Ke ʻike ʻia ʻoe a i ʻole kekahi o kou ʻohana me ka maʻi kanesa a haʻi aku kāu kauka iā ʻoe e hoʻomaka ʻoe i ka chemotherapy ma ke ʻano he lāʻau lapaʻau, he mea maʻamau ke manaʻo nui i ka makaʻu a me ka hopohopo. Akā ke hoʻomaopopo pono ʻia ʻoe e pili ana i kēia lāʻau lapaʻau, hiki ke hoʻemi ʻia kēlā makaʻu i kahi nui. I kēia lā ke kamaʻilio nei mākou e pili ana i kahi lāʻau i kapa ʻia ʻo Azacitidine, i hāʻawi ʻia i kekahi mau ʻano maʻi kanesa. E kamaʻilio maʻalahi kākou e pili ana i kēia, ma ke ʻano hiki iā ʻoe ke hoʻomaopopo.
He aha ke ʻano lāʻau lapaʻau ʻo Azacitidine?
I ka ʻōlelo maʻalahi, he lāʻau chemotherapy ʻo Azacitidine. Hoʻohana nui ʻia ia e mālama i ʻelua ʻano maʻi kanesa koko.
1. Myelodysplastic Syndrome (MDS): He maʻi kēia e pili ana i ka iwi ʻiʻo.
2. Kekahi mau ʻano leukemia: ʻO ia hoʻi, kekahi mau ʻano maʻi koko.
ʻO ka mea nui a kēia lāʻau lapaʻau e hana ai, ʻo ia ke hoʻolohi i ka ulu ʻana o nā hunaola kanesa a pepehi iā lākou . Hoʻomalu pū kēia lāʻau lapaʻau i ka hana o ka ʻōnaehana pale o ko mākou kino i kekahi ʻano. ʻO ia ke kumu e pono ai mākou e makaʻala loa i ka lawe ʻana i kēia lāʻau lapaʻau.
Pehea e hiki ai iaʻu ke hāʻawi iā ʻoe i kēia lāʻau lapaʻau?
ʻAʻole kēia he lāʻau lapaʻau hiki iā ʻoe ke lawe i ka home. He inikini subcutaneous ʻo Azacitidine. Hāʻawi mau ʻia ia iā ʻoe ma kahi haukapila a i ʻole ke keʻena lapaʻau e ke kauka a kahu maʻi paha i aʻo kūikawā ʻia i kēia. No laila, ʻaʻole pono ʻoe e hopohopo e pili ana i ke ʻano o ka hāʻawi ʻana i ka lāʻau lapaʻau.
I kekahi mau hihia kūikawā, hiki ke hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki. Eia nō naʻe, na ke kauka pediatric kēia hoʻoholo. No laila, e noi i kāu kauka no ka ʻike hou aku e pili ana i ia mea.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i ka mālama ʻana me ka azacitidine, he mea nui loa ia e hāʻawi i kāu kauka i kahi wehewehe piha o kou kūlana olakino. E hōʻoia e haʻi i kāu kauka inā loaʻa iā ʻoe kekahi o kēia mau mea:
| Kūlana olakino | He aha kāu e haʻi aku ai i ke kauka |
|---|---|
| Maʻi puʻupaʻa | Inā he maʻi puʻupaʻa kou. |
| Maʻi akepaʻa | Inā he maʻi akepaʻa kou a he mau puʻupuʻu akepaʻa paha. |
| Nā maʻi ʻaleka | Inā he maʻi ʻoe i ka azacitidine, mannitol, nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, nā kala a i ʻole nā mea mālama. |
| Hāpai keiki | Inā hāpai ʻoe, e hoʻāʻo ana e hāpai, a manaʻo paha ua hāpai ʻoe. |
| Ka hānai ʻana i ka waiū umauma | Inā ʻoe e hānai waiū ana i kāu pēpē. |
Nā mea e pono ai mākou e makaʻala loa i ka wā e lawe ai i ka lāʻau lapaʻau
E loli kou kino i kou wā e lawe ana i kēia lāʻau lapaʻau, no laila e makaʻala loa i kēia mau mea.
Hoʻonui ʻia ka pilikia o ka maʻi
Ma muli o ka hoʻohaʻahaʻa ʻana o kēia lāʻau i kou palekana , ʻoi aku ka nui o kou maʻi ʻana, ʻoiai nā maʻi. No laila, e noho mamao aku mai ka poʻe i loaʻa nā hōʻailona e like me ke kuni, ke anu, ke kuni, a me ka ʻeha o ka puʻu i ka hiki. Inā loaʻa iā ʻoe ke kuni, ke anu, ke kuni, a i ʻole ka ʻeha o ka puʻu, mai lāʻau ponoʻī a kamaʻilio koke me kāu kauka.
Hoʻonui ʻia ka pilikia o ke kahe ʻana o ke koko
Hiki i kēia lāʻau lapaʻau ke hōʻemi i ka helu o nā platelets e kōkua i ke kāpili ʻana o ke koko. No laila, ʻoiai kahi ʻeha liʻiliʻi e hoʻonui ai i ke kahe ʻana o ke koko a hoʻoulu i ka palapū pono ʻole. Inā ʻike ʻoe i nā palapū polū ma kou kino holoʻokoʻa, nā kiko ʻulaʻula liʻiliʻi ma kou ʻili, nā ʻōpala ʻeleʻele, a i ʻole ke koko i loko o kou mimi , e haʻi koke i kāu kauka.
Ka hāpai ʻana a me ka loaʻa ʻana o nā keiki
He mea nui loa kēia.
- Nā wāhine: Mai hāpai i ka wā e lawe ana i kēia lāʻau lapaʻau a no 6 mau mahina ma hope o ka mahele hope loa .
- Nā kāne: Mai ho'āʻo e hāpai i kahi keiki i kou wā e lawe ana i kēia lāʻau lapaʻau a no 3 mau mahina ma hope o ka mahele hope loa .
- Hiki i kēia lāʻau lapaʻau ke hōʻeha nui i ke keiki i hānau ʻole ʻia.Hiki iā ʻoe. Eia kekahi, mai hānai i ka waiū i ka wā o ka lāʻau lapaʻau a no hoʻokahi pule ma hope o ka mahele hope loa.
Nā lāʻau lapaʻau ʻē aʻe
E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei (nā lāʻau lapaʻau no nā kūlana ʻē aʻe, nā huaora, nā lāʻau lapaʻau kuʻuna, nā mea hoʻohui). Eia kekahi, e haʻi i kāu kauka inā ʻoe e puhipaka a inu waiʻona paha. Hiki i kekahi mau mea ke launa pū me kēia lāʻau.
Mai poina i ka lāʻau lapaʻau.
He mea nui loa ka hele ʻana i ke keʻena lapaʻau i ka lā i hoʻonohonoho ʻia e lawe i kāu lāʻau lapaʻau. Inā no kekahi kumu ʻaʻole hiki iā ʻoe ke hele, e hoʻomaopopo i ke kauka a i ʻole ka haukapila.
He aha nā hopena ʻaoʻao e hiki ke loaʻa mai ka lāʻau lapaʻau?
E like me nā lāʻau lapaʻau chemotherapy āpau, hiki ke loaʻa kekahi mau hopena ʻaoʻao i ka wā e lawe ai i kēia lāʻau. He koʻikoʻi kekahi, aʻo kekahi he mea maʻamau.
| Inā ʻike ʻoe i kēia mau hōʻailona, e hele koke i ke kauka a i ʻole ka ETU (Emergency Treatment Unit) o ka haukapila. | |
|---|---|
| Nā maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo, paʻakikī ka hanu ʻana. |
| Nā hōʻailona o ka maʻi | Kuni, anu, ʻū, ʻeha ka puʻu, ʻeha i ka wā e mimi ai. |
| Nā hōʻailona koko | Nā palapū ma ke kino, nā kiko ʻulaʻula ma ka ʻili, nā ʻōpala ʻeleʻele, ke koko i loko o ka mimi. |
| Nā hōʻailona o nā hunaola koko ʻulaʻula haʻahaʻa | Luhi maʻamau ʻole, nāwaliwali pinepine, poniuniu, maka polū. |
| Nā hōʻailona o ka hōʻino ʻana o ke akepaʻa | Melemele o nā maka a i ʻole ka ʻili, mimi melemele/ʻeleʻele, ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, luaʻi. |
| Nā hōʻailona o ka hōʻino ʻana o ka puʻupaʻa | Ka emi ʻana o ka mimi a i ʻole ka paʻakikī o ka mimi ʻana. |
| Inā hoʻomau kēia mau mea a lilo paha i mea hoʻopilikia, e haʻi i kāu kauka. | |
| Nā pilikia o ka ʻōnaehana meaʻai | Paʻa ka ʻōpū, ka maʻi kahe, ka nausea, ka luaʻi. |
| Kahi hoʻopili lāʻau | ʻEha a ʻulaʻula paha ma kahi i inikini ʻia. |
| Nā ʻeha maʻamau | Kino ola ʻole, luhi ʻē. |
ʻO ka mea nui loa, ʻo ia ke kamaʻilio me kāu kauka e pili ana i kekahi mea i ʻike ʻole ʻia iā ʻoe. Mai hoʻoholo i kāu iho. Inā manaʻo ʻoe he overdose, e hōʻike koke iā ia i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo a i ʻole ka ETU kokoke loa.
Leka Lawe-Home
- He lāʻau pale kūikawā no ka maʻi ʻaʻai ʻo Azacitidine i hāʻawi ʻia ma ka haukapila.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kou mau maʻi a me nā lāʻau lapaʻau āu e lawe ai.
- Aia kahi pilikia kiʻekiʻe o ka maʻi a me ke kahe ʻana o ke koko i ka wā e lawe ai i kēia lāʻau. No laila e makaʻala i nā mea e like me ke kuni a me ka palapū. Inā loaʻa kekahi mea e like me ia, e haʻi koke i kāu kauka .
- E pale loa i ka hāpai ʻana (ʻo nā wahine a me nā kāne) i ka wā o ka lāʻau lapaʻau a no ka lōʻihi e ʻōlelo ai kāu kauka.
- Mai poina e hele i nā keʻena lapaʻau a e hana i nā hoʻāʻo koko i ka manawa kūpono.
- E kamaʻilio ākea me kāu kauka e pili ana i nā nīnau, nā makaʻu, a i ʻole nā kānalua e hiki mai ana i kou manaʻo.
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