Ua ʻike anei ʻoe i kahi ʻāpana ʻeleʻele e like me ke apo a puni ka iris o ka maka o kekahi? Malia paha ua haʻi aku kekahi kauka iā ʻoe e pili ana i kēia. Makaʻu paha kekahi poʻe e hōʻino kēia i ko lākou ʻike. Akā, ʻaʻole kēia he mea e hōʻino ai i ka maka. Eia naʻe, hiki i kēia ke lilo i hōʻailona koʻikoʻi o kekahi maʻi koʻikoʻi e hana nei i loko o ko mākou kino. I kēia lā, e kamaʻilio maʻalahi kākou e pili ana i kēia.
He aha nā apo Kayser-Fleischer (nā apo KF)?
I ka ʻōlelo maʻalahi, he mau apo ʻeleʻele nā apo Kayser-Fleischer e hana ʻia a puni ka ʻāpana kala o ko mākou mau maka, ʻo ia hoʻi ka iris. Hoʻokumu ʻia kēia mau apo e ke keleawe keu i loko o ko mākou kino e hōʻiliʻili ana i loko o ka maka . Hiki iā lākou ke ʻano he ʻōmaʻomaʻo, gula, a ʻeleʻele paha.
ʻO ka mea maikaʻi loa, ʻaʻole e hōʻeha kēia mau apo i kou ʻike .
Hoʻomaka kēia apo ma ke ʻano he piʻo ma ka ʻaoʻao o luna o ka maka. A laila pālahalaha mālie ia a lilo i apo piha. Aia kēia mau apo ma ka hui ʻana o ka ʻaoʻao keʻokeʻo o ka maka (sclera) a me ka ʻaoʻao moakāka ma luna o ka ʻaoʻao kala o ka maka (cornea).
ʻO ka mea nui loa, ʻo ia ka poʻe Sri Lanka me nā maka ʻeleʻele ʻeleʻele, ʻaʻole ʻike maopopo ʻia kēia mau apo Kayser-Fleischer. I ka poʻe me nā maka māmā, ʻoi aku ka maʻalahi o ka ʻike ʻana i kēia mau mea.
He aha ka ʻokoʻa o kēia mau mea mai nā puʻupuʻu maka ʻē aʻe?
Aia kekahi mau hihia ʻē aʻe kahi e loaʻa ai kēia ʻano pōʻai maka. No laila, he mea nui loa ia e hoʻokaʻawale a ʻike i kēia mau mea mai kekahi i kekahi. E nānā kākou i nā ʻokoʻa nui.
| ʻAno | Nā Apo o Kayser-Fleischer | ʻO Artus Senile | Nā Apo Fleischer |
|---|---|---|---|
| Waihoʻoluʻu | ʻŌmaʻomaʻo, gula, ʻeleʻele (nā kala ʻeleʻele) | Kala keʻokeʻo-hina (kala māmā) | Kala melemele-ʻeleʻele |
| Kumu | Waiho ʻana o ke keleawe | Ka waiho ʻana o nā lipids | Waiho hao |
| Nā maʻi pili | ʻO ka maʻi Wilson, ka maʻi akepaʻa | ʻO ke kolesterol kiʻekiʻe, ka ʻelemakule | Keratoconus - ka puka ʻana o ka maka e like me ke ʻano o ka cone |
| Ka ʻike ʻana | Pono ke kauka ophthalm e hana i kahi hoʻokolokolo slit-lamp. | ʻIke ʻia e ka maka ʻōlohelohe. | Pono e nānā ʻia me kahi microscope kūikawā (hoʻokolokolo slit-lamp). |
No ka nānā ʻana i ke alo o nā apo KF, hoʻohana ke kauka maka i kahi microscope kūikawā i kapa ʻia he hoʻokolokolo slit-lamp . I kekahi manawa, pono nō hoʻi kahi hoʻokolokolo hohonu i kapa ʻia ʻo gonioscopy . Pili kēia i ka hoʻomānoʻo ʻana i ka maka a me ke kau ʻana i kahi aniani kūikawā ma luna o ka maka.
He aha ke kumu nui o nā apo Kayser-Fleischer?
ʻO ke kumu nui a maʻamau o kēia, ʻo ia ka maʻi o Wilson .
He maʻi hoʻoilina ka maʻi Wilson e hoʻoulu ai i ke kino e hōʻiliʻili i ke keleawe ma mua o ka mea e pono ai. ʻO ka maʻamau, hoʻopau ko kākou akepaʻa i ke keleawe keu. Akā i loko o kekahi kanaka me ka maʻi Wilson, ʻaʻole hana pono kēlā kaʻina hana. A laila, hoʻomaka kēia keleawe e hōʻiliʻili i loko o ke akepaʻa, ka lolo, nā maka, a me nā ʻōpū ʻē aʻe.
- Maʻi akepaʻa: Hiki i ke kūkulu ʻana o ke keleawe ke hōʻino i ke akepaʻa a hoʻoulu i ka maʻi akepaʻa.
- ʻŌnaehana nerve a me nā pilikia noʻonoʻo: Ke hoʻomaka ka hōʻiliʻili ʻana o ke keleawe i loko o ka lolo, kū mai nā ʻano hōʻailona neurological a me nā pilikia noʻonoʻo. Eia kekahi laʻana:
- Nā maʻi neʻe e like me ka haʻalulu i nā lālā a me ka paʻakikī i ka hele wāwae
- Paʻakikī i ka ʻōlelo ʻana
- Hopohopo a me ke kaumaha
- Nā loli i ke ʻano a me ke ʻano pilikino
E noʻonoʻo, mai nā poʻe me nā hōʻailona neurological ma muli o ka maʻi WilsonHiki ke ʻike ʻia kēia mau apo KF ma kahi o 95 o 100 mau kānaka. ʻIke ʻia kēia ma kahi o 50% o nā kānaka me nā hōʻailona o ke akepaʻa wale nō.
Nā kumu ʻē aʻe
Ma waho aʻe o ka maʻi Wilson, aia kekahi mau kumu ʻē aʻe o nā apo KF. He mau maʻi pili i ke akepaʻa kēia.
- ʻO ka cholangitis biliary mua (PBC): He maʻi mau kēia e hōʻino ai i nā ʻauwai bile i loko o ke ake.
- ʻO ka cholestasis neonatal: Ke kahe ʻana o ka bile i loko o ke akepaʻa o nā pēpē hānau hou.
Pehea e mālama ʻia ai kēia?
ʻO ka mea nui a kākou e pono ai e hoʻomaopopo ma ʻaneʻi, ʻaʻole mālama nā kauka i ka ringworm ponoʻī. Mālama lākou i ke kūlana olakino kumu i hoʻokumu ai i ka ringworm.
Ka mālama ʻana i ka maʻi o Wilson
ʻElua mau pahuhopu nui o ka mālama ʻana.
1. Ka wehe ʻana i ke keleawe keu mai ke kino: Ua kapa ʻia kēia he copper chelation therapy . ʻO ke ʻano kēia, hāʻawi ʻia nā lāʻau lapaʻau kūikawā (chelating agents) e hoʻopaʻa i ke keleawe i loko o ke kino a wehe iā ia ma o ka mimi. ʻO nā hiʻohiʻona o kēia mau mea he mau lāʻau lapaʻau e like me penicillamine a me trientine.
2. Hoʻēmi i ka omo ʻana o ke keleawe mai ka meaʻai: Hana ʻia kēia ma ka hāʻawi ʻana i nā mea hoʻohui zinc . Pale ka zinc i ka omo ʻana o ke keleawe mai nā ʻōpū i loko o ke kino.
Ka lāʻau no nā maʻi akepaʻa ʻē aʻe
ʻAʻole hiki ke ho'ōla piha ʻia nā maʻi e like me ka primary biliary cholangitis (PBC). Eia nō naʻe, hāʻawi ʻia nā lāʻau lapaʻau e kāohi i nā hōʻailona a pale i ka holomua hou ʻana o ka maʻi. No ka cholestasis i nā pēpē hānau hou, hāʻawi ʻia nā waiū formula kūikawā, nā lāʻau anti-itch, a i nā hihia koʻikoʻi, pono paha ke ʻoki ʻana i ke akepaʻa .
ʻAʻole anei hiki iā kākou ke pale aku i ke kūkulu ʻia ʻana o kēia mau apo Kayser-Fleischer?
ʻAʻohe ala e pale pololei ai i ka hoʻokumu ʻia ʻana o kēia mau apo, no ka mea, ʻo nā kūlana e like me ka maʻi Wilson ke kumu o lākou he hoʻoilina a ʻaʻole hiki ke pale ʻia.
Akā, ʻo ka mea maikaʻi loa hiki iā ʻoe ke hana, ʻo ia ke ʻike iā ia i ka wā mua .
Inā loaʻa i kekahi o kou ʻohana pili, e like me ka makuahine, ka makuakāne, a i ʻole ke kaikaina, ka maʻi ʻo Wilson, he mea nui loa ia e kamaʻilio ʻoe me kāu kauka e pili ana i ia mea a e hoʻāʻo ʻia . Hiki i ka ʻike mua ʻana ke kōkua iā ʻoe e hoʻomaka i ka lāʻau lapaʻau ma mua o ka puka ʻana o nā hōʻailona a pale i nā pilikia koʻikoʻi.
He mau loa anei kēia mau apo?
ʻAʻole, ʻo kēia ka nūhou maikaʻi loa. ʻAʻole mau loa nā apo Kayser-Fleischer . Ke mālama pono ʻia ka maʻi kumu, no ka laʻana ka maʻi Wilson, e wehe ʻia ke keleawe keu i loko o ke kino. A laila e mae mālie kēia mau apo i loko o nā maka a nalowale loa .
No laila, ʻaʻohe pono e makaʻu i ka ʻike ʻana i kēia. ʻO ka mea nui loa, ʻo ia ka ʻike ʻana he hōʻailona ia a hoʻomaka e mālama i ke kūlana kumu i ka wā hikiwawe loa. Inā ʻōlelo kekahi kauka maka i kēia i kāu hoʻokolokolo maka, e kuhikuhi ʻo ia iā ʻoe i kahi loea kūpono no ka mālama hou aku.
Leka Lawe-Home
- ʻAʻole maʻi maka nā apo Kayser-Fleischer, akā he hōʻailona waho o kahi maʻi kumu (ʻo ia hoʻi ka maʻi o Wilson) i hoʻokumu ʻia e ke keleawe keu i loko o ke kino.
- ʻAʻole e hōʻeha kēia mau apo i kou ʻike.
- ʻIke mua ʻia kēia mau mea ke nānā ke kauka maka i nā maka me kahi microscope kūikawā.
- Hiki ke hoʻopau loa ʻia kēia mau apo me ka mālama pono ʻana i ka maʻi kumu.
- Inā loaʻa i kekahi o kou ʻohana ka maʻi ʻo Wilson, ʻoiai inā ʻaʻohe hōʻailona, he mea nui loa ia e ʻike i ke kauka a kamaʻilio e pili ana.
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