It's normal to feel overwhelmed and scared when you or a loved one has Alzheimer's disease. Questions like "What do I do now?" and "What will my life be like in the future?" may come to mind. But while this can be a challenge, there are many things we can do to live well with this condition on a daily basis. Some days are great, and some days are a little difficult. But with planning and a little bit of practice, we can make this journey easier. Let's see how.
What do you do about problems with memory?
The main symptom of this disease is a gradual loss of memory. But there are some simple ways we can help with that. It may take some experimentation to find the method that works for you.
Simply put, get into the habit of writing everything down. Keep a small notebook, or your current smartphone, with you at all times. Write down the following things in it:
- Important phone numbers (of immediate family, doctor)
- The names of the people you meet
- Good ideas that come to mind
- Appointments to see the doctor
- Your home address and the road leading home
Put up little reminders around your home. For example, write down the time you need to take your medicine and stick it near the dining table. Label your kitchen cupboards, drawers, and cabinets with words or pictures. For example, "Sugar," "Tea Leaves." This will make it easier to find. Also, tell a trusted family member or friend to call you to remind you of important things during the day, especially when it's time to take your medicine.
Imagine how annoying it would be if you suddenly couldn't remember the name of someone you see often. The best solution to that is to take pictures of people you see often, write their names underneath, and keep them in an album.
How to plan a day properly?
Planning your day will reduce unnecessary stress on your mind. Don't rush into everything.
- Prioritize the things you enjoy: Do things you enjoy doing alone, safely, such as reading books, doing small chores in the garden, or engaging in religious activities.
- Use your best time: There are certain times of the day when you are most refreshed and at your best. Usually, it's the morning. Take advantage of those times to get important work done.
- Don't panic: Take your time with your work. Don't panic even if someone makes you panic (get worried). If you find something difficult to do, take a break. Never hesitate to ask for help if needed.
What can you do to avoid despair?
Even in familiar places, it can sometimes be difficult to find your way. So be aware of these things when you go out.
- Don't go alone: When going out, especially to an unfamiliar place, take a family member or friend with you.
- Keep your address handy: Wherever you go, always keep a card in your purse or pocket with your destination address, home address, and a contact phone number.
- Ask for help: If you feel lost, ask someone nearby for help. It's okay to explain, "I'm having a little trouble with my memory."
How can you make conversation with others easier?
Communicating can be a bit difficult, but with a few simple tips, it can be made much easier. These tips are important for both the patient and those who are talking to the patient.
Advice to you (the patient):
- Take your time: Don't rush when speaking. Choose your words carefully.
- Ask the person to repeat: If you don't understand what the person you're talking to is saying, ask them to repeat it. Or ask them to speak a little slower.
- Choose a quiet place: It's difficult to talk in places with external noises, such as the sound of the TV or radio. Talk in a place that is as quiet as possible.
Advice for those who care for you:
Patience and understanding are very important when communicating with someone with Alzheimer's. Here are some practical tips for that.
| Tip | Explanation |
|---|---|
| Get attention | Before you start talking, step forward, call her by name, and get her attention. Look her in the eye and talk. |
| Use simple words. | Use short, simple, everyday words. Ask one question at a time. Give one piece of advice. |
| Speak positively. | Instead of saying, "Don't do that," say, "Shall we do this?" Speak in an encouraging way. |
| Treat with respect. | Don't talk about him in front of others as if he doesn't understand. Always treat him with respect. |
| Be patient. | Even if he has difficulty expressing an idea, listen patiently. Don't interrupt, criticize, or argue. |
| Things more than words | Your touch, your gentle smile, and just being near you will make him feel so comforted and loved. |
What do you think about driving?
This is a very sensitive topic, but safety must come first.
Be sure to talk to your doctor about driving at every clinic visit. Once the disease has reached a certain stage, driving can be dangerous for you and others. Your doctor will give you the best advice about this.
Until that happens, try to drive only on roads you are familiar with. If necessary, you can also discuss the possibility of having your driving skills tested by the Department of Motor Vehicles.
Your travels don't have to stop because you can't drive. You can ask family and friends to help you with your travels. You can also install services like Uber and PickMe on your phone and ask someone to teach you how to use them.
How can I ensure my safety at home?
It is very important to make the home environment safe. It is much easier to do these things early in the disease and make them a habit.
- Get help: Find ways to get help with things like shopping, housework, and cooking.
- A house key: Give a trusted neighbor a spare key to your house.
- Important numbers: Write down the numbers of people you need to call in an emergency (family, doctor, ambulance service) in large letters and keep them next to your phone.
- Daily wellness check-ups: Call, visit, or ask a family member or friend to check on you daily.
- Money management: Set up direct deposit for things like your pension. If you are in dire straits, choose someone you trust to handle your finances, meet with a lawyer, and prepare the necessary legal documents (e.g., Power of Attorney). It is very important to do this as soon as possible .
It's important to understand that one day you may find it difficult to live on your own. But in the early stages of the disease, with the support of family, friends, and community services, many people can function well. Simple changes and safety measures like these can make a big difference to your life.
Take-Home Message
- Although Alzheimer's disease is a challenge, daily life can be made easier with the right planning and strategies.
- Use a notebook or phone as a memory aid, and write everything down.
- Plan to spend your day relaxing, doing things you enjoy, without worrying.
- Make safety a priority. Avoid going to unfamiliar places alone and always talk to your doctor about driving.
- Never hesitate to ask for help when you need it. Family, friends, and doctors are there to support you.
- Plan legal and financial arrangements (such as Power of Attorney) with a trusted person early in the disease.
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