Yala i denmisɛnnin farikolo ka gɛlɛn, a ka gɛlɛn cogo kabakoma na wa? Yala a bɛ se ka kɛ Spastic Cerebral Palsy ye wa? An ka kuma nin kan!

Yala aw delila k’a kɔlɔsi ko aw den fari bɛ gɛlɛya dɔɔni, walima ko a farikolo yɔrɔw bɛ gɛlɛya cogo kabakoma na wa? Yala i delila k’a kɔlɔsi ko n’a ye taama daminɛ, a senw bɛ biri kɔnɔna na ani a bɛ taama i n’a fɔ sizo wa? Walima a bɛ iko a bɛ denmisɛn tɔw kɔfɛ dɔɔnin a bonyatɔ wa? Olu bɛ se ka kɛ bana dɔ taamasiɲɛw ye min bɛ wele ko Spastic Cerebral Palsy. Aw kana aw hakili ɲagami, an bɛna kuma nin ko in kan ka ɲɛ.

Spastic Cerebral Palsy ye mun ye?

N’an y’a fɔ cogo nɔgɔman na, Cerebral Palsy ye hakiliɲagami banaw kulu ye minnu bɛ nɔ bila hakili ni farikolo yɔrɔw la. O b’a to a ka gɛlɛn ka farikolo lamagacogo ni a jɔcogo kunbɛn. Spastic Cerebral Palsy ye kunsɛmɛnasumaya suguya ye min ka teli ka kɛ. O cogo la, den fasaw bɛ gɛlɛya (an bɛ o de wele ko ``Spasticité'') wa u tɛ se ka wuli ka bɔ a nɔ na. Tuma dɔw la, ni o gɛlɛya in ka jugu, a bɛ se ka dimi bila mɔgɔ la. Ani fana, den bɛ se ka barika sɔrɔ yɔrɔnin kelen, a tɛ se ka a yɛrɛ minɛ, walima a farikolo bɛ se ka kirin.

Miiri k’a filɛ, ni i den y’a bolo kɔrɔta ka tulonkɛfɛn dɔ minɛ, a bolo bɛ girin ani a tɛ se k’a minɛ ka ɲɛ. Walima n’a bɛ taama, a b’a ɲini ka taama a senkɔniw kan sanni a k’a senw to duguma. Tuma dɔw la, ni a barika banna ka fɛn dɔ minɛ i n’a fɔ bololanɛgɛ, a bɛ se ka dimi. Nin ɲɔgɔnna fɛnw bɛ se ka ye nin cogo in na.

Spastic Cerebral Palsy suguya jɔnjɔnw ye jumɛnw ye?

Sɔgɔsɔgɔninjɛ suguya saba bɛ yen minnu bɛ wele ko Spastic Cerebral Palsy. An k’a lajɛ u ye min ye.

Diplegie/diparese (banakisɛfagalan sɔgɔsɔgɔninjɛ) min bɛ wele ko spastique

O bɛ den senw de minɛ kosɛbɛ . Kɔnɔw ni senw fasaw bɛ gɛlɛya, o bɛ taama gɛlɛya. N’a sɔrɔ aw ye denmisɛn dɔw ye u bɛ taama ni u senw samalen don kɔnɔna na ani u gɛnɛgɛnɛw bɛ maga ɲɔgɔn na (i n’a fɔ sizo). O de bɛ Kɛ nin ko in na. An b’o fana wele ko ‘taama min bɛ kɛ ni sizo ye’ .

Hemiplegie spastice/hemiparesis (banakisɛfagalan min bɛ wele ko spastique).

O cogo la, a taamasiɲɛw bɛ den farikolo fan kelen dɔrɔn de minɛ . O kɔrɔ ye ko kinin fɛ walima numan fɛ. Bolo, sen, walima bolokɔni ni sen fila bɛɛ bɛ se ka kɛ o fan fɛ.

Sɔgɔsɔgɔninjɛ min bɛ wele ko spastique quadriplegie/quadriparesis

Nin ye bana in jugumanba ye. A taamasiɲɛw bɛ se ka bolokɔni fila bɛɛ, sen fila bɛɛ ani ɲɛda minɛ . Den dɔw fana bɛ se ka kalanbaliya sɔrɔ (hakililajɛ latɛmɛni) ani kirinni.

Spastic Cerebral Palsy taamasiɲɛw ye jumɛnw ye?

O bɛ ɲɛ, sisan an k’a lajɛ denmisɛn bɛ se ka taamasiɲɛ minnu jira nin ko in na.

• Farikolo sirilenw
• Farikolo gɛlɛnw, a bɛ dɔgɔya ka se ka fɛnw sɛgɛsɛgɛ
• Farikolodimi
• Farikolo lamagacogo walima a sɔgɔsɔgɔcogo min tɛ a yɛrɛ sago ye

Nin taamasiɲɛ ninnu bɛ kɛ sababu ye ka farikolo yɔrɔ minnu bananen don, olu bɛ lamaga kosɛbɛ ani u tɛ nɔgɔya. Nin taamasiɲɛ ninnu bɛ se ka nɔgɔya denmisɛn dɔw la, nka a bɛ se ka juguya ka tɛmɛ dɔw kan.

Spastic Cerebral Palsy taamasiɲɛ fɔlɔw ye jumɛnw ye?

Tuma dɔw la, taamasiɲɛ dɔw bɛ yen minnu bɛ se ka dɔn u denmisɛnman. Aw ka dɔgɔtɔrɔ bɛna a janto o kow la kɛrɛnkɛrɛnnenya la ni aw bɛ den sɛgɛsɛgɛ.

• Ton bɛ caya farikolo yɔrɔw la ( o bɛ se ka ye dɔgɔtɔrɔ ka sɛgɛsɛgɛli senfɛ) .
• Gɛlɛya bɛ jolidaw janya dafalen na
• Yiriwali taamasiyɛnw dafali kɔfɛ (misali la, ka wuluwulu, ka taama, ka fɛn dɔ minɛ) .
• Gɛlɛya bɛ sɔrɔ jɛkafɔ la
• Taama gɛlɛya walima taamacogo min tɛ deli ka kɛ (misali la, ka aw gɛnɛgɛnɛw gosi ɲɔgɔn na ni aw bɛ taama) .
• Taama senkɔniw dɔrɔn de kan

Mun na sɔgɔsɔgɔninjɛ min bɛ wele ko Spastic Cerebral Palsy?

O bana in bɛ sɔrɔ tiɲɛ na ni hakili siraw tiɲɛni ye minnu bɛ farikolo ni lamaga-lamagali ɲɛminɛ. O tiɲɛni bɛ se ka sɔrɔ oksizɛni dɛsɛ fɛ kunsɛmɛ na, joginni fɛ kunsɛmɛ na, walima , a man teli kosɛbɛ, jamu caman cili (ADN caman cili).

Ko damadɔ bɛ yen, kunsɛmɛ tiɲɛni walima oksizɛni dɛsɛ bɛ se ka kɛ kɔnɔmaya waati, jiginni waati, walima jiginni kɔfɛ dɔɔni:

• Joli taabolo dɔgɔyali ka taa kunsɛmɛ na (misali la, bana min bɛ wele ko ``ischemic stroke'') .
• Joli bɔli kunsɛmɛ na (misali la, bana min bɛ wele ko joli-sira-funu) .
• Sugunɛ tiɲɛni ka a sababu kɛ banakisɛ dɔ ye
• Jogin min bɛ kɛ ni hakiliɲagami ye (TBI) .

Ka fara o kan, den ka teli ka bana sɔrɔ dɔɔni ni:

• Bange min bɛ kɛ ka kɔn a waati ɲɛ
• Bange girinya dɔgɔyali
• Jaŋɛɲɛ jugumanba min tɛ furakɛ ka ɲɛ
• Banakisɛ min bɛ ba, den walima denso minɛ kɔnɔmaya waati
• Den caman sɔrɔli kɔnɔbara la, i n’a fɔ filaninw walima den saba (Multiples) .
• Gɛlɛya minnu bɛ sɔrɔ kɔnɔmaya waati (misali la, bana jugumanw i n’a fɔ denso tiɲɛni walima denso kari) .
• Ni aw bɛ furakisɛ baga dɔ ta min bɛ se ka kunsɛmɛ tiɲɛ (misali la, ni aw bɛ mɛkisikalan kɛ kɔgɔjilafɛnw na waati jan kɔnɔ) .

Gɛlɛya wɛrɛ jumɛnw bɛ se ka sɔrɔ ka a sababu kɛ Spastic Cerebral Palsy ye?

Nin bana in tɛ den fasaw dɔrɔn de minɛ. Gɛlɛya wɛrɛw bɛ se ka sɔrɔ. Olu dɔw ye:

• Kuma ni kumaɲɔgɔnya gɛlɛya
• Gɛlɛya minnu bɛ tali kɛ kalan seko la (Hakilila tiɲɛni) .
• Kɔnɔboli
• Yeli bɔnɛni
• Lamɛnni dɛsɛ

Spastic Cerebral Palsy bɛ sɔrɔ cogo di?

A ka ca a la, nin bana in bɛ sɔrɔ denmisɛnniw na walima denmisɛnniw na. Sɛgɛsɛgɛli fɔlɔ ye ka dɔgɔtɔrɔ walima lajiginnimuso ka den farikolo lajɛ.

Dɔgɔtɔrɔ bɛna aw den farikolo fanga, a lamagacogo, a farikolo lamagacogo ani a ka baarakɛɲɔgɔnya lajɛ. A bɛna aw ɲininka fana ni aw den bɛ ka yiriwa ka kɛɲɛ ni a si hakɛ ye (misali la, yala a bɛ wuluwulu walima a bɛ taama).

Sɛgɛsɛgɛli sugu jumɛnw bɛ nin bana in sinsin?

Ni farikolo sɛgɛsɛgɛli y’a jira ko kunsɛmɛnasumaya min bɛ wele ko spastic cerebral palsy, o bɛ se ka kɛ sababu ye, dɔgɔtɔrɔ bɛ se ka yamaruya di ka ja sɛgɛsɛgɛli kɛ walasa ka kunsɛmɛ tiɲɛni yɔrɔw lajɛ. U bɛ se fana ka yamaruya di sɛgɛsɛgɛliw ma walasa ka bana wɛrɛw bɔ kɛnɛ kan minnu bɛ se ka o taamasiɲɛ suguw lase mɔgɔ ma.

• MRI (Magnetic Resonance Imaging) sɛgɛsɛgɛli
• CT scan (`(CT scan - Tomografie informatique scan)`)
• Joli sɛgɛsɛgɛliw
• Jɛnkulu sɛgɛsɛgɛli

Spastic Cerebral Palsy bɛ furakɛ cogo di?

Nin bana in furakɛli kunba ye ka den ka lamagacogo ɲɛ. Hali ni a tɛ se ka kɛnɛya pewu, a taamasiɲɛw bɛ se ka kunbɛn ani ka den dɛmɛ ka ɲɛnamaya kɛ cogo ɲuman na.

Ninnu bɛ kɛ furakɛli fɛɛrɛw ye:

• Don o don farikoloɲɛnajɛ kɛli so kɔnɔ walasa farikolo gɛlɛya kana caya waati tɛmɛnen kɔfɛ
• Farikoloɲɛnajɛ furakɛli, baarakɛcogo furakɛli, ani/walima kuma furakɛli
• Aw bɛ baara kɛ ni fɛnɲɛnamafagalan kɛrɛnkɛrɛnnenw ye, ka fɛnɲɛnamafagalanw walima fɛnɲɛnamafagalanw kɛ walasa ka farikolo yɔrɔw kɔrɔta ni aw ye bolokɔniw walima senw minɛ cogo kelen na
• Baara kɛli ni dɛmɛnanw ye i n’a fɔ taamakɛlaw walima wotoroninw
• Fura minnu bɛ farikolo gɛlɛyali ni kirinni dɔgɔya (i n’a fɔ `(Baclofen)`, `(Diazepam)`, `(Clonazepam)`, `(Dantrolene)` ani `(Tizanidine)`)
• Botulini baga pikiriw (a bɛ fɔ fana ko Botox®) bɛ farikolo lafiya.
• Baclofen furakɛli min bɛ kɛ kɔkolo la, o ye fɛɛrɛ ye min bɛ kɛ ka furaw don kɔkolo la.
• Selective dorsal rhizotomy, opereli min bɛ kɛ walasa ka farikolo gɛlɛya dɔgɔya

Dɔgɔtɔrɔso jɛkulu bɛna furakɛli bolodacogo latigɛ min ka fisa aw den ma. O bɛ se ka kɛ danfara ye den ni den cɛ.

Den min bɛ ni sɔgɔsɔgɔninjɛ ye min bɛ wele ko Spastic Cerebral Palsy, o si hakɛ ye mun ye?

A ka ca a la, kunsɛmɛnasumaya min bɛ wele ko Spastic Cerebral Palsy , o tɛ nɔ bila den ka ɲɛnamaya la k’a ɲɛsin a ma. Nka, ni a taamasiɲɛw ka jugu , ni u ma furakɛ ka ɲɛ , gɛlɛya minnu bɛ sɔrɔ, olu bɛ se ka nɔ bila den ka ɲɛnamaya la tuma dɔw la. Aw ye aw hakili to a la, hali ni fura tɛ nin bana in na, ni furakɛli kɛra, den bɛ se ka ɲɛnamaya kɛ cogo ɲuman na.

Yala o bana bɛ juguya waati tɛmɛnen kɔfɛ wa? (Yala a bɛ taa ɲɛ wa?)

Spastic Cerebral Palsy tɛ bana ye min bɛ taa ɲɛ. O kɔrɔ ye ko farikolo yɔrɔ kelen minnu tun bɛ denmisɛnya la, olu fana bɛ tɔɔrɔ hali bi kɔfɛ ɲɛnamaya kɔnɔ. A tɛ nɔ bila farikolo yɔrɔ kuraw la. Nka, ni a ma furakɛ, farikolo yɔrɔ minnu bananen don, olu gɛlɛya bɛ se ka juguya waati tɛmɛnen kɔfɛ.

Furakɛli nafa ka bon kosɛbɛ barisa ni aw bɛ dɔ bɔ farikolo gɛlɛyali la, o bɛ se ka den ka baara dɛmɛ kosɛbɛ (i n’a fɔ taama, fini caman cili, ani fɛnw minɛni). A bɛ se ka dɔ bɔ dimi na fana. Den mago bɛna kɛ dɔgɔtɔrɔso jɛkulu dɔ ka dɛmɛ na a ka ɲɛnamaya bɛɛ kɔnɔ walasa ka balo ni nin bana in ye.

Tuma jumɛn na ne ka kan ka taa dɔgɔtɔrɔso la?

Ni aw ye taamasiɲɛ fɔlɔ dɔw ye minnu b’a jira ko aw den bɛ se ka kɛ ni Spastic Cerebral Palsy ye, aw bɛ taa dɔgɔtɔrɔso la joona. Aw ye aw janto kɛrɛnkɛrɛnnenya la ni aw ye fɛn dɔw ye minnu bɛ yelikɛ walima minnu bɛ to kɔfɛ aw den ka lamagacogo ni a ka yiriwali la.

Ne ka kan ka ɲininkali jumɛnw kɛ n ka dɔgɔtɔrɔ la?

Aw bɛ se ka ɲininkali caman kɛ ni aw ye aw den ka bana dɔn. Aw bɛ se ka ɲininkali dɔw kɛ aw ka dɔgɔtɔrɔ la:

• "I bɛ se ka n dɛmɛ ka n den ka bana sɛgɛsɛgɛli faamu wa?"
• "Aw bɛ furakɛli sugu jumɛn fɔ?"
• "Furakɛcogo kuntilenna ye mun ye?"
• "Yala furakɛli kɔlɔlɔ dɔw bɛ yen wa?"
• "Ne ka kan ka farikoloɲɛnajɛ walima baarakɛcogo furakɛli kɛ fo waati joli?"
• "Yala opereli bɛna ne den ka bana taamasiɲɛw ɲɛ wa?"

Fɛn minnu nafa ka bon kosɛbɛ i hakili ka to olu la (Take-Home Message) .

Sɔgɔsɔgɔninjɛ min bɛ wele ko Spastic Cerebral Palsy, o bɛ se ka kɛ bana gɛlɛn ye den n’a ka denbaya bolo barisa den kunkolo ni a fasaw tɛ kumaɲɔgɔnya kɛ ka ɲɛ. Nin taamasiɲɛ ninnu bɛ se ka nɔ bila den ka se ka yaala-yaala lafiya la ani a yɛrɛ ma.

Nka, hali n’a tɛ se ka furakɛ, hɛrɛ la, furakɛli suguya caman bɛ yen minnu bɛ se ka furakɛ. Farikoloɲɛnajɛ furakɛli, baarakɛcogo furakɛli, kuma furakɛli ani furaw bɛ se ka den ka ɲɛnamaya kɛcogo ɲɛ. Aw bɛna a ɲini ka to ka kuma aw den ka dɔgɔtɔrɔso jɛkulu fɛ. Ni ɲininkali dɔ bɛ aw walima aw somɔgɔw fɛ o ko la, aw kana siran ka dɔgɔtɔrɔ ɲininka.

` Kunsɛmɛnasumaya min bɛ wele ko Spastic Cerebral Palsy, Spastic Cerebral Palsy, Cerebral Palsy, Muscle Stiffness, Spasticity, Denmisɛnw ka hakiliɲagami, Lamaga-lamagali gɛlɛyaw, Denmisɛnw ka yiriwali