Ua ʻike mākou ʻaʻole maʻalahi ka loaʻa ʻana o ka lāʻau lapaʻau no ka maʻi kanesa e like me kou manaʻo. ʻOiai ke kuhikuhi ʻia ʻoe i kahi lāʻau lapaʻau e like me 'Decitabine', he mea maʻamau ka loaʻa ʻana o nā nīnau he nui i loko o kou noʻonoʻo. 'He aha ka mea e hana ʻia me kēia?', 'He aha kaʻu e makaʻala ai?', 'He aha nā hopena ʻaoʻao?' Hiki paha iā ʻoe ke loaʻa nā nīnau i loko o kou noʻonoʻo. Mai hopohopo. ʻAʻole ʻoe hoʻokahi. No laila, i kēia lā, e kamaʻilio kākou e pili ana i kēia lāʻau lapaʻau i kapa ʻia ʻo 'Decitabine' ma ke ʻano maʻalahi, ma ke ʻano hiki iā ʻoe ke hoʻomaopopo.
He aha kēia lāʻau lapaʻau i kapa ʻia ʻo Decitabine?
I ka ʻōlelo maʻalahi, ʻo `Decitabine` kahi lāʻau lapaʻau e mālama ai i ka maʻi kanesa. Kāhea mākou i kēia lāʻau lapaʻau `chemotherapy`. ʻO ka hana nui o kēia lāʻau lapaʻau ka kaohi ʻana i ka ulu ʻana o nā hunaola kanesa, ʻo ia hoʻi, e hōʻemi iā lākou.
Hoʻohana kūikawā ʻia kēia no ka mālama ʻana i nā pākeke me kahi maʻi i kapa ʻia ʻo `Myelodysplastic Syndromes (MDS) . ʻO `MDS` kahi maʻi e hoʻopilikia i ke kaʻina hana o ka hana ʻana i nā hunaola koko i loko o ko kākou iwi iwi. Hana kēia lāʻau lapaʻau ma ka kaohi ʻana i ka ulu ʻana o kēlā mau hunaola ʻē. I kekahi manawa hiki i kāu kauka ke kuhikuhi i kēia lāʻau lapaʻau no nā maʻi olakino ʻē aʻe.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i ka mālama ʻana me Decitabine, he mea nui e hāʻawi i kāu kauka i kahi kiʻi piha o kou kūlana olakino. E kōkua kēia iā ʻoe e loaʻa ka lāʻau palekana loa. E hōʻoia e haʻi i kāu kauka inā loaʻa iā ʻoe kekahi o kēia mau mea:
- Nā maʻi o kēia manawa: No ka laʻana, e haʻi i nā maʻi āpau, me nā maʻi viral e like me ka chickenpox a me ka herpes.
- Maʻi puʻupaʻa: Inā he mau pilikia puʻupaʻa kou.
- Maʻi ʻāʻī: Inā loaʻa iā ʻoe kekahi maʻi pili i ke akepaʻa.
- Nā maʻi ʻaleka: E haʻi i kāu kauka inā loaʻa iā ʻoe kahi hopena maʻi ʻaleka i Decitabine a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, kala, a mea hoʻomalu paha.
- Hāpai: Inā hāpai ʻoe, a i ʻole e hoʻāʻo nei e hāpai.
- Ka hānai waiū ʻana: Inā he makuahine ʻoe e hānai waiū ana i kāu keiki.
He mea nui loa ka hāʻawi ʻana i kēia ʻike i ka hui lapaʻau no kou palekana.
Pehea e hāʻawi ʻia ai kēia lāʻau lapaʻau iā ʻoe?
ʻAʻole hiki iā ʻoe ke lawe i kēia lāʻau lapaʻau i ka home. ʻO Decitabine kahi lāʻau lapaʻau i hāʻawi ʻia ma ke ʻano he infusion, ʻo ia hoʻi he kulu ma kēlā me kēia kulu o ka wai saline i loko o kahi aʻa.
Hana mau ʻia kēia lāʻau lapaʻau ma kahi haukapila a i ʻole ke keʻena lapaʻau paha, ma lalo o ka nānā ʻana a ke kauka a i ʻole kekahi loea olakino i aʻo ʻia, no laila aia ʻoe i nā lima palekana.
Inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i nā keiki ʻōpio, e kūkākūkā pono me kāu kauka a pediatrician paha, no ka mea, pono ke mālama kūikawā.
He aha ka mea e hana ai inā piʻi ka nui o ka lāʻau (overdose)?
He lāʻau lapaʻau kēia i hāʻawi ʻia ma ka haukapila, no laila haʻahaʻa ka manawa e hiki ai kēia. Eia nō naʻe, inā manaʻo ʻoe ua overdose ʻoe ma kekahi ʻano, e hoʻomaopopo koke i nā limahana lapaʻau. Ma ke ʻano laulā, inā lawe ʻoe i ka nui o ka lāʻau lapaʻau, hiki iā ʻoe ke kelepona i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo . I kahi pilikia, pono ʻoe e hele koke i ka ETU (Emergency Treatment Unit) .
He aha kāu e hana ai inā e poina ʻoe i kahi lāʻau?
He mea nui loa ka lawe ʻana i kāu lāʻau lapaʻau i ka manawa kūpono a ma ka lā i hoʻonohonoho ʻia no kēia lāʻau lapaʻau. Inā no kekahi kumu ʻaʻole hiki iā ʻoe ke hele mai i ka haukapila i ka lā i hoʻonohonoho ʻia, e kāhea koke aku i kāu kauka a i ʻole ka hui lapaʻau a e hoʻomaopopo iā lākou.
Nā mea āu e pono ai e makaʻala nui i ka wā o ka mālama ʻana
He mea nui e hoʻolohe i nā loli i kou kino i ka wā o kāu mālama ʻana me Decitabine.
ʻO ka ʻoluʻolu ʻole o ke kino a me nā hoʻokolohua lapaʻau
Hiki i ka chemotherapy ke hoʻopilikia i nā hunaola kanesa a me kekahi mau hunaola olakino i loko o ko kākou kino. No laila, he mea maʻamau ka luhi, ka ʻoluʻolu ʻole, a me ka ʻeha i ka wā o ka mālama ʻana. Mai hopohopo no ia mea. Akā, e haʻi i kāu kauka e pili ana i nā hopena ʻaoʻao āu e ʻike ai. He mea nui e hoʻomau i ka mālama ʻana, ʻoiai inā he paʻakikī, a hiki i ka wā e haʻi aku ai kāu kauka iā ʻoe e hoʻōki.
I loko o kēia manawa, pono ʻoe e hana i nā hoʻāʻo koko maʻamau e nānā i kou pae koko.
E makaʻala i nā maʻi.
Hoʻemi ka Decitabine i ka hiki o kou kino ke kaua i nā maʻi, a i ʻole ka pale ʻana . Hiki i kēia ke hoʻolilo iā ʻoe i mea maʻalahi i nā maʻi.
- Inā loaʻa iā ʻoe nā hōʻailona o ke anu e like me ke kuni, ka ʻūlū, ka ʻeha o ka puʻu, a me ke kuni , mai hoʻōla iā ʻoe iho a e kāhea koke aku i kāu kauka .
- E noho mamao loa mai nā wahi piha kanaka a me ka poʻe maʻi e like me ka hiki.
E makaʻala i ke kahe ʻana o ke koko a me ka palapū.
Hiki i kēia lāʻau lapaʻau ke hōʻemi i ka helu o nā platelets i loko o kou koko, kahi e kōkua ai i ke kāpili ʻana o ke koko. Hoʻonui kēia i ka pilikia o ke kahe ʻana o ke koko a me ka palapū .
- E nānā inā he mau palapū ma kou kino.
- E nānā pono i nā kiko ʻulaʻula ma ka ʻili.
- Inā he ʻeleʻele kou mau ʻōpala, ʻeleʻele, a inā he koko kou i loko o kou mimi, e haʻi koke aku i kāu kauka .
Nā mea nui e pili ana i ka hāpai ʻana a me ka hānau keiki
He mea nui loa kēia.
- Nā wāhine: Mai hāpai i ka wā e lawe ana i kēia lāʻau lapaʻau a no 6 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau.
- Nā kāne:Mai hāpai i kahi keiki i ka wā e lawe ana i kēia lāʻau lapaʻau a no 3 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau.
- Hiki i kēia lāʻau lapaʻau ke hōʻeha nui i ka pēpē i loko o ka ʻōpū.
- Mai hānai i kāu pēpē i ka waiū i ka wā o ka lāʻau lapaʻau a i ʻole no 2 mau pule ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau.
- No nā kāne, hiki i kēia lāʻau lapaʻau ke loaʻa kekahi hopena i ka hānau keiki. Inā he mau hopohopo kāu e pili ana i kēia, e kamaʻilio ākea me kāu kauka e pili ana.
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki i ka Decitabine ke loaʻa nā hopena ʻaoʻao. Pono e hōʻike koke ʻia kekahi o lākou, aʻo nā mea ʻē aʻe e hele mai a hele aku.
| Nā hopena ʻaoʻao o Decitabine | |
|---|---|
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i ke kauka | |
| Ua emi ka helu o nā ʻāpana koko | Hiki i kēia lāʻau lapaʻau ke hoʻemi i nā hunaola koko keʻokeʻo, nā hunaola koko ʻulaʻula, a me nā platelets, kahi e hoʻonui ai i ka pilikia o ka maʻi a me ke kahe ʻana o ke koko. |
| Nā hōʻailona o ka maʻi | Kuni a anu paha, anu, ʻū, ʻeha ka puʻu, ʻeha i ka wā e mimi ai. |
| Nā hōʻailona koko | Nā palapū ma ke kino, nā kiko ʻulaʻula liʻiliʻi ma ka ʻili, nā ʻōpala ʻeleʻele, a me ke koko i loko o ka mimi. |
| Nā hōʻailona o nā hunaola koko ʻulaʻula haʻahaʻa | Manaʻo luhi a nāwaliwali paha, maule, a poniuniu paha. |
| Hoʻonui ʻia ke kō koko | E nānā kāu kauka i kēia. |
| Nā hopena ʻaoʻao e hiki ke loaʻa pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | Paʻa ka ʻōpū, ka maʻi kahe, ka nausea, ka luaʻi ʻana, ka ʻeha o ka ʻōpū, ka nalowale o ka makemake. |
| Nā ʻano laulā ʻē aʻe | ʻEha ke poʻo, ka ʻulaʻula o ka ʻili a i ʻole ka maneʻo, ka paʻa ʻana o ke wai, ka nāwaliwali a i ʻole ka luhi. |
ʻAʻole i loko o kēia papa inoa nā hopena ʻaoʻao āpau. Inā loaʻa iā ʻoe kekahi mea ʻokoʻa a ʻano ʻē paha, e haʻi i kāu kauka e pili ana i ia mea.
Leka Lawe-Home
- ʻO ka Decitabine kahi lāʻau lapaʻau i hāʻawi ʻia ma o kahi vein i loko o ka haukapila e kāohi i ka ulu ʻana o nā cell cancer.
- E makaʻala loa i nā maʻi (kuni, ʻū) a me ke kahe ʻana o ke koko (palapala) i ka wā o ka mālama ʻana. Inā ʻike ʻoe i kekahi o kēia mau hōʻailona, e haʻi koke aku i kāu kauka.
- Inā hāpai ʻoe, e hoʻolālā ana e hāpai, a i ʻole e hānai waiū ana, e hoʻomaopopo pono i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau.
- E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei (ʻoiai nā mea hoʻomaha ʻeha).
- E kamaʻilio ākea me kāu kauka lapaʻau e pili ana i nā nīnau, nā makaʻu, a i ʻole nā hopohopo āu e loaʻa ai. Aia lākou ma laila e kōkua iā ʻoe.
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