Pono kekahi o ko kākou mau hoahānau kāne a me nā kaikuahine, ʻoiai ka poʻe e noho nei me nā maʻi e like me Thalassemia, e hoʻololi pinepine i ke koko. He ʻāpana koʻikoʻi kēia o ko lākou ola. Eia naʻe, ke hoʻomau nei kākou i ka loaʻa ʻana o ke koko ma kēia ʻano, hiki i ka hao ke hōʻiliʻili i loko o ko kākou kino ma mua o ka mea e pono ai ko kākou kino. E like me kahi pahu wai i piha i ka wai a hoʻomau i ka paila ʻana ke hoʻomau kākou i ka ninini ʻana i ka wai. Hiki i kēia hao keu ke hōʻino i nā ʻōpū koʻikoʻi e like me ko kākou puʻuwai a me ke akepaʻa. No laila, ʻo kahi lāʻau lapaʻau kūikawā a nā kauka e kuhikuhi ai e kāohi i kēia hao keu ua kapa ʻia ʻo Deferiprone. I kēia lā, e kamaʻilio kākou e pili ana i kēia lāʻau lapaʻau.
I ka ʻōlelo maʻalahi, he aha ʻo Deferiprone?
He lāʻau lapaʻau ʻo Deferiprone e kōkua i kou kino e omo i ka hao keu a hoʻokuʻu iā ia ma o ka mimi. E like me ka magnet hao, huki kēia lāʻau i nā ʻāpana hao i makemake ʻole ʻia mai kou koko. Kōkua kēia i ka mālama ʻana i nā pae hao o kou kino i loko o kahi pae palekana. Kūʻai pinepine ʻia kēia lāʻau lapaʻau ma lalo o ka inoa inoa ʻo Ferriprox. Loaʻa ia ma ke ʻano he hopena waha.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau
He mea nui loa e ʻike pono kāu kauka i kou kūlana olakino ma mua o ka hāʻawi ʻana iā ʻoe i kēia lāʻau lapaʻau. No laila, inā loaʻa iā ʻoe kekahi o nā kūlana i helu ʻia ma lalo nei, e hōʻoia e haʻi iā lākou e pili ana i ia mea.
- ʻO ka maʻi o kēia manawa: E haʻi i kāu kauka inā loaʻa iā ʻoe kekahi mau maʻi, e like me ke kuni, ka ʻū, ke anu, a i ʻole ka ʻeha ʻāʻī, no ka mea, hiki i kēia lāʻau lapaʻau ke hoʻohaʻahaʻa i ka helu o nā hunaola koko keʻokeʻo e kōkua ana i ka ʻōnaehana pale o ke kino.
- Maʻi akepaʻa: He mea nui loa kēia inā loaʻa iā ʻoe kahi maʻi akepaʻa mua.
- He haʻahaʻa ka helu o nā keena koko: Inā ua ʻike ʻia ʻoe me nā keena koko keʻokeʻo haʻahaʻa, nā keena koko ʻulaʻula, a i ʻole nā platelets i loko o kou koko, e ʻoluʻolu e hoʻomaopopo mai iā mākou.
- Nā Allergies: Mai poina e haʻi mai iā mākou inā he mau allergies kou iā Deferiprone a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Hāpai a me ka hānai waiū: Inā hāpai ʻoe, e hoʻāʻo ana e hāpai, a hānai waiū paha, pono ʻoe e haʻi i kāu kauka. E kamaʻilio mākou e pili ana i kēia me nā kikoʻī hou aku.
ʻO ke ala kūpono e hoʻohana ai i ka lāʻau lapaʻau
I mea e loaʻa ai ka hopena maikaʻi loa mai ka lāʻau lapaʻau, pono ʻoe e hoʻohana e like me ke kuhikuhi ʻana.
1. E lawe i ka manawa kūpono: E ho'āʻo e lawe i kāu lāʻau lapaʻau i ka manawa like i kēlā me kēia lā , e like me ke kauoha a kāu kauka. E kōkua kēia i ka mālama ʻana i nā pae like o ka lāʻau lapaʻau i loko o kou kino.
2. Ana pololei: E loaʻa iā ʻoe kahi kīʻaha ana kūikawā me kēia lāʻau lapaʻau.E hōʻoia e ana i ka lāʻau lapaʻau me ia wale nō. Mai hoʻohana i nā tīpune a i ʻole nā punetēpē āu i loaʻa ai ma ka home, no ka mea, ʻaʻole pololei kā lākou ana.
3. E lawe i ka nui piha: Ma hope o ka lawe ʻana i ka lāʻau lapaʻau, e hoʻohui i kahi wai liʻiliʻi (ma kahi o 10-15 ml) i ke kīʻaha ana, e lūlū maikaʻi, a inu i ka wai. E kōkua kēia i ka hoʻoheheʻe ʻana i kekahi lāʻau lapaʻau i koe i loko o ke kīʻaha.
4. Ma mua a ma hope paha o ka ʻai ʻana: Hiki iā ʻoe ke lawe i kēia ma mua a ma hope paha o ka ʻai ʻana. Eia nō naʻe, inā ʻeha kou ʻōpū a ʻoluʻolu ʻole paha, ʻoi aku ka maikaʻi o ka lawe ʻana me ka meaʻai.
5. I ka wā e lawe pū ana me nā lāʻau lapaʻau ʻē aʻe: Inā ʻoe e lawe ana i nā antacids (nā wai/papa i hoʻohana ʻia no ka gastritis), nā huaora i loaʻa ka hao, ka zinc, a i ʻole ka alumini, mai lawe pū me kēia lāʻau Deferiprone. Pono ʻoe e lawe i kēlā mau mea 4 mau hola ma mua a i ʻole 4 mau hola ma hope o ka lawe ʻana iā Deferiprone .
Mai ho'ōki i ka lawe ʻana i ka lāʻau a hiki i ka wā e ʻōlelo aku ai kāu kauka iā ʻoe. He mea nui loa ia e hoʻopau i ka papa hana i kuhikuhi ʻia, ʻoiai inā ua maikaʻi kou manaʻo.
He aha inā e hala iaʻu kahi mahele o ka lāʻau lapaʻau?
Hiki i kekahi ke poina. Inā ʻoe e poina i kahi lāʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau aʻe, e kāpae i ka lāʻau i poina a lawe i kāu lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi no kekahi kumu.
Nā mea kūikawā e makaʻala ai i ka wā e lawe ai i kēia lāʻau lapaʻau
- Nā nānā kino maʻamau: Ma hope o kou hoʻomaka ʻana e lawe i kēia lāʻau lapaʻau, e noi aku kāu kauka iā ʻoe e ʻike iā ia i nā manawa a pau a hana i nā hoʻokolohua koko. Ma ke ʻano kūikawā, e noi aku ʻo ia iā ʻoe e hana i kahi helu koko piha ma ka liʻiliʻi hoʻokahi manawa i ka pule. ʻO kēia no ka mea hiki ʻole i kēia lāʻau lapaʻau ke hana i kahi helu koko keʻokeʻo haʻahaʻa loa (Agranulocytosis). Hiki i kēia mau hoʻokolohua koko ke ʻike inā he pilikia ʻoe.
- Ka loli ʻana o ke kala o ka mimi: He mea maʻamau ka lilo ʻana o kou mimi i ʻulaʻula a ʻeleʻele paha i ka wā e lawe ana i kēia lāʻau. ʻO ke ʻano kēia e hana ana ka lāʻau a ke hoʻokuʻu ʻia nei ka hao keu mai kou kino. ʻAʻohe pono e hopohopo no kēia.
- ʻŌlelo Aʻo no ka Hāpai Keiki: He mea nui loa kēia. E pale i ka hāpai ʻana i ka wā e lawe ana i kēia lāʻau lapaʻau a no 6 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau. Inā he kāne ʻoe, e pale i ka hānau ʻana i kahi keiki i ka wā e lawe ana i kēia lāʻau lapaʻau a no 3 mau mahina ma hope o ka hoʻōki ʻana. Hiki i kēia lāʻau lapaʻau ke hōʻeha nui i kahi pēpē i hānau ʻole ʻia. Eia kekahi, e pale i ka hānai waiū i ka wā e lawe ana i kēia lāʻau lapaʻau a no 2 mau pule ma hope o kāu mahele hope loa.
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki iā Deferiprone ke hana i kekahi mau hopena ʻaoʻao. Pono e hōʻike koke ʻia kekahi o kēia mau mea, aʻo kekahi ʻaʻole koʻikoʻi loa.
| Nā hopena ʻaoʻao o Deferiprone | |
|---|---|
| Nā mea e hōʻike koke aku ai i kāu kauka | |
| Nā maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe a i ʻole ke alelo. |
| Nā hōʻailona o ka maʻi | Kuni, anu, ʻū, ʻeha a ʻeha paha ka puʻu. (He mea nui loa kēia no ka mea he mau hōʻailona ia o nā hunaola koko keʻokeʻo haʻahaʻa) |
| Nā hōʻailona o ka hōʻino ʻana o ke akepaʻa | Melemele o nā maka a i ʻole ka ʻili, ka mimi melemele/ʻeleʻele, ka ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, ka luhi nui, ka nalowale o ka makemake e ʻai. |
| Nā mea i maʻa mau ʻole i ka nui, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| Nā hiʻohiʻona ʻē aʻe | ʻEha poʻo, nausea, luaʻi, ʻeha ʻōpū, ʻeha ami a iwi paha. |
He aha kāu e hana ai inā lawe nui ʻoe i ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe ʻoe i kahi overdose, mai hopohopo a hele koke i ka haukapila kokoke loa ʻo Emergency Department (ETU) . A i ʻole e kelepona i ke National Poisons Information Centre ma ka Colombo National Hospital no ka ʻōlelo aʻoaʻo.
Pehea ʻoe e mālama ai a hoʻolei aku i ka lāʻau lapaʻau?
He mea ka lāʻau lapaʻau e pono e mālama ʻia me ke akahele.
- E mālama ʻia mai ka hiki ʻana aku o nā keiki: E mālama ʻia mai ka hiki ʻana aku o nā keiki liʻiliʻi a me nā holoholona.
- Ka mālama ʻana: E mālama ma ka mahana o ka lumi (ma waena o 20-25 kekelē Celsius). ʻOi aku ka maikaʻi o ka mālama ʻana i ka lāʻau lapaʻau i loko o ka ʻōmole kumu i hoʻokomo ʻia ai.
- Pau: ʻŌmole lāʻau lapaʻauE hoʻolei i kekahi lāʻau lapaʻau i koe 35 mau lā ma hope o ka wehe ʻana.
- Ke ʻano hoʻolei ʻana: E nīnau i kāu kauka e pili ana i ke ala maikaʻi loa e hoʻolei aku ai i nā lāʻau lapaʻau i hoʻohana ʻole ʻia a pau ka lāʻau. Inā kūpono ke hoʻolei iā lākou i loko o ka ʻōpala, e wehe i ka lāʻau lapaʻau wai mai ka ʻōmole, e kāwili me kahi mea e like me nā lau kī i hoʻohana ʻia a i ʻole nā mea i kāwili ʻia me ke kope, a waiho i loko o kahi ʻeke plastik i hoʻopaʻa pono ʻia a hoʻolei aku.
Leka Lawe-Home
- ʻO ka Deferiprone kahi lāʻau lapaʻau i hāʻawi ʻia e wehe i ka hao keu mai ke kino ma muli o ka hāʻawi pinepine ʻana i ke koko.
- E hoʻohana mau i ke kīʻaha ana kūikawā i hele mai me ka lāʻau lapaʻau e ana iā ia.
- E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe, nā huaora, a me nā kūlana olakino āu e lawe nei.
- E ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe nā hōʻailona o ka maʻi, e like me ke kuni a me ka ʻeha o ka puʻu. He hōʻailona paha kēia o ka haʻahaʻa o ka helu o nā keʻokeʻo koko.
- E pale i ka hāpai ʻana i ka wā e lawe ana i kēia lāʻau lapaʻau a hiki i ka pau ʻana o ka manawa i kauoha ʻia.
- ʻAʻohe mea e hopohopo ai inā ʻaʻohe mimi ʻulaʻula/ʻeleʻele, he hōʻailona ia e hana ana ka lāʻau lapaʻau.
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