Ua haʻi aku kāu kauka iā ʻoe ua haʻahaʻa kou pae phosphorus? I kekahi manawa hiki ke kumu o kēia ma muli o kahi kūlana genetic, a i ʻole hiki ke kumu o kahi puʻupuʻu i loko o ke kino . ʻOiai ke kumu, i ka wā e haʻahaʻa ai nā pae phosphorus, nāwaliwali ko kākou mau iwi a haki maʻalahi. No laila, aia kahi lāʻau lapaʻau kūikawā i kapa ʻia ʻo Burosumab i kuhikuhi ʻia e mālama i kēia kūlana. E kamaʻilio kākou e pili ana i nā mea āpau ma nā ʻōlelo maʻalahi i kēia lā.
He aha ke ʻano lāʻau lapaʻau ʻo Burosumab?
I ka ʻōlelo maʻalahi, he lāʻau lapaʻau ʻo Burosumab e kōkua i ka hoʻihoʻi ʻana i nā pae phosphorus haʻahaʻa i loko o kou kino. Hoʻoikaika kēia i kou mau iwi a pale iā lākou mai ka haki maʻalahi (fractures).
No loko kēia o kahi papa kūikawā o nā lāʻau i kapa ʻia ʻo "monoclonal antibody". ʻO ia hoʻi, ua hoʻolālā ʻia kēia lāʻau e hana ma ka hoʻopaʻa ʻana i kahi pahuhopu kikoʻī i loko o ko mākou kino. No laila, ʻoi aku ka liʻiliʻi o nā hopena makemake ʻole ʻia. Loaʻa pinepine kēia lāʻau ma Sri Lanka a me ka honua ma lalo o ka inoa inoa "CRYSViTA".
Nā mea āu e haʻi aku ai i kāu kauka ma mua o ka lawe ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui loa ia e hāʻawi i kāu kauka i kahi wehewehe piha o kou kūlana olakino. E hōʻoia e haʻi i kēia mau mea kikoʻī:
- Maʻi puʻupaʻa: Inā loaʻa iā ʻoe kekahi maʻi e pili ana i ka puʻupaʻa.
- Nā Allergies: Inā he allergy kou i kēia lāʻau lapaʻau Burosumab, kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻomalu paha.
- Hāpai: Inā hāpai ʻoe a i ʻole e kali koke ana i kahi pēpē.
- Inā he makuahine hānai waiū ʻoe: Inā he makuahine ʻoe e hānai waiū ana i kahi keiki.
Ma muli o kēia ʻike, e hoʻoholo ke kauka inā kūpono kēia lāʻau lapaʻau iā ʻoe a pehea e hāʻawi ai.
Pehea ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
ʻAʻole kēia he lāʻau lapaʻau hiki iā ʻoe ke lawe i ka home. He inikini ʻo Burosumab i hāʻawi ʻia ma lalo o ka ʻili . Hāʻawi ʻia ia iā ʻoe ma kahi haukapila a i ʻole ke keʻena lapaʻau e ke kauka i aʻo ʻia a i ʻole nā limahana kahu maʻi.
Aia kekahi mau hihia kahi i kuhikuhi ʻia ai kēia lāʻau lapaʻau no kekahi mau kūlana olakino, ʻoiai no nā keiki e like me 6 mahina. Eia nō naʻe, na ke kauka pediatric kēia hoʻoholo.
ʻO ka mea nui loa, ʻo kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like me kekahi no kekahi kumu.
He aha ka mea e hana ai inā ʻoe e lawe i ka overdose?
ʻOiai ua hāʻawi ʻia kēia ma ka haukapila, ua haʻahaʻa loa ka manawa kūpono o ka overdose. Eia nō naʻe, inā manaʻo koke ʻoe ua loaʻa iā ʻoe ka nui o kēia lāʻau lapaʻau,E hele koke i ka Emergency Treatment Unit (ETU) o ka haukapila. A i ʻole hiki iā ʻoe ke kelepona i ke National Poison Information Centre ma ka Colombo National Hospital no ka ʻōlelo aʻoaʻo.
He aha inā e hala wau i ka lā i manaʻo ʻia ai au e lawe i ka lāʻau lapaʻau?
He mea nui loa ka lawe ʻana i kēia lāʻau lapaʻau i nā manawa maʻamau no ka holomua o ka lāʻau. Inā no kekahi kumu ʻaʻole hiki iā ʻoe ke hele i ka haukapila i ka lā i hoʻonohonoho ʻia, e ʻoluʻolu e kelepona koke i kāu kauka a i ʻole ka hui lapaʻau. E hāʻawi lākou iā ʻoe i kahi lā e hoʻi mai ai i ka manawa aʻe.
He aha nā mea pono ʻole e lawe pū ʻia me kēia lāʻau lapaʻau?
I ka wā e lawe ai iā Burosumab, he mea nui e pale i ka lawe pū ʻana i kekahi mau lāʻau lapaʻau ʻē aʻe, no ka mea hiki iā lākou ke launa pū me kekahi a hoʻoulu i nā hopena maikaʻi ʻole.
ʻAʻole pono ʻoe e lawe pū me Burosumab me kēia mau mea:
- Nā lāʻau lapaʻau phosphate waha
- Nā mea hoʻohui wikamina D. ʻO nā laʻana e komo pū me nā lāʻau lapaʻau e like me `(calcitriol)`, `(calcifediol)`, `(doxercalciferol)`, `(paricalcitol)`.
- Nā lāʻau lapaʻau kūikawā ʻē aʻe e like me 'Ibritumomab tiuxetan'.
ʻAʻole i piha kēia papa inoa. No laila, e hōʻoia e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau, nā huaora, nā huahana lāʻau, a me nā lāʻau lapaʻau kuʻuna āu e lawe nei. Eia kekahi, e haʻi i kāu kauka inā ʻoe e puhipaka a inu waiʻona paha.
Nā mea e makaʻala ai i ka wā e lawe ai i ka lāʻau lapaʻau
Inā ʻaʻole e hoʻomaikaʻi kāu mau hōʻailona a i ʻole e ʻoi aku ka ʻino, e haʻi i kāu kauka. E nānā kāu kauka iā ʻoe i kou wā e lawe ana i kēia lāʻau. Pono nō hoʻi ʻoe e loaʻa nā hoʻāʻo koko i nā manawa maʻamau. E kōkua kēia i ka hoʻoholo ʻana inā e hana pono ana ka lāʻau a pehea kou mau pae phosphorus.
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki iā Burosumab ke hana i nā hopena ʻaoʻao i kekahi poʻe. Hiki ke hoʻokaʻawale ʻia kēia mau mea i ʻelua mau ʻāpana nui.
| Ka hopena ʻaoʻao | Wehewehena |
|---|---|
| Nā hopena ʻaoʻao koʻikoʻi e pono ai ke kōkua koke ʻana o ke kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu. |
| Nā pōhaku puʻupaʻa | Koko i loko o ka mimi, ʻeha a paʻakikī paha i ka mimi ʻana, ʻeha ke kua a i ʻole ka ʻeha pelvic. |
| Kiʻekiʻe ka pae phosphorus | ʻEha nā ʻiʻo a i ʻole nā hono, ka ʻūlū ʻana o nā ʻiʻo, ka mae ʻana a puni ka waha. |
| ʻO ka maʻi wāwae hoʻomaha ʻole | He maneʻo ʻē, he ʻā ʻana, he huki ʻana i nā wāwae, a me ka makemake hoʻomaha ʻole e hoʻoneʻe i nā wāwae. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| Kuke | Ka luaʻi ʻana, ka maʻi pākī (ʻōpū ʻeha) |
| kuni | ʻEha poʻo |
| ʻEha ma nā lima, nā wāwae, a me nā wāwae | ʻEha, ʻulaʻula, a pehu paha ma kahi i hāʻawi ʻia ai ka inikini. |
ʻAʻole i loko o kēia papa inoa nā hopena ʻaoʻao āpau. Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē aʻe, e ʻoluʻolu e haʻi i kāu kauka e pili ana iā lākou.
Leka Lawe-Home
- He inikini kūikawā ʻo Burosumab i hāʻawi ʻia e mālama i ka nāwaliwali o ka iwi i hoʻokumu ʻia e nā pae phosphorus haʻahaʻa i loko o ke kino.
- ʻAʻole hiki ke hoʻohana ʻia kēia ma ka home. Pono e hāʻawi ʻia e nā limahana lapaʻau ma ka haukapila a i ʻole ke keʻena lapaʻau.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kou mau kūlana olakino a me nā lāʻau lapaʻau āu e lawe nei.
- Inā loaʻa iā ʻoe kekahi mau hopena koʻikoʻi, e like me nā hopena alerika a i ʻole nā hōʻailona o nā pōhaku puʻupaʻa, e ʻimi koke i ke kōkua lapaʻau.
- He mea nui loa ka loaʻa ʻana o ka lāʻau lapaʻau a me nā hoʻāʻo koko i ka manawa kūpono. E hahai mau i nā ʻōlelo a kāu kauka.
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