ʻAʻole anei i kāohi ʻia ke kūpono o ke keiki e ka lāʻau lapaʻau? E kamaʻilio kākou e pili ana i ke ʻoki ʻana o Hemispherectomy

Loaʻa pinepine anei i kāu keiki liʻiliʻi nā hopu ʻana? Pono ʻoe e hopohopo nui no ka mea ʻaʻole hiki iā ʻoe ke kaohi iā lākou me ka nānā ʻole i nā lāʻau lapaʻau a pau a lākou e hāʻawi ai iā ʻoe. I kekahi manawa, kamaʻilio nā kauka e pili ana i kahi ʻoki kino nui i kapa ʻia ʻo 'Hemispherectomy' i loko o ia ʻano kūlana. He mea maʻamau ka manaʻo makaʻu loa ke lohe ʻoe i kēia inoa. No ka mea, ʻo ia hoʻi ke wehe ʻana i ka hapalua o ka lolo. Akā, mai hopohopo, i kēia lā e kamaʻilio maʻalahi mākou e pili ana i kēia, ma ke ʻano hiki iā ʻoe ke hoʻomaopopo.

I ka ʻōlelo maʻalahi, he aha ka Hemispherectomy?

ʻO ka Hemispherectomy ka wehe ʻoki ʻana i ka lolo o ke keiki a pau a i ʻole kekahi hapa (hoʻokahi ʻaoʻao) a i ʻole e ʻoki ana i kona pilina me ke koena o ka lolo. ʻO "Hemi" ke ʻano o "hapalua." He ʻoki ʻoki kakaikahi loa kēia, he ʻoki kūikawā loa.

Hana nui ʻia kēia no nā keiki me ka maʻi epilepsy i hiki ʻole ke kāohi ʻia e ka lāʻau lapaʻau. I kēlā mau keiki, ʻano ʻē loa kekahi ʻaoʻao o ka lolo, a ʻo ia ʻaoʻao ka mea e hoʻoulu ai i nā hopu ʻana. No laila, ʻo ka pahuhopu o kēia ʻoki kino, ʻo ia ke hoʻōki i nā hopu ʻana ma ka wehe ʻana a i ʻole ka hoʻokaʻawale ʻana i kēlā ʻāpana maʻi.

ʻElua ʻano nui o kēia ʻoki kino.

ʻElua mau ʻano hana nui no ka hana ʻana i kēia ʻoki kino. E koho nā kauka i ke ʻano hana kūpono loa ma muli o ke kūlana o kāu keiki.

He aha ke ʻano o nā keiki e pono ai kēia ʻoki kino?

ʻAʻole hana ʻia kēia ʻoki kino no kēlā me kēia keiki i loaʻa i ka ʻeha. Hana ʻia ia ma nā hihia kūikawā loa. Inā loaʻa i kāu keiki kēia mau hōʻailona a i ʻole nā ​​​​kūlana, e noʻonoʻo paha kāu kauka i kēia ʻoki kino:

• Loaʻa i nā maʻi (epilepsy) i hiki ʻole ke kāohi ʻia me ka lāʻau lapaʻau .
• Ka nāwaliwali ma kekahi ʻaoʻao o ke kino. Eia kekahi laʻana, ʻaʻole hiki ke hoʻohana i kekahi lima e like me kekahi.
• Ka nalowale ʻana o ka ʻike peripheral.
• Hōʻike kahi scan MRI o ka lolo i kahi ʻano ʻē ma kekahi ʻaoʻao o ka lolo.
• Hiki i nā kuʻi pinepine ke hoʻoulu i ka lohi o ka ulu ʻana o ke keiki a me ka ulu ʻana .

Nā kūlana e hiki ai ke hana i kēia mau hōʻailona:

• Nā ʻano kīnā ʻole o ka ulu ʻana o ka cortex o ka lolo: Kekahi mau kīnā e kū mai ana i ka wā o ka ulu ʻana o ka cortex o ka lolo.
• ʻO ka Perinatal Infarction (Stroke): He hahau i loaʻa i loko o ka ʻōpū a i ʻole ma hope o ka hānau ʻana.
• Hemimegalencephaly: ʻOi aku ka nui o kekahi ʻaoʻao o ka lolo ma mua o kekahi.
• ʻO ka Sturge-Weber Syndrome: He ʻano e ulu ai nā kīʻaha koko i ke ʻano ʻē. Hiki ke loaʻa kēia mau mea i loko o ka lolo.
• ʻO ka Rasmussen's Encephalitis: He kūlana e hoʻopilikia wale ana i hoʻokahi ʻaoʻao o ka lolo a ke kumu o nā kūlou ma muli o ka mumū.

He aha ka mea e hana ʻia ma mua a i ka wā o ke ʻoki kino?

ʻO ka hoʻomākaukau ʻana i kāu keiki no ia ʻano hana nui paha he pilikia nui ia nou, akā e kōkua nā kauka a me nā kahu maʻi ma ka haukapila iā ʻoe ma ka wehewehe ʻana i nā mea āpau.

Ma mua o ke ʻoki kino

I ka lā ma mua o ke ʻoki kino, e noi ʻia ʻoe e hoʻōki i ka ʻai ʻana a me ka inu ʻana ma hope o kekahi manawa. E hāʻawi ʻia iā ʻoe nā kuhikuhi maopopo e pili ana i nā lāʻau lapaʻau a kāu keiki e lawe nei, nā mea e hoʻōki ʻia, a me nā mea e hoʻomau ʻia. Hiki iā ʻoe ke ʻoki i kekahi lauoho a wehe loa paha ma ka ʻaoʻao o ke poʻo o kāu keiki kahi e hana ʻia ai ke ʻoki kino.

I ka wā o ke ʻoki kino

Hāʻawi ʻia ke keiki i ka anesthesia laulā , ka mea e hiamoe loa ai lākou a ʻaʻohe ʻeha. ʻO ke ʻoki ʻana he 5 mau hola, i kekahi manawa ʻoi aku ka lōʻihi. E hahai nui ke kauka ʻoki i kēia mau ʻanuʻu:

1. Ke wehe ʻana i kahi ʻāpana liʻiliʻi o ke poʻo (ua kapa ʻia kēia he `Craniotomy`).

2. Ka wehe ʻana a i ʻole ka wehe loa ʻana i kahi ʻāpana o ke kino ma ka ʻaoʻao maʻi o ka lolo.

3. Ke ʻoki ʻana i nā olonā e hoʻopili ana i nā ʻaoʻao ʻelua o ka lolo (corpus callosum). (Ua kapa ʻia kēia ʻo 'Corpus Callosotomy').

4. Hoʻihoʻi ʻia ka ʻāpana o ke poʻo i wehe ʻia i kona wahi a humuhumu ʻia ka ʻili.

He aha ka mea e hana ʻia ma hope o ke ʻoki kino? A he aha nā hopena?

Ma hope o ke ʻoki kino, ua hoʻokomo ʻia ke keiki i ka Intensive Care Unit (ICU) a nānā pono ʻia. Ma hope o ʻelua a ʻekolu mau lā, ua hoʻoneʻe ʻia lākou i kahi keʻena maʻamau.

Ke hana nei kekahi hui o nā loea e kōkua i ke keiki e ho'ōla.

• Hoʻōla Kino: Kōkua iā ʻoe e hele, holo, a mālama i ke kaulike.
• ʻO ka Lapaʻau Hana: Ke aʻo aku nei iā ʻoe pehea e hana ai i nā hana o kēlā me kēia lā e like me ka ʻai ʻana a me ke kāhiko ʻana iā ʻoe iho.
• Lapaʻau ʻŌlelo: Kōkua i ka hoʻoponopono ʻana i nā pilikia i ka ʻōlelo ʻana a me ka hōʻike ʻana i nā manaʻo.

ʻAʻole anei he mau pilikia a me nā pilikia?

E like me nā ʻoki kino nui a pau, aia nā pilikia a me nā pilikia e hiki mai ana, akā he mea kakaikahi loa kēia.

I ka wā e pono ai ʻoe e kamaʻilio me ke kauka me ka wikiwiki

Ma hope o kou hoʻi ʻana mai ka haukapila mai, pono ʻoe e makaʻala pono i kāu keiki. Inā ʻike ʻoe i kekahi o nā hōʻailona ma lalo nei, e kāhea koke aku i kāu kauka a lawe paha i kāu keiki i ka Emergency Department (ETU) o ka haukapila kokoke loa.

• Ke hōʻike nei i nā hōʻailona o ka maʻi, e like me ke kuni , ka pehu, ka ʻulaʻula, a i ʻole ka pus mai ka ʻeha ʻoki.
• Ka luaʻi pinepine ʻana, ka ʻeha poʻo nui, a me nā loli o ke ʻano (he mau hōʻailona paha kēia o kahi maʻi i kapa ʻia ʻo Hydrocephalus).
• Ka hoʻi hou ʻana o kahi hopu ʻana.

ʻAʻole he mea maʻalahi ka hoʻoholo ʻana e pili ana i ke ʻoki kino no nā mākua. He kaumaha nui ia. Akā e hoʻomanaʻo, e ʻōlelo wale ke kauka i ia ʻoki kino inā maopopo loa iā ia ʻaʻohe koho ʻē aʻe a he mea ia e pōmaikaʻi nui ai ke ola o ke keiki.