Ua puka mai nā ʻōpū o kāu pēpē? E kamaʻilio kākou e pili ana i kēia maʻi i kapa ʻia ʻo Omphalocele?

He mea maʻamau no kekahi makuahine a makua paha ke hopohopo inā ʻike lākou i kekahi o nā ʻōpū o kā lākou keiki e puka mai ana ma o ka piko. Ma ke ʻano lapaʻau, kapa mākou i kēia maʻi ʻo Omphalocele. ʻOiai he mea weliweli iki paha kēia, ʻo ka loaʻa ʻana o ka ʻike kūpono e pili ana i ia mea e kōkua iā ʻoe e hoʻoponopono iā ia. No laila, e kamaʻilio kākou e pili ana i ia mea me nā kikoʻī.

He aha ka Omphalocele? E hoʻomaopopo maʻalahi kākou.

I ka ʻōlelo maʻalahi, he ʻano ʻē ka omphalocele i loaʻa i ka wā hānau . He kūlana ia e puka mai ai nā ʻāpana i loko o ka ʻōpū o ke pēpē, e like me nā ʻōpū, ma o ka pihi ʻōpū. Eia nō naʻe, ua uhi ʻia kēia mau ʻāpana e puka mai ana e kahi membrane lahilahi a moakaka . Hana ʻia kēia membrane i ka uhi o ka ʻōpū i kapa ʻia ʻo ka peritoneum.

He mea kēia e hana ʻia ana i ka wā e noho ana ke pēpē i loko o ka ʻōpū, ʻo ia hoʻi, ma mua o ka hānau ʻana. E nānā kākou pehea e hana ai kēia:

• Ma waena o 6 a me 10 mau pule o ka hāpai ʻana: I loko o kēia manawa, i ka ulu ʻana o nā ʻōpū o ke pēpē, hiki iā lākou ke paʻi iki i ke kaula umbilical. He mea maʻamau kēia a ʻaʻohe mea e hopohopo ai.
• I ka hala ʻana o 11 pule: ʻO ka maʻamau, ʻo nā ʻōpū i puka mai e like me kēia e hoʻi hou i loko o ka ʻōpū. Akā inā ʻaʻole ia e hana, loaʻa kahi maʻi omphalocele.

ʻO ka mea nui, ʻoi aku ma mua o ʻelua hapakolu o nā pēpē me ka omphalocele i loaʻa iā ia me nā kūlana ʻē aʻe. Eia kekahi laʻana:

* Nā pilikia o ka iwi kuamoʻo

* Nā pilikia o ka ʻōnaehana hoʻoheheʻe

* Nā pilikia o ka puʻuwai

* Nā pilikia o ka ʻōnaehana mimi

* Nā pilikia o nā lālā

Aia kekahi inoa ʻē aʻe no kēia, ʻo ia hoʻi ʻo `(exomphalos)`.

He aha nā ʻano nui o ka omphalocele?

Hiki i kēia kūlana ke lilo i mea liʻiliʻi a nui hoʻi. No laila, aia ʻelua ʻano:

• ʻOmphalocele liʻiliʻi: Maanei, puka mai kahi ʻāpana liʻiliʻi o ka ʻōpū mai ka ʻōpū. ʻO ka nui o kēia puka ʻana he emi ma mua o 5 kenimika.
• ʻO ka Omphalocele Nui: Maanei, ua puka mai nā ʻōpū he nui (e like me nā ʻōpū, ke akepaʻa, a me ka spleen) mai ka ʻōpū. ʻOi aku kēia ma mua o 5 kenimika. Ua kapa pū nā kauka i kēia he "omphaloceles nunui".

Pehea ka maʻamau o kēia ʻano i kapa ʻia ʻo Omphalocele?

Wahi a nā helu helu mai nā ʻāina e like me ʻAmelika, ma kahi o hoʻokahi i loko o 4,200 mau pēpē e loaʻa paha kēia maʻi i kapa ʻia ʻo Omphalocele. ʻIke pū mākou i nā maʻi like ma Sri Lanka.

No ke aha i loaʻa ai i nā pēpē ka omphalocele?

E like me kā mākou i kūkākūkā ai ma mua, he mea maʻamau no ke kaula umbilical ke paʻi i loko i ka wā e ulu ai nā ʻōpū mai ka pule ʻeono a hiki i ka pule ʻumi o ka hāpai ʻana. I ka pule ʻumikūmākahi, pono lākou e hoʻi i loko o ka ʻōpū. Ke hana pono ʻole kēia, loaʻa kahi omphalocele.

ʻO kaʻoiaʻiʻo, ʻaʻole hiki i nā loea ke ʻōlelo maopopo i ke kumu e loaʻa ai kēia i kekahi mau pēpē a ʻaʻole kekahi. A ʻaʻole lākou i ʻike inā he mea hiki iā ʻoe ke hana e pale aku ai i ka wā hāpai. No laila, mai hopohopo no ia mea.

He aha nā kumu pilikia no ka hoʻomohala ʻana o ka omphalocele?

Ke noiʻi nei nā kānaka noiʻi i kekahi o nā kumu pilikia e hiki ke kōkua i kēia. ʻO kekahi o nā kumu hiki ke komo pū me:

• Ua ʻoi aku ka nui o nā makahiki o Māmā ma mua o 35 mau makahiki.
• Ka inu ʻana i ka waiʻona i ka wā hāpai.
• Ka ʻike ʻia ʻana i kekahi mau kemika a i ʻole nā ​​​​mea ʻawahia: No ka laʻana, nā mea e like me nā pesticides a i ʻole nā ​​​​mea hoʻoheheʻe.
• ʻIke Hoʻoilina: I kekahi manawa hiki ke holo kēia ʻano ma nā ʻohana. Hiki ke pili pū me nā ʻano chromosomal. Nā laʻana: `(Trisomy 13)`, `(Trisomy 18)`, a me `(Trisomy 21)`, ʻo ia hoʻi `(Down syndrome)`.
• Nā kūlana olakino makuahine: Nā kūlana e like me ka momona o ka makuahine, ka maʻi diabetes mellitus, a me ke koko kiʻekiʻe.
• Nā hemahema meaʻai a ka makuahine: Ka emi ʻana o nā pono meaʻai a ka makuahine a i ʻole kekahi mau huaora i ka wā hāpai.
• Puhi paka.
• Ke lawe nei i kekahi mau lāʻau lapaʻau: ʻO kekahi mau lāʻau lapaʻau i lawe ʻia i ka wā hāpai, no ka laʻana, nā antidepressants i kapa ʻia ʻo SSRIs a i ʻole kekahi mau lāʻau lapaʻau hānau.

Eia kekahi o nā kumu pilikia i ʻike ʻia. Eia nō naʻe, he mea nui e hoʻomanaʻo ʻaʻole nā ​​​​mea āpau i loaʻa i kēia mau kumu e loaʻa i kēia maʻi.

He aha nā pilikia e hiki ke loaʻa mai ka omphalocele?

ʻO nā pēpē i hānau ʻia me ka omphalocele e loaʻa pinepine nā pilikia ʻē aʻe, e like me:

• ʻO ka maʻi Beckwith-Wiedemann: Hōʻike ʻia kēia e kahi alelo nui, nā pae insulin kiʻekiʻe, a me ke kō koko haʻahaʻa.
• Nā ʻano ʻē o ka chromosome.
• Nā ʻano maʻi puʻuwai.
• Lohi ke kaʻina hana hoʻoheheʻe.
• ʻAʻole ulu pono nā māmā.

ʻO ka maʻamau, ʻike nā kauka i kēia maʻi i ka wā hāpai. A laila e kamaʻilio lākou me ʻoe e pili ana i ia mea a wehewehe i ke ʻano o ka lāʻau e pono ai ma hope o ka hānau ʻana o ka pēpē. I ka wā e hānau ai ka pēpē, e hana ka hui lapaʻau i nā hana e pono ai e pale i ka pēpē a hoʻomaka i ka lāʻau.

Pehea e ʻike ʻia ai kēia ʻano maʻi ʻo Omphalocele?

Hoʻomaopopo pinepine nā kauka i kēia i ka wā o ka ultrasound scan i ka lua a me ke kolu o ka trimesters o ka hāpai ʻana. Hōʻike ia i nā ʻōpū o ke pēpē e ulu ana ma waho o ka paia o ka ʻōpū. Ma hope o ka ʻike ʻia ʻana o kēia, e kauoha paha kāu kauka i kahi fetal echocardiogram (kahi ultrasound scan o ka puʻuwai o ke pēpē) e nānā i kekahi mau mea ʻē.

I kekahi manawa, ʻaʻole paha e ʻike ʻia i ka wā hāpai. Inā hana ʻia kēlā, e ʻike koke ʻia ma hope o ka hānau ʻana o ka pēpē. A laila hiki i ka hui lapaʻau ke hana koke i nā hana e pono ai e pale i ke olakino o ka pēpē.

He aha nā hoʻokolohua e pono ai iaʻu a me kaʻu pēpē e hana?

Inā ʻike kāu kauka i kāu pēpē i hānau ʻole ʻia me kēia maʻi, pono paha ʻoe e loaʻa i kekahi mau hoʻokolohua hou aʻe i ke koena o kou hāpai ʻana. Eia kekahi laʻana:

• Amniocentesis: Pili kēia i ka lawe ʻana i kahi hāpana o ka wai amniotic mai loko mai o kou ʻōpū a hoʻāʻo iā ia no nā pilikia chromosomal.
• Nā hoʻāʻo koko: E nānā ʻia kou koko no nā pae kiʻekiʻe o kahi protein i kapa ʻia ʻo alpha-fetoprotein. Hana ʻia kēia protein i loko o ke akepaʻa o ka pēpē a laila hele i loko o kou koko. Inā kiʻekiʻe nā pae, ʻo ia hoʻi he pono kāu pēpē i ka hoʻāʻo hou ʻana.
• MRI (Magnetic Resonance Imaging) Scan: Hiki ke hana ʻia kēia hoʻāʻo e nānā i ka puʻuwai o ka pēpē, nā māmā, a me nā ʻōpū ʻē aʻe.
• ʻO ke nānā ʻana o ka ultrasound: Hana ʻia nā ʻano ultrasound i nā manawa a pau e nānā i ke ʻano o ka ulu ʻana o ka pēpē.

Ma hope o ka hānau ʻana o kāu pēpē, e nānā pono ke kauka i ka omphalocele a kauoha i nā hoʻokolohua hou aʻe inā pono.

Pehea e mālama ʻia ai ka omphalocele?

ʻO ke ʻano o ka mālama ʻana i kēia mea e pili ana i kekahi mau kumu, ʻo ia hoʻi:

• ʻO ka makahiki hāpai ka pule o ka hāpai ʻana i ka wā i hānau ʻia ai ke pēpē.
• Ke olakino holoʻokoʻa o ka pēpē.
• Ke koʻikoʻi o ke kūlana.
• Ka nui o ka omphalocele.
• ʻOmphalocele: Inā ʻaʻole i haki ka membrane e hoʻopuni ana i ka umbilicus.

Pehea e mālama ai i kahi omphalocele liʻiliʻi

No kahi omphalocele liʻiliʻi, e hana nā kauka ʻokiʻoki ma hope koke o ka hānau ʻana o ka pēpē. ʻO kēia ʻokiʻoki e pili ana i ke kau ʻana i nā ʻōpū e puka mai ana i loko o ka ʻōpū o ka pēpē a me ka pani ʻana i ka lua ma ka paia o ka ʻōpū. Hiki i kēia ke kōkua i ka pale ʻana i nā maʻi a me ka hōʻino ʻana o nā ʻiʻo.

Pehea e mālama ai i kahi omphalocele nui

Inā he omphalocele nui ko kāu pēpē, kahi i puka mai ai nā ʻōpū he nui, hana pinepine nā kauka ʻoki i ke ʻoki ʻana ma nā pae. Hoʻihoʻi mālie lākou i nā ʻōpū i loko o ka ʻōpū o ke pēpē i loko o kekahi mau lā a i ʻole nā ​​pule. I loko o kēia manawa, uhi ʻia nā ʻōpū me kahi pepa sterile e pale aku iā lākou mai ka maʻi.

No ke aha e hana ʻia ai kēia ma nā pae he nui? ʻO kēia ke ʻano palekana loa no kahi omphalocele nui. No ka mea, ʻaʻole lawa ka nui o ka ʻōpū o ka pēpē e paʻa i nā ʻōpū āpau i ka manawa hoʻokahi, a ʻaʻole i ulu pono. Inā hoʻokomo ʻia nā ʻōpū āpau i ka manawa hoʻokahi, ʻaʻole lākou e loaʻa i ke kahe koko e pono ai lākou. Ma hope o kekahi manawa, e nui aʻe ka ʻōpū o ka pēpē. I ka hapanui o nā hihia, hana ʻia kahi hana ʻelua i loko o ʻelua pule e hoʻomaʻamaʻa iā ia.

I kekahi manawa pono paha ke kauka lapaʻau e huki i kekahi o ka ʻili mai ka ʻōpū e pani i ka lua. I nā hihia ʻē aʻe, hiki ke hoʻohana ʻia kahi ʻili e pani ai i ka lua. ʻO ia hoʻi, lawe ʻia ka ʻili mai kekahi ʻāpana o ke kino a hoʻoili ʻia i kekahi.

ʻO nā pēpē me ka omphalocele, kahi i ulu pono ʻole ai ka lua ʻōpū, e paʻakikī paha ka hanu ʻana . Pono paha lākou e hoʻopili ʻia i kahi ventilator e kōkua iā lākou e hanu a hiki i ka wā e hiki ai iā lākou ke hanu iā lākou iho.

E ʻai anei kaʻu pēpē ma hope o ke ʻoki kino?

I ka manawa e mākaukau ai kāu pēpē e hoʻi i ka home, ʻai maikaʻi lākou. Eia nō naʻe, inā loaʻa iā lākou nā pilikia ʻē aʻe, e like me nā pilikia o ka puʻuwai a i ʻole ka māmā, pono paha lākou i kahi ʻōmole hānai. Eia nō naʻe, ʻaʻole pono ka hapa nui o nā pēpē i kēia kōkua.

Aia kekahi mau kapu i nā hana ma hope o ke ʻoki kino?

Hiki i kāu pēpē ke hana i nā hana kūpono i kona mau makahiki a me kona pae ulu . E aʻo aku nā kauka iā ʻoe e pili ana i kēia.

Hiki ke pale ʻia ka omphalocele?

Ke ʻimi nei nā kānaka noiʻi i nā ala e pale aku ai i kēia maʻi mai ka hanana ʻana. ʻAʻole maopopo inā he mea kikoʻī hiki iā ʻoe ke hana e pale aku ai i ka wā hāpai.

Akā ma keʻano laulā, hiki iā ʻoe ke hoʻāʻo i kēia mau mea e hōʻemi i ka pilikia o nā pilikia i kou wā hāpai a no kāu pēpē i hānau ʻole ʻia:

• E pale i ka inu ʻana i ka waiʻona.
• E ho'ōki i ka puhipaka.
• E mālama i kahi kaumaha olakino e kūpono iā ʻoe.

He aha ka manaʻolana no nā pēpē me ka omphalocele?

ʻO ke ʻano o ka nānā ʻana ma muli o ka nui o ka omphalocele a inā he mau pilikia olakino ʻē aʻe ko ka pēpē.

Inā he omphalocele wale nō ka pilikia olakino, e ola loa paha kāu pēpē. Eia nō naʻe, hele pinepine ʻia ka omphalocele me nā kīnā hānau ʻē aʻe. Hiki i kēia mau kūlana ke loaʻa nā hopena mau loa i ke olakino o ka pēpē a hoʻoulu i nā pilikia ma hope o ke ola. E kūkākūkā kāu kauka i kēia me ʻoe me nā kikoʻī.

He aha ke kūlana o ke ola o kahi pēpē me ka omphalocele?

Ma keʻano holoʻokoʻa, 95% o nā pēpē i hānau ʻia me ka omphalocele e ola ana. Eia nō naʻe, aia kekahi mau mea e hoʻopilikia ai i kēia mau helu helu. No ka laʻana, inā he mau pilikia olakino ʻē aʻe ko ka pēpē a me nā ʻōnaehana kino e hoʻopilikia ʻia e kēlā mau pilikia.

Eia kāu hui lapaʻau e kōkua iā ʻoe. ʻO lākou ka poʻe maikaʻi loa e kōkua iā ʻoe e hoʻomaopopo i kou kūlana.

Pehea e hānau ai i kahi keiki me ka omphalocele?

ʻOi aku ka maikaʻi o ka hānau ʻana i kāu pēpē ma kahi haukapila me nā loea a me nā lako e pono ai, a e hāʻawi i ka mālama koke. E kūkākūkā kāu kauka i kāu mau koho hānau me ʻoe. Pono paha ʻoe e hana i kahi ʻoki C, ʻoiai inā he omphalocele nui ko kāu pēpē.

Āhea wau e kāhea aku ai i ke kauka o kaʻu pēpē ma hope o ke ʻoki ʻana?

Inā ʻike ʻoe i kekahi o kēia mau hōʻailona ma hope o ke ʻoki ʻana, e kāhea koke aku i kāu kauka:

• Inā e kahe ana kekahi mea e like me ka pus mai ka ʻeha.
• Kuni.
• Ka luaʻi ʻana, ʻoiai inā he ʻōmaʻomaʻo (hiki i kēia ke hōʻike i kahi ālai ʻana o ka ʻōpū).
• Inā ʻulaʻula ka ʻeha.

Hiki i ka omphalocele ke ho'ōla iā ia iho?

He mea kākaʻikahi loa, hiki i nā omphaloceles liʻiliʻi loa ke pani iā ​​lākou iho. Eia nō naʻe, ʻo ka hapa nui o nā pēpē me kēia maʻi e pono ai ke ʻoki ʻana.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

He mea maʻamau ke makaʻu a me ke kaumaha ke ʻike ʻoe he maʻi hānau ʻia kāu pēpē e like me ka omphalocele. ʻO ka maopopo ʻole o ka mea e hiki mai ana hiki ke hoʻonui i ke kaumaha o ka hāpai ʻana.

Akā, mai poina, aia mau kāu hui lapaʻau me ʻoe. Mai kānalua e nīnau iā lākou a e ʻimi i kā lākou kākoʻo. E wehewehe lākou i nā mea āpau iā ʻoe, mai ka mea e manaʻo ai i kou hānau ʻana a hiki i ka hoʻolālā mālama o kāu pēpē ma hope. ʻAʻole ʻoe hoʻokahi, aia mākou a pau me ʻoe.

ʻOmphalocele , nā kīnā hānau, ka pihi ʻōpū o ka pēpē e puka mai ana, piko, nā ʻōpū o ka ʻōpū, ke ʻoki kino pediatric