I kekahi manawa, pono mākou a i ʻole kahi mea aloha e hana i kahi lāʻau lapaʻau nui e like me ke kāpili ʻana o nā cell stem ma muli o kahi maʻi koʻikoʻi e like me ke kanesa. ʻOiai ua holomua kēlā mau lāʻau lapaʻau, i kekahi manawa hiki iā lākou ke hana i kekahi mau pilikia. I kēia lā, ke kamaʻilio nei mākou e pili ana i kahi lāʻau lapaʻau kūikawā i hāʻawi ʻia e mālama i kēlā ʻano pilikia koʻikoʻi, akā ʻaʻole maʻamau. ʻO ia ka lāʻau pale i kapa ʻia ʻo Defibrotide.
He aha ka Defibrotide a no ke aha e hoʻohana ʻia ai?
I ka ʻōlelo maʻalahi, he injection kūikawā ʻo Defibrotide. Hoʻohana ʻia ia e mālama i kahi maʻi koʻikoʻi e kū mai ana ma hope o ka hoʻoili ʻana o nā cell stem, ma muli o ke ālai ʻana o nā kīʻaha koko liʻiliʻi loa i loko o ke akepaʻa . Ma ke ʻano lapaʻau, ua kapa ʻia kēia maʻi ʻo Veno-occlusive Disease (VOD) a i ʻole Sinusoidal Obstruction Syndrome (SOS).
E noʻonoʻo he mau kīʻaha koko liʻiliʻi e kahe ana ma o ko kākou ake. Ma hope o kahi lāʻau lapaʻau nui e like me ke kāpili ʻana o nā cell stem, i kekahi manawa hiki ke ālai ʻia kēia mau kīʻaha koko. Hiki i kēia ke loaʻa ka hopena koʻikoʻi i ka hana o ke ake. I kēlā manawa, kōkua kahi lāʻau i kapa ʻia ʻo Defibrotide i ka wehe hou ʻana i kēia mau kīʻaha koko i ālai ʻia a hōʻemi i ka hōʻino ʻana i ke ake.
ʻO ka mea nui, ʻaʻole kēia he lāʻau lapaʻau hiki iā ʻoe ke lawe i ka home. Hāʻawi ʻia ia ma ke ʻano he infusion ma ka haukapila, ma lalo o ka nānā piha ʻana o nā kauka a me nā kahu maʻi .
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o kou hoʻomaka ʻana a i ʻole kāu maʻi e mālama me Defibrotide, he mea nui loa ia e haʻi i kāu kauka e pili ana i kou mōʻaukala olakino piha. Ma ke ʻano kūikawā, pono ʻoe e makaʻala i nā kūlana ma lalo nei:
| Ke kūlana āu e pono ai e hōʻike | No ke aha lā ia? |
|---|---|
| Inā he maʻi kahe koko kou. | He mea nui loa kēia inā loaʻa iā ʻoe kekahi maʻi, no ka mea, hiki i ka defibrotide ke hoʻonui i ka pilikia o ke kahe ʻana o ke koko. |
| Inā ʻoe e lawe ana i nā lāʻau lapaʻau ʻē aʻe e hoʻomāmā i ke koko a pale paha i ke kāpili ʻana o ke koko (nā mea hoʻomāmā koko). | Pono ke kauka e makaʻala i kēia, no ka mea, ʻo ka hoʻohana pū ʻana i kēia mau lāʻau lapaʻau hiki ke hoʻokahe nui i ke koko. |
| Inā loaʻa iā ʻoe kahi hopena maʻi i ka Defibrotide a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha. | He mea nui kēia no ka pale ʻana i nā maʻi allergies. |
| Inā ʻoe e hāpai ana, e hoʻāʻo ana e hāpai, a e hānai waiū ana paha. | Pono ʻoe e kūkākūkā me kāu kauka pehea e pili ai kēia lāʻau i ka makuahine a me ke pēpē. |
Nā lāʻau lapaʻau ʻaʻole pono e hoʻohana pū ʻia me Defibrotide
Akahele: I ka wā e lawe ai iā Defibrotide, hiki i nā lāʻau lapaʻau ʻē aʻe e pale ai i ke kāpili ʻana o ke koko a hoʻomāmā paha i ke koko, e like me Heparin lāua ʻo Alteplase , ke hana i ke kahe koko nui . No laila, e hōʻoia e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei, me nā lāʻau lapaʻau lāʻau, nā huaora, a me nā mea hoʻohui.
Nā hopena ʻaoʻao hiki ke loaʻa
E like me nā lāʻau lapaʻau āpau, hiki iā Defibrotide ke hana i kekahi mau hopena ʻaoʻao. Hiki i kekahi o kēia mau mea ke koʻikoʻi, no laila he mea nui e makaʻala iā lākou a hoʻomaopopo koke i kāu hui lapaʻau inā loaʻa iā ʻoe kekahi mau hōʻailona.
| Ka hopena ʻaoʻao | Wehewehena |
|---|---|
| Inā loaʻa iā ʻoe kēia mau hōʻailona, e haʻi koke aku i kāu kauka a kahu maʻi paha. | |
| Nā hopena maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe a i ʻole ke alelo. |
| Nā Hōʻailona o ke Koko ʻana | Koko i loko o ka ʻōpala a i ʻole nā ʻōpala ʻeleʻele, ka mimi ʻulaʻula a ʻeleʻele paha, ka luaʻi ʻana i kahi mea e like me ke kofe, nā kiko ʻulaʻula ma ka ʻili, ke kahe koko ʻokoʻa mai nā maka, nā ʻāʻī, a i ʻole ka ihu. |
| Nā Hōʻailona o ke Koko Haʻahaʻa | Pōniuniu, ʻike maka pōwehiwehi, maule, manaʻo luhi a nāwaliwali paha. |
| Nā Hōʻailona o ka Maʻi | Kuni a i ʻole ke anu, ka ʻū, ka ʻeha o ka puʻu. |
| ʻAʻole maʻamau kēia mau mea koʻikoʻi, akā inā hoʻomau lākou, e haʻi i kāu kauka. | |
| Ka maʻi pākī | ʻŌpū. |
| Ka luaʻi | Manaʻo e luaʻi ana. |
| Ka luaʻi ʻana | Ka luaʻi ʻana. |
He aha ka mea e hana ai inā piʻi ka nui o ka lāʻau (overdose)?
ʻOiai ua hāʻawi ʻia kēia lāʻau lapaʻau ma kahi haukapila, ma lalo o ka nānā ʻana o ke kauka, ma ka nui pololei loa, ua haʻahaʻa loa ka manawa kūpono o ka overdose. Hopohopo mau ka hui lapaʻau e pili ana i ia mea. Akā inā he kānalua no ia mea, e hana ke kauka a kahu maʻi paha ma ka haukapila i nā hana e pono ai. ʻO ka maʻamau, ʻo kahi kūhelu e loaʻa ai ka ʻōlelo aʻoaʻo ma ko mākou ʻāina inā loaʻa kekahi lāʻau make, ʻo ia ka National Poisons Information Centre ma ka Colombo National Hospital . Akā inā loaʻa kekahi mea e like me kēia ma kahi haukapila, hoʻāla koke ʻia ka Emergency Treatment Unit (ETU) o ka haukapila.
Leka Lawe-Home
- He inikini kūikawā ʻo Defibrotide i hāʻawi ʻia i loko o kahi aa koko e mālama ai i kahi pilikia koʻikoʻi o ke akepaʻa e hiki ke hana ma hope o kahi hoʻoili cell kumu.
- He mea nui e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei, ʻoiai nā lāʻau hoʻokahe koko, a me nā kūlana olakino āu.
- ʻO ka pilikia nui i ka wā o kēia mālama ʻana, ʻo ia ke kahe ʻana o ke koko . No laila, inā ʻike ʻoe i kahi hōʻailona liʻiliʻi loa o ke kahe ʻana o ke koko, e hoʻomaopopo koke i ka hui lapaʻau.
- Hāʻawi wale ʻia kēia lāʻau lapaʻau ma ka haukapila a ʻaʻole ia he lāʻau lapaʻau no ka hoʻohana ʻana ma ka home.
- Inā he mau nīnau a hopohopo paha kāu e pili ana i kēia lāʻau lapaʻau a i ʻole ka lāʻau lapaʻau, mai kānalua e nīnau i kāu kauka a i ʻole nā limahana kahu maʻi.
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