Ke manaʻo koke nei ʻoe e like me ka mae ʻana o kekahi ʻaoʻao o kou kino, a i ʻole he pōuliuli iki kou ʻike ma kekahi maka? I kekahi manawa, luhi loa ʻoe a poniuniu paha me ke kumu ʻole? Hele mai kēia mau mea a hele aku, no laila ʻaʻole paha ʻoe e hoʻolohe nui iā lākou. Akā, he mau hōʻailona mua paha kēia o kahi maʻi i kapa ʻia ʻo Multiple Sclerosis, a i ʻole MS, a mākou e kamaʻilio nei i kēia lā. Mai hopohopo, e mālama mākou i nā mea āpau i maʻalahi.
I ka ʻōlelo maʻalahi, he aha kēia MS?
E noʻonoʻo, e like me nā pūʻali koa pale o ko kākou ʻāina, loaʻa i ko kākou kino kahi ʻōnaehana pale e pale ai iā kākou mai nā maʻi. ʻO kāna hana nui ka ʻike a luku i nā ʻenemi e like me nā germs a me nā virus e komo i loko o ke kino, e mālama ana iā kākou i ke olakino.
Akā i loko o kahi kūlana i kapa ʻia ʻo MS, hana ʻia kekahi mea kupanaha loa. ʻO kā mākou ʻōnaehana pale ponoʻī, ʻo ia hoʻi ka ʻōnaehana pale, manaʻo kuhihewa he ʻenemi kekahi o kā mākou mau cell maikaʻi a hoʻomaka e hoʻouka iā lākou. ʻO ke kikoʻī, kuhikuhi kēia hoʻouka kaua i nā olonā nerve e hoʻopuni ana i ko mākou lolo a me ke kaula spinal (Central Nervous System) .
Ua like kēia mau olonā aʻalolo me nā uea uila. He ʻūpā palaki ko ka uea uila e hoʻopuni ana iā ia e pale aku i ke kahe ʻana o ke au mai ka puka ʻana i waho a me ke kahe pono ʻana. Pēlā nō, loaʻa i ko kākou mau olonā aʻalolo kahi ʻūpā pale i kapa ʻia ʻo myelin . He mea nui kēia ʻūpā myelin no ka hoʻoili wikiwiki a pololei o nā hōʻailona mai ka lolo a i ke koena o ke kino.
He ʻōnaehana pale ko ke kanaka me MS e hoʻouka ana i ka ʻūpā myelin. Hōʻino kēia hoʻouka ʻana i ka ʻūpā myelin. A laila, e like me ke kaula me ka ʻūpā plastik i wehe ʻia, ʻaʻole hele mālie nā leka mai ka lolo. Lohi nā leka, huikau lākou, a i kekahi manawa pau loa lākou. ʻO nā hōʻailona āu e ʻike ai ma muli o ka hoʻopilikia ʻana i ke kamaʻilio ʻana o kēlā mau leka.
I ka ʻōlelo maʻalahi, he maʻi lōʻihi (mau) ka MS kahi e hoʻouka ai ko mākou ʻōnaehana pale ponoʻī i ka ʻeke pale o kā mākou ʻōnaehana nerve ponoʻī.
He aha nā ʻano nui o MS?
ʻAʻole like ka hopena o ka MS i nā kānaka a pau. Ua māhele ʻia i ʻehā ʻano nui, ma muli o ke ʻano o ka ʻike ʻia ʻana o nā hōʻailona a me ka holomua ʻana. E noʻonoʻo e like me ʻehā ʻano like ʻole o ka maʻi like. E haʻi aku kāu kauka iā ʻoe i ke ʻano āu i loaʻa ai.
| ʻAno o MS | He wehewehe maʻalahi |
|---|---|
| ʻO ka maʻi hoʻokaʻawale maʻi (CIS) | ʻO kēia ka manawa mua e ʻike ʻia ai nā hōʻailona MS. Hiki i kēia mau hōʻailona ke mau no nā hola he 24 a ʻoi. Eia nō naʻe, ʻaʻohe hōʻike lawa e hoʻoholo pono ai he MS kēia. ʻAʻole nā mea a pau i loaʻa i ka CIS e loaʻa iā MS i ka wā e hiki mai ana. Akā he mea pilikia ia. |
| MS Hoʻihoʻi-Hoʻihoʻi (RRMS) | ʻO kēia ke ʻano maʻamau (ma kahi o 85 mai loko mai o 100). I kēia ʻano, ʻike koke ʻia nā hōʻailona (i kapa ʻia he relapse a hoʻouka paha), mau no kekahi mau lā a i ʻole mau pule, a laila nalo loa a iki paha (remission). Hiki ke ʻike hou ʻia nā hōʻailona hou i nā mahina a i ʻole nā makahiki ma hope. |
| MS Holomua Lua (SPMS) | I ka manawa pinepine, ma hope o nā makahiki o ka RRMS, lilo ke ʻano i kēia pae i kapa ʻia ʻo SPMS. ʻO kēia ka manawa e pau ai ka maʻi i ka hele ʻana mai a me ka hele ʻana, a hoʻomaka mālie nā hōʻailona e ʻoi aʻe ka ʻino. |
| MS Holomua Mua (PPMS) | I kēia ʻano, piʻi mālie nā hōʻailona mai ka lā e hoʻomaka ai ka maʻi, a ʻaʻohe relapses a me nā remissions e like me RRMS. |
Ma waho aʻe o kēia mau ʻano nui, aia kekahi mau ʻano kakaikahi o MS, ʻoi aku ka koʻikoʻi a me ka wikiwiki o ka hoʻomaka ʻana o nā hōʻailona.
He aha nā hōʻailona mua a maʻamau o MS?
ʻOkoʻa loa nā hōʻailona MS mai kēlā kanaka a i kēia kanaka. A i loko o ke kanaka hoʻokahi, hiki ke ʻokoʻa ke koʻikoʻi o nā hōʻailona mai kēlā lā a i kēia lā. No ka mea, pili nā hōʻailona i kahi o ka ʻōnaehana nerve i hana ʻia ai ka pōʻino.
Nā hōʻailona hiki ke ʻike ʻia i nā pae mua
- Nā loli o ka ʻike: ʻIke pōwehiwehi i kekahi maka, nalowale ke kala o ka ʻike, ʻeha i ka neʻe ʻana o ka maka (ua kapa ʻia kēia he "Optic Neuritis"), a me ka ʻike pālua.
- Nāwaliwali o nā ʻiʻo: Ka nāwaliwali, ʻike pinepine ʻia ma kekahi ʻaoʻao o ke kino (e.g., ka lima hema a me ka wāwae hema) a i ʻole ma lalo o ka pūhaka.
- ʻO ka mae a i ʻole nā manaʻo ʻē: He ʻano ʻūlū, ʻōniʻoniʻo, a i ʻole ke kuni ʻana ma kekahi ʻaoʻao o ke kino, nā wāwae, a i ʻole nā lima me ke kumu ʻole.
Nā hōʻailona e lilo i mea maʻamau i ka hala ʻana o ka manawa
- Luhi: ʻAʻole kēia he luhi maʻamau wale nō. He ikaika loa ia a ʻaʻohe mea nui ka nui o kou hiamoe ʻana, manaʻo ʻoe ua luhi ʻoe a ʻaʻole hiki ke hoʻomau i ka lā.
- Paʻakikī i ka hele wāwae a me ka nalowale o ke kaulike: Kūlou i ka wā e hele ana, manaʻo ʻole ke kaulike a me he mea lā e hāʻule ana ʻoe.
- Pōʻino: Manaʻo e like me ka wili ʻana o ka lumi.
- ʻO nā ʻiʻo spasms: Lilo nā ʻiʻo ma nā wāwae a i ʻole nā lima i paʻa a ʻeha.
- Paʻakikī ke kāohi ʻana i ka mimi a me ka ʻōpala: makemake koke e mimi, hiki ʻole ke kāohi i ka mimi.
- Nā pilikia noʻonoʻo: nā mea e like me ka nalowale o ka hoʻomanaʻo, ka paʻakikī i ka noʻonoʻo ʻana, a me ka paʻakikī i ka loaʻa ʻana o nā huaʻōlelo.
- Nā loli noʻonoʻo: Ke kaumaha me ke kumu ʻole (kaumaha), ke hopohopo.
ʻO ka mea nui loa, ʻaʻole ia e manaʻo he MS kou no ka mea he hoʻokahi a ʻelua paha o kēia mau hōʻailona. Hiki i kēia ke lilo i mau hōʻailona o nā maʻi ʻē aʻe he nui. No laila , ʻo ka mea maikaʻi loa e hana ai, ʻo ia ke ʻike i ke kauka a loaʻa ka ʻōlelo aʻoaʻo .
No ke aha e ulu ai ʻo MS? He aha nā kumu pilikia?
ʻO ka ʻoiaʻiʻo, ʻaʻole maopopo loa i nā kānaka ʻepekema ke kumu e hoʻomaka ai ka ʻōnaehana pale o ke kanaka e hana hewa ma kēia ʻano. Akā ua ʻike lākou i kekahi mau mea pilikia a lākou e manaʻo nei e kōkua i kēia.
- Ka mana hoʻoilina: Inā loaʻa i kekahi o kou ʻohana, ʻoiai he makua a he kaikaina paha, ka MS, ʻoi aku ka kiʻekiʻe o kou pilikia o ka loaʻa ʻana ma mua o ka heluna kanaka maʻamau. Akā, ʻaʻole ia he manaʻo e loaʻa maoli nō iā ʻoe.
- Nā maʻi viral: Ua ʻike ʻia e ka noiʻi ʻana ua pili ka pili ʻana i kekahi mau virus, ʻoiai ka Epstein-Barr Virus, me ka ulu ʻana o MS.
- Ka nele o ka wikamina D: ʻO ka poʻe me nā pae haʻahaʻa o ka wikamina D, a mākou e loaʻa ai mai ka lā, ʻoi aku ka nui o ka pilikia o ka hoʻomohala ʻana i ka MS.
- Puhipaka: ʻO ka poʻe puhipaka, ʻaʻole wale lākou i ka nui o ka pilikia o ka hoʻomohala ʻana i ka MS, akā ʻoi aku ka nui o ka hiki ke hoʻomohala koke i ka maʻi.
- Makahiki a me ke kāne: ʻO ka hapa nui o ka maʻi MS ka poʻe ma waena o 20 a me 40 mau makahiki. ʻOi aku ka maʻamau o ia i nā wahine ma mua o nā kāne.
Pehea lā e ʻike pono ʻia ai kēia maʻi?
He hana paʻakikī ka ʻike ʻana i ka MS, ʻoiai ʻaʻohe hoʻāʻo koko kikoʻī a scan paha. Akā, e hoʻolohe pono ke kauka i kāu mau hōʻailona, hana i kahi hoʻokolokolo kino, a holo i kekahi mau hoʻokolohua e kāpae i nā kūlana ʻē aʻe.
Inā manaʻo kāu kauka ʻohana he MS paha kou, e hana ʻo iaE hoʻouna ʻia ʻoe i kahi neurologist, nāna e hana i kekahi mau hoʻokolohua kūikawā.
- ʻO ke kiʻi MRI (Magnetic Resonance Imaging): ʻO kēia ka hoʻāʻo koʻikoʻi loa i ka ʻike ʻana i ka MS. Hiki iā ia ke ʻike maopopo i nā wahi i hōʻino ʻia (nā ʻeha a i ʻole nā plaques) i ka ʻupena myelin i loko o ka lolo a me ke kaula spinal.
- Hoʻāʻo Evoked Potential (EP): Ke ana kēia i ka wikiwiki o ka hele ʻana o nā leka ma nā aʻalolo. Inā ua hōʻino ʻia ka myelin, e emi ana kēia wikiwiki.
- Lumbar Puncture: Pili kēia i ka lawe ʻana i kahi hāpana liʻiliʻi loa o ka wai a puni kou kaula spinal (wai cerebrospinal) mai kou iwi kuamoʻo a hoʻāʻo iā ia. Inā loaʻa iā ʻoe ka MS, hiki ke ʻike ʻia nā protein kikoʻī i loko o kēia wai.
- Nā hoʻāʻo koko: Hana ʻia kēia mau mea e hōʻoia ʻaʻole ʻoe i loaʻa i nā maʻi ʻē aʻe e hōʻike ana i nā hōʻailona like me MS (e.g., kekahi mau hemahema huaora, nā maʻi autoimmune ʻē aʻe).
Mai hopohopo, hiki i kēia kaʻina hana ke lōʻihi. ʻO ka hōʻoia pololei ka hana mua i ka lāʻau kūpono.
He aha nā lāʻau lapaʻau no MS?
ʻO ka mea mua e ʻōlelo ai, ʻaʻohe lāʻau lapaʻau no MS i kēia manawa . Akā, mai hopohopo. I kēia lā, aia nā lāʻau lapaʻau kūpono loa e hiki ke kāohi i ka maʻi, hoʻokele i nā hōʻailona, a hoʻolohi nui i ka holomua o ka maʻi.
Hiki ke hoʻokaʻawale ʻia ka lāʻau lapaʻau i kekahi mau ʻāpana nui:
1. Nā Lapaʻau Hoʻololi Maʻi (DMT)
Hana kēia mau lāʻau lapaʻau ma ka hoʻololi ʻana i ke ʻano o kāu ʻōnaehana pale e hoʻouka ai i kou ʻūhā myelin. Hiki i kēia ke kōkua i ka hōʻemi ʻana i nā relapses, hōʻemi i nā pōʻino hou, a kāohi i nā pilikia lōʻihi. Loaʻa lākou ma ke ʻano he injections, pila, a i ʻole nā infusions intravenous. Na kāu kauka e hoʻoholo i ke ʻano o DMT i kūpono loa iā ʻoe.
2. Nā lāʻau lapaʻau hoʻokele hoʻi hou
Inā loaʻa i kahi kanaka me RRMS kahi hōʻike koke ʻana o nā hōʻailona (relapse), hāʻawi ʻia nā lāʻau lapaʻau ikaika e like me corticosteroids ma ke kino e hōʻemi koke i ka mumū i loko o ka ʻōnaehana nerve. Kōkua kēia i ka hoʻōla koke ʻana mai nā hōʻailona.
3. Ka mālama ʻana i nā hōʻailona
Aia nā ʻano lapaʻau like ʻole e loaʻa ana e hōʻemi i ka hopena o MS i ke ola o kēlā me kēia lā.
- Hoʻōla Kino: Hoʻoikaika i nā ʻiʻo, hoʻomaikaʻi i ke kaulike, a hōʻemi i nā pilikia hele wāwae.
- Hoʻōla Hana: Kōkua iā ʻoe e hana i nā hana o kēlā me kēia lā (e like me ke kāhiko ʻana, ka kuke ʻana) me ka maʻalahi.
- ʻŌlelo aʻoaʻo olakino noʻonoʻo: E hoʻokele i ke kaumaha a me ke kaumaha e hiki mai ana i ka wā e noho ana me kahi maʻi lōʻihi e like me MS.
- Nā lāʻau lapaʻau kikoʻī:Hāʻawi ʻia nā lāʻau lapaʻau kaʻawale no ka luhi, ka ʻoʻoleʻa o nā ʻiʻo, ka ʻeha, a me ka hiki ʻole ke hoʻopaʻa i ka mimi.
Hiki paha ke ola i kahi ola maʻamau a hauʻoli me MS?
ʻAe, ʻoiaʻiʻo nō. ʻOiai he maʻi ola ka MS, ʻaʻole ia he hoʻopaʻi make. Me nā lāʻau lapaʻau holomua o kēia wā, nui ka poʻe me MS e ola maʻamau, hana, a hoʻokō i nā ola.
ʻOiaʻiʻo, pono ʻoe e kū i kekahi mau pilikia. Pono paha ʻoe e hoʻohana i kahi mea kōkua e like me ke koʻokoʻo e hele ai. Pono paha ʻoe e hana i kekahi mau hoʻololi i kāu hana maʻamau i kēlā me kēia lā. Akā me ka mālama kūpono, kahi nohona olakino, a me kahi noʻonoʻo ikaika, hiki iā ʻoe ke lanakila i kēia mau pilikia.
- E ʻai i ka meaʻai olakino.
- E hoʻoikaika kino mau (e like me ke kuhikuhi a kāu kauka).
- E pale loa i ka puhipaka.
- E hoʻomaha maikaʻi a e hiamoe pono.
- E ho'āʻo e hōʻemi i ke kaumaha.
He kōkua nui kēia mau mea i ka kaohi ʻana i ka holomua o ka maʻi.
Leka Lawe-Home
- ʻAʻole he maʻi ʻo MS nau ia e hewa. He maʻi ia o ka ʻōnaehana pale maʻi.
- ʻAʻole laha kēia maʻi.
- ʻOiai inā loaʻa iā ʻoe nā hōʻailona, hiki i ke kauka ke hoʻoholo inā he MS a ʻaʻole paha. No laila, mai hoʻoholo ma muli o ka pūnaewele.
- He kūpono loa nā lāʻau lapaʻau o kēia lā. ʻO ka wikiwiki o ka hoʻomaka ʻana o ka lāʻau lapaʻau, ʻo ka emi ʻana o ka pōʻino lōʻihi e hiki ke hoʻēmi ʻia.
- ʻAʻole ʻoe hoʻokahi. Nui nā kauka, nā mea hoʻōla, a me nā hui kākoʻo e kōkua i ka poʻe e ola nei me kēia maʻi. E noho ikaika a maikaʻi.
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