Ke ʻoniʻoni nei kou maka a me kou ʻauwae me ka manaʻo ʻole? He Meige Syndrome paha ia!

Ke manaʻo nei ʻoe i kekahi manawa e like me nā ʻiʻo o kou helehelena, nā maka, ka ʻauwae, a i ʻole ke alelo e ʻoni koke a ʻoni paha me ka ʻike ʻole ʻoe? Hiki ke ʻeha iki kēia. Hiki ke hiki ʻole ke kāohi. Inā ua loaʻa iā ʻoe kēia ʻike, he mea nui e makaʻala i ke ʻano neurological kakaʻikahi a mākou e kamaʻilio ai i kēia lā i kapa ʻia ʻo Meige Syndrome.

He aha maoli ka Meige Syndrome?

I ka ʻōlelo maʻalahi, ʻo Meige Syndrome kahi maʻi e hoʻopilikia ai i kou lolo a me ka ʻōnaehana nerve, e hoʻoulu ai i nā ʻūmiʻi ʻiʻo i kāohi ʻole ʻia (spasms). Hiki i kēia ke hana i nā mea e like me kou ʻauwae e ʻūmiʻi a me kou mau maka e pani paʻa. I kekahi manawa hiki ke hele pū kēia mau ʻūmiʻi ʻiʻo me ka ʻeha.

Hoʻopilikia nui kēia kūlana i:

• I nā ʻiʻo ma ka ʻaoʻao haʻahaʻa o kou maka
• I ka ʻauwae
• I ke alelo
• A no nā maka .

ʻO ka Meige Syndrome kahi maʻi e pili ana i ka hui o nā maʻi i kapa ʻia ʻo dystonia. ʻO Dystonia kahi inoa i hāʻawi ʻia i kahi hui o nā maʻi e hoʻoulu ai i nā neʻe ʻiʻo hiki ʻole ke kāohi. Ua kapa pū kekahi mau kauka iā ia he segmental cranial dystonia a i ʻole idiopathic blepharospasm-oromandibular dystonia syndrome. ʻOiai ke kani iki nei kēia inoa, ʻo ka mea e pono ai ʻoe e hoʻomaopopo he maʻi neʻe hiki ʻole ke kāohi ʻia e hoʻopilikia i nā ʻiʻo o ka maka a me ka ʻāwae.

ʻAʻole kēia he mea i ʻike pinepine ʻia. ʻO ka ʻoiaʻiʻo, ʻo Meige Syndrome kahi maʻi kakaikahi i loko o ke ʻano o `(Dystonia)`.

He aha kēia mau hōʻailona? Pehea lā ko lākou manaʻo?

Hoʻopilikia ka Meige Syndrome i ke ʻano o ka neʻe ʻana o kou helehelena a me kou ʻauwae. Hiki iā ʻoe ke hana i nā ʻano helehelena i makemake ʻole ʻia a hiki ʻole ke kāohi ʻia. E nānā kākou i nā hōʻailona maʻamau:

• ʻĀlohilohi maka
• E ʻūmiʻū ana, e huhū mau ana
• Ke kuʻi ʻia nei ka ʻauwae i mua (hiki ke hana ʻia kēia ma ke kamaʻilio ʻana a i ʻole ka ʻai ʻana)
• ʻĀwiliwili ka ʻauwae
• ʻEha ʻāwae (ʻeha koke, ʻoi, e like paha me ka ʻō ʻana o ka pahi)
• Ka paʻakikī i ka wehe ʻana a i ʻole ka pani ʻana i ka waha
• He waha i ʻūmiʻi ʻia
• Ka wili ʻana o nā niho (bruxism) (Ka wili ʻana o kekahi poʻe i ko lākou mau niho i ka wā hiamoe, hiki ke like me ia.)

Eia kekahi, hiki iā ʻoe ke ʻike i kēia ʻano o nā ʻūlū i kāohi ʻole ʻia (spasms) ma kou alelo, puʻu, a me ke ala ea . Ke loaʻa iā ʻoe kēia ʻano spasms ma kou alelo, hiki ke paʻakikī ke ʻai, ʻoiai ke ale ʻana i nā meaʻai paʻa. Eia kekahi, inā loaʻa iā ʻoe kēia ʻano o nā ʻūlū ma kou ala ea, hiki ke paʻakikī ke hanu.Inā pilikia ʻoe i ka hanu ʻana, pono ʻoe e hele koke i ka haukapila kokoke loa a kāhea aku paha i ka 1990.

Aia kekahi mau hōʻailona e hoʻopilikia i nā maka:

• ʻAi pinepine a ʻaʻole hiki ke kaohi ʻia o nā maka
• ʻEha maka
• Ka paʻakikī e wehe i nā maka
• Nā maka maloʻo, me he mea lā he mau ʻāpana one i loko o nā maka

I ka wā mua, hoʻokahi wale nō maka e pili ai kēia mau hōʻailona, ​​akā i ka hala ʻana o ka manawa, hiki ke pili nā maka ʻelua. I kou wā e ʻelemakule ai, e lilo pinepine a koʻikoʻi paha kēia mau hōʻailona. Hiki i kēia ke hoʻopilikia i ka ʻike ʻana no ka mea ʻaʻole hiki iā ʻoe ke wehe i kou mau maka. Eia naʻe, ʻaʻole kēia e hōʻino pololei i ka hana ʻike o nā maka. ʻO ka pilikia, ʻaʻole hiki iā ʻoe ke wehe i kou mau maka.

No ke aha lā kēia e hana nei? He aha ke kumu?

ʻAʻole ʻike ʻia ke kumu kikoʻī o ka Meige Syndrome . Manaʻo nā loea he hiki ke hana ʻia e ka hui pū ʻana o nā kumu genetic (nā loli i manaʻo ʻole ʻia i ka DNA i ka wā fetal) a me nā kumu kaiapuni (nā mea e hoʻonui ai i nā hōʻailona).

Manaʻo kekahi poʻe noiʻi e hoʻopilikia kēia ʻano maʻi i kahi ʻāpana o ka lolo i kapa ʻia ʻo ka basal ganglia. Hoʻoponopono kēia ʻāpana o ka lolo i nā neʻe ʻana o ko mākou kino. No laila, manaʻoʻiʻo lākou ke hele hewa kekahi mea ma laila, hiki ke hana ʻia kēia mau neʻe ʻana i kāohi ʻole ʻia.

He aha nā mea hoʻonāukiuki e hoʻonui ai i nā hōʻailona?

Aia kekahi mau mea i kou wahi e hiki ai ke hoʻonui i nā hōʻailona o ka Meige Syndrome. Kāhea mākou i kēia mau mea 'nā mea hoʻoulu'. ʻO lākou kēia:

• Mālamalama mālamalama (E noʻonoʻo inā manaʻo ʻoe e hoʻonui ʻia kēia ʻano ʻālohilohi ke hele ʻoe i waho i kahi lā mālamalama, a i ʻole ke paʻi nā kukui o ke kaʻa i kou mau maka i ka pō ...)
• Manaʻo luhi
• Ke kaumaha
• makani ikaika
• Haumia o ka ea

ʻAʻole like ka hopena o kēia mau mea i nā kānaka a pau, akā he mea nui e ʻike iā lākou.

Hiki paha i kēia ke pili i nā maʻi ʻē aʻe?

ʻAe, i kekahi manawa hiki ke loaʻa pū ka Meige Syndrome me nā maʻi ʻē aʻe. ʻO kekahi o kēia mau maʻi:

• ʻO ka maʻi o Parkinson: He maʻi neʻe kēia e pili ana i ka ʻōnaehana nerve. ʻO nā hōʻailona nui ka haʻalulu, ka lohi o ka neʻe ʻana, ka ʻoʻoleʻa o nā ʻiʻo, ka paʻa ʻole i ka wā e hele ai, a me nā pilikia me ke kaulike a me ka hoʻonohonoho ʻana.
• Tardive dyskinesia: He ʻano kēia o ka ʻōnaehana nerve. Hiki ke hana ʻia e ka hoʻohana lōʻihi ʻana i kekahi mau lāʻau lapaʻau no ka maʻi noʻonoʻo, a me kekahi mau lāʻau lapaʻau no nā maʻi gastrointestinal a me nā neurological.
• Maʻi Wilson: He ʻano hoʻoilina kēia e hoʻoulu ai i ke keleawe e hōʻiliʻili i loko o ke kino. Hiki i kēia ke hoʻoulu i ka maʻi akepaʻa a me nā neʻe ʻano ʻē a kaohi ʻole ʻia.

ʻO wai ka mea i pilikia nui no kēia?

Hiki i ka Meige Syndrome ke hoʻopilikia i kekahi, akā ua hōʻike ʻia nā noiʻi e ʻoi aku ka nui o ka loaʻa ʻana o ke ʻano i nā wahine ma mua o nā kāne .

Ua ʻike ʻia ka hapa nui o nā kānaka me kēia maʻi ma waena o 40 a me 70 mau makahiki. Eia nō naʻe, he mea nui e hoʻomanaʻo e hiki ke loaʻa i kēlā me kēia makahiki.

He aha nā pilikia ʻē aʻe e hiki ai i kēia ke hana?

Hiki i ka Meige Syndrome ke hana i nā pilikia ma lalo nei:

• ʻEha poʻo
• Paʻakikī ka ʻike ʻana (ma muli o ka hiki ʻole ke wehe i nā maka)
• ʻAʻole pono ka ʻai (ma muli o ka paʻakikī o ka ale ʻana i ka meaʻai)
• Kaumaha (hiki ke alakaʻi i ke kaumaha ma muli o ka ʻoluʻolu ʻole a me nā loli i ke ʻano i hoʻokumu ʻia e ka maʻi)

Pehea e ʻike ai nā kauka i kēia?

E ʻike ke kauka i ka Meige Syndrome ma ka nānā ʻana iā ʻoe (hoʻokolohua kino), hana i kahi hoʻokolohua neurological, a hana i nā hoʻokolohua (e like me nā hoʻokolohua koko a me nā hoʻokolohua kiʻi) e kāpae i nā kūlana ʻē aʻe i loaʻa nā hōʻailona like. ʻAʻohe hoʻokolohua kikoʻī i kēia manawa e ʻike ai i kēia kūlana. E hana kāu kauka i ka hōʻailona ma muli o kāu mau hōʻailona.

He aha nā lāʻau lapaʻau?

Hiki i kāu kauka ke ʻōlelo aku i nā lāʻau lapaʻau e hōʻoluʻolu i nā hōʻailona o Meige Syndrome a i ʻole e hoʻolohi i ka holomua o ka maʻi. ʻO kekahi o nā lāʻau lapaʻau i hoʻohana pinepine ʻia:

• Nā lāʻau lapaʻau: ʻO nā lāʻau lapaʻau maʻamau e komo pū me clonazepam (Klonopin®), trihexyphenidyl (Artane®), diazepam (Valium®), a me baclofen (Lioresal®). Kōkua kēia mau lāʻau lapaʻau i ka hōʻemi ʻana i nā ʻūmiʻi ʻiʻo.
• Nā inikini Botulinum toxin (Botox®): Hoʻokomo ke kauka i kēia inikini i loko o nā ʻiʻo a puni kou mau maka a me kou ʻauwae. Hoʻonāwaliwali kēia i nā ʻiʻo no kekahi manawa a hōʻemi i ka ʻūlū hiki ʻole ke kāohi. Pono paha ʻoe e loaʻa i kēia inikini i kēlā me kēia ʻekolu mahina, a i ʻole e like me ke kuhikuhi a kāu kauka.
• Hoʻoulu hohonu i ka lolo (DBS): He lāʻau paʻakikī kēia. Hana ʻo DBS ma ka hoʻopilikia ʻana i nā ʻano hana maʻamau ʻole i loko o ka lolo. Ma kēia kaʻina hana, hoʻokomo ke kauka i kahi electrode metala lahilahi i loko o kou lolo a hoʻopili iā ia i kahi mea hana pulse kamepiula i hoʻokomo ʻia ma lalo o ka ʻili. E noʻonoʻo i kēia mea hana pulse ma ke ʻano he pacemaker i loko o kou lolo. Ke nānā nei kāu kauka iā ʻoe, ua hoʻoponopono ʻia ka hāmeʻa e kōkua i ka kaohi ʻana i kāu mau hōʻailona.
• Lapaʻau ʻōlelo a me ke ale ʻana: Hiki i ke lapaʻau ʻōlelo ke kōkua i ka hoʻoikaika ʻana i nā ʻiʻo o kou ʻāwae a hōʻemi i ke koʻikoʻi o kou slurring. He mea kōkua nō hoʻi kēia inā pilikia ʻoe i ke ale ʻana.

Aia kekahi mau mea hiki iā ʻoe ke hana ma ka home e hōʻemi i nā hōʻailona?

Hoʻohana kekahi poʻe me Meige Syndrome i nā hana maʻalahi e hiki ai iā lākou ke hana ma ka home e kōkua i ka hōʻemi ʻana i ko lākou mau hōʻailona. Pili kēia mau hana i ka hoʻohuli hou ʻana i ka ʻāpana o ka lolo e hoʻoulu ai i nā hōʻailona. ʻO kēia mau mea:

• ʻUmi nau
• Ke nau ʻana i ka niho lāʻau
• Ke pā ʻana i nā lehelehe a i ʻole ka ʻauwae
• Ke nānā nei i lalo

Eia kekahi, hiki iā ʻoe ke pale aku i nā mea hoʻonāukiuki o ke kaiapuni e like me ke kukui ʻālohilohi a me ka makani ikaika. Hiki iā ʻoe ke hana i nā mea e like me ke komo ʻana i nā aniani maka a kaupalena i kou ʻike ʻana i nā lā makani.

Aia kekahi mau hopena ʻaoʻao o ka lāʻau lapaʻau?

E like me nā lāʻau lapaʻau āpau, hiki i kēia mau lāʻau lapaʻau ke loaʻa kekahi mau hopena ʻaoʻao, no laila he mea nui e kūkākūkā i kēia me kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau.

Eia kekahi laʻana, hiki i kekahi mau lāʻau lapaʻau ke hoʻoulu i ka hiamoe, ka paʻakikī o ka hanu ʻana, a me ka waha maloʻo.

Hiki i nā inikini Botulinum toxin (Botox®) ke hoʻoulu i ka ʻeha, ka pehu ʻana, ka palapū ma kahi i inikini ʻia, a i kekahi manawa ka nāwaliwali o nā ʻiʻo.

Aia kekahi ala e pale aku ai i kēia?

ʻO ka mea pōʻino, ʻaʻohe ala i ʻike ʻia i kēia manawa e pale aku ai i ka Meige Syndrome. Eia nō naʻe, ʻo ka pale ʻana i nā mea hoʻonāukiuki - e like me ke kukui ʻālohilohi a me ka makani - hiki ke kōkua i ka hōʻemi ʻana i ke alapine o kāu mau hōʻailona.

He aha kāu e manaʻo ai i kou wā e ola nei me kēia maʻi?

Hiki i ka Meige Syndrome ke hoʻopilikia i kou nohona. Hiki ke paʻakikī ke hana i nā mea maʻalahi e like me ke kau ʻana i ka lā a i ʻole ke kalaiwa ʻana me nā puka makani e wehe ana. Hiki i kekahi poʻe ke hilahila a hilahila paha e pili ana i ka launa pū ʻana a i ʻole ke hele ʻana i nā hanana no ka mea ua hoʻopilikia kēia mau ʻiʻo i ko lākou helehelena.

I nā manawa e like me kēia, hiki ke kōkua nui ke kamaʻilio ʻana me ke kākāʻōlelo olakino noʻonoʻo . He mea nui e noho ikaika i ka noʻonoʻo, no ka mea, hiki i ka mālama ʻana i nā hōʻailona ke lilo i mea paʻakikī i ka hala ʻana o ka manawa.

ʻOiai ʻaʻohe lāʻau lapaʻau no Meige Syndrome, hiki i ka lāʻau lapaʻau ke kōkua iā ʻoe e hoʻokele i kāu mau hōʻailona a hoʻomau i ka hana i nā mea āu e hauʻoli ai a hana i kāu mau hana o kēlā me kēia lā e like me ka hiki.

ʻAʻole pili pololei kēia maʻi i kou ola. ʻO ia hoʻi, ʻaʻole ia he maʻi make. Eia naʻe, hiki iā ia ke hoʻopilikia i kou ʻano ola. No laila, e kamaʻilio me kāu kauka e pili ana i nā koho lapaʻau maikaʻi loa e mālama ai i kāu mau hōʻailona.

Āhea ʻoe e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe nā hopena ʻaoʻao ma hope o ka mālama ʻana, a inā e ʻoi aku ka ʻino o kāu mau hōʻailona ma hope o ka mālama ʻana, e kamaʻilio me kāu kauka. Hiki iā ia ke kōkua iā ʻoe e ʻimi i kahi koho lapaʻau ʻē aʻe i kūpono iā ʻoe a me kāu mau hōʻailona.

Eia kekahi, inā pilikia ʻoe i ka ʻai ʻana ma muli o nā hōʻailona, ​​e hoʻomaopopo i kāu kauka i ka wā hikiwawe ma mua o ka hoʻomaka ʻana o ka ʻai ʻole.

I loko o kahi pilikia, ʻo ia hoʻi inā pilikia ʻoe i ka hanu ʻana, e kāhea koke aku i ka 1990 a i ʻole e hele i ka haukapila kokoke loa.

He aha nā nīnau āu e nīnau ai i kāu kauka?

Ke ʻike ʻoe i kāu kauka, he mea kōkua paha ke nīnau i nā nīnau e like me kēia:

• Loaʻa iaʻu ʻo Meige Syndrome, a i ʻole kekahi ʻano dystonia ʻē aʻe?
• He aha ke ʻano o ka lāʻau lapaʻau āu e paipai nei?
• He aha nā hopena ʻaoʻao o kēlā mau lāʻau lapaʻau?
• Aia kekahi mau lāʻau lapaʻau hou a i ʻole nā ​​​​hoʻokolohua lapaʻau no kēia?
• Ke hoʻopilikia nei koʻu mau hōʻailona i koʻu manaʻo ponoʻī. Pono anei au e kamaʻilio me ke kākāʻōlelo olakino noʻonoʻo ?

He aha ka ʻokoʻa ma waena o kēia a me nā maʻi neʻe ʻē aʻe?

ʻO Meige Syndrome kahi ʻano dystonia e hoʻopilikia i kāu neʻe ʻana. Aia kekahi mau kūlana ʻē aʻe e hoʻopilikia pū i ka neʻe ʻana. ʻO kekahi mau laʻana:

• ʻO ka dystonia wehe ʻana o ka ʻauwae: He ʻano dystonia kēia e hoʻopilikia ai i ka ʻauwae. ʻAʻole ia e hoʻoulu i ka blepharospasm.
• ʻO nā spasms Hemifacial: ʻO kēia ka wā e wili ai nā ʻiʻo āpau ma kekahi ʻaoʻao o ka maka. ʻAʻole ʻeha kēia mau mea. I kekahi poʻe, hiki i kahi scan MRI o ka lolo ke hōʻike ua ʻomi ʻia kahi aʻalolo ma ka maka.

Ua like anei ka Meige Syndrome me ka Meige Disease?

ʻAʻole. He ʻokoʻa kēia mau kūlana ʻelua. Ua kapa ʻia lākou ma hope o ke kauka neurologist Farani ʻo Henri Meige, no laila he mea maʻalahi ke huikau. ʻO ka maʻi Meige kahi maʻi hoʻoilina o ka ʻōnaehana lymphatic. Hoʻoulu ia i ka hōʻiliʻili ʻana o ka wai lymph i loko o kou mau lālā.

ʻO ka mea hope loa, he aha kāu e ʻike ai

ʻO ka loaʻa ʻana o kahi maʻi laha ʻole e like me Meige Syndrome, kahi maʻi e hoʻoulu ai i nā neʻe ʻeha a kaohi ʻole o nā lihilihi maka, ka ʻāwae, a me ke alo lalo, hiki ke kaumaha. Nui paha kāu mau nīnau e pili ana i ka hopena o nā hōʻailona iā ʻoe i ka holomua ʻana o ka maʻi.

Akā e hoʻomanaʻo, ʻoiai ʻaʻohe lāʻau lapaʻau no ka Meige Syndrome, aia nā lāʻau lapaʻau i loaʻa. Hiki i kāu kauka ke kōkua iā ʻoe e hoʻokele i kāu mau hōʻailona a hoʻomau i kāu mau hana o kēlā me kēia lā e like me ka hiki. No laila, e noho ikaika a e hahai i ka ʻōlelo aʻo a kāu kauka.

ʻO ka maʻi Meige, ka maʻi neurological, nā ʻūmiʻi ʻiʻo, ka ʻūmiʻi ʻana o ka maka, ka ʻeha o ka ʻāwae, nā hōʻailona o ka maka