Ke lohe ʻoe i kēia inoa, manaʻo paha ʻoe iā Poems, ʻeā? Akā, ʻaʻole kēia he moʻolelo e pili ana i ka poetry. ʻO ka maʻi POEMS kahi maʻi koko kakaikahi loa e hiki ke hoʻopilikia i nā aʻalolo o ko mākou kino, nā ʻano kino like ʻole, ka ʻōnaehana hormonal, a me ka ʻili i ka manawa like. He mea paʻakikī iki ke ʻike ʻia, no ka mea, hiki ke like nā hōʻailona e pili ana me ia me nā hōʻailona o nā maʻi ʻē aʻe he nui. No laila he mea nui loa ka makaʻala i kēia.
No ke aha i kapa ʻia ai kēia he POEMS?
Loaʻa kona inoa mai nā leka mua o ʻelima o nā hōʻailona nui a me nā hōʻailona o ka maʻi. E nānā kākou i ke ʻano o lākou.
| Leka | Manaʻo a me ka wehewehe maʻalahi |
|---|---|
| P | Polyneuropathy: Pili kēia i ka hōʻino ʻana i nā aʻalolo ma ke kino holoʻokoʻa, ʻoi aku hoʻi i nā lālā. |
| ʻO | ʻO Organomegaly: ʻO ka hoʻonui ʻia ʻana o kekahi mau ʻōkana i loko o ke kino, e like me ke akepaʻa, ka spleen, a i ʻole nā lymp node, ma mua o ka nui maʻamau. |
| E | Endocrinopathy: ʻO kahi maʻi o ka hana o nā glands (ʻōnaehana endocrine) i loko o ko mākou kino e hana ana i nā hormones. |
| M | ʻO ka protein monoclonal: Kāhea ʻia hoʻi ʻo M-protein. Kiʻekiʻe nā pae o kahi protein ʻano ʻē i loko o ke koko. |
| S | Nā loli o ka ʻili:Nā mea e like me ka hoʻololi ʻana o ka ʻili a me ka mānoanoa o ka ʻili. |
Aia kekahi mau manawa e pono ai nā mahina o ka hoʻāʻo ʻana e ʻike i kēia maʻi, no ka mea, hiki ke huikau maʻalahi kēia mau hōʻailona me nā maʻi ʻē aʻe he nui ke lawe ʻia ma ke kaʻawale.
He aha nā hōʻailona o ka maʻi POEMS?
E nānā pono kākou i nā hōʻailona o kēlā me kēia ʻāpana o nā POEMS i kūkākūkā ʻia ma luna.
- P - Ka hōʻino ʻana o ke aʻalolo (Polyneuropathy): ʻO kēia ka mea mua a ka poʻe he nui e ʻike ai. Hiki i nā manamana wāwae a me nā kapuwaʻi o nā wāwae ke manaʻo he mae, he ʻōniʻoniʻo, a hiki ke manaʻo he ʻā a ʻeha paha . I ka hala ʻana o ka manawa, hiki i kēia ʻano ke laha i nā lima. E emi ana ka ikaika o nā lima, a ʻaʻole paha ʻoe e hiki ke paʻa i kekahi mea ma kou lima. I nā hihia koʻikoʻi, he mea paʻakikī paha ke kū i luna, hele, a me ka hanu ʻana.
- ʻO - Organomegaly: Hiki i kou ake, spleen, a i ʻole nā kikowaena lymph ke pehu. Hiki i kēia ke hana i nā hōʻailona e like me ka manaʻo o ka piha, ka ʻeha o ka ʻōpū a i ʻole ka pehu ʻana, a me ka luhi nui .
- E - Nā loli hormonal (Endocrinopathy): Hiki i nā loli hormonal ke hana i nā mea e like me ka emi ʻana o ka makemake i ka moekolohe, ka wai waiū mai nā umauma (no nā wahine a me nā kāne), a me ka pehu ʻana o nā lima a me nā wāwae .
- M - ʻAno ʻē ka M-protein: Hiki i kēia protein ke hōʻiliʻili i loko o ke koko a hoʻonāwaliwali a hōʻino paha i nā iwi , hiki ke hōʻeha i ka iwi.
- S - Nā loli o ka ʻili: Hiki ke ʻeleʻele ka ʻili ma mua o ka maʻamau. I kekahi manawa e mānoanoa ka ʻili, a ʻike ʻia nā kiko ʻulaʻula ma ka umauma. Hiki ke hoʻonui ʻia ka ulu ʻana o ka lauoho ma ka maka a me nā wāwae, a e keʻokeʻo paha nā kui .
No ke aha lā e hana ʻia ai kekahi mea e like me kēia?
ʻAʻole ʻike ʻia ke kumu kikoʻī o kēia, akā manaʻoʻiʻo nā kauka a me nā mea noiʻi e pili ana ia i ka hana maʻamau ʻole o kahi ʻano cell i loko o ko mākou kino i kapa ʻia ʻo nā cell plasma .
I ka ʻōlelo maʻalahi, hoʻokuʻu kēia mau cell plasma ʻano ʻē i ka protein M a mākou i kamaʻilio ai i loko o ke koko. Hoʻohui kēia mau cell ʻano ʻē a me ka protein M e hōʻino i nā ʻāpana like ʻole o ke kino. Eia kekahi, loaʻa i kēia mau maʻi nā pae kiʻekiʻe o kahi protein i kapa ʻia ʻo Vascular Endothelial Growth Factor (VEGF) i loko o ko lākou koko. Hoʻoulu kēia protein VEGF i ka wai e kahe mai nā kīʻaha koko i loko o nā ʻiʻo a puni. Hoʻoulu kēia wai keu i ka pehu ʻana, ka hoʻonui ʻana o nā ʻōkana, a me ka hōʻino ʻana o nā aʻalolo.
Hiki paha i kēia kūlana ke koʻikoʻi?
ʻAe, hiki i ka maʻi POEMS ke lilo i mea koʻikoʻi koke, e alakaʻi ana i nā pilikia e hoʻoweliweli ana i ke ola.
ʻO kekahi o lākou:
- ʻO ka Capillary Leak Syndrome: Hiki ke hiki mai ka hāʻule ʻana o nā ʻōkana ma muli o ka nui o ke kahe ʻana o ka wai mai nā kīʻaha koko.
- Ka Maʻi Puʻuwai Kaupalena: Paʻakikī i ka hanu ʻana ma muli o ka hiki ʻole i nā māmā ke hoʻonui pono.
- Ke koko kiʻekiʻe o ka puʻuwai: Ke kaomi nui ʻana i loko o nā kīʻaha koko e lawe ana i ke koko i nā māmā.
No laila, inā loaʻa iā ʻoe nā hōʻailona, he mea nui loa ia e ʻimi i ke kōkua lapaʻau a hoʻomaka i ka mālama ʻana i ka wā hikiwawe loa.
Pehea e ʻike ai ke kauka i kēia?
Ke hele ʻoe e ʻike i ke kauka, e hoʻolohe pono ʻo ia i kāu mau hōʻailona. A laila e nānā ʻo ia i kou kino a paipai i kekahi mau hoʻokolohua e hōʻoia i ka maʻi.
| Hoʻāʻo | He aha kāu e nānā nei? |
|---|---|
| Nā hoʻāʻo koko a me ka mimi | Nānā ʻia nā pae M-protein a i ʻole VEGF no nā pūnaewele plasma ʻano ʻē. |
| Nā hoʻokolohua kiʻi (X-ray, CT scan) | Ke nānā nei lākou e ʻike inā ua hōʻino ka M-protein i ka iwi. |
| ʻO ka biopsy iwi | Nānā i nā pūnaewele plasma ʻano ʻē i loko o ka iwi iwi. |
| ʻElekromyogram (EMG) | Ke ana ʻia nei ka hana o kāu aʻalolo. |
Eia kekahi, hiki ke hana ʻia nā hoʻokolohua hanu, nā echocardiograms, a me nā hoʻokolohua hormone ma muli o kāu mau hōʻailona.
He aha nā lāʻau lapaʻau no kēia?
ʻO ka pahuhopu nui o ka mālama ʻana, ʻo ia ke kāohi i nā hōʻailona a me nā cell plasma ʻē. Nui nā ʻano lapaʻau like ʻole no kēia.
- Chemotherapy: Hoʻopau kēia lāʻau i nā pūnaewele plasma maʻamau ʻole a hoʻōki paha i ko lākou ulu ʻana.
- Immunotherapy: Kōkua kēia mau lāʻau lapaʻau i ka hoʻohana ʻana i kāu ʻōnaehana ponoʻī e luku i nā pūnaewele plasma maʻamau ʻole.
- Lapaʻau radiation: Hoʻopau ka lāʻau radiation i nā hunaola plasma maʻamau ʻole.
- Hoʻoili pūnaewele kumu autologous: Pili kēia i ka wehe ʻana i nā pūnaewele plasma maʻamau ʻole mai kou kino a hoʻololi iā lākou me nā pūnaewele kumu olakino.
- Hoʻōla kino: Hiki i ka hōʻino ʻana o ke aʻalolo ke hoʻolilo iā ia i mea paʻakikī ke hele a hana i nā hana o kēlā me kēia lā. Hiki i nā hoʻomaʻamaʻa hoʻōla kino ke kōkua iā ʻoe e hoʻihoʻi i ka ikaika.
- Kākoʻo noʻonoʻo: ʻO ka noho ʻana me kahi maʻi laha ʻole hiki ʻole ke hoʻōla ʻia e like me kēia hiki ke paʻakikī loa i ka noʻonoʻo. Hiki i kēia ke alakaʻi i nā kūlana e like me ka hopohopo a me ke kaumaha. ʻO ka ʻimi ʻana i ke kōkua o kahi kākāʻōlelo hiki ke kōkua i ka hoʻokele ʻana i kēia kaumaha.
Pehea ka lōʻihi e hiki ai iā ʻoe ke ola me kēia maʻi?
He pilikia kēia i loaʻa i nā kānaka he nui. Inā ʻike mua ʻia ka maʻi a mālama pono ʻia, hiki i nā kānaka he nui ke ola no 10 mau makahiki a ʻoi aku paha ma hope o ka ʻike ʻia ʻana. Loaʻa nā lāʻau lapaʻau hou i kēia manawa e mālama ai i kēia maʻi. Eia nō naʻe, hiki ke ʻokoʻa kēia mai kēlā kanaka a kēia kanaka. ʻO ke kanaka maikaʻi loa e loaʻa ka wehewehe maikaʻi loa a me ka hoʻomaopopo ʻana i kou kūlana, ʻo ia kāu kauka. No laila, e kamaʻilio ākea me ia e pili ana i ia mea.
Leka Lawe-Home
- He maʻi koko kakaikahi akā koʻikoʻi ka maʻi POEMS e hoʻopilikia ana i kekahi mau ʻōnaehana kino.
- Ua loaʻa kēia inoa mai nā leka mua o kona mau hiʻohiʻona nui: Polyneuropathy , Organomegaly , Endocrinopathy , M -protein, a me nā loli ʻili .
- Inā loaʻa iā ʻoe ka mae mau ʻana, ka pehu ʻana, a i ʻole nā loli o ka ʻili i kou mau wāwae, mai hoʻowahāwahā iā lākou.
- Hiki ke paʻakikī a hoʻopau manawa ka ʻike ʻana i ka maʻi, akā i kēia manawa aia nā lāʻau lapaʻau kūpono loa e kaohi ai i ke kūlana.
- Inā loaʻa iā ʻoe kekahi mau hōʻailona kānalua, e ʻike koke i kāu kauka no ka ʻōlelo aʻo.
💬 Comments (0)
ʻAʻohe manaʻo i kau ʻia. Hoʻohui i kāu manaʻo ma ʻaneʻi no ka manawa mua.
Hoʻohui i kāu manaʻo