Aia kekahi mau lā, ʻaʻohe mea nui ka nui o ka hiamoe a mākou e loaʻa ai, ʻaʻohe mea nui ka nui o ka hoʻomaha a mākou e loaʻa ai, manaʻo mākou ʻaʻohe ikaika i koe i loko o mākou. Me he mea lā ua omo kekahi i ka ikaika a pau mai loko mai o mākou. Inā ua lilo kēia ʻano i ʻāpana o kou ola no nā mahina, mai hoʻokuʻu iā ia he luhi maʻamau wale nō. I kēia lā, e kamaʻilio mākou e pili ana i kēlā luhi lōʻihi ʻaʻole e nalowale me ka hoʻomaha. I ka lāʻau lapaʻau, kapa mākou i kēia ʻo Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, a i ʻole (ME/CFS) no ka pōkole.
No ke aha i paʻakikī ai ke ʻike i kēia maʻi?
ʻO kekahi o nā pilikia nui me kēia maʻi, ʻo ia ka ʻole o kahi hoʻāʻo koko kikoʻī, X-ray, a i ʻole scan e hōʻoia i kēia. Eia kekahi, ʻo nā hōʻailona nui o kēia maʻi, e like me ka luhi nui, ka paʻakikī i ka hana ʻana i nā mea liʻiliʻi loa, a me nā pilikia me ka hoʻomanaʻo a me ka nānā ʻana, he mau hōʻailona nō hoʻi ia o nā maʻi ʻē aʻe he nui. No laila, he paʻakikī i ke kauka ke ʻōlelo koke aku he ME/CFS kēia. He manawa iki ia, no ka mea, pono mua ʻoe e hōʻoia ʻaʻohe maʻi ʻē aʻe.
I ka ʻōlelo maʻalahi, ʻo ME/CFS kahi hōʻailona e waiho nei ma hope o ka hoʻopau ʻia ʻana o nā mea ʻē aʻe a pau. No laila, pono kēia huakaʻi i ke ahonui.
ʻO ka mea mua āu e hana ai: e ʻike i ke kauka
Inā he mau kānalua kāu e loaʻa ana kēia mau hōʻailona iā ʻoe, ʻo ka mea maikaʻi loa e hana ai, ʻo ia ke ʻike koke i kāu kauka ʻohana (GP) . Ua hōʻike ʻia e ka noiʻi ʻana, ʻo ka wikiwiki o ka ʻike ʻia ʻana a me ka mālama ʻia ʻana o kēia maʻi, ʻoi aku ka maikaʻi o ka hopena.
E nīnau aku ke kauka iā ʻoe i nā kikoʻī he nui e pili ana i kou kūlana olakino.
- I ka manawa hea ʻoe i hoʻomaka ai e manaʻo i kēia luhi?
- Āhea e piʻi ai?
- He aha nā ʻano lāʻau lapaʻau āu e lawe ai? (Pono ʻoe e haʻi pū i nā lāʻau lapaʻau maʻamau āu e kūʻai ai mai ka hale kūʻai lāʻau lapaʻau.)
- Aia kekahi mau huaora a i ʻole nā mea hoʻohui lāʻau lapaʻau ʻē aʻe āu e lawe ai?
He mea nui kēia mau mea a pau. No ka mea, i kekahi manawa, hiki i ka luhi ke lilo i hopena ʻaoʻao o nā lāʻau lapaʻau ʻē aʻe āu e lawe nei. Eia kekahi, hiki i kekahi mau huahana lāʻau lapaʻau āu e manaʻo ai he "kūlohelohe" ke hoʻopilikia i kou kino. E nānā pono paha kāu kauka iā ʻoe a, inā pono, e holo i ke koko, ka mimi, a me nā hoʻokolohua ʻē aʻe. Hana ʻia kēia mau mea a pau e hoʻoholo mua inā loaʻa iā ʻoe kekahi maʻi hiki ke mālama ʻia.
He aha nā maʻi ʻē aʻe i loaʻa nā hōʻailona like?
Aia kekahi mau kūlana ʻē aʻe i hiki ke loaʻa nā hōʻailona like me ME/CFS. E hoʻāʻo mua ke kauka e kāpae i kēia mau kūlana.
- "Mono" (Mononucleosis): He maʻi viral nō hoʻi kēia e hoʻoulu ai i ka luhi nui.
- Maʻi Lyme:He maʻi i lawe ʻia e ka ʻuku e hoʻoulu ai i ka ʻeha a me ka luhi o nā hono.
- Lupus: He maʻi i hoʻokumu ʻia e kahi pilikia me ka ʻōnaehana pale o ke kino.
- Sclerosis lehulehu: He maʻi e hoʻopilikia ai i ka ʻōnaehana nerve.
- Fibromyalgia: ʻO kahi kūlana e hoʻoulu ai i ka ʻeha a me ka luhi ma ke kino holoʻokoʻa.
- Nā maʻi hiamoe: Nā kūlana e hoʻoulu ai i ka insomnia.
- Kaumaha: Hiki i ke kaumaha ke hana i ka luhi kino nui.
E noʻonoʻo, inā he maʻi hiki ke mālama ʻia ma kēia papa inoa, hiki ke ho'ōla loa ʻia kou luhi me ka lāʻau lapaʻau kūpono. No laila he mea nui ka kāpae ʻana i nā maʻi ʻē aʻe e like me kēia.
Pehea e ʻike ʻia ai ʻo ME/CFS?
Ma hope o ka hoʻopau ʻana i nā kūlana ʻē aʻe a pau, e nānā pono kāu kauka i kāu mau hōʻailona. I mea e ʻike ʻia ai ʻoe me ME/CFS, pono ʻoe e hālāwai me kahi pūʻulu o nā hōʻailona kikoʻī. I mea e kōkua iā ʻoe e hoʻomaopopo pono i kēia mau mea, e nānā i ka pakuhi ma lalo.
| Māhele hōʻailona | Wehewehena |
|---|---|
| ʻO ke koi nui | ʻO ka luhi nui e mau ana no nā mahina ʻeono a ʻoi , ʻaʻole e hoʻomaikaʻi ʻia me ka hoʻomaha ʻana ma kahi moe, a hōʻemi nui i kāu mau hana o kēlā me kēia lā (hana, hoʻonaʻauao, nā hana pilikanaka). |
| Eia kekahi, pono e loaʻa nā ʻano kumu ʻekolu: | |
| 1. Ka Malaise Ma hope o ka Hoʻoikaika Kino | Hoʻonui ʻia nā hōʻailona ma hope o ka hoʻoikaika kino a noʻonoʻo paha (e laʻa, hele i ka hale kūʻai, heluhelu puke). Hiki i kēia maʻi ke mau no nā hola a i ʻole nā lā. |
| 2. Hiamoe Hoʻomaha ʻole | ʻAʻohe mea pehea ka lōʻihi o kou hiamoe ʻana, ala aʻe ʻoe i ke kakahiaka me ka manaʻo ua hoʻomaha a ua hou ʻia. Me he mea lā ua ala ʻoe i ka pō a pau. |
| 3. Ka emi ʻana o ka hiki ke hana i nā hana o kēlā me kēia lā | ʻO ka hiki ʻole ke hana i nā hana maʻamau o kēlā me kēia lā (hele i ka hana, hana i nā hana o ka home, aʻo ʻana) no nā mahina he 6 a ʻoi ma muli o ka luhi. |
| Ma waho aʻe o nā mea a pau i luna nei, pono e loaʻa ma ka liʻiliʻi hoʻokahi o kēia mau ʻano ʻelua: | |
| 1. Nā pilikia noʻonoʻo a me ka hoʻomanaʻo (Cognitive Impairment) | Paʻakikī ke kau ʻana i ka manaʻo, paʻakikī ke hoʻomanaʻo i nā mea, a me ka manaʻo o ka "noe" i loko o kou mau manaʻo (Brain Fog). |
| 2. Ka Hoʻomanawanui ʻole Orthostatic | Hiki ke loaʻa ka poniuniu , ka nāwaliwali, a me ka nāwaliwali ke kū koke ʻoe mai kahi noho ʻana a i ʻole kahi moe ʻana. Hiki nō hoʻi ke ʻike maka pōwehiwehi a i ʻole ka ʻike ʻana i nā kiko. |
Hiki ke lōʻihi ka manawa e loaʻa ai kahi hōʻailona. I loko o ia manawa, e nīnau i kāu kauka pehea e mālama ai i kāu mau hōʻailona. E hoʻomaka ʻo ia iā ʻoe i nā lāʻau lapaʻau a hoʻomau i ka nānā ʻana iā ʻoe e ʻike inā e hana ana lākou.
Leka Lawe-Home
- ʻAʻole luhi maʻamau: Inā loaʻa iā ʻoe ka luhi nui e mau ana no nā mahina ʻeono a ʻaʻole i hōʻoluʻolu ʻia e ka hoʻomaha ʻana, mai hoʻowahāwahā iā ia.
- E ʻike koke i ke kauka: He mea nui e ʻimi i ka ʻōlelo aʻo lapaʻau no ka loaʻa ʻana o kahi hōʻailona pololei a e hōʻoia ʻaʻohe mau maʻi olakino ʻē aʻe.
- ʻAʻohe hoʻāʻo kikoʻī: ʻAʻohe hoʻāʻo kikoʻī e ʻike ai iā ME / CFS, a he hōʻailona ia i hana ʻia ma hope o ka hoʻopau ʻana i nā maʻi ʻē aʻe.
- E hoʻomanawanui: Hiki ke lōʻihi ka manawa no ke kaʻina hana hōʻoia. E hana pū me kāu kauka e mālama i kāu mau hōʻailona i kēia manawa.
- ʻAʻole ʻoe hoʻokahi: He kūlana kēia i ʻike ʻia e ka poʻe he nui a puni ka honua. Me ka hoʻokele kūpono a me ke kākoʻo, hiki ke ʻoi aku ka maikaʻi o ke ola.
💬 Comments (0)
ʻAʻohe manaʻo i kau ʻia. Hoʻohui i kāu manaʻo ma ʻaneʻi no ka manawa mua.
Hoʻohui i kāu manaʻo