Ke kānalua nei ʻoe he autism kāu keiki? (Autism Spectrum Disorder) E kamaʻilio kākou e pili ana i ka mea e hana ai!

Ke hopohopo nei ʻoe a hopohopo paha e pili ana i ke ʻano a i ʻole ka ulu ʻana o kāu keiki liʻiliʻi? Manaʻo ʻoe he maʻi autism spectrum (ASD) paha kāna? Mai hopohopo, he manaʻo maikaʻi ke nānā ʻia. He mea nui e hoʻolohe i nā loli i ka ulu ʻana o kāu keiki. I kēia lā, e kamaʻilio mākou e pili ana i ka mea e hana ai inā ʻike ʻoe i kekahi mea e like me kēia a pehea e loaʻa ai ke kōkua.

No ke aha e pono ai iā mākou ke noiʻi i kēia ma mua?

I ka ʻōlelo maʻalahi, pono ke keiki me ka autism i ke kōkua a me ke kākoʻo e pono ai no lākou. Me nā ʻano hana hōʻoia hou i loaʻa i kēia manawa, hiki ke ʻike mua ʻia kēia kūlana. Inā ʻike mua ʻia, hiki i ke keiki ke hoʻomaka e loaʻa i ka lāʻau lapaʻau a me ke kākoʻo e pono ai me ka wikiwiki. ʻO ka hana ʻana pēlā e pōmaikaʻi nui ai i ka ulu ʻana o ke keiki i ka wā e hiki mai ana. ʻO ia ke kumu a mākou e ʻōlelo nei ʻoiai inā he kānalua iki, pono ke noiʻi ʻia.

No laila, he aha nā hana mua e pono ai mākou e hana?

ʻAe, i kēia manawa ke manaʻo nei ʻoe he mea ʻokoʻa e pili ana i kāu keiki, malia paha he autism. No laila, e nānā kākou i nā ʻanuʻu hiki iā ʻoe ke hana.

1. E kamaʻilio me ke kauka o kāu keiki.

ʻO ka mea mua e hana ai, ʻo ia ke hālāwai me ke kauka pediatric o kāu keiki a wehewehe i nā mea āpau e noʻonoʻo nei ʻoe. Inā he wikiō kāu o ke ʻano o kāu keiki āu e manaʻo ai he mea ʻē, he mea kōkua nui ia e hōʻike iā ia i ke kauka. Ma kēlā ʻano, e maʻalahi iā lākou ke hoʻomaopopo i ke kūlana.

E noʻonoʻo i ia mea, i kekahi manawa manaʻo paha mākou ʻaʻole i hoʻolohe pono ke kauka iā mākou a ʻaʻole paha i lawe koʻikoʻi iā ia. I ia mau hihia , mai makaʻu e haʻi hou i kāu hihia. Inā ʻaʻole ʻoe i māʻona, ʻaʻohe hewa o ka ʻike ʻana i kekahi kauka ʻē aʻe a loaʻa ka ʻōlelo aʻo. ʻO ka mea nui ka hana ʻana i ka mea maikaʻi loa no kāu keiki.

2. E huli i kahi loea

Inā he hopohopo kāu kauka pediatric e pili ana i kāu keiki, e kuhikuhi paha lākou iā ʻoe i kahi loea. ʻO ia mau loea ka poʻe i loaʻa ka ʻike hohonu o nā lohi ulu a me nā kūlana e like me ka autism. Eia kekahi laʻana:

• Kauka Noʻonoʻo Keiki: Loaʻa iā ia ka ʻike maikaʻi i ke kūlana noʻonoʻo o ke keiki a me nā ʻano hana.
• Kauka Hoʻomohala Keiki: He kauka keiki hiki ke ʻike a mālama i nā pilikia e pili ana i ka ulu ʻana o ke kino, ka noʻonoʻo, a me ka nohona o ke keiki.

Aia paha ʻoe ma ka papa inoa kali e ʻike i ia ʻano loea. Inā pēlā, ʻoi aku ka maikaʻi o ke kākau inoa ʻana i kou inoa i ka wā hikiwawe loa.

3. E kiʻi i kahi loiloi Autism

E hana paha ke kauka loea i kahi hoʻokolohua kūikawā ('Autism Evaluation`) e hoʻoholo ai inā he autism ke keiki. Pili kēia i ka nānā ʻana i nā mea he nui, e like me ke ʻano o ke keiki, ke ʻano o kā lākou kamaʻilio ʻana, a me ke ʻano o kā lākou launa pū ʻana me nā poʻe ʻē aʻe. Eia kekahi, hiki ke hana ʻia kekahi mau hoʻokolohua kūikawā.

Ma muli o nā hopena o kēia `(Loiloi)`, hiki i ke keiki ke hoʻomaka i kekahi lāʻau lapaʻau kūikawā a lākou e pono ai, e like me `Speech Therapy` a i ʻole `Occupational Therapy`.

No laila, he manaʻo maikaʻi e nīnau mua i ka loea i nā hoʻokolohua e hana ʻia i kēia `(Loiloi)` a pehea ka lōʻihi o ka manawa. A laila hiki iā ʻoe ke hoʻomākaukau no ia.

Hiki iaʻu ke loaʻa ke kōkua mai ke aupuni a me nā ʻoihana ʻē aʻe?

ʻAe, i nā manawa he nui, loaʻa kekahi mau pono a me nā lawelawe no nā keiki me nā lohi ulu a me nā kūlana e like me ka autism.

Hoʻāʻo manuahi a me kekahi mau manawa lawelawe

• Inā ʻōpiopio loa kāu keiki (e.g. ma lalo o 3 mau makahiki) , aia kekahi mau ʻāina i nā papahana "Early Intervention" a ke aupuni. Ma Sri Lanka, hiki iā ʻoe ke loaʻa nā ʻōlelo aʻoaʻo manuahi a me nā kuhikuhi paha no nā hoʻokolohua ma o ke keʻena o ka Luna Lapaʻau Ola (MOH) kūloko a me nā keʻena hoʻomohala keiki ma nā haukapila aupuni. E nīnau i kāu MOH kūloko a i ʻole ka haukapila aupuni kokoke loa no nā kikoʻī.
• Inā he 3 makahiki a ʻoi paha kāu keiki , hiki paha iā ʻoe ke loaʻa i kekahi mau loiloi a me ke kākoʻo ma o ka ʻōnaehana kula. E nānā me kāu keʻena hoʻonaʻauao kūloko a i ʻole ke kula o kāu keiki e pili ana i kēia.

Nā Koho Lapaʻau

He nui nā keiki me ka autism a i ʻole nā ​​​​lohi o ka ulu ʻana e pōmaikaʻi nui mai kēia mau lāʻau lapaʻau:

• Lapaʻau ʻŌlelo: Kōkua kēia i ke keiki e ʻōlelo, e hoʻomaopopo i ka mea a haʻi e ʻōlelo nei, a hōʻike i ko lākou mau manaʻo.
• Hoʻōla Hana: Kōkua kēia i nā hana o kēlā me kēia lā, ka hana ʻana i nā mea ma kāu iho (e laʻa, ke komo ʻana i ke kapa, ka ʻai ʻana), ka pāʻani ʻana, a me ka hoʻomohala ʻana i nā mākau kaʻa maikaʻi.
• Hoʻōla Kino: Kōkua kēia i ka hoʻomohala ʻana i nā ʻiʻo nui o ke kino (nā mākau kaʻa nui), ke kaulike, a me ka ikaika i nā hana e like me ka hele wāwae, ka holo ʻana, a me ka lele ʻana.

ʻO ka maʻamau, pono kēia mau lāʻau lapaʻau i kahi kuhikuhi mai ke kauka. Inā he ʻinikua pilikino kāu, e nānā me kāu ʻoihana ʻinikua e ʻike inā uhi ia i kekahi o kēia mau lāʻau lapaʻau.

Ke aʻo ʻana a me ke aʻo ʻana no nā mākua

I kekahi manawa, ʻoiai inā ʻaʻole i loaʻa i kāu keiki kahi hōʻailona kikoʻī o ka autism, hiki iā ʻoe ma ke ʻano he makua ke hele i ka ʻōlelo aʻoaʻo makua a i ʻole nā ​​​​papahana hoʻomaʻamaʻa e pili ana i ke kōkua ʻana i kāu keiki. Hāʻawi pū kekahi mau hui aupuni ʻole (NGO) i kēia mau lawelawe no ka manuahi a i ʻole ke kumu kūʻai haʻahaʻa. E nānā iā lākou.

Nā mea hiki iā mākou ke hana e kōkua i kā mākou keiki ma ka home

Me nā ʻōlelo aʻoaʻo lapaʻau a me ka mālama ʻana, nui nā mea leʻaleʻa hiki iā ʻoe ke hana ma ka home e kōkua i kāu keiki e hoʻomohala i nā mākau ʻōlelo a me ka launa pū ʻana. E hoʻomanaʻo, pili kēia i ka pāʻani a pono e hana ʻia me ke aloha.

• E pāʻani pū kākou: No ka liʻiliʻi he 20 mau minuke i ka lā, e noho ma ka papahele, e ʻae i kāu keiki e koho i kahi pāʻani a lākou e makemake ai, a e ʻae iā lākou e alakaʻi a pāʻani pū. E komo i ka pāʻani me ka hoihoi. I loko o kēia manawa, e kamaʻilio me kāu keiki a hoʻomaikaʻi i kāna hana.
• E aʻo i nā mea ma nā ʻanuʻu liʻiliʻi: Ke aʻo aku nei i kahi keiki i kahi mea hou, he mea paʻakikī ke hana i nā mea a pau i ka manawa hoʻokahi. No laila, e hoʻokaʻawale i nā mea āu e hoʻāʻo nei e aʻo aku (e laʻa me ke kau ʻana i nā kāmaʻa, ka inu ʻana mai ke kīʻaha, ka holoi ʻana i nā lima me ke kopa) i nā ʻanuʻu liʻiliʻi. E hōʻike i hoʻokahi ʻanuʻu a kōkua i kāu keiki e hana. Ke hana pololei ʻo ia, e hoʻomaikaʻi iā ia me nā huaʻōlelo e like me "Kaumaha loa!" a i ʻole "Maikaʻi loa!" A laila e neʻe i ka ʻanuʻu aʻe. Ma kēia ʻano, ʻoi aku ka maʻalahi o ke keiki e aʻo i nā mea, a e hoihoi pū ʻo ia.

He aha hou kāu e makemake ai e ʻike?

Ke ʻimi ʻoe i ka ʻike e pili ana i ka autism, e ʻike ʻoe i ka nui o ka ʻike ma ka Pūnaewele. Eia naʻe, ʻaʻole pololei a hilinaʻi nā mea āpau. Ma kekahi mau wahi, aia paha he ʻike hewa a me nā moʻolelo wahaheʻe. No laila, ke ʻimi ʻoe i ka ʻike, e hoʻāʻo e loaʻa ka ʻike mai nā kumu hilinaʻi , e like me nā hui i ʻike ʻia ma ka honua holoʻokoʻa:

• ʻO ke Kōmike Hoʻonohonoho Autism Interagency (IACC)
• ʻO ka Hui no ka Autism a me ka Neurodiversity (AANE)
• ʻO ka ʻAhahui Autism
• Nā ʻŌlelo Autism

ʻOiai he mau hui honua kēia, aia i loko o kā lākou mau pūnaewele ka nui o ka ʻike waiwai, nā hōʻike noiʻi, a me ke alakaʻi no nā mākua. Eia kekahi, ma Sri Lanka, aia nā hui aupuni a me nā hui pilikino a me nā hui kākoʻo makua e kōkua ana i nā keiki a me nā ʻohana me ka autism. E nānā me kāu kauka a i ʻole ka pūnaewele e pili ana i kēlā mau mea.

Ka Manaʻo Lawe-Home a Mākou e Makemake ai e Lawe i ka Home mai kēia Moʻolelo

ʻO ka mea hope loa, eia kaʻu e haʻi aku iā ʻoe:

• Inā he mau hopohopo a nīnau paha kāu e pili ana i ka ulu ʻana a i ʻole ke ʻano o kāu keiki, mai hoʻowahāwahā iā lākou. E ʻimi koke i ke kōkua lapaʻau.
• ʻO ka ʻike mua ʻana a me ka hoʻomaka mua ʻana i ke kōkua e pono ai ke hana i kahi ʻokoʻa nui i ka wā e hiki mai ana o kahi keiki.
• ʻAʻole ʻoe hoʻokahi ma kēia huakaʻi. Aia nā kauka, nā mea hoʻōla, a me nā mea ʻē aʻe he nui e hiki ke kōkua a alakaʻi iā ʻoe.
• He huakaʻi lōʻihi paha kēia, akā e hoʻolauleʻa a hauʻoli hoʻi ke ʻike ʻoe i ka holomua o kāu keiki, ʻoiai inā he mea liʻiliʻi wale nō. E ʻike i nā ikaika o kāu keiki a kōkua iā lākou e hoʻomohala iā lākou.

Ke makemake nei au iā ʻoe a me kāu keiki i nā mea maikaʻi loa ma kēia mau mea a pau!

ʻAutism , Ka Hoʻomohala ʻana o ke Keiki, Ka Maʻi Autism Spectrum, Ola Kino o ke Keiki, Hoʻōla ʻŌlelo, Hoʻōla Hana, Kākoʻo Makua