ʻO ka lāʻau pale ʻo Lanadelumab: E kōkua anei kēia iā ʻoe e pale aku i nā hoʻāla ʻana o HAE?

Loaʻa iā ʻoe kekahi Hereditary Angioedema, a i ʻole HAE no ka pōkole? Inā pēlā, ua ʻike paha ʻoe i ke ʻano ʻoluʻolu ʻole a me ka weliweli o ka ʻike koke ʻana, me ke kumu ʻole, i ka pehu ʻana ma nā ʻāpana like ʻole o kou kino, me kou maka, ʻāʻī, a me nā lālā. I kēia lā, makemake mākou e kamaʻilio e pili ana i kahi lāʻau pale kūikawā a nā kauka e ʻōlelo nei e kōkua i ka pale ʻana i kēia mau pehu koke. He lāʻau pale ia i kapa ʻia ʻo Lanadelumab.

I ka ʻōlelo maʻalahi, he aha ʻo Lanadelumab?

ʻO Lanadelumab kahi lāʻau lapaʻau i hāʻawi ʻia ma ke ʻano he injection e pale aku i nā hoʻouka koke ʻana o ka pehu (hoʻouka) i hoʻokumu ʻia e ke ʻano Hereditary Angioedema (HAE) .

No loko kēia lāʻau lapaʻau i kahi hui o nā lāʻau lapaʻau i kapa ʻia ʻo monoclonal antibodies. I nā huaʻōlelo maʻalahi, he protein ia i hana kūikawā ʻia i loko o kahi keʻena hoʻokolohua a hana e like me ka protein i loko o ka ʻōnaehana pale o ko mākou kino. Hana ia ma ka kaohi ʻana i kahi kaʻina hana i loko o ke kino e hoʻoulu ai i ka mumū HAE. Ma Sri Lanka, loaʻa kēia lāʻau lapaʻau ma lalo o ka inoa inoa ʻo TAKHZYRO.

Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau

Pono kāu kauka e ʻike i kou mōʻaukala olakino piha ma mua o ka hoʻomaka ʻana i kēia lāʻau pale. No laila, e hōʻoia e haʻi iā ia e pili ana i kēia mau mea:

• Nā Allergies: Inā loaʻa iā ʻoe kekahi mau allergies, ʻaʻole wale iā Lanadelumab, akā i kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, mea hoʻomalu, a i ʻole nā ​​​​​​mea hoʻoluʻu, e ʻoluʻolu e hoʻomaopopo mua iā mākou.
• Hāpai: Inā hāpai ʻoe a i ʻole e hoʻolālā ana e hāpai, e ʻōlelo pono i kāu kauka.
• Ka hānai waiū ʻana: Inā he makuahine ʻoe e hānai waiū ana i kahi keiki, pono ʻoe e hoʻomaopopo i kāu kauka.

Ma muli o kēia ʻike, e hoʻoholo kāu kauka inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha, a inā pēlā, he aha nā hana palekana āu e pono ai e hana.

Pehea e hoʻohana ʻia ai ka lāʻau pale?

Hāʻawi ʻia kēia lāʻau pale ma lalo o ka ʻili (ʻini subcutaneous).ʻO ka maʻamau, e aʻo aku kāu kauka a kahu maʻi paha iā ʻoe pehea e hāʻawi ai iā ʻoe iho i kēia inikini ma ka home. E wehewehe lākou pehea e hoʻomākaukau ai i ka lāʻau lapaʻau, ke ala kūpono e hāʻawi ai i ka inikini, a me kahi kūpono e inikini ai (e like me ka ʻōpū a i ʻole ka ʻūhā).

• E hahai pono i nā kuhikuhi: He mea nui loa e lawe i ka nui kikoʻī, i ka lā kikoʻī, e like me ka mea a kāu kauka e ʻōlelo ai iā ʻoe. Mai hoʻōki i ka lawe ʻana i kēia lāʻau a hiki i ka wā e ʻōlelo ai kāu kauka iā ʻoe.
• Ke hoʻolei ʻana i nā nila i hoʻohana ʻia: He mea nui loa kēia. Mai hoʻolei i kāu mau nila a me nā syringe i hoʻohana ʻia i loko o ka ʻōpala. E hoʻohana i kahi pahu kūikawā i kapa ʻia he "pahu ʻoi." Inā ʻaʻohe āu, e nīnau i kāu kauka pehea e loaʻa ai.
• Inā hāʻawi ʻia i nā keiki ʻōpio: Manaʻo ʻia kēia lāʻau lapaʻau i kekahi manawa no nā keiki ma luna o 2 mau makahiki. Eia nō naʻe, pono e mālama ʻia nā hana palekana kūikawā. No laila, inā ʻoe e hāʻawi ana i kēia i kahi keiki, e kamaʻilio me kāu kauka pediatric e pili ana i ia mea.

He aha inā lawe wau i ka nui o ka lāʻau lapaʻau?

Inā manaʻo ʻoe ua lawe nui ʻoe i ka lāʻau lapaʻau, mai hopohopo. Akā, mai lawe māmā hoʻi.

Hoʻomaopopo koʻikoʻi: Ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like i kēia lāʻau lapaʻau me kekahi.

He aha kāu e hana ai inā e poina ʻoe i kahi mahele o ka lāʻau lapaʻau?

I kekahi manawa, poina paha ʻoe e lawe i ka lāʻau pale i ka lā i manaʻo ʻia e lawe ai. Inā hana ʻia kēia, e lawe i ka lāʻau i ka wā e hoʻomanaʻo ai ʻoe. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau aʻe i kou hoʻomanaʻo ʻana, e kāpae i ka lāʻau i hala ʻole a lawe i ka lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe pālua i ka lāʻau e hoʻopiha ai i kahi lāʻau i hala ʻole.

Nā mea ʻē aʻe e launa pū me kēia lāʻau lapaʻau

ʻAʻole i aʻo nui ʻia e ʻike ai pehea e launa pū ai kēia lāʻau me nā lāʻau lapaʻau ʻē aʻe, akā ʻaʻole ia he manaʻo he palekana.

No laila, no kou palekana, e haʻi i kāu kauka e pili ana i nā mea āpau āu e hoʻohana ai.

• Nā lāʻau lapaʻau ʻē aʻe i kuhikuhi ʻia e nā kauka
• Nā lāʻau lapaʻau ʻole i kauoha ʻia
• Nā huaora a me nā mea hoʻohui meaʻai
• Lāʻau lapaʻau Ayurvedic a Sinhala paha (nā mea kanu)
• He mea nui nō hoʻi e ʻae ākea inā ʻoe e puhipaka, inu waiʻona, a hoʻohana paha i nā lāʻau ʻē aʻe.

Nā mea e hoʻomanaʻo ai i ka wā e lawe ai i ka lāʻau lapaʻau

• Nā nānā maʻamau: E hoʻomau i ka launa pū me kāu kauka i nā manawa a pau. E hele i ke keʻena lapaʻau i nā lā āna e ʻōlelo ai iā ʻoe e nānā i kou kūlana. Inā ʻaʻole e hoʻomaikaʻi kāu mau hōʻailona a i ʻole e ʻoi aku ka ʻino, e haʻi i kāu kauka.
• Pōniuniu: Hiki i kekahi poʻe ke manaʻo i ka pōniuniu i ka wā e lawe ana i kēia lāʻau lapaʻau. No laila, mai kū koke a noho koke paha. E akahele loa inā ʻoe ma luna o 65 mau makahiki . ʻO ka hoʻololi pinepine ʻana i nā kūlana e hiki ke kōkua i ka hōʻemi ʻana i ka pilikia o ka pōniuniu a me ka mae.

He aha nā hopena ʻaoʻao e hiki mai ana?

E like me nā lāʻau lapaʻau āpau, hiki i ka inikini lanadelumab ke hana i kekahi mau hopena ʻaoʻao. Hiki i kekahi o kēia mau mea ke koʻikoʻi a pono e nānā koke ʻia. He mea maʻamau kekahi. E wehewehe kākou iā lākou.

ʻAʻole i hoʻokomo ʻia nā hopena ʻaoʻao āpau i loko o kēia papa inoa. Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē aʻe ma waho aʻe o kēia mau mea, e kamaʻilio me kāu kauka e pili ana iā lākou.

Pehea e mālama ai i ka lāʻau lapaʻau?

• E mālama mai nā keiki: Mai waiho i kēia lāʻau lapaʻau i kahi hiki ʻole i nā keiki a me nā holoholona ke kiʻi.
• E mālama pono: Inā ʻoe e hoʻohana ana i kēia lāʻau lapaʻau ma ka home, e hāʻawi ʻia ʻoe i nā kuhikuhi no ka mālama ʻana (no ka laʻana, inā e hoʻokomo i loko o ka friji). E hahai pono i kēlā mau kuhikuhi.
• Nā lāʻau lapaʻau i pau: Mai hoʻohana i nā lāʻau lapaʻau ma hope o ka lā pau ma ka lepili. E hoʻolei pono iā lākou.

Ma kēia ʻatikala, ua kūkākūkā pōkole mākou iā Lanadelumab. Inā he mau nīnau hou aku kāu e pili ana i kēia, e ʻoluʻolu e kūkākūkā me kāu kauka.