɔnjɔnw ye :

• Dɔ farala fanga kan.
• Ka balansi ni jɔcogo ɲuman yiriwa ni i sigilen don ani ni i jɔlen don.
• Senw labɛnni jɔli kama.
• Degeli ka lamaga-lamagaliw kɛ, i n’a fɔ ka jɔ ka bɔ sigiyɔrɔ la, ka ɲɛ.

Tuma jumɛn na aw ka kan ka kuma dɔgɔtɔrɔ fɛ?

Ni aw ye gɛlɛya taamasiɲɛ dɔw ye den nana kɔfɛ ka bɔ dɔgɔtɔrɔso la, aw bɛ dɔgɔtɔrɔ wele joona.

• Ni opereli yɔrɔ bilennen don, ni a fununna, walima ni kuru bɛ ​​bɔ (banakisɛ taamasiɲɛw).
• Ni fariganba bɛ den na.
• Ni aw tɛ se ka aw ka sugunɛ walima aw ka banakɔtaa kunbɛn.

Ni aw ye bana taamasiɲɛw ye minnu tɛ deli ka kɛ i n’a fɔ ninnu, aw bɛ dɔgɔtɔrɔ ka ladilikan ɲini joona.