Ua kuhikuhi anei kāu kauka i kahi inikini kūikawā e kāohi i kahi kahe koko koke nou a i ʻole kekahi lālā o ka ʻohana? E huikau iki paha ʻoe i ka inoa. Akā, mai hopohopo. Ke kamaʻilio nei mākou e pili ana i kēlā lāʻau lapaʻau i kēia lā. Hoʻohana pinepine ʻia ia e kāohi i ke kahe koko ʻana i kahi maʻi laha ʻole i kapa ʻia ʻo Acquired Hemophilia A. E kamaʻilio kākou e pili ana i ia mea me ka maʻalahi a me ka maopopo.
He aha ka Hemophilia A i Loaʻa?
I ka ʻōlelo maʻalahi, he pilikia kēia me ke kaʻina hana koko o ko mākou kino. ʻO ka maʻamau, ke hōʻeha ʻia mākou, paʻa ko mākou koko a hoʻōki i ke kahe ʻana. Kōkua ʻia kēia e nā protein kūikawā i loko o ko mākou koko, e like me Factor VIII .
Eia nō naʻe, i loko o ka Hemophilia A i Loaʻa, hoʻomaka hewa ko kākou ʻōnaehana pale ponoʻī e hoʻouka i kēia protein i kapa ʻia ʻo Factor VIII. Kāhea pū mākou i kēia mau antibodies . Hoʻemi kēia i ka hiki o ke koko ke kāpili, a i kekahi manawa ke alakaʻi nei i ke kahe nui ʻana me ke kumu ʻole a i ʻole mai kahi ʻeha liʻiliʻi. ʻAʻole like kēia me ka hemophilia hānau, akā he kūlana hiki ke hana i kēlā me kēia manawa o ke ola.
No laila pehea e hana ai kēia lāʻau pale (OBIZUR)?
I kēia manawa ua maopopo iā ʻoe ʻo ka pilikia, ʻo ia ka hoʻouka ʻana o kā mākou mau antibodies i kā mākou Factor VIII ponoʻī. No laila, hāʻawi nā kauka i kēia lāʻau pale kūikawā ma ke ʻano he hopena no kēia.
ʻOiai he lōʻihi ka inoa o kēia lāʻau lapaʻau, he mea nui loa kāna ʻōlelo:
- ʻO ka Antihemophilic Factor: ʻO ia hoʻi kahi mea e kūʻē i ke kūlana o ka hemophilia, a i ʻole e paipai i ke kāpili ʻana o ke koko.
- Kaʻina Puaʻa: ʻO kēia ka mea kūikawā. ʻO "Puaʻa" ke ʻano o kahi mea e pili ana i nā puaʻa. Hana ʻia kēia lāʻau pale ma ke ʻano like me ke kaʻina o ka mea hoʻopaʻa koko o nā puaʻa. No ke aha i hana ʻia ai pēlā? No ka mea, ʻoiai nā antibodies i loko o ko mākou kino e ʻike a hoʻouka i ka Factor VIII kanaka, ʻaʻole lākou e ʻike i ke ʻano like me kēia mea puaʻa. No laila, hiki iā lākou ke kōkua i ke kaʻina hana hoʻopaʻa koko me ka ʻole o ka hoʻouka ʻana.
- Recombinant: ʻO ke ʻano kēia, ʻaʻole i loaʻa pololei ka lāʻau lapaʻau mai nā holoholona, akā ua hana ʻia i loko o kahi keʻena hoʻokolohua e hoʻohana ana i ka biotechnology (ʻenehana DNA recombinant) ma ke ʻano maʻemaʻe a palekana hoʻi.
I ka ʻōlelo maʻalahi, ʻo ka hana a kēia lāʻau pale, ʻo ia ke kāohi i ke kahe koko nui ma o ka hāʻawi ʻana i kahi mea e pono ai kou kino e hoʻopaʻa i ke koko me ka ʻole o ka hoʻopilikia ʻia e nā antibodies.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau
Ma muli o kahi lāʻau lapaʻau kūikawā kēia, he mea nui loa ia e hoʻomaopopo i kāu kauka e pili ana i kou mōʻaukala olakino piha ma mua o ka hoʻomaka ʻana i ka lāʻau.
| Nā mea e pono ai ʻoe e ʻike | No ke aha lā ia? |
|---|---|
| Nā maʻi ʻaleka | E hōʻoia e haʻi i kāu kauka inā he maʻi ʻoe i kēia lāʻau lapaʻau, protein puaʻa, protein hamster (hoʻohana ʻia i ka hana ʻana i kekahi mau lāʻau lapaʻau), a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha. |
| Ka hāpai ʻana a i ʻole ka hānai ʻana i ka waiū | He mea nui loa e hoʻomaopopo i kāu kauka inā ʻoe e hāpai ana, e hoʻāʻo ana e hāpai, a i ʻole e hānai waiū ana. |
Pehea ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
ʻAʻole kēia he lāʻau lapaʻau āu e ale ai e like me ka pila maʻamau. He inikini intravenous kēia. Hāʻawi pinepine ʻia kēia lāʻau lapaʻau ma kahi haukapila a i ʻole ke keʻena lapaʻau e ke kauka a kahu maʻi paha i aʻo ʻia. ʻO kēia no ka mea pono ʻoe e nānā pono ʻia i ka wā e hāʻawi ʻia ai ka lāʻau lapaʻau.
He mea kākaʻikahi loa, ua kuhikuhi ʻia kekahi mau maʻi e loaʻa i kēia lāʻau pale ma ka home. Inā pēlā, e kuhikuhi ʻia ʻoe pehea e hoʻomākaukau ai a hoʻokomo pono ai. Mai lawe ʻoi aku ma mua o ke kuhikuhi a ke kauka a lawe paha i ka lāʻau lapaʻau ma mua o ka manawa i kuhikuhi ʻia.
He aha ka mea e hana ai inā hoʻonui ʻia ka nui o ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe ʻoe ma mua o ka nui i kuhikuhi ʻia, e kelepona koke i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo a i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
He aha inā e hala wau i kahi lāʻau?
He mea nui loa ka lawe ʻana i ka lāʻau i ka manawa kūpono i ka wā o kēia lāʻau lapaʻau. Inā ʻoe e hala i kahi manawa i ka haukapila, e kāhea koke aku i kāu kauka no ka ʻōlelo aʻo. Inā ʻoe e lawe ana i ka lāʻau lapaʻau ma ka home, e lawe i ka lāʻau i poina i ka wā e hoʻomanaʻo ai ʻoe. Eia nō naʻe, inā kokoke ka manawa no ka lāʻau aʻe, e kāpae i ka lāʻau i poina a lawe i ka lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe pālua i ka lāʻau no kekahi kumu.
Nā mea e noʻonoʻo ai i ka wā o ka mālama ʻana
- Nā Hoʻāʻo Koko: ʻOiai e lawe ana i kēia lāʻau lapaʻau, e kauoha kāu kauka i nā hoʻāʻo koko maʻamau e nānā inā e hana pono ana, pehea e paʻa ai kou koko, a inā paha e hana ana kou kino i nā antibodies hou e kūʻē i ka lāʻau lapaʻau. He mea nui loa ia ʻaʻole e haʻalele i kēia mau hoʻāʻo.
- Ka nānā ʻana i ke olakino: ʻOiai ʻoe ma ka haukapila, e nānā pono nā limahana olakino iā ʻoe. E makaʻala mau lākou i nā hōʻailona o ke kahe ʻana o ke koko a me nā maʻi allergies.
- ID Lapaʻau: Inā he hemophilia kou, he mea nui loa ia e lawe mau i kahi kāleka ID lapaʻau a i ʻole ke kūpeʻe lima/kaula e papa inoa ana i kou kūlana, nā lāʻau lapaʻau āu e lawe ai, ka nui o ka lāʻau, a me nā manawa. Hiki iā ia ke kōkua i ka hoʻopakele ʻana i kou ola i kahi pilikia.
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki i kēia lāʻau lapaʻau ke hana i nā hopena ʻaoʻao, ʻoiai ʻaʻole i loaʻa i nā kānaka a pau. Inā ʻike ʻoe i kekahi o kēia mau hōʻailona, e haʻi koke aku i kāu kauka a kahu maʻi paha.
| ʻAno o ka hopena ʻaoʻao | Nā hōʻailona |
|---|---|
| Nā hopena aleri koʻikoʻi | ʻŌhūhū ʻili, maneʻo a hives paha, pehu ʻana o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu, paʻakikī ke hanu. Hiki i kēia mau mea ke koʻikoʻi loa a pono e hōʻike koke ʻia. |
| Ka Hoʻomohala ʻana i ka Mea Hoʻōki | Inā ʻaʻole hiki iā ʻoe ke kāohi i ke kahe ʻana o ke koko ma hope o ka lawe ʻana i ka lāʻau lapaʻau, ʻo ia hoʻi ua hoʻomaka paha kou kino e hana i nā antibodies e kūʻē i kēia lāʻau lapaʻau. E haʻi i kāu kauka e pili ana i kēia. |
Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē aʻe i ʻōlelo ʻole ʻia ma kēia papa inoa, e kamaʻilio pū me kāu kauka e pili ana iā lākou.
Nā pilina me nā lāʻau lapaʻau ʻē aʻe
Hiki i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei ke launa pū me kēia lāʻau pale, ʻoiai ʻo Factor VIIa.Pono ʻoe e makaʻala loa i ka wā e hoʻohana ai i kēia me nā lāʻau lapaʻau ʻē aʻe e hoʻokahe koko, e like me:
No laila, e hāʻawi i kāu kauka i kahi papa inoa piha o nā lāʻau lapaʻau āpau āu e lawe nei (nā lāʻau lapaʻau i kuhikuhi ʻia, nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui). Eia kekahi, e haʻi i kāu kauka inā puhipaka ʻoe a inu waiʻona paha.
Leka Lawe-Home
- Hoʻohana ʻia kēia lāʻau pale no ka kaohi ʻana i ke kahe koko nui ma kahi maʻi laha ʻole i kapa ʻia ʻo Acquired Hemophilia A.
- He lāʻau lapaʻau kūikawā kēia i hoʻokomo ʻia i loko o kahi aa koko, i hāʻawi pinepine ʻia ma ka haukapila.
- E hōʻoia e haʻi i kāu kauka e pili ana i kāu mau maʻi allergies a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- Inā loaʻa iā ʻoe nā hōʻailona maʻi ʻaleka koʻikoʻi (ʻulaʻula o ka ʻili, ka pehu ʻana, ka paʻakikī o ka hanu ʻana), e ʻimi koke i ke kōkua lapaʻau.
- Mai hōʻalo i nā hoʻāʻo koko a me nā manawa i kauoha ʻia e kāu kauka.
- Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me nā poʻe ʻē aʻe. Inā he mau nīnau kāu, e kamaʻilio me kāu kauka.
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