Loaʻa iā ʻoe a i ʻole kekahi lālā o ka ʻohana kahi maʻi māmā i kapa ʻia ʻo 'Idiopathic Pulmonary Fibrosis'? I ka ʻōlelo maʻalahi, he ʻano kēia e lilo ai nā māmā i ʻeha a paʻakikī mālie. Ua kuhikuhi paha kāu kauka i kahi lāʻau i kapa ʻia ʻo Pirfenidone e mālama i kēia ʻano. He mea weliweli iki paha ke kani ʻana o ka inoa, akā mai hopohopo. E kamaʻilio kākou e pili ana i kēia lāʻau lapaʻau ma ke ʻano maʻalahi a maopopo hoʻi a me nā mea āu e pono ai e ʻike e pili ana iā ia i ka wā e hoʻohana ai.
He aha ke ʻano lāʻau lapaʻau ʻo Pirfenidone (Esbriet)?
He lāʻau lapaʻau ʻo Pirfenidone i hoʻohana ʻia e mālama i kahi maʻi i kapa ʻia ʻo Idiopathic Pulmonary Fibrosis (IPF). ʻO kāna hana nui, ʻo ia ke hoʻolohi i ka wikiwiki o ka ʻōpala ma nā māmā. ʻOiai ʻaʻole hiki i kēia lāʻau ke hoʻōla loa i ka maʻi, hiki iā ia ke hoʻolohi i ka wikiwiki o ka maʻi e ʻoi aku ka ʻino a kōkua iā ʻoe e ʻoluʻolu. Loaʻa ia ma ke ʻano o nā papa a i ʻole nā capsules. E ʻōlelo kāu kauka i ka mea kūpono loa iā ʻoe.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui loa ia e hāʻawi i kāu kauka i kahi kiʻi piha o kou kūlana olakino. No ka mea, ʻo kēlā ʻike e hoʻoholo ai inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha, a me ke ʻano o ka nui. Inā loaʻa iā ʻoe kekahi o nā kūlana i helu ʻia ma lalo nei, e hōʻoia e haʻi i kāu kauka e pili ana i ia mea.
| Kou kūlana a i ʻole kou ʻano maʻamau | No ke aha ʻoe e hoʻomaopopo ai i ke kauka? |
|---|---|
| Maʻi puʻupaʻa | Hoʻoneʻe ʻia kēia lāʻau lapaʻau mai ke kino e nā puʻupaʻa. Inā he pilikia me nā puʻupaʻa, hiki i ka lāʻau lapaʻau ke hōʻiliʻili i loko o ke kino a hoʻonui i nā hopena ʻaoʻao. |
| Maʻi akepaʻa | Hiki i ka Pirfenidone ke hoʻopilikia i ke akepaʻa. Inā loaʻa iā ʻoe nā pilikia akepaʻa, pono ʻoe e makaʻala loa. |
| Puhi paka | Hiki i ka puhipaka ke hōʻemi i ka pono o kēia lāʻau lapaʻau, no laila e kamaʻilio me kāu kauka e pili ana i ka haʻalele ʻana i ka puhipaka inā ʻoe e lawe ana i kēia lāʻau lapaʻau. |
| Nā maʻi ʻaleka ʻē aʻe | Inā loaʻa iā ʻoe kekahi mau maʻi allergies i ka pirfenidone a i ʻole nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, a i ʻole nā mea hoʻoluʻu, e ʻoluʻolu e haʻi i kāu kauka. |
| Ke hāpai nei a i ʻole e hoʻāʻo nei e hāpai | ʻAʻole lawa ka ʻike e pili ana i ka palekana o kēia lāʻau lapaʻau i ka wā hāpai, no laila he mea nui e kamaʻilio me kāu kauka e pili ana i kēia. |
| Ka hānai ʻana i ka waiū umauma | ʻAʻole maopopo inā hele kēia lāʻau lapaʻau i ka pēpē ma o ka waiū umauma. No laila, inā ʻoe e hānai waiū ana, e hoʻomaopopo i kāu kauka. |
Pehea pololei kaʻu e hoʻohana ai i kēia lāʻau lapaʻau?
I mea e hana pono ai ka lāʻau lapaʻau, pono e lawe pololei ʻia e like me ke kauoha.
- E lawe me ka meaʻai: ʻO kēia ka mea nui loa. E lawe mau iā Pirfenidone me ka ʻai. ʻO ka lawe ʻana iā ia ma ka ʻōpū ʻole e hoʻonui i ka pilikia o nā hopena ʻaoʻao e like me ka nausea a me ka ʻeha o ka ʻōpū.
- E lawe me ke aniani wai: E ale holoʻokoʻa i ka papa/capsule me ke aniani wai.
- E lawe i ka manawa kūpono: E lawe i ka nui kūpono i ka manawa kūpono e like me ke kauoha a kāu kauka. Inā ʻōlelo ʻia ʻoe e lawe iā ia i ʻekolu manawa i ka lā, hiki iā ʻoe ke lawe me ka ʻaina kakahiaka, ka ʻaina awakea, a me ka ʻaina ahiahi.
- Mai ho'ōki i ka lawe ʻana i kāu lāʻau lapaʻau iā ʻoe iho: Mai ho'ōki i ka lawe ʻana i kāu lāʻau lapaʻau me ka ʻole o ke aʻo ʻana a kāu kauka.
- Inā hāʻawi ʻia i nā keiki: ʻAʻole hāʻawi pinepine ʻia kēia lāʻau lapaʻau i nā keiki. Eia nō naʻe, inā hāʻawi ʻia i kahi hihia kūikawā, e hahai i ka ʻōlelo aʻo a ke kauka pediatric.
He aha ka mea e hana ai inā ʻoe e lawe i ka overdose?
Inā manaʻo ʻoe ua lawe nui ʻoe i ka lāʻau lapaʻau, e hele koke i ka Halemai Pilikia (ETU) kokoke loa. A i ʻole e kelepona i ke Kikowaena ʻIke ʻAi ʻona Lahui ma ka Halemai Lahui ʻo Colombo no ka ʻōlelo aʻoaʻo.
He aha inā e hala iaʻu kahi mahele lāʻau lapaʻau?
Inā poina iā ʻoe ke lawe i kahi lāʻau, e lawe koke i ka wā e hoʻomanaʻo ai ʻoe. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau aʻe, e kāpae i ka lāʻau i hala ʻole a lawe i kāu lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe pālua i ka lāʻau.Inā ʻaʻole hiki iā ʻoe ke lawe i ka lāʻau lapaʻau no 14 mau lā a ʻoi aku paha, e kamaʻilio me kāu kauka ma mua o ka hoʻomaka hou ʻana.
Hiki paha ke loaʻa nā pilikia me nā lāʻau lapaʻau ʻē aʻe? (Nā Hana Pilikino Lāʻau Lapaʻau)
ʻAe, hiki iā Pirfenidone ke launa pū me kekahi mau lāʻau lapaʻau ʻē aʻe āu e lawe nei. No laila, he mea nui loa e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei.
Ke ʻōlelo ʻoe i ka lāʻau lapaʻau, ʻaʻole wale ia ka lāʻau lapaʻau i kuhikuhi ʻia e nā kauka, akā, ʻo nā mea āpau āu e kūʻai ai mai kahi hale kūʻai lāʻau lapaʻau, e like me nā lāʻau ʻeha, nā huaora, nā huahana lāʻau, nā lāʻau lapaʻau kuʻuna, a me nā mea hoʻohui meaʻai.
ʻO kekahi mau lāʻau lapaʻau e hiki ai ke hoʻopilikia i ka pirfenidone:
- ʻO kekahi mau lāʻau antibiotic (e.g. ciprofloxacin)
- ʻO kekahi mau lāʻau lapaʻau hānō (e like me zafirlukast, zileuton)
- ʻO kekahi mau lāʻau lapaʻau no ke kaumaha a i ʻole ka hopohopo
- Nā lāʻau lapaʻau no ka puʻuwai puʻuwai kūpono ʻole (e like me ka amiodarone)
- ʻO kekahi mau lāʻau lapaʻau no ka hopu ʻana (e like me ka carbamazepine, phenytoin)
- Nā lāʻau lapaʻau e like me ka cimetidine no ka waikawa ʻōpū
ʻAʻole i piha kēia papa inoa, no laila ʻoi aku ka maikaʻi o ka hāʻawi ʻana i kāu kauka i kahi papa inoa o nā mea āpau āu e lawe ai.
Nā mea e pono ai mākou e makaʻala nui i ka wā e lawe ai i ka lāʻau lapaʻau
E pale iā ʻoe iho mai ka lā!
He mea nui loa kēia. Hiki i kou ʻili ke lilo i mea maʻalahi loa i ka lā i ka wā e lawe ana i ka pirfenidone. ʻO ke ʻano kēia, ʻoiai inā ʻaʻole ʻoe i hōʻeha ʻia e ka lā, hiki i kou ʻili ke puhi koke, lilo i ʻulaʻula, a lilo i pehu, e like me ka ʻā ʻana o ka lā.
- E pale i ka lā: E pale i ka hele ʻana i waho i ka lā i ka hiki, ʻoiai ma waena o 10-11 am a me 3-4 pm.
- E ʻaʻahu i nā lole pale: Inā e hele i waho, e ʻaʻahu i nā lole lima lōʻihi, nā lole komo, ka pāpale, a me nā aniani maka.
- E hoʻohana i ka sunscreen: E hoʻohana i kahi sunscreen maikaʻi me ka SPF o 30 a ʻoi aku paha, kahi e pale ai i nā kukuna UVA a me UVB. E kau iā ia i 20 mau minuke ma mua o ka hele ʻana i waho a kau hou i kēlā me kēia ʻelua a ʻekolu hola.
- E pale i nā moena ʻili: Mai hoʻohana i nā mea hana e hoʻohina ai i ka ʻili.
E makaʻala i nā hopena ʻaoʻao
E like me nā lāʻau lapaʻau āpau, hiki i ka Pirfenidone ke hana i nā hopena ʻaoʻao. Eia naʻe, ʻaʻole loaʻa i nā kānaka a pau. He mea maʻamau kekahi o lākou a nalowale ma hope o kekahi mau lā. Akā, pono mākou e makaʻala loa i kekahi o lākou.
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu kauka a i ʻole ETU | |
|---|---|
| Nā hopena maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, lehelehe a i ʻole ke alelo, paʻakikī ke hanu. |
| Nā Hōʻailona o ka ʻeha o ke akepaʻa | Mimi melemele ʻeleʻele a ʻeleʻele paha, melemele o nā maka a i ʻole ka ʻili (jaundice), ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, nalowale ka makemake e ʻai, luhi loa, ʻōpala melemele. |
| ʻĀ ʻino loa o ka lā | ʻUlaʻula nui, pehu, a ʻeha paha o ka ʻili ma hope o ka lā. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| |
Pehea ʻoe e pale ai i kāu lāʻau lapaʻau?
- E waiho ma kahi hiki ʻole i nā keiki ke kiʻi aku: He mea nui loa kēia. ʻAʻole nā lāʻau lapaʻau he mea pāʻani na nā keiki.
- E mālama ma ka mahana o ka lumi: E mālama ma ka mahana o ka lumi, ma waena o 15 a me 30 degere Celsius. E mālama ʻia mai ka wela nui a me ka makū.
- E hoʻolei ma hope o ka pau ʻana: Mai hoʻohana i nā lāʻau lapaʻau i hala ka lā pau ma ka ʻōmole. E hoʻolei pono iā lākou.
Leka Lawe-Home
- E lawe mau i ka Pirfenidone me ka ʻai . Mai lawe ma ka ʻōpū ʻole.
- E ʻili loa kou ʻili i ka lā i ka wā e lawe ana i kēia lāʻau lapaʻau. No laila, e pale iā ʻoe iho mai ka lā , e kau i ka pale lā, a e kau i nā lole pale.
- E hāʻawi i kāu kauka i ka papa inoa piha o nā lāʻau lapaʻau ʻē aʻe āu e lawe nei, nā huaora, a me nā huahana lāʻau lapaʻau āu e lawe nei.
- Mai ho'ōki i ka lawe ʻana i ka lāʻau me ka ʻole o ke aʻo ʻana a ke kauka.
- E ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe nā hōʻailona o ka hōʻino ʻana o ke akepaʻa (melemele o nā maka, mimi ʻeleʻele) a i ʻole kahi hopena maʻi ʻaleka koʻikoʻi.
- Inā he mau hopohopo a nīnau paha kāu, e kūkākūkā me kāu kauka. Mai makaʻu, e hoʻopau i kou kānalua.
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