Yadda ake rayuwa da ciwon AS (Ankylosing Spondylitis)

Yana da wuya a faɗi a sarari yadda ake jin cewa ana gano kana da wata cuta mai raɗaɗi da barazana ga rayuwa kamar Ankylosing Spondylitis (AS) a mafi kyawun lokacin rayuwa, lokacin da kake ƙarami kuma cike da mafarkai, bege, da tsare-tsare. A gefe guda, kana ƙoƙarin fara rayuwarka ta baya, a gefe guda kuma, dole ne ka fuskanci irin wannan ƙalubale. Wannan babban nauyi ne. Duk da haka, akwai waɗanda a cikinmu suka sami hanyoyin rayuwa cikin nasara tare da wannan yanayin kuma suka daidaita da sabuwar rayuwarsu. A yau, muna magana ne game da irin waɗannan mutane biyu.

'Na tsorata sosai' - Labarin Ivan

Ivan ya sha fama da matsalolin tafiya tun yana yaro. Wani lokaci sai ya yi amfani da sandunan motsa jiki da kuma shan magungunan rage radadi don ya ci gaba da yin wannan aikin. Ya kuma fara yin bimbini tun yana ƙarami don ya jure wannan ciwon.

A lokacin da yake ɗan shekara 21, yayin da yake karatun jarrabawar jinya, Ivan ya fahimci cewa alamun da ya daɗe yana fuskanta sun yi kama da wata cuta da aka bayyana a cikin littafin karatu na jarrabawar. Da wannan zato, sai ya je ganin likitan rheumatologist, likita wanda ya ƙware a kan matsalolin gaɓoɓi da ƙashin baya. Bayan gwaje-gwaje, an gano yana da Ankylosing Spondylitis (AS).

Babban tsoro da ya zo masa a rai da wannan labarin shine game da sana'ar da ya zaɓa.

"Lokacin da na sami aikin jinya da ke aiki a Sashen Kula da Gaggawa (ETU), na ji tsoro ƙwarai," in ji Ivan. "Na ji tsoron cewa idan na sami matsala, ba zan iya aiki ba. Na fahimci cewa idan ina son hana mafarkin zama nakasassu a cikin shekaruna na 20 daga gaskiya, dole ne in kula da lafiyata ta kowace hanya."

Don haka, ya fara ganin likitan ilimin halayyar ɗan adam wanda ya koya masa hanyoyin magance ciwo ba tare da magani ba. Ya kuma gwada wani magani mai suna Acceptance and Commitment Therapy (ACT) . A taƙaice dai, wannan maganin yana taimaka mana mu daina faɗa da tunaninmu da ji, maimakon haka mu yarda da su.

"Na halarci waɗannan zaman jiyya kaɗan ne kawai. Amma ya taimaka mini na shawo kan ciwon kwakwalwa da baƙin ciki sama da shekaru goma," in ji Ivan. "Na zaɓi amincewa da wannan yanayin. Ina godiya da damar da na samu na shawo kan wannan ƙalubalen da kuma rayuwa mai daɗi."

Littafin Viktor Frankl mai suna 'Man's Search for Ma'ana' shi ma ya zama babban abin ƙarfafa masa gwiwa wajen haɓaka wannan tunanin. Littafin ya yi magana game da lokacin da ya yi fursuna a sansanin tsare mutane na Nazi. Ya bayyana yadda ya rayu da mutunci a wannan mawuyacin lokaci kuma ya sami ma'ana a rayuwa.

Yanzu haka dai yanayin Ivan ya warke tsawon watanni 14.Cin abinci mai kyau, magunguna da aka rubuta masa, da kuma motsa jiki (yana yin yoga, yana ɗaga nauyi, kuma yana yin aƙalla mintuna 75 na motsa jiki a mako) duk sun taimaka masa sosai wajen murmurewa.

"Ina matukar farin ciki da samun damar yin aiki yadda ya kamata da kuma jin nasara a matsayin ma'aikaciyar jinya. Haka kuma, ina godiya ga AS, ta wata hanya. Domin ya tilasta min in fifita lafiyar kwakwalwata da ta jikina a irin wannan ƙaramar shekaruna."

"Har yanzu ina fama da ciwo da tauri, amma ina matukar farin ciki da rayuwata a yau, ba tare da wata mummunar cuta da ta addabe ni ba tsawon shekaru 10," in ji shi. Yana kuma shirin cika ɗaya daga cikin manyan burinsa: ya ɗauki hutun shekara ɗaya ko biyu daga aikin jinya da kuma keken hawa a faɗin nahiyoyi.

'Na yi tunanin laifina ne kawai' - Labarin Tristan

A shekarar 2013, Tristan ɗalibi ne mai hazaka wanda ke neman digiri a fannin sinadarai. Amma a lokacin bazara na wannan shekarar, ya fara jin gajiya ba zato ba tsammani. Bai iya tashi da safe ba, kuma ya fara kewar aikin makaranta.

"Na yi tunanin ba ni da tarbiyya. Na yi tunanin laifina ne," in ji shi.

Daga baya ne Tristan ya gano cewa yana da wata cuta da ake kira non-radiographic axial spondyloarthritis (nr-AxSpA), wani nau'in AS. A taƙaice dai, duka AS da nr-AxSpA kumburi ne na kashin baya. A cikin nr-AxSpA, lalacewar kashin baya ba a bayyane take a kan X-rays ba saboda matakan farko na cutar. Yayin da cutar ke ci gaba, ƙasusuwan baya a cikin kashin baya na iya haɗuwa. Wani lokaci, wannan na iya shafar wasu gabobi, kamar idanu.

"Matsalar ita ce, idan kumburin da ke cikin jikina ya ƙaru, sai ya ji kamar aikin kwakwalwata yana raguwa. Yana kama da 'hazo a kwakwalwa,'" in ji shi.

"Lokacin da nake karatun sinadarai, ban iya yin aikin dakin gwaje-gwaje ba. Yana buƙatar tsayawa na dogon lokaci da kuma sarrafa gilashin a hankali, amma na ga yana da wahala."

A ƙarshe, dole ne ya yanke shawara mai wahala - ya daina makaranta.

"Ni mutum ne mai sha'awar aiki a fannin sinadarai. Rasa duk wannan abu ne mai matuƙar wahala," in ji shi.

Amma Tristan bai tsaya a nan ba. Ya yanke shawarar buɗe wata ƙofa. Duk da cewa bai taɓa zama ɗan wasa ba, motsa jiki ya zama babban ɓangare na rayuwarsa. Ya fara miƙewa da baya da ɗaga nauyi mai matsakaici. Amma ainihin tauraruwar tsarin motsa jikinsa ita ce na'urar da ake kira farantin girgiza . Wannan na'urar tana sa tsokoki su yi ƙarfi da hutawa sau da yawa a cikin daƙiƙa. Ana cewa tana ƙara ƙarfi, sassauci, da rage zafi. Tristan yana amfani da ita na tsawon mintuna 10 kowace safiya.

"Waɗannan rawar jiki suna rage taurin jikina. Wani lokaci ina fama da matsaloli da gaɓoɓina, amma bayan yin haka, sai na ji sauƙi nan take."

Bayan ya ɗan warke, lokaci ya yi da zai nemi aikin da ya dace da sabuwar rayuwarsa. Tristan ya koyar da kansa shirye-shiryen kwamfuta. A yau, yana aiki a matsayin mai shirye-shiryen kwamfuta.

Yanzu haka Tristan yana aiki a ƙarƙashin wani shugaba wanda ya fahimci yanayinsa da ƙalubalen da ke tattare da shi.

"Har yanzu ina da wahalar aiki daga ƙarfe 9 na safe zuwa 5 na yamma kamar kowa. Aikin safe shine mafi wahala. Amma ina da sa'a, domin shugabana ya fahimta kuma yana taimaka mini."

"Yana da wuya a shawo kan rashin samun rayuwar da kake so," in ji shi. "A da na kasance mai yawan nasara, halin 'nau'in A'. Dole ne in yarda cewa ba ni da sauri kamar yadda nake a da, kuma ba sai na yi abubuwa masu tsauri ba don in yi farin ciki."

"Yanzu zan iya komawa gida in ji daɗin maraice mai natsuwa, kuma in ji daɗin ɗan gajeren tafiya a wurin shakatawa. Ya kasance da matuƙar wahala in kai ga wannan matsayi, amma yadda nake kallon rayuwa ya canza gaba ɗaya."

Duk waɗannan labaran suna nuna mana irin ƙalubalen da ke tattare da rayuwa da cututtuka masu tsanani kamar AS. Duk da haka, tare da shawarwarin likita da suka dace, tallafin tunani, canje-canjen salon rayuwa, da kuma kyakkyawan hali,Suna tabbatar mana cewa za mu iya shawo kan wannan ƙalubalen tare. Idan kana fama da irin wannan yanayi, kada ka yi tunanin kai kaɗai ne. Yi magana da likitanka ka nemi taimakon da kake buƙata.