Ua kuhikuhi anei kāu kauka iā ʻoe i kahi lāʻau i kapa ʻia ʻo Eliglustat ma ke ʻano he lāʻau lapaʻau no ka maʻi Gaucher ʻano I? Ua ʻike nui ʻia kēia lāʻau lapaʻau ma ka inoa inoa ʻo CERDELGA. Inā pēlā, he mea nui loa kēia ʻatikala iā ʻoe. E kamaʻilio kākou e pili ana i kēia lāʻau lapaʻau, a me nā mea e makaʻala ai i ka wā e hoʻohana ai, ma ke ʻano maʻalahi a pololei.
He aha maoli ka hoʻohana ʻia ʻana o kēia lāʻau lapaʻau?
I ka ʻōlelo maʻalahi, he lāʻau lapaʻau lōʻihi ʻo Eliglustat no ka maʻi Gaucher ʻano I i nā pākeke. Akā, ʻaʻole ia e hāʻawi ʻia i nā kānaka a pau. No ka hōʻoia ʻana he kūpono kēia lāʻau lapaʻau no kou kino, e hana mua kāu kauka i kahi hoʻokolohua kūikawā. Ma hope o kēlā hoʻokolohua e hoʻoholo ai ʻo ia inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
ʻAe, i kēia manawa aia kekahi mau mea āu e kūkākūkā ai me kāu kauka ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau. No ka mea, he mea nui loa ia no kou palekana ke loaʻa i kāu kauka kahi kiʻi piha o kou olakino. Inā loaʻa iā ʻoe kekahi o kēia mau mea, e hōʻoia e haʻi iā lākou e pili ana i ia mea.
- Inā loaʻa iā ʻoe ka maʻi puʻuwai , ua loaʻa mua iā ʻoe ka hānō puʻuwai , a i ʻole he puʻuwai kūpono ʻole kou.
- Inā he maʻi puʻupaʻa kou .
- Inā he maʻi kou i ke akepaʻa .
- Inā ʻoe e hāpai ana a i ʻole e hoʻāʻo ana e hāpai.
- Inā he makuahine hānai waiū ʻoe.
- Inā ua loaʻa iā ʻoe kahi hopena maʻi i ka eliglustat a i ʻole nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, a i ʻole nā mea hoʻoluʻu.
Pehea e pono ai iaʻu ke hoʻohana i kēia lāʻau lapaʻau?
He mea nui loa e hahai i nā ʻōlelo kuhikuhi pololei no ka hoʻohana ʻana i kēia lāʻau.
- Loaʻa kēia lāʻau lapaʻau ma ke ʻano he capsule. E lawe ma ka waha me ke aniani wai .
- E lawe iā ia e like me ke kauoha a ke kauka, i ka manawa kūpono.
- He mea nui loa: Mai uhaʻi, kuʻi, a nau paha i kēia capsule. E ale holoʻokoʻa.
- ʻO kekahi mea nui loa , ʻaʻole loa e lawe i kēia lāʻau lapaʻau me ka wai pomelo. Hiki i nā mea ʻelua ke hana i kahi hopena koʻikoʻi.
- Hiki iā ʻoe ke lawe i kēia lāʻau lapaʻau me ka meaʻai a me ka ʻole. Eia nō naʻe, inā ʻeha kou ʻōpū, ʻoi aku ka maikaʻi o ka lawe ʻana me ka meaʻai.
- Mai ho'ōki koke i ka lawe ʻana i kēia lāʻau me ka ʻole o ke aʻo ʻana a kāu kauka.
ʻŌlelo Aʻo: Ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like me kekahi.
He aha inā lawe nui wau i ka lāʻau lapaʻau?
Inā manaʻo koke ʻoe ua lawe nui ʻoe i kēia lāʻau lapaʻau, mai hoʻokaʻulua. E kāhea koke aku i ke Kikowaena ʻIke Poisons Lahui ma ka Halemai Lahui ʻo Colombo , a i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
He aha kāu e hana ai inā e poina ʻoe i kahi mahele o ka lāʻau lapaʻau?
Inā poina iā ʻoe ke lawe i kahi lāʻau, mai hopohopo. E lawe i ka lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi e hoʻopiha ai i kahi lāʻau i poina.
Nā lāʻau lapaʻau ʻē aʻe e launa pū me kēia lāʻau lapaʻau
He ʻāpana koʻikoʻi loa kēia. Hiki i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei ke launa pū me Eliglustat. No laila, e hāʻawi i kāu kauka i kahi papa inoa piha o nā lāʻau lapaʻau āpau āu e lawe nei, me nā lāʻau lapaʻau i kauoha ʻia a me nā lāʻau lapaʻau kūʻai ʻole ʻia, nā mea kanu, a me nā mea hoʻohui. Eia kekahi, e haʻi i kāu kauka inā puhipaka ʻoe a inu waiʻona paha.
| Nā lāʻau lapaʻau ʻaʻole pono e lawe pū ʻia me Eliglustat | |
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| Nā lāʻau lapaʻau ʻē aʻe e hiki ke launa pū me Eliglustat | |
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ʻAʻole i piha kēia papa inoa, no laila ʻoi aku ka maikaʻi o ka haʻi ʻana i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe ai.
He aha nā hopena ʻaoʻao e hiki ke kū mai i ka wā e lawe ai i ka lāʻau?
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke hana i nā hopena ʻaoʻao i kekahi poʻe. Hiki i kekahi o kēia mau mea ke koʻikoʻi, no laila he mea nui e makaʻala iā lākou.
| ʻAno o ka hopena ʻaoʻao | Nā ʻano |
|---|---|
| Nā hopena ʻaoʻao koʻikoʻi e pono e hōʻike koke ʻia i ke kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe a i ʻole ke alelo. |
| Nā loli weliweli i ka helu o ka puʻuwai | ʻEha ka umauma, ka poniuniu, ka puʻuwai wikiwiki a ʻano ʻole paha, ka manaʻo e kuʻi ana kou umauma, nāwaliwali, pilikia ka hanu ʻana. |
| Nā hopena ʻaoʻao maʻamau e pono ai ʻoe e haʻi i kāu kauka inā hoʻomau lākou a hoʻopilikia paha | |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | ʻEha ʻōpū, maʻi pākīkī, nausea. |
| Nā maʻi ʻē aʻe | ʻEha poʻo, ʻeha ma nā lālā a i ʻole ke kua, luhi. |
Pehea ʻoe e mālama ai i kāu lāʻau lapaʻau?
- E mālama ʻia mai nā keiki aku.
- E mālama ma kahi mahana ma waena o 20 a me 25 kekelē Celsius (68-77 Fahrenheit).
- E hoʻolei aku i ka lāʻau lapaʻau i pau ka lā.
Leka Lawe-Home
- He lāʻau lapaʻau kūikawā ʻo Eliglustat no ka maʻi Gaucher ʻano I. E hoʻāʻo kāu kauka iā ʻoe e ʻike inā he kūpono kēia iā ʻoe.
- E hōʻalo i ka inu ʻana i ka wai huaʻai a pau i ka wā e lawe ana i kēia lāʻau.
- He mea nui e hoʻomaopopo i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei, nā huaora, a me nā huahana lāʻau lapaʻau āu e lawe nei.
- E kāhea koke aku i kāu kauka inā loaʻa iā ʻoe nā hōʻailona e like me ka ʻeha o ka umauma, ka dizziness, a i ʻole ka puʻuwai puʻuwai kūpono ʻole.
- Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me nā poʻe ʻē aʻe. Inā he mau nīnau kāu e pili ana i ka lāʻau lapaʻau, e kamaʻilio me kāu kauka.
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