Loaʻa iā ʻoe kahi ʻū maloʻo mau e mau ana no nā lā, a i ʻole he mau pule paha? Ke paʻakikī nei ʻoe i ka hanu ʻana, ʻoiai ke hele wāwae nei i kahi mamao pōkole, hana i nā hana o ka hale, a piʻi paha i nā alapiʻi? ʻO ka hapa nui o ka manawa, hoʻowahāwahā mākou i kēia mau mea me he "anu wale nō." Akā i kekahi manawa, ma hope o kēia mau hōʻailona, aia paha kahi maʻi māmā a mākou i lohe ʻole ai, akā pono mākou e hopohopo. I kēia lā, ke kamaʻilio nei mākou e pili ana i kekahi maʻi, ʻo NSIP, a i ʻole Nonspecific Interstitial Pneumonia.
I ka ʻōlelo maʻalahi, he aha ka NSIP (Nonspecific Interstitial Pneumonia)?
ʻOiai paha he mea paʻakikī iki ka inoa, e mālama kākou i ka maʻalahi. He mumū nō hoʻi ʻo NSIP i nā māmā. Akā he ʻokoʻa iki ia mai ka maʻi niumonia maʻamau a mākou e lohe pinepine ai.
E noʻonoʻo i kou mau māmā e like me kahi ʻōkana i hana ʻia me nā miliona o nā ʻeke ea liʻiliʻi e like me ka hua waina (alveoli). Ke hanu mākou, komo ka oxygen i loko o nā māmā a komo i ke koko ma o kēia mau alveoli. I ka NSIP, ʻaʻole e loaʻa ka mumū i loko o nā alveoli ponoʻī, akā, i loko o nā hakahaka ma waena o lākou a me nā ʻiʻo e hoʻopuni ana i nā kīʻaha koko . ʻO kēia ka mea a mākou e kapa nei ma ke ʻano lapaʻau he "maʻi māmā interstitial".
ʻIke pinepine ʻia kēia ʻano i nā poʻe me ka maʻi pili o nā ʻiʻo (CTD). Hiki ke pili pū me nā kūlana olakino ʻē aʻe. ʻAʻole e like me ka pneumonia maʻalahi, ka mea e hoʻopau pinepine ʻia i loko o kekahi mau lā, hiki ke mau no ka manawa lōʻihi a hiki i kekahi manawa ke hana i ka ʻeha mau loa o nā māmā.
ʻElua ʻano nui o nā NSIP.
Hoʻokaʻawale nā kauka i ka NSIP i ʻelua ʻano nui, ma muli o ke ʻano o ka hōʻino ʻana i nā māmā. He mea nui iā ʻoe e ʻike i kēia mau ʻano ʻelua, no ka mea, pili ka lāʻau a me ka wānana i ke ʻano.
| ʻAno NSIP | He wehewehe maʻalahi |
|---|---|
| NSIP Kelepona Paʻalima | ʻO ka mea e hana ʻia ma kēia, ʻo ia ka pehu ʻana o nā ʻeke ma waena o nā ʻeke ea a mākou i ʻōlelo ai ma mua. ʻO ia hoʻi, pehu kēlā mau ʻeke. ʻO kēia ke ʻano i ʻoi aku ka maikaʻi ma mua o nā ʻano ʻelua o NSIP, a pane maikaʻi i ka lāʻau.Hiki ke ho'ōla loa ʻia me ka mālama pono ʻana. |
| NSIP Fibrotic | I loko o kēia, lilo ka ʻiʻo māmā i mānoanoa, ʻoʻoleʻa, a me ka ʻōpala. Kāhea mākou i kēia he fibrosis . He kūlana koʻikoʻi kēia, no ka mea, ʻaʻole hiki ke hoʻohuli ʻia ke ʻōpala e kū mai ana. Eia nō naʻe, me ka mālama ʻana, hiki ke kāohi ʻia ka wikiwiki o ka puka ʻana o kēia ʻōpala. |
He ʻokoʻa anei kēia mai ka maʻi niumonia maʻamau?
ʻAe, ʻoiaʻiʻo nō. He mea nui loa e hoʻomaopopo i kēia ʻokoʻa.
- Pneumonia: He mumū kēia o nā ʻeke ea (nā ʻeke ʻano hua waina) i loko o nā māmā . Hiki iā lākou ke piha i ka pus a i ʻole ka wai. Hoʻokumu pinepine ʻia kēia e kahi maʻi bacteria a viral paha.
- ʻO ka niumonia interstitial (e like me NSIP): Ma kēia, loaʻa ka mumū ma nā hakahaka ma waena o nā ʻeke ea. ʻO ke ʻano kēia ua hōʻino ʻia ke ʻano a me ke kiʻikuhi o nā māmā. I ka manawa pinepine, ʻaʻole hiki ke loaʻa kahi kumu kikoʻī no NSIP.
ʻO kekahi mea ʻē aʻe, ʻo `Usual Interstitial Pneumonia (UIP)` kekahi inoa i hoʻohana ʻia no ka maʻi `Idiopathic Pulmonary Fibrosis (IPF).` He maʻi koʻikoʻi ʻo IPF, hiki ke hoʻōla ʻia e hōʻeha i nā māmā. Eia nō naʻe, hiki ke ho'ōla pinepine ʻia ʻo NSIP, ʻoiai ʻo Cellular NSIP, me ka lāʻau lapaʻau. No laila, mai huikau i nā mea ʻelua.
He aha nā hōʻailona o NSIP?
ʻAʻole paha e ʻike nui ʻia nā hōʻailona o NSIP i ka wā mua a hiki ke ʻoi aku ka ʻino i ka hala ʻana o ka manawa. He mea nui e ʻike ʻoe i kēia mau hōʻailona.
- ʻŪhū maloʻo: ʻO kēia ka hōʻailona nui a maʻamau. He ʻūhū mau a hoʻonāukiuki me ka ʻole o ka mucus.
- Pōkole o ka hanu: I ka wā mua, hiki ke ʻike ʻia i ka wā o ka hoʻoikaika kino a i ʻole ka hele wikiwiki ʻana. Eia nō naʻe, i ka holomua ʻana o ka maʻi, hiki ke paʻakikī ke hanu ʻoiai ke kū mālie wale.
- Hana paʻakikī: Manaʻo e like me ʻoe e hoʻoikaika nui e hanu.
- Luhi: Manaʻo luhi a me ka luhi ʻole ʻoiai me ka hana ʻole ʻana i kekahi hana.
- Manamana lima i hui ʻia: He mea maʻamau ʻole kēia, akā he mau manamana lima poepoe paha kekahi poʻe a pehu a puni nā kui.
Inā loaʻa iā ʻoe kēia mau hōʻailona, ʻoi aku ka ʻū maloʻo a me ka hanu pōkole, no kekahi mau pule a inā e ʻoi aku ka ʻino, e ʻoluʻolu, mai hoʻowahāwahā iā ia a e ʻike i ke kauka.
He aha ke kumu o NSIP? He aha nā kumu pilikia?
ʻO kaʻoiaʻiʻo, ʻaʻole maopopo loa i nā loea ke kumu o NSIP. Akā ke nānā ʻoe i ka poʻe me kēia maʻi, ʻike lākou he mau maʻi ʻē aʻe ko lākou. ʻO ia hoʻi, ʻoiai ʻaʻole ʻoiaʻiʻo kēia mau maʻi ke kumu o NSIP, aia kahi pilina ikaika ma waena o lākou.
ʻO kēia mau mea e hoʻonui ai i ka pilikia o ka hoʻomohala ʻana i ka NSIP.
| Kumu pilikia | Wehewehena |
|---|---|
| Kāne a me ka makahiki | ʻIke pinepine ʻia kēia maʻi i waena o nā wahine ma waena o 40 a me 50 mau makahiki . |
| Nā maʻi pili o nā ʻiʻo | ʻO kēia ka loulou nui me NSIP. He mau maʻi autoimmune kēia kahi e hoʻouka ai ka ʻōnaehana pale o ke kino i kona mau ʻiʻo ponoʻī. ʻO nā laʻana e komo pū me ka Rheumatoid Arthritis , Lupus , a me Scleroderma (kahi maʻi e hoʻomānoanoa i ka ʻili). |
| Nā maʻi viral | Hiki ke pili pū kekahi mau maʻi viral. Nā laʻana: HIV a me Hepatitis . |
| Nā hopena i kekahi mau lāʻau lapaʻau | Hiki i kekahi mau lāʻau lapaʻau ke hōʻino i ka māmā ma ke ʻano he hopena ʻaoʻao. Ua kapa ʻia kēia he "drug-induced interstitial pneumonia". ʻO nā hiʻohiʻona e komo pū me ka chemotherapy no ke kanesa, ka radiation therapy, a me kekahi mau lāʻau lapaʻau maʻi puʻuwai. |
Pehea e ʻike ai ke kauka i kēia maʻi?
Ke hele ʻoe i ke kauka, e hoʻolohe pono mua ʻo ia i kāu mau hōʻailona. Pono ʻoe e haʻi i ke kauka e pili ana i nā kūlana olakino ʻē aʻe āu e loaʻa nei a me nā lāʻau lapaʻau āu e lawe nei. A laila, e kauoha ʻo ia i kekahi mau hoʻokolohua e ʻike ai i ka maʻi.
- Nā hoʻāʻo hana pulmonary: Pili kēia i kou hanu ʻana i loko o kahi mīkini, e ana ana i ka nui o ka ea e hiki ai i kou mau māmā ke lawe i loko a me ka wikiwiki o kou hanu ʻana i waho.
- X-ray o ka umauma: Kōkua kēia i ka loaʻa ʻana o kahi ʻike maʻamau inā he mau ʻano ʻē i loko o nā māmā.
- ʻO ke scan CT (Computed Tomography scan): Hiki i kēia ke hana i nā kiʻi ʻekolu-dimensional ʻoi aku ka maopopo ma mua o ka X-ray. He mea nui ka scan CT no ka loiloi pololei ʻana i ka nui o ka hōʻino ʻana o ka māmā a me kona ʻano (cellular a fibrotic paha).
- Bronchoscopy: Hoʻokomo ʻia kahi ʻōmole liʻiliʻi i hoʻomālamalama ʻia me kahi kāmela ma ka waha a i ʻole ka ihu i loko o nā māmā e nānā i loko o nā ala ea. Inā pono, hiki ke lawe ʻia kahi hāpana o nā cell no ka hoʻāʻo ʻana.
- Biopsy: ʻO kēia ka hoʻāʻo maikaʻi loa e hōʻoia i ka maʻi 100%. Ma kēia, ua wehe ʻia kahi ʻāpana liʻiliʻi loa o ka ʻiʻo mai ka māmā a nānā ʻia ma lalo o kahi microscope.
He aha nā lāʻau lapaʻau no NSIP?
ʻElua mau pahuhopu nui a nā kauka i ka mālama ʻana i ka NSIP. ʻO kekahi, ʻo ia ka hoʻēmi ʻana i ka mumū i loko o nā māmā. ʻO kekahi, ʻo ia ka kaohi ʻana i kekahi mau kūlana olakino ma lalo (e like me ka arthritis) e hiki ai ke hoʻoulu i ka NSIP.
I nā hihia koʻikoʻi, hoʻohana ʻia nā lāʻau ʻē aʻe e hoʻoikaika i nā māmā a hāʻawi i ke kino i ka nui o ka oxygen e pono ai.
- Nā lāʻau lapaʻau:
- ʻO nā Corticosteroids e like me Prednisolone: He mau lāʻau lapaʻau steroid kēia e hōʻemi koke i ka mumū.
- Nā lāʻau pale kino: Hana nā lāʻau e like me ʻAzathioprine`, ʻCyclophosphamide`, a me ʻMycophenolate` ma ke kaohi ʻana i ka hana o ka ʻōnaehana pale o ke kino a me ka pale ʻana iā ia mai ka hōʻino ʻana i kona mau māmā ponoʻī.
- Nā lāʻau anti-fibrotic: Hoʻohana ʻia nā lāʻau e like me 'Pirfenidone' a me 'Nintedanib' i nā poʻe me Fibrotic NSIP. Hoʻolohi kēia i ka wikiwiki o ka ʻeha ma nā māmā.
- ʻO Rituximab: He lāʻau "biologic" kēia i hoʻohana ʻia no nā maʻi pili.
- Nā Lapaʻau ʻē aʻe:
- Hoʻoponopono hou ʻana i ka pulmonary: He papahana hoʻoikaika kino kūikawā kēia a me ke aʻo ʻana e kōkua ai i ka hoʻokele ʻana i nā pilikia hanu a hoʻoikaika i ke kino.
- Lapaʻau oxygen: Hāʻawi ʻia ka oxygen ma o kahi ʻōmole i ka poʻe me nā pae oxygen koko haʻahaʻa.
- Hoʻoili māmā: ʻO kēia ke koho hope loa i manaʻo ʻia no ka poʻe me ka maʻi koʻikoʻi loa i hāʻule ʻole i nā lāʻau lapaʻau ʻē aʻe a pau.
Pehea lā ke ʻano o ke ola me kēia maʻi?
ʻO ka pane i kēia nīnau e pili pono ana i ke ʻano o ka NSIP āu.
He maikaʻi loa ka nānā ʻana no kekahi me ka cellular NSIP . Me ka mālama kūpono, hiki ke ho'ōla piha ʻia. ʻAneʻane 100% ka nui o ke ola ʻana o ʻelima makahiki. Eia nō naʻe, pono ʻoe e lawe i ka lāʻau lapaʻau ma lalo o ka nānā ʻana a ke kauka no kekahi mau mahina.
I loko o ka fibrotic NSIP , ʻaʻole hiki ke hoʻihoʻi ʻia ka pōʻino o nā māmā. He mau loa ka ʻōpala. No laila he mea koʻikoʻi iki kēia. Akā, mai hopohopo. Hiki i ka lāʻau lapaʻau ke hoʻolohi i ka holomua o ka maʻi a hoʻolōʻihi i ke ola. Hōʻike nā haʻawina hiki i nā kānaka ke ola ma ka awelika o 6 a 14 mau makahiki ma hope o ka hōʻoia ʻana.
He aha nā nīnau e pono iaʻu e nīnau aku i ke kauka?
Inā ua ʻike ʻia ʻoe me NSIP, he mea maʻamau ka loaʻa ʻana o nā nīnau he nui ma kou manaʻo. Ke hele ʻoe e ʻike i kāu kauka, mai poina e nīnau i kēia mau nīnau.
- Aia kekahi kumu kikoʻī e loaʻa ai iaʻu kēia ʻano maʻi?
- He aha ke ʻano aʻu, Cellular a i ʻole Fibrotic?
- He aha nā koho lapaʻau kūpono loa iaʻu?
- Aia kekahi mau hopena ʻaoʻao i kēia mau lāʻau lapaʻau?
- Pehea ka paʻakikī o ka ʻino ʻana o kēia maʻi i ka hala ʻana o ka manawa?
- Hiki iaʻu ke hoʻolohi i ka hōʻino hou ʻana o ka māmā?
- He aha nā mea e pono iaʻu e makaʻala nui ai i koʻu ola o kēlā me kēia lā a me ka ʻai a me ka mea inu?
- Āhea wau e ʻike hou ai i ke kauka?
ʻO ka nīnau ʻana i nā nīnau e like me kēia a me ka loaʻa ʻana o kahi ʻike maopopo o kou kūlana e kōkua nui iā ʻoe e kākoʻo i kāu lāʻau lapaʻau.
Leka Lawe-Home
- ʻAʻole wale ka niumonia maʻamau ka NSIP. He kūlana ia e hoʻopilikia ai i nā ʻiʻo ma waena o nā ʻeke ea o nā māmā.
- ʻO ka ʻū maloʻo mau a me ka pōkole o ka hanu i ka wā hoʻoikaika kino nā hōʻailona nui. Mai hoʻowahāwahā i kēia mau mea.
- ʻElua ʻano nui o NSIP: Cellular (hiki ke ho'ōla ʻia) a me Fibrotic (koʻikoʻi, akā hiki ke hoʻokele ʻia).
- Inā loaʻa iā ʻoe kahi maʻi pili i nā ʻiʻo (e like me ka rumatika), e makaʻala pono i nā hōʻailona e pili ana i kou mau māmā.
- He mea nui loa ka ʻike ʻana i ke kauka kūpono i ka wā hikiwawe loa no ka ʻike pololei a me ka mālama ʻana. E hahai pono i nā ʻōlelo a ke kauka.
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